Multiple Sclerosis and that burning feeling...

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Do you know how random places in you body can feel like they're on fire out of nowhere when you have Multiple Sclerosis? Well, my neuropathic shoulder pain has now evolved into an intense burning feeling! Have you experienced that before??
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What is Multiple Sclerosis ❓
Multiple sclerosis (MS) is a potentially disabling disease of the brain and spinal cord (central nervous system). In MS, the immune system attacks the protective sheath (myelin) that covers nerve fibers and causes communication problems between your brain and the rest of your body. Eventually, the disease can cause permanent damage or deterioration of the nerves. Signs and symptoms of MS vary widely and depend on the amount of nerve damage and which nerves are affected. Some people with severe MS may lose the ability to walk independently or at all, while others may experience long periods of remission without any new symptoms. There's no cure for multiple sclerosis. However, treatments can help speed recovery from attacks, modify the course of the disease, and manage symptoms.
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My channel is in no way supposed to provide medical advice or guidance and I do not claim any medical knowledge of Multiple Sclerosis. I merely discuss MS-related topics from a patient's point of view. If you have a serious medical condition, please consult your medical practitioner immediately. By using this channel you do so at your own risk. "Life of Seb" RU-vid channel accepts no liability in part or in full for any damages or injury caused by the use of any content provided.
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Опубликовано:

5 окт 2024

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Комментарии : 130

@shanehughes3511 3 года назад

Its still unknown what my neurological issues are.. But yes. This is relatable. I feel so much more my self at times when not wearing clothes. Burning and a feeling of tension in the same area. Even a T shirt will upset it. In bed I have to keep turning over as it feels like im laying on a warm stone pressing into an area. But this comes and then goes again quickly. You're lucky to have partners to help you. Also you look incredible. Clearly you're looking after yourself working out and eating. I'm trying to work out. I recommended some deep massage therapy even if its hurts a little it can help a day or two later (for me) and stretching really hard the limb etc that's the source of the problem. I find it can release for a while the neuropathic pain or burning. Perhaps relaxing or releasing nerves that are firing due to damage.

@Truerealism747 Год назад

How are you now

@tominnc315 Месяц назад

I have very similar issues. Burning feet legs & some arms….. i firmly believe it has psychological roots. Its not tissue damage. It anxiety worry fear ptsd cptsd trauma betrayal trauma medical trauma

@lw5682 3 года назад

Hi Seb, I have had that feeling too. Patches of skin painful to touch, kinda feels like a bad sunburn. I didnt pursue any treatment for it, I just wait it out. Such is life for someone with MS! Take care ❤

@DoorDashers791 3 года назад

Burning sensations all day and night. Neurologist said never heard of it. Unbelievable

@DapperStreetTV 3 года назад

What???!!!!! Unbelievable 😳

@shawnmcanthony5724 2 года назад

This is a clear symtom of ms. Is he or she really a neurologist?🤔

@DoorDashers791 2 года назад

Yeah new neurologist unbelieveable I also got diagnosed with tuberculosis

@Truerealism747 Год назад

@@shawnmcanthony5724 I've got it then it throbs I've been checked MRI mother has severe ms neurologist says central sentization

@LifeofSebMS Год назад

That is unbelievable! Burning is a common symptom of ms… ask for a different neurologist asap!!

@adrianadrennan6311 3 года назад

Oh no. I'm so sorry to hear that. I hope that this symptom stops soon. Please take care okay.

@billysmith7108 3 года назад

I'm experiencing that right now listening to your video. If i touch the back of my neck or shoulder it sends a pins and needles with a burning sensation through the left side of my body. I now know after seeing your video it's the MS. Thank you!

@LifeofSebMS 2 года назад

Oh wow, hope it’s gone now! 💪🏻🧡

@uthpalalakmini7688 11 месяцев назад

What is MS

@AJHR77 3 года назад

Yes,I have heard of it but have yet to experience it.Sending you strength and light to these answers. I do have other neuro pain like itching,hug,shortness of breath,tingling/prickly pain and things feeling heavy when I pick them up.

@ChooseHope 9 месяцев назад

Years ago I had the same thing over my left shoulder and upper left side of my chest. My doc didn’t know what it could be. He said it sounded like shingles but I did not have any rash or any visible sign of any problem. It lasted several weeks. It was painful to wear clothes and forget about a bra. lol. I’ve since had the burning sensation on and off through the years, on the back of my thighs, top of my right thigh and left lower leg and foot. I have an MRI scheduled in 2 weeks. I know what it will show. 20 years of strange symptoms are starting to make sense now. Thank you for your video, it is one more piece to my puzzle.

