Talking about chronic long term shoulder pain with multiple sclerosis. Waiting for my MRI appointment which is now scheduled in for Saturday 26th in Cardiff. Since doing this video I have seen both referral letters from my MS team and my GP which suggest rotary cuff pathology (a common issue in degenerative diseases) I will update as soon as I get my results.
Hi, I've had this problem for years, it's just like your, a constant pain that goes into different levels of discomfort. My PT starting taping my shoulder and it help over time, giving the muscles chance to heal. And she was doing myofascial release which helped, just took a long time, over a year. also had an xray before, and came back with wear on my shoulder. The pain is bad and I agree with you it's hard to explain. Glad your talking about it because no one was believing me that it was MS. I was also diagnosed with brain tumour cancer on my cerebellum when I was being diagnosed with MS. Also I took CBG/CBD, cold therapy works well, and celebrex. The pain levels now it alot better for me, still yhere but aloy better. Hope you find something too help.
Thank you for sharing, sorry that you also went through something similar. The pain from this is horrendous! I think that whilst this may not directly be a 'MS' issue, I do think that diseases like MS can increase the risk of getting shoulder problems - but why I don't know? When you start reading up on MS and Shoulder issues there are actually quite a few links. I had my MRI on Saturday, all went well so the first part of the journey is done, Wednesday I get the results so I will share everything as I go. Take care and thanks again for sharing what worked for you 🧡
Hi Laura, I had exact same back in 2017 pain was horrendous, tried everything and ended up having to get my shoulder manipulated under sedation but took months before physio referred me for it. Fingers crossed crossed for you.
Hi Laura, Finally someone else has this problem. I have ms and have had chronic shoulder pain on and off. I mentioned it to the Ms therapy clinic I go to and they had not come across this. You seem to have a good set up with various avenues you can try. I do oxygen therapy once a week and do not know if has an effect but things seem ok at the moment. Good luck and please keep us informed because you help us all.
Hi Chris, oh so you experience this too? Interesting 🤔. Actually, yesterday I googled it and it does seem that others go through the same thing - interesting link here: forum.mssociety.org.uk/t/shoulder-pain/30592/10 Maybe the next time you see your team you could mention it? Yes, I'm lucky in the fact that I have some very helpful and knowledgeable people around me, my physio therapist Maggie has been my god send. She has actually mentioned oxygen therapy to me too so I'm currently looking into this as well as it's based about an hour away. Thanks very much and yes I will keep you updated.
I don't have ms but I have hypermobility syndrome so my right shoulder can dislocate which is excruciating! I feel for you, mine gets worse in cold weather and trying to was my hair can make it really bad. When it gets like that the pain takes my breath away, i ve learnt to go straight to bed, lie on my left side and have pernaton gel rubbed into and isolate it in a makeshift sling and put a hot water bottle on it and concentrate on breathing. After about 2/3 hours I can get up as long as I keep it in the sling and keep it warm. Usually it corrects itself after 1 to 3 days but it is a nightmare! The heat and the sling help to relax it and glide it back to the alignment it needs to be at. Don't know if any of this helps you and your condition but you have my sympathies 🤗💖
Oh bless you Laura! Hoping it can ease for you soon. Doesn’t sound fun at all, especially with two fluffs to walk! So strange the way the body handles grief. I struggled so much with my symptoms at the end of last year and couldn’t seem to do anything to help ease them, and I’m sure it was my body grieving for the boys! X
Thank you sweetie, you are right about walking the fluffs! Although I've found this fantastic waist walker! I'm sure you did, they do say grief causes all sorts of strange symptoms for the body and the boys were a huge loss 💔🐶🐶. Hope you're well. Thanks for your message ❤️
