MINDSET AND DISABILITY | Interabled Couple 

Hey Friends! We hope this video brings you some encouragement today as you face difficulties in life, whether disability related or not. Leave us a comment and say hi! And, if you have any questions for us, leave those too. Have a great day, and thank you for your support! 😊💗

I'll share your vids with my 28 year old Grandson John that had a horrific motorcycle accident in July '20. John learned to walk again, with rods in his back, pelvis, leg and arm, plus had 2 strokes, collapsed lung and heart repair. My son n law Bruce has had to take care of John and my daughter Angela that had double mastectomy from cancer in March '20. Thank-you for sharing your life. I love you in Christ. Hugs

Thank you both for this video! Having disabilities since 9yrs old has seriously made me the queen of negativity, pitty parties etc. I work hard DAILY and by my relationship w/God!

You two just get cuter with each video! This was awesome and I definitely took a few things away from this, so thanks very much for sharing. 😊❤️👏🏽

You two bring so much information, joy, love, etc. God Bless you both! I find that when I get in my pity party time, I almost have to force myself to either write in a gratitude journal or just think about all that I am grateful for. I’ll be honest, many times I just don’t want to do either one and I don’t. I am very guilty of isolating myself. One day at a time. 🤗

Thank you guys, I lately have been in a huge petty party is heartbreaking to see your beloved one struggling and also as a partner fear kicks in ❤️lovely video! Love how integrated you are to eachother.

Thank you for this video! It is awesome! I have Cerebral Palsy, I struggle with the negative mindset a lot. I didn’t need a wheelchair for 32 years but after some pretty significant falls and aging things changed. To explain it to family members is hard, for instance my dad told me the other day that because I am getting my first electric wheelchair and hopefully it’s the F5 VS. That I act like I have 1 foot in the grave. I told him I could see how you would see that but I promise you it’s not, I’m just advocating for myself. But I think people forget, is we are in charge of letting people know when things are changing within physical strength and abilities. However we also need to remember that we are in charge of our medical care as well. Anyway thanks for letting me vent a bit and again thanks for the video that’s good to see people actually explaining disabilities and being an inter-able couple as well. it’s encouraging to see. Have a wonderful day !

Totally relating to the isolating yourself thing! Really struggling with how people see me now. And the stress of going to places like bars and restaurants, thinking 'Oh my god everyone is gonna see me struggling to walk' or 'everyone is gonna talk about me' or 'no one is gonna find me remotely attractive' or 'why did my friends have to chose a bar That requires walking a mile to get to it!'

Howdy Howdy 👋 Tony and Jenny .. Thank you for sharing on posattive thinking I'm. bad on thinking negative 🙏😃Have a Wounderful day and fantastic week 💖😊

Love this, friends! One of my favorite books about the practice of gratitude is "One Thousand Gifts" by Ann Voskamp. So interesting how what God says in His word to do (in everything give thanks I Thess 5:18) now is "proven" to be so helpful to do by modern Neurobiology. No shock there. Love all these problem solving ideas too. By the way, you will be happy to know, Jenny, I listened to most of this while cleaning up my kitchen😘 Also, Vern says, " Man! Does Tony have a radio voice!" 💗💗💗

My husband has had FSHD for many years and he has the best attitude!!! We have been married 45 years. He has never been in pain until the last couple of years. But now he is in extreme pain and it is really getting hard. It is so hard to watch him suffer😓

I found this channel from your other channel. I am currently recovering from hand and elbow surgery so there are things that I am unable to do. I get frustrated at what I can't do so this video was perfect for me. Thank you for telling me what can help me.

Thank you so much ! I'm a young disabled wheelchair mom, my kids are 6 yrs to 7 months. And its hard to just go and do what others parents do. Like going for walks or out in the yard. It just takes so much more effort.. by the time I'm half way through I'm exhausted, mentally and physically. Ps. I have muscular Dystrophy too. I have charcot Marie tooth 1a. I created my channel to show we are just the same as able beings, and just our journey as our family ❤

I just found your channel. Thank you for sharing so much of your life.