@LifeofSebMS 9 месяцев назад

I hope you get some answers soon! 🙏🏻🧡

@abotello8320 3 года назад

I get the shoulder burn every now and then, its so annoying lol great topic seb!👍

@LifeofSebMS 3 года назад

Thanks!!

@yvonnemariedonaghey5557 Год назад

Thank you, this makes sense to me. I never sleep naked, never. Lately I have been waking up and taking my clothes off due to the friction burn sensations. You're lucky to have a partner and a neurologist. I live in the UK, accessing a neurology team is beyond impossible if a gp doesn't see fit to refer.

@Truerealism747 Год назад

How are you now

@LifeofSebMS Год назад

Sorry to hear that Yvonne. Did it not get better with time? Or is it a permanent symptom? Mine come and go…

@Truerealism747 Год назад

Can be anxiety to though

@yvonnemariedonaghey5557 Год назад

@Tom Sale indeed I have that! Thank you for your concern. I'm going around self diagnosing myself here. I have some unusual new symptoms and old going on. Covid hit hard so accessing appointments are difficult for me. Anyway I will most certainly push my concerns with a doctor. I feel fatigued all of the time and my legs are constantly numb including my fingers.

@yvonnemariedonaghey5557 Год назад

@Life of Seb Hi, I have some new symptoms that sway me to believe I have MS. 20 years ago I used to stand up and fall over, was no big deal being young and in my 20s, I would laugh it off. In my thirties I started to collapse and would go to a and e where I would be told its siatica. I do have pinched nerve problems in my neck and those have always been an issue. So I am fine with being told this and cont through my life. I'm now 39 and my legs seriously are drunk. When I stand up without support I walk backwards. I have constant cramps and numbness in my limbs. I have other health problems which I have managed but I have been struggling recently physically. Just walking to the shops feels like I've been on a treadmill at the gym. Thank you so much for your concern and I do hope you're OK. This video helped me so much to understand MS. I have a friend with MS so even if I don't have it then I'm learning more about how she struggles and what she overcomes daily. I can only hope the Dr's help me to figure out why my legs don't work anymore 🤣🙃

@DavidBaronStevensPersonal Год назад

My hands and feet will often get red and swollen, extremely sensitive and with radiate heat This is often accompanied by some cognitive symptoms and tells me that I need to take some anti-inflammatory and lie down. Cold showers or just dunking my hand or feet in cold water helps a bit

@LifeofSebMS Год назад

Thanks for the tip 😊🧡

@skrotteable 3 года назад

i had it under my feet 2 years ago and it was awful. That and so the pain in my leg is some of the worst I have experienced with MS. a relief that it is gone again. kram herfra, håber dit forsvinder igen

@ergar90 Год назад

I get this symptom from time to time, lasting anywhere from a few hours to a few days. It feels like the worlds worst sunburn and even a fan blowing on my skin hurts. I'm not diagnosed with MS though, I was told my experience was due to anxiety. Hope it gets better soon.

@LifeofSebMS Год назад

Hey Ella, thanks for sharing 🙏🏻🧡 have you tried to get a second opinion?

@SullenGirl1984 Год назад

I have this going on. It's so bad

@lizhendrix1616 3 года назад

The pain I have is the same as your shoulder blades back neck and yes the burning and nobody knows what I'm talking about when I say oh my back burns. like it burns in the same area as as my pain, is also extreme itching at times. like it seems to like a pattern like burning then itching last a long time and you can swear it feels like you can feel the heat radiating off of my skin, other people have said they felt it too. it's probably one of the worst symptoms I have , I mean I just can't take it. I can take the foot drop I can take the back pain, I just can't take that burning and stress makes it act up and burn even worse.

@jon-kl9mk 3 года назад

What kind of Dr are you going to? Have you been diagnose with ms?

@LifeofSebMS 2 года назад

Ugh that sounds unpleasant. I hope you find ways to make it better 🙏🏻

@pamelaolson5614 Год назад

I recently started feeling like I have a sunburn under my left arm when it's rubbed it hurts. I better get that checked.