Hi Laura. Wow, I can’t believe that what you have been experiencing with the pain in your shoulder, I have also been struggling with the exact same issues. I have had MS since it was 21 and I’m now 62, and I’ve never felt the pain I have now in my right shoulder. I thought it was because of a number of issues I have with with my joints but now that I think about it, I had an MS attack years ago in my neck and left shoulder and arm which was caused by my MS, and the pain with that was very similar to what I’m experiencing now. With the pain in my left shoulder I haven’t been able to sleep at night with the pain, like you I can’t use a hairbrush properly, I can’t lift my arm above my head, and at times I want to rip my arm off to get away from the pain. The problem is, is that it is so debilitating I’m getting angry at myself and those around me, as I just can’t get away from the pain. I complained so much to my doctor that he put me on Tramadol 150mg twice a day and that seems to be keeping it mildly at bay. I also had a cortisone injection into the joint which reduces the inflammation somewhat and sort of reduces the pain a bit. You might need stronger pain medication and I also get those electro things that you’re having and that helps for a couple of hours after. I’m also waiting on an MRI to be done by my MS team in the hospital, but, like you are experiencing, the waiting times are horrendous. I’m in Australia which is fairly similar, medical wise, to the UK. Also, in the past I’ve been prescribed steroids for an MS flair. You might want to talk to your MS team or your doctor to prescribe steroids to help calm the inflammation in the shoulder and joint. I wish you so much success with your treatment and I do so hope that your pain subsides and you get to the bottom of the reasons why it is happening. Lots of love, Shelley in Australia 🙏👍🥰
Hi Shelly, thanks so much for taking the time to write this, when I was reading it I was feeling your pain and I have a very good idea of what you were /are going through. I really understood what you said when you wanted to rip your arm off as I feel exactly like that at the moment! No arm feels that it might be a better option than the pain I'm currently experiencing and that's how bad it is. I'm also feeling tetchy, but that's all just part and parcel of constant pain so don't feel bad about that, people who know you should understand and just want to support you. So you were prescribed tramadol and you've had a cortisone injection and that seems to give some relief? Unfortunately I don't do well on tramadol which is why I think they tried naproxen, but that offered no relief at all. I'd like to have the option to go on steroids as I'm absolutely sure that whatever this is it's inflammatory related (to my MS) but the specialists are suggesting it's rotary cuff or possible frozen shoulder and they don't think it's MS so are not treating it as such, I haven't been seen by my MS team since June 24 and haven't had a regular MRI brain scan in almost 2 years. I'm so sorry that you have had to experience this too, it's awfully debilitating and really drags you down. A friend of mine sent me a really interesting link to some treatment he had on something similar, I will see if he can try to repost it on here as RU-vid deleted it because of the link. I'm sure it will help many. I have just called for my results but I don't get them until 8pm today. I will be sure to post the update as who knows this might well help others out there who are going through something similar. Thanks again, look after yourself 🧡
HELLO BEAUTIFUL!!! I'm glad you're back, but it sucks that you're having issues with shoulder pain. I hope that you get that sorted out. That damn MS gets so frustrating and almost funny at the same time when issues arise. All we can do is say, "Here we go again, I've been here before." It's kind of funny that you come back and post a video and I get a MRI tomorrow. 🤞 Thank you for the video Laura. Stay well. 🙏😘
Hello 😊👋 Yep, here we go again!!! What a coincidence.. Very good luck with your MRI today 🤞 I hope all is well with you MS and health wise. Hopefully the next time I'm back on I'll have a resolution for this shoulder 💪👊. Stay well 🐶
Hiya here is some information for you. i had this problem 4 years ago and found out that it was a tare around the cuff, so therefore i had a injection in the joint which replaced the fluid which was lost due to the ware and tare and if you have the same you will go to a specialist, Now we can have the same symptoms but it can be something entirely different. i do wish you all the best with your recovery... i still have my paperwork from the clinic i went too and i had to go to nottingham for it and can see your in wales so you will get the correct treatment. ill message you with the paperwork later today, one question aswell for you, do you have jaw pain related to tmj because i have that aswell and thought it was all linked but luckily enough it is a seperate issue GOODLUCK
Hi, thank you. Sorry you had to experience pain too. No I don't have any pain in my jaw, but what I have noticed is that the pain is transferring to my right shoulder too.
I’ve gone through this three times now. They called it a frozen shoulder, gave me a cortisone shot in the shoulder and I have physical therapy. I’ve often wondered if this is really related to my MS though 🤔
Three times, I feel for you. Yes, it suggests that people with MS are at higher risk of developing both frozen shoulder and rotary cuff so it seems. Do the cortisone shots help? as I think in my mind this will be my next step
