In a past video, I interviewed my sister Ellie. Now it's time to meet my mom. Follow me / clairityproject / clairityproject / clairityproject / clairityproject clairityproject.com
I have CF and its hard. Right now im 13 and I know im going to die. my parents always tell me im going to be fine just I may not like as long. im so glad I found her videos. it helps. but im gonna die. I accept it
I would just like to think that they were watching this on their phone and meant to put the like button but tripped over a rock or a mushroom and hit the unlike button by accident then got distracted and forgot to take it back. :)
Why even focus on it? The ratio of dislikes to like one of the lowest I've seen on any video with this many views. Be happy that there are so many awesome people out there :)
smarticalfacts 16 I think these two buttons are often misunderstood. By clicking Like you are Adding to your Liked Videos. Well perhaps you dont want to do that because its really sad so you press the dislike. You Tube need to change these buttons to 'Give these people a thumbs up" or "This made me feel sad" etc as on Facebook emoticon buttons. What do you think about it?
Thank you so much for this. My daughter died from cf in 1992 when she was 12. She was born in 1980 before the cf gene was found and before the vest and vitamins and everything. But I wanted to say that thought I watch other cf youtubers, they never have their parents on to ask them how they felt when they found out their child had cf. At the time we found out about our first born daughter, Katrina she was 3 1/2 years old. She started complaining of stomaches and we had her at children's hospital every night for 2 weeks. They kept telling me nothing was wrong with her and that she might being complaining to me to get attention. We were at our wits end to say the least. Then my mom said Katrina was having symptoms of cf. Back in the 60's my mom's friend's daughter died from cf. And, it was at this same time that the book Alex had just come out so I was reading that and I was sure our Katrina had the disease. So I called my pediatrician to say I wanted her tested and he said he did not believe she had it because she was always so healthy, but lo and behold she came out positive. We were devastated to say the least. At that time we only had the library and there we no information about cf. The only thing we could find was that Jimmy the Greek (he was a sports guy) had five children that died from cf. And the cf foundation send us information that gave us no hope. No one else in the family had cf that we knew of. My mother in law actually accused me of giving the disease to my daughter even though we told her her son was a carrier, too. Later, we had them tested and it turns out my husband's father is a carrier. Anyway, when you mom is talking about finding out about you having cf...I'm right there with her. It's terrifying finding out that news of your brand new child. I feel every word she is saying. I cradled Katrina and cried and cried. The poor girl probably thought I was crazy, but my heart broke so bad. And living with the idea that she was gonna have a short life; the doctors giving us no hope at all. Again, thanks to your mom.
+Green House Homestead I'm so sorry for your loss, my close friend who was also named Katrina, died a year ago Jan 7th because of congestive heart failure, she was only 23. :(
Green House Homestead im sorry for your loss but now she is no longer suffering and now she a beautiful angel in heaven watching over you and you wonderful family R.I.P 💗😇😇
My uncle had cystic fibrosis as well, you two are very alike in many ways. He was very kind hearted. I just found your videos and you seem so genuinely nice and an overall real person. I want you to know that you're special and to keep living in the moment. My uncle was supposed to die at 5, but lived until he was 42. Keep fighting, girl!☺️
My uncle made it to 43, and they didn't even think he would survive infancy. The CF Foundation even made him the CF Poster Boy one year. Sadly, I never got to meet him, but when I went through my grandparents' things after they passed, I saw all the articles they kept from that time and some of his things. So you are right, there is always hope
Parent here. My son is 10 now. Its been hard. Its difficult, frustrating, time consuming etc. we try living in the moment and enjoy the good things. In between the hardships. Acceptance is still hard even after 10 years.... Thanks for sharing
I see so many parents, patients, and friends of patients comment on her videos and I just wish I could be there for every singe one. I can't say everything will be okay but I hope your son is well and continues to be for years to come, never forget to be thankful and hold on to the little moments
Wow the bond you two have is so unreal and it is just so touching to watch! You both are very inspiring yet comedic with the way you talk - great qualities :) when your mom said about how she thought "I have so many things I still want to say to her" when you were in a coma, it hit me deep! I felt the same about my dad when he passed away, and then when my mom was in a coma and passed away I thought the same things again - I really didn't learn the first time that I need to always speak my thoughts to my loved ones NOW because this moment may be all we have. Your mom realizing that and then doing it is really admirable!! And to anyone reading this - don't let time pass by, spend time & share your feelings with your loved ones ❤️
I've just found your videos and you are truly amazing and inspiring, you have such an amazing energy about you and you are so smiley!! 😊. Your videos are so good and your hilarious!💖
You are such a beautiful person and you are so funny! Like seriously, you need to become a stand up comedian or something. Your personality is uplifting and one of a kind! I'm sorry that you have to struggle with a chronic illness :( God bless you and your family! Keep making videos!
Ok I'm bawling at work. Gosh you are inspiring. I love your mom. What a great family and heartbreaking that someone with such a good spirit like yours has to go through all of this. You are changing the world though.
This video was so needed! Thank you for giving us more incite into the caregiver side, and Claire we're always happy to see videos from you and wishing you well. Sending you love! Thanks for sharing your light :)
Desi Rae my mom passed 6yrs ago and this made me miss her increaadibly. they look like they have a fabulous relationship. I miss that so so so much with my mom. she was and still is the best friend I ever had. I'd like to say it gets easier, unfortunately that's not the case (for me anyway ), but I have learned to cope better. take care!