@LifeofSebMS Год назад

Please do! 🙏🏻🧡

@andreawheatley5528 2 года назад

We MSer’s, are never understood! I was told that generally we all have fibromyalgia, it goes hand in hand with MS according to my Rheumatologist. They have banned Gabapentin in Southeast Michigan.

@andreawheatley5528 Год назад

My doctor finally gave mine back

@andreawheatley5528 Год назад

I'm in Romulus, by the airport

@jon-kl9mk 3 года назад

I been have burning sensation for almost one month in my left leg & arm but no trouble with wearing clothes. Now i been having muscle tightness in my legs. MS sucks! Good luck!!

@LifeofSebMS 2 года назад

It does! Stay strong 💪🏻

@marylandviking74 Год назад

Thank you for the video, it really helped in my diagnosis.

@LifeofSebMS Год назад

🧡🙏🏻

@marylincoln5857 Год назад

I have Had This Burning Pain Off and On For Years, I am now having it in my right arm.. I have had it on left side of my face off on since I was In teens.. it is so darn Annoying and painful, It's Called Neuralgia

@LifeofSebMS Год назад

😞🧡

@ArtemKonstantinovich 3 года назад

My MS does some weird stuff sometimes, but it goes away after a month or a few weeks or even days and everything goes back to normal...ish. Like a year ago all of a sudden I had a feeling like my right foot was wet. I checked my shoe and my sock, they were completely dry. But I still had that feeling of wetness for a month or so, sometimes it would disappear for a bit during the day. Weird MS stuff.

@LifeofSebMS 3 года назад

Crazy stuff! Yeah, a month is more or less the time it would take for new symptoms to remit in RRMS...

@Dabber422 4 месяца назад

I walk around my house topless. I have chronic pain and was told fibromyalgia? Everything you are saying I have lived with since I was really young.

@johncullers Год назад

100% the same burning and pain drives me crazy

@LifeofSebMS Год назад

😞🧡

@aryorahendra2025 7 месяцев назад

Hi seb, how are you? I experience burning sensations too, but only when I lie down. I feel it in my whole back, back of my head and feet too, but it’s not present when I sleep on my side. I have pain sitting down as well, especially on hard chairs. It’s been really puzzling what my condition is and I am on a break from school and work because of this. I hope to recover really soon ….

@rajashreesingh3803 3 месяца назад

Now how are you feeling?

@rajashreesingh3803 3 месяца назад

Now how are you feeling?

@TINSAY888567 7 месяцев назад

Wondering if your burning sensations are persistent or come and go? I have burning in my back and neck as well into my legs. It feels like a very bad sunburn.

@mzlebanon23 11 месяцев назад

I get this too in arms and legs I'm tired

@LifeofSebMS 11 месяцев назад

🙏🏻🧡

@thepipreaper8466 Год назад

Going through that now

@LifeofSebMS Год назад

😞🧡

@Scrubbini 3 года назад

Hello, Seb! How are you? I wanted to ask you, whether you were still able to walk....I am nearly 31 and wheelchair-bound...

@ArtemKonstantinovich 3 года назад

Hey. Sorry to hear that. May I ask you if you do anything about your diet? Have you heard of the Wahls Protocol? Or the Best Bet diet? I know that the author of The Wahls Protocol Terry Wahls was wheelchair-bound, but as she claims a special diet helped her to walk again. I was skeptical about diets and all that, but I actually did follow it somewhat, not 100%, and I can tell you that some of the symptoms disappeared. So good diet is helpful to me. If I eat something I shouldn't be eating, like a hot dog or a big slice of cake, I feel more fatigue, I get brain fog. So I experimented enough to know that certain foods do make me feel more "MSy". I know that MS has different affects on different people, but if you haven't tried it, you should.

@LifeofSebMS 3 года назад

Hey Scrubbini, I’m so sorry to hear that! How long have you been diagnosed? What treatment are you on? Walking can be a bit hard sometimes for me, but I usually manage with a cane... stay strong buddy!

@Scrubbini 3 года назад

@@LifeofSebMS I've been diagnosed 2007, but I experienced my first symptoms in 2002, when I was 12... Thanks for the reply! Tight hugs, my friend.