I love the advice sbout fpcussing on problem solving!! My best hack: so I live on my own and I worry a lot about falling over because it's hard to get back up. One time I fell, and was looking around for ways to get back up. I remembered I had a plug in self inflating guest bed. So I shuffled to the cupboard, got it out, lay on it and plugged it in. It worked!! It inflated to full height with me on it! Enabling me to sit up and stand up. We don't give ourselves enough credit for the problems we solve everyday!!!

I was dxed with FSHD 30 years ago.I had a 3 day pity party & never again, as it did not resolve anything. I had a very active lifestyle. I was going along, getting appliances as needed. I was dxed as a FSHD 2, 7 years ago. After all is said & done, my legs will no longer support me. I am now bedbound. I have the best aides. Not having a pity party, but the anger is a palpable being. Busy making lemonade, offering everyone to bring their favorite alcohol to add. I am urging my friends to kick a wall, but remember to wear their steel-toed boots so they do not break a toe/foot.

You are both strong and I admire Tony for his inventions he is a person who does the best with his disability’s sorry I make a lot of faults in my writing English is not my mother language I hope you understand me it’s so great what you do both ❤️🌹

Hello from Indiana. Loving the videos. I also have FSHD (T-1). I have been struggling with the progression and currently dealing with a shattered femur that has not healed. I'm working on trying to just get a grasp once again and gain control of my worth with my spouse and step-kids. Thank you again

Hi Jen & Tony, Great Topic ! Jen, My mindset is more like Tony's but it wasn't always that way. A few things you mentioned reminded me of my own life journey years ago. Here are a few perspectives that I've come to adopt that have lowered my stress immensely. I am often complimented on my patience related to events in life and behavior of others. Think about this Jen: Have you ever noticed a person who seems to have everything and is never happy and another person who seems to have very little yet loves life? Have you ever wondered what motivates their behavior? I believe it's appreciation for what you do or don't have. Or even better, being content in where you are in life. Don't misunderstand me. I don't mean you shouldn't have life goals. I'm talking about being happy and content at any given point or moment during the journey in your life. The is my view: Life is about Learning and growing as a person. Life is about personally growing inside and doing your best to accept and love others as they are. I try remind myself, especially when things seem to be going less than ideal, that everything that happens in life is a lesson that we can learn from and become a better person from. I have gotten away from viewing things as bad but rather as challenges that I need to face. ...Challenges that I grow from. From that point of view, I am much more relaxed and happier. Anything else I can add, You can probably observe by watching Tony. Disabled people streamline everything. There's no time or energy to waste on anything. Best Wishes !

I think I could go head to head with you on the pity party and negativity queen title. I 16:30 was diagnosed with Parkinson’s disease in 2020. I’m 65 and have been with my husband for 37 years, 35 of them married. He’s decided he wants out and wants a divorce. I have no idea how to move forward, much less do it with positivity. The way you two work together is awesome

Gosh you're amazing maybe you can have those inventions created for many they sound great xx

Waoh. At a K subs. Let's keep going guys. Share share. Subscribe etc. Much love from Kenya.

I loved your video! very interested in the pants puller upper, the struggle is real :). The glove is genius, I've often wished they made a brace that would extend the fingers, it seems like it would give us much more hand mobility. I assume you have the same thing, I can still grip and close them but opening them is impossible. I'd like to be able to wave to someone without looking like I'm shaking my fist at them. :)

They sound awesome 👌 and you both are such an inspiration ❤ xxx I think for me the negatives always creep in sometimes on bad days i feel like a burden to my partner and this has a knock on effect on behaviour, have any of you guys experienced this at all ? Xx lots of love and prayers Maryellen 🙏❤🏴󠁧󠁢󠁳󠁣󠁴󠁿

Hi jen and Tony

You two are such a beautiful couple. I can see the love when you look at each other. As someone with anxiety I often have a pity party so found this really helpful. Science can give us the what and how but only God can give us the why. Just not always when we want it. 🙏🏻❤️