I understand your frustration, sweaty - I am also going through the same since 2016. I want you to know that you were not the fist one and will not be the last one who suffers from this disease. So you are not alone. Remember that you are still so BEAUTIFUL no matter what. Thank you for sharing this very personal subject with us. It takes a very strong person to be so vulnerable!
I got diagnosed a few weeks ago. Its attacking my scalp, eyebrow, and eyelashes. I am so insecure about it and it sucks because I wear the hijab so no one sees my scalp and i can fill in my eyebrow but my eyelashes are what make me confident and they are just falling. There isnt anything i can do to stop it and it is actually heartbreaking for this to happen my senior year of high school.
@@mishalkhan4096 In the same boat as you! I wear hijab too and its very hard for people to understand or realise that im going through it as its all covered. if you need someone to talk to my instagram is analopecianstory xx
I feel u miss😭😭 im so scared now cause this is actually my first time to have this. And the first time I've noticed this was like a very small spot and now it became bigger like a peso coin . I dont know what to do now im just scared 😭😭 i am praying I'd rather have a covid than this. I feel so fucked up.
ikr it hurts so much i used to cry everyday before sleeping thinking why am i the one who has to go through all of this but after watching this video im so relaxed
@@samarthlaad6320 hi my hair currently grew thick. I just use Aloederma Naturals Shampoo. You can buy it n Watsons. I also take collagen. This is my hair now. I also have a vlog about the shampoo I use when I discover I had alopecia. It almost got me completely bald. ru-vid.com/video/%D0%B2%D0%B8%D0%B4%D0%B5%D0%BE-1LrSsNbno7k.html
My daughter is experiencing it now, type 3. As her mum, I’m more worry than her....she is only 13. I’m crying more than her...I wish to shave all my hair to replace her pain....she has to face her classmates, and friends. Pray to God her hair can grow back...thank you for sharing your story.
Dear Sherry Hu, I will pray for you and your daughter! May she grow her hair back soon! There's nothing more heart breaking than mother's pain for her child. You have to be strong for your daughter, you will get through this! I will pray tonight for you! 🙏
Don't go for steroid injection they are bad .....go for natural remedy apply ginger plus onion juice ..... Yes do exercise n yoga it will really help .....n hydrate her a lot the hair will come back don't worry
Try BITTER APPLE fruit. Just apply the raw juice 3 to 4 times a day @ the infected area, and rinse your hair once a week with plane water, within 1 month you'll notice the change... I have the same problem but the magic fruit is giving good result..
My daughter too she is 9 years old she lost her eyebrows and eyelashes when she was 7 and she lost all her hair 3 months ago. It's very painful for all of us ☹
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I have had alopecia areata for 8 years now and in high school luckily I was confident enough to not care what anyone thought or knew about me I was very open about my condition so everyone just acted like it was fine because my alopecia is very visible but I'm so glad I didn't hide it - be open, be proud about who you are - we can get through this!!
Thank you this means spook much.. I'm 42 years old and just had my first round of alopecia and I'm feeling depress. However, swing all these videos and comments inspire me and I no longer feel alone.
@@nevergiveup7502 sorry to hear u are depressed, but if you are located in USA, CANADA , UK, IRELAND OR POLAND I CAN DEFINITELY HELP U WITH HAIR GROWTH. NO WIGS NO MEDICATION. ONLY A TREATMENT LINE: - SHAMPOO/CONDITIONER - SPRAY - HAIR OIL OUR PRODUCTS ARE HELPING THOUSANDS OUT THERE RIGHT NOW. U CAN SEE THE TESTIMONIALS. IF INTERESTED ...PLEASE DM ASAP ON INSTAGRAM(timing matters) ARIANA @business_hairskin
I’m 57 I have alopecia for 8-10 years I cry a lot, wearing weaves, hate going to the beauty salon because everyone is looking at me I spend a lot on wigs weaves to make me look good and get my self esteem back, but now I realize that I love myself and I don’t care what people say or think about me my kids love for the person that I I’m…. Thank you for sharing your journey with alopecia
I had alopecia 2 years ago! Ive been told stress can trigger it! So you not caring about losing your hair anymore is probably what helped your hair grow back!!