Your mom is awesome! I bet you have got to share so much more thanks to the CF. My mum(I am from England) has never really got over the death of my brother David. He was 21 and it was cancer, but I am sure he wouldn't have wanted mum to cry herself to sleep for ten years. If you get the chance let mom know you want her to move on when she can. On the plus side Claire, you can not experience your own death and as our universe has multiple histories, you will live to be an OAP. Just poor old mum will see you die in a lot of histories. Anyway your both amazing people, thanks for sharing your story
How have I just found out about this amazing young lady. You are so beautiful inside and out. I am dealing with losing the most important person in my life right now, she's still here but she is dying and I know your videos are going to be a huge source of comfort for me. Thank you.
This made me smile, laugh, cry, and love both of you so much - thank you so much for putting this up. You have such a beautiful relationship, and it brought such a smile to my face to see it so raw, humble, and gentle. God bless you both xxx
You have the most positive outlook on everything. I absolutely love listening to you speak. You're always happy and I love that and you are so beautiful just like your mom. I'm so happy I came across your channel. You're so inspiring. Thank you for that 😘.
Her mother, is a great mother....Claire got and still gets alot of strength from her. What a wonderful bond....you can see the love....prayers continue for a cure...lung diseases need research that steps up...and steps up quickly. Blessings....
Wow you two are warriors... It must be so hard to fight through a chronic illness together, always expecting death and not knowing what the future holds for sure. You both have a huge bond, it's beautiful. (Not related but your mom's necklace is eye catching!)
i just found her channel, can't stop watching, i want so much that she lives a really long life, i wish i could give her half of the whole life time i'm going to live so she can enjoy even more, and learn even more and spread more positivity like this
There seems to be so much trash on RU-vid but videos like this should be what RU-vid is all about, sharing experiences and growing as a result. Excellent and amazing channel and great videos, not just the content but also how you present it. Well done.
Both you and your mom are so cute! I can tell that you got your sense of humour from her (besides CF). Really hope you'll live the rest of your life as painlessly and happily as you can :')
You are both so beautiful, and so inspiring. It shouldn't take someone having an illness - none of us know how long we have - we ALL should appreciate every day and the beloved ones in our lives for the gifts that they are. Claire, I love your message and you are truly an inspiration:)
you are so inspiring, you make me smile so much, you are so charismatic, it is truly amazing to see someone who is struggling to live when most of us want to give up most days. Seeing your videos make me want to live and achieve greater things. Thank you so much for that. :D
I love seeing your family's point of views when u make these videos! It's really cool when they explain things you don't remember or don't tell. There story's are so funny 👌👌😂
Love you so much Claire!! :) You inspired me to create a youtube channel for my Cystic Fibrosis! I am excited to make videos and share them with the world! Thank you for being amazing!
Your such an amazing person with a big heart . Always looking in the bright side and living life so positive .You are my inspiration hope everything is well
Wow! You guys are really doing a good job for well, other people and their future with such strength and spirit of example. I think it brings us all together as a universal family or such. Keep up the great work as a family.
Merry Christmas beautiful! Hope 2016 is a great year for you. Have a great holiday, and can't wait for your next video, even though I don't have cf (but do have other chronic illnesses) I miss your smiling face and your chronic illness wisdom :-) From a fan all the way in New Zealand!
I love this, I can not even think, or know my baby could die any moment, I would have so much anxiety, wow living in the moment, was there own recourse great job, love this story, so powerful in so many ways
I hope a cure gets found soon! You deserve it. You are an amazing person. Keep doing what your doing. Your doing great! You seem like a really sweet girl and you are super down to earth. You are amazing.
I love that you all have not let this disease control you but instead you decided to live and love each other for as long as you can. Thank you for your honest souls!
Hello Claire! It is so nice to see you back with an all new video! I was quite worried for a while not seeing anything from you but you're back and you're ok!! I too live with a debilitating chronic illness, its called Secondary Progressive Multiple Sclerosis. I spend all of my days confined to my bed writing poems, making videos for my RU-vid Channel, hoping I can bring some kind of joy or hope to someone's life. You are a very big inspiration to me and I really enjoy your videos. You always bring a smile to my face and I would like to thank you for that. I do not have many things in my life to smile about, but I do try to keep myself thinking positive. Anyway, be as well as you can and I look forward to your next video! `Peace and Love, *The Message*
She has a amazing soul I love her so much and her mother if you are listening your daughter will have a long life ahead of her don't you worry please like if you also have all the hope in your heart
omg at the beginning when she leaned over and whispered "besides cf??" - i DIIIIIIIED - i had to pause it i laughed so hard. dude- you two are dark, and it's beautiful :D :D
Hey cyster! we also have CF! We have an older sister too. She also has CF. It gets tough sometimes for my mom since we all three have it. having CF is really tough and even scary sometimes but DONT GIVE UP! We will fight and conquer this together!
your so beautiful, both of you! your mum is a stunningly strong woman and so that must be where you get it from. every moment is a blessing. i think your just wonderful and you will be in my thoughts, clara aka Claire also lol from London xx
now i feel kind of shitty when i complain about little things i have when I'm sick or things i have on my face.. wow. thank you claire, for making me feel so grateful. you look more excited about life than me haha you definitely moved me :)
Omg we watched you in choir today with your breathless choir performance and I was like "hey that's Clair!" Anyways big fan I have cf to I love your channel your my role model please make more videos bc I love you
Firstly, my name is Melissa. And when she told you that you made eye contact while being wheeled in the hospital and it made her feel like you were telling her that it was going to be alright. Aw!!! Thinking of death. Your poor mom. I'm happy to see she really hasn't thought of an answer.