@LifeofSebMS 3 года назад

All the best, brother ❤️🤗

@bka2810 3 года назад

Hey Seb if you don’t mind me asking. Have you had any treatments? Like chemo

@houssamally 3 года назад

Get well 🙂

@matarazzo209 Год назад

I feel burning sensation in my feet specially with the white bed sheets touching my feet and seems to be every summer

@LifeofSebMS Год назад

Sorry to hear 😕🧡

@simonthackeray8975 3 года назад

Hey hi, new to This on here but it’s just struck me ( I have rrms) but the shoulder neck pain I’ve had that a few weeks ago, also the burning is very bad on my left foot, had drop foot on my right that optic neurosis spasms, I never thought the should blade and neck was ms related all I can say is it’s like a ball moving around the blade to the shoulder then the neck I’ve had that for many many years. I’ve never told my ms nurse as I didn’t honestly think it was related. I now have to now use a cane too.

@LifeofSebMS 3 года назад

My neurologist said it was highly unusual to get symptoms there, but I’ve done all sorts of tests and scans and nothing can explain this gut-wrenching pain, so I can only believe that it’s the ms 🤷🏼‍♂️

@jon-kl9mk 3 года назад

Neck & shoulder pain is common in cervical ms.

@westsidekasper4860 2 года назад

@@jon-kl9mk why u call it cervical ms

@Truerealism747 Год назад

@@LifeofSebMS it can be TMS I've got it there 24)7 check out Dr schubiner

@sutharganesh2798 2 года назад

Love your 'ahinsa' tattoo written in hindi . Hii from india

@AuntTooters 3 года назад

Hi Seb! Rick here. I sometimes get strange sensations too. Lately I've had extreme itching problems. I mean serious itching. My shoulders, arms and lower part of my back have been itching to the point of making part of my arm and back bleed. My neurologist says this is likely MS related but has sent me for a blood test and then to a dermatologist. I need to have this under control before my next Ocrevus infusion in 2 weeks. Not wearing a shirt does help, but is a bit uncomfortable, considering it's January.

@LifeofSebMS 3 года назад

Hey Rick! Haha yeah, given the current temperatures I am forced to have the heating on at all times... it also helps with my stiff legs and arms. Not proud of how I’m hurting the environment, but darn it, I can’t function otherwise...

@NaturallyMariaB Год назад

I get it really bad on my hands and in the middle of my breast. It's so uncomfortable. I hate it.

@LifeofSebMS Год назад

Ouch 😞🧡

@klarastepankova9757 9 месяцев назад

Hello,Is that burning feeling serious flare -up that destroys myelin in my brain and is needed instant medication (Solumedrol) infusion in the hospital? or is that only a common symptom that is just goes with this kind of disease and it do not affect myelin in the brain and it goes away after a while ? I am dealing with this. I am so worried.My neurologist do not know much about this. Somebody please help.So happy for any answer.

@LifeofSebMS 9 месяцев назад

I actually never found out what this was 🤷🏼‍♂️🧡

@Itsme1. 3 месяца назад

i just had a new relapse i couldn’t feel my face on the left side, i took steroids 3 days and i almost start feeling better but suddenly now I’m feeling this burning sensation I don’t know because it’s only 3 weeks since i took steroids and now i’m feeling this burning sensation on the same part of my face 😢

@kristinas5714 Год назад

Does anyone have bribing itching hot sensations on the face? If so what would help with this!????

@LifeofSebMS Год назад

No, i don’t! Though what comes to mind is using ice to calm just like I do whenever I get a ghost itch somewhere else 🙏🏻🧡

@baronghede2365 9 месяцев назад

You should use Herb's like turmeric, Asian gensing and ginger, try the Mediterranean diet, speak to a chiropractor and drink green tea, Blessed Be.

@LifeofSebMS 9 месяцев назад

🙏🏻🧡

@surindersian7476 Год назад

Hi All, I started having this burning feeling 10yrs ago , started as small patch on left front lower ribs area and now this burning is on my right side on my rib area, THIS burning is there since ten yrs . But it has stopped where it had stated

@LifeofSebMS Год назад

Sound awful 😟🧡

@leaveittolefty 5 месяцев назад

is it shingles?

@andreawheatley5528 2 года назад

I have that awful burning pain from the neck to the shoulder blade, nothing helps and I’m allergic to Lyrica, even at it’s lowest dose, my body swells profuselly

@lenorechew4613 Год назад

What did you do to relief the pain?

@andreawheatley5528 Год назад

@@lenorechew4613 Gabapentin, and edibles

@Donan95 2 года назад

Having this issue rn on my thigh above my knee. I've had spasms and muscle pulls the last week. Now the burning sensation is there but i just hope it won't be everywhere cus i had muscle pull, pain and spasms both legs and arms.

@LifeofSebMS 2 года назад

Hope it resolves soon! Give it a few weeks’ time 🧡🙏🏻

@Donan95 2 года назад

@@LifeofSebMS yeah. Think this has been going on for about 2 weeks now. I still don't get the diagnosis though. It's really taking some time to get the MRI etc. I have no doubt what I'm experiencing rn is MS. They just need to evaluate this so i get the right help. Thank you for your content. It's very helpful!

@LifeofSebMS 2 года назад

I’m so happy it helps!! Stay strong 💪🏻🧡

@SullenGirl1984 Год назад

I have this so bad. Its been all.over my chest and now all the way down my leg/ arm i cant stand anything to touch it. When cloth touches it it sucks. I need help but Dr just acts like its depression its so maddening

@LifeofSebMS Год назад

Oh that’s terrible 😞🧡

@chizobauchay2024 3 месяца назад

It is so awful in the sun

@sanazukaib4407 Год назад

hi ..i have a burning sensation in my eyes and head and sometimes whole body feels warm..and this problem come and reduced after 3 to 4 days .even i may face this problem twice in a month ..and can not do any thing😌

@LifeofSebMS Год назад

😞🧡

@ishratjahanchowdhury6188 Год назад

How is it now?

@LifeofSebMS Год назад

It went away 🙏🏻🧡

@shak1st Год назад

@@LifeofSebMS did it just go away automatically or did you have to take something to help?

@LifeofSebMS Год назад

It eventually went away on its own 🙏🏻🧡

@desmondjets9229 Год назад

@@LifeofSebMS how long did it take for it to go away? I am suffering right now😢

@LifeofSebMS Год назад

It went away after about two weeks 🙏🏻🧡

@sikefrikousike8695 3 года назад

Hey Seb, Inflammation always has a cause. The antinutrients in veggies and fruits could be your problem. Maybe it is worth it trying the carnivore diet for 30 to 90 days. There will be no antinutrients that could disturb you. Try it ... It helped many people with MS

@jamberry1135 2 года назад

Fruits and veggies reverse inflammation

@Truerealism747 Год назад

What are your symptoms.mune are all pain nowadays?

@LifeofSebMS Год назад

Pain in MS is unfortunately very common… 💪🏻🧡

@Truerealism747 Год назад

@@LifeofSebMS I have fybromyalgia my mum has ms severe all MRIs from ,2018 are clear obviously fear at what's going on

@LifeofSebMS Год назад

Stay strong and positive buddy 🙏🏻🧡

@Truerealism747 Год назад

@@LifeofSebMS yeah hard though isn't it thankyou I've started ldn 6 weeks

@skotatnite Год назад

I get burning feet

@LifeofSebMS Год назад

😞🧡

@johncullers Год назад

Started in my feet then leggs now all over

@LifeofSebMS Год назад

Omg that sounds terrible! I’m so sorry to hear that 😞🧡

@ghostaka7405 Год назад

Have u also auditory hallucinations + burning sensation ? Could it be an infection by bacteria under the skin without visible lesions? Could it be a dryness of the lower layers of the skin? Could it be a toxic agent in the blood that could disturb the normal functioning of the skin? What blood group are you? (im ab+) Do you also have this kind of sensations during meals and during digestion? Do you also have digestion problems and diarrhea sometimes and constipation other times Do you also have acid reflux? Do you also have seboreic dermatitis or eczema?

@LifeofSebMS Год назад

None of the above 😉

@Truerealism747 Год назад

Alot if ms is Lyme's unchecked

@LifeofSebMS Год назад

Really? That’s an interesting thought! 🙏🏻🧡

@Truerealism747 Год назад

@@LifeofSebMS yes my mom has severe ms father had CFS now ok.its also linked to hypomobility if you get bitten by a tick and your hypomobility the tick spores go into the lax muscles easier I have hypomobilty we all grew up in a farm.tryung to get testing Germany think there's only 3 places in the world for reliable testing there's a chap on RU-vid is ms was Lyme.get it checked incase are you in UK

@LifeofSebMS Год назад

🙏🏻🧡

@jamberry1135 2 года назад

Please eat plant based

@johncullers Год назад

I have the same thing. And crazy my sugar is high

@LifeofSebMS Год назад

😕