I'm going through a lot of emotional stress, due to alopecia. I've been feeling really down and depressed and your videos and those like yours have given me strength. I'm a guy and your stories is just like mine. I too have cried and felt sorry for myself I still struggle with not feeling adequate. Once again thanks for your video.
I too found that hearing other people's stories have given me strength and made me realize that I'm not alone! I hope you are better able to cope with your alopecia now.
@@nevergiveup7502 Since this video, I've lost a little more than 50% of my hair /: but yes, most of it is growing back now. Those hairs are about 2 inches long now. Oh no :( You don't have any regrowth at all?
Nevergiveup the more you stress the more hair you will lose! Eat healthy, sleep well, drink lots of water and be happy and ur hair will come back! Don’t let this fuck up ur life
Came across your video cuz my 2 yr old daughter is also going through alopecia. We shaved her hair completely bold in order to apply topical solutions better. None of my family nor my husband side has ever had this decease. Seeing your hair growing back makes me feel better. I hope one day you would walk out of this disease completely
For the first time, I'm starting to lose my hair to alopecia areata for 6 months now. I found my first spot on New years. Honestly finding ur video and ur willingness to share your story has helped me so much. I've been so scared for others to find out that i have bald spots and scared that people would judge me but ur confidence to be so open and honest has really inspired me! Thank u so much for sharing
@@lifewithmelissa2351 If you need help fighting Alopecia I can help you depending on ur location . If you are interested DM me on Instagram ARIANA @business_hairskin
I have it . Let no one make u feel bad at all. You are Beautiful. I am bald . I used to be so scared but now i walk with my head held up high. ALOPECIA DOESN'T OWN YOU BUT U OWN ALOPECIA. Ok so lost our hair .ok there are wigs weaves and more. People are going to judge us about anything who cares. Remember you are someone special. I am here to chat with anyone. Bald Proud Beautiful.
If you have alopecia, please read this. Drink BONE BROTH & Take FISH OIL. DO NOT STRESS! It gets worse. It’s a gut problem so do some cleanse too. I suffered it 2 years ago. It was really bad, I wanted to die and not go outside but after eating more clean and doing lots of bone broth, it helped ALOT. please cure your gut! For me I believe stress triggered it, now my hair is all full but recently it was falling out but not in patches. I believe it’s because I’m stressing a lot again but I’m back on bone broth and lowering my stress level. I’m trying to prevent it. Stay positive! 🤗
I cried with this, l really know the way you feel. I have had alopecia for 16 difficult years, now I am 19 years old. And I am in the worst time in this disease because I have lost my eyebrows, lashes, all my hair. Thanks for sharing this video, you can not imagine how much this has helped me, you have encouraged me XOXO
I think i was seven when i first went through it, I was bullied so much, i had no hair at all, none, These girl’s in my school found out and everyday i got called “cancer girl”. I’m lucky enough not to have cancer. But as a seven year old my heart broke every time, they didn’t touch me because they said it was contagious, i had to eat lunch with my teachers because no one would eat with me. I lost everything those years, it broke my family and I lost all my confidence, i’m 16 now and i still have parts of my hair that are missing and my confidence is still never gonna recover :(
I know that bald skin feeling very well. 😭 I have alopecia areata for over a year now and I couldn’t help but cried with you too. 😭 Thank you so much for sharing your story. You’re so beautiful and strong.
Alopecia really freakin sucks. I'm a man and Two years ago i started growing my hair, I had the prettiest hair ever, Thick, Shiny, Elastic, Healthy, full or volume. People would compliment on it very often. It became my identity and extension of myself. November 2020, i got a paronychia on my nails. It hurts super bad, stress a lot about it because i've ended up losing my nail entirely and was reluctant going to hospital with Covid lines and stuff. It finally started to grow back. I was super glad to see that the moisty part under the nail actually became a nail while the real one will push this temporary nail out. While discussing about it, me and my Gf started to say what disease we had in the past or hereditary stuff. And i said well my cousin lost all his hair, from head to toes and my sister had a bald patch like couples years ago, not sure if it's good now. As i was saying this, hell damn me if i lie, i touched my scalp and felt a HUGE bald spot at the back/left of my head, like 3/4 the size of my palm. I freaked so much. After a better look it was actually two circle overlapping. I'm 31 and i cried like a baby. I couldn't believe my eyes. How could i've lost so many hair without noticing? I didn't seem to shed more than before. Went to doctor, was prescribed steroid solution to apply. 3 persons in the same family. 2 areata and one universalis. Anyways, going on with the solution, I also try to eat better and make sure i don't lack Vitamin D, C, Biotin, Zinc, Iron and Magnesium.. Started to use a lot of oil on my scalp, Rosemary, Red onion, Coconut, Castor oil. Tonight i had enough and shaved all around the bald spot into an undercut. I feel liberated from that weight of always feeling the spot. Now that it's shaven i feel a lot of tiny hair that grew back already on the earliest part of the patch . I'm about 1 month in the treatment. I just feel happy for now as it is localized under the level of my ears which was perfect to hide. Be positive. I also started to take Relaxing pills over the counter like L-Thanine. No prescription. Helps to calm Anxiety and empty your thoughts without sedative or losing control.
just thought of sharing our experience with you as we know the emotional pain. Even now I will be in tears the moment i think about the helpless situation we were going through and how it felt to see our son like that. For our son (age:12 years now) this condition 'Alopecia areata' started from Jan 2020, started as just one small patch, by June he lost around 80% of hair. Till Oct we tried allopathy, ayurvedha and sidha methods of treatments. Nil result. It kept aggravating. Came across a naturopathy doctor video in internet, spoke to him, followed his instructions from Nov. By a week's time hair started growing (i mean that 0.01% result we look for/deeply stare at the head every day), it took almost 6 months to gradually grow back to normal. No medicines, no ointment, no application, no oil. Find below the gist of what we did; Stopped all medicines immediately 'Oil pulling' every morning in empty stomach 'water enema' procedure twice a day (internet search 'jala basti in yoga' video) Practice yoga or exercise or walking atleast 15 to 30 mins daily in open/fresh morning air Spend time in direct sun for atleast 10 to 15 mins around 10 to 11 am Strictly no hot/warm water bath Bath in cold/normal temp water (bearable temperature for your location/weather condition) thrice a day, incl head wash, no need of soap/shampoo everytime Eat 80 to 90% (per day intake) only fruits (esp seasonal fruits) Balance % can be cooked millets with lots of vegetables and some greens Totally avoid following : dairy products (all forms) wheat related products ( all forms) dal/pulses (all forms) meat, egg (all forms, no non veg) No snacks, no fastfood, no oily / deep fry items, no bakery items. No sugar, no cofee, tea. Strictly sleep early - atleast 9.30 pm to 5 am This is just a glimpse of it. Might look wierd and impossible for a normal person, but I know we would do anything for our hair to grow back naturally. It was difficult at the beginning. We all followed these as a family. Especially the diet. We made sure there are no other eatables present in the house which would be tempting. Will not cook anything that he is not allowed to eat. It's art of living rather than treatment I would say. This system believes in detoxification in a natural way by giving minimum work to the digestive system/respective organs along with healthy life style and therefore allowing the body some time to repair itselves. If interested I shall forward the detailed guide as a link which the doctor shared with us.
Your story is very inspiring! I found a huge patch gone and cried hysterically before deciding to carry on even if I have failed efforts in treatment. It’s nice to know others stories because this is a journey.
Don't cry. You are so brave and selfless to share this with the world. I wish you could know how your story has helped me. I am so grateful for all, whose videos I've been watching and learning from. My 13 y/o daughter developed a quarter-sized bald spot on the crown of her head at near the end of Feb, 2020, just before her birthday. She'd recently transitioned to remote-learning due to covid, so I attributed it to trichotillomania (she is stoic and reticent - puberty and Covid arrived close, together for her), but by mid-March it was obvious something else was happening. Em was born with a a head-full of hair, and she's never had it cut - she would cry if I trimmed her split-ends - so it's always been very long. Most of her hair fell out over the summer. Before school started this August, her sisters took her to shave her scalp. She hates the wigs, and decided to just go to school as she is. She stood-down a bully who pretended to be her friend while surreptitiously taking pictures to share with her ugly bully-friends. So proud of her. Anyway, after no results with the topicals, Fluocinonide/Tofacitinib, she has an appt on the 11th for injections. I've been watching a lot of videos like yours, sharing your personal experiences,, and I appreciate you. Who knows why this happens? Who cares?? You are beautiful, with or without hair, inside and outside. ❤❤❤
Thank you for sharing your story that was incredibly brave❤ I was diagnosed two months ago and have already started the injections . I’ve unfortunately lost a lot of my hair already and have really been struggling emotionally with it. This autoimmune disease makes you feel so alone in the world but hearing your story helped me not feel so alone anymore. Thank you for that✨
well, I discovered it today, I was running my fingers through my hair and then BAAMMM I found a round smooth hairless spot and yeah that's why I'm here, I just wanna say you're not alone dear there is always a cure for every disease.
Hey, I'm a girl from India and I just wanna tell you- Thank you! Thank you for sharing your story and you are not alone. I'm going through the same thing too. Please talk about it more.
I'm crying with you I'm going through hair loss I haven't seen any doctor yet. I'm 48 and you are so young and you had to go through this? I admire you. Thanks for sharing your story
You are such an inspiration for me. You’re young, you’re beautiful and now you are “free” from the hiding. I am 66 yrs old and I’m struggling with everything you’ve described. Thank you for your honesty and strength.
Honestly this means so much to me that you are able to share your story. I have had alopecia totalis for about 4 years now. I had to start wearing wigs at age 12, it wasn't very fun everyone would ask what was wrong with my hair or why I was wearing a wig. At that point it was very hard for me. My hair still hasn't grown back but sometimes patches will grow back for a few months and then fall out. Living like this is hard but it means a lot when people like you share your story. Thank you for making me feel as if its not just me dealing with this. Love your videos💕
I am so glad that my video helped you! I'm so sorry that you are going through this :( when I wore a wig in high school, I also got asked a lot about my hair because it looked "different" and I agree, it was not very fun. But I think things like this can only make us stronger!
Oh darling, I found your video while having a mental breakdown because for the third time I have this shitty condition. It sucks that just comes out of nowhere. I appreciate so much your openness and how brave you are to speaking about this because I hide my alopecia as far as I can, I am so scared of this shit taking my life away from me. I am crying with you in here... Thank you for this video
I'm literally crying with you because I am suffering with the same issue. My hair is thinning so badly. I literally loose half of the volume of my hair every year. I feel so so insecure and ashamed of this condition and the worse part is, is that doctors don't have a cure and we have to deal with this issue and cope with it. Thank you for expressing yourself. truly made me feel like I am not alone
abc de hey thank you for your advice :) I’ve actually looked into absolutely everything and went to multiple doctors got my blood tested multiple times throughout the years and still no luck. I guess I just got unlucky. As of rn I’m doing a hair mask of coconut oil, aloe, and castor oil while taking hair supplements. Gonna see how this goes for a few months and to try staying consistent. Hair transplant wouldn’t work for me since I’m loosing hair all over my head not just a certain area so it’s bound to weaken over time.
abc de I tried the onion juice but couldn’t stand the order at all. In fact the odor lingered l. Thank you for sharing your own treatment give me an update :)
Baby i have the same problem. Try washing your hair with only water and stay away from all products ( grease, gel, conditioners ). Keep your hair as thick and natural. Guys hair grow perfectly fine with just water yours will to.
Haven't even finished your video, but I'm getting the feels already. I'm going through this right now as a guy. Just started a few months ago and I felt the same way you do. Thanks for letting me know I'm not alone!
Hi Michael! If you want to fight Alopecia I can help you depending on location. Many men regrowing hair thanks to our products when nothing else working. If interested DM me on Instagram ARIANA @business_hairskin
Literally so proud of you for sharing your story. I’ve been diagnosed with the same and I’ve lost my hair thrice now. Staying positive is really hard but trust me that’s the key. To viewers coping with Alopecia try applying fenugreek seed water and hair mask on your scalp it really helps. And stay strong! ❤
My son just developed this condition. It started in may 2019. He has probably lost 70%. I don't know how to help and support him. He's a young person in college. Thank you for sharing. I see that there isn't anything I can do, other then be supportive. My heart goes out to you and you are beautiful... no matter what
I just wanted to say how really brave you are for sharing your strugle. I have been dealing with similiar feelings for 2 years now becouse of telogen elfuium and androgenic alopecia...I am still learning how to accept myself the way I am...the strugle is real and painful. I know this doesn't help much but I just wanted to say that I can relate ... it surprises me how much shame I have been dealing with just with sharing with the people that I love what I am going through. And how much I have to take care and love myself despite what goes wrong in my life.
Hi 👋 I just wanted to say that I completely understand and emphasize in what your going through #hugs ❤! For the last two years I have been battling an aggressive, unique breast cancer. I lost my hair going through chemotherapy then radiation, etc… then to my dismay it didn’t grow back right in the front on both sides!!! I tried pretty much everything and it’s still exactly the same! I have learned however to embrace who I am and like you have the attitude that THIS DOES NOT AND WILL NEVER DEFINE ME ❤!!!! It’s all about a positive attitude and self love, you are beautiful and you’ve got this !!!! Tc of you and please remember that!!!!! Love, Amity
Thank you for sharing this.... it literally just made me tear up because I’m going through the same thing and just diagnosed about two months ago and it has been really hard I’ve always taken pride in my hair... I remember the morning I woke up to hair on my pillow and ran to the bathroom and noticed the second spot which was on the front close to my forehead and I literally started bawling and shaking because I just couldn’t understand why it was happening to me... We can do this!!!!!
You’re so strong and beautiful. My fiancé recently just discovered he has alopecia and currently only has 3 spots. It’s easy for the outside world to say “don’t stress” but I can’t imagine the feeling. I love him Regardless just like your friends and family love you regardless ❤️
I dont know why you havent upload in a while but I hope everything is good with you. If i could give you a hug right now, I would. You are not alone in this battle.
Thank you for making this video. I recently noticed that my hair has been thinning and it is scaring me to death. It is making me so stressed and I feel something is wrong. I came across your video and just your story has helped me so much. This is all new to me. I am sorry for how this has changed your life. You are very beautiful and courageous.
I also have alopecia and we have very similar alopecia story. Yes alopecia has been playing with my feelings, it falls grew back again and then falls and grew again. I'm really fed up of this. And some people acted really weird when they find out that I wear a wig. Some people be like they are curious about me but not brave enough to come up to me and ask so what they do is just talk behind my back..how nice it would be if they actually ask me if they wanna know st abt me. But now I've healed a lot from this pain. I prayed a lot to God, cried all night, felt so depressed, done all sorts of possible things but seems like nothing gonna work with me. Why is this happening to us ? I really hate. No cure. Wtf. I used to have long,silky, thick, browned coloured beautiful hair and people admired my hair, I liked my hair very much but it was taken from me at a very early age. I feel so sad like a soul departed. Hm it's okay whether my hair grew back fully and matured or not at all too because I'm fine w myself. We'd be very sexy with our hair so God took it from us. Let's take it this way. I pray that I be the last human to suffer alopecia.
You are so beautiful, long hair, short, no hair don’t care. Thank you for sharing your story. I know it’s hard going through what your going through. I will pray for you and your story was so helpful for me. Thank you so much again. Your awesome
I found bald spots on my head 3weeks ago and the spots are getting bigger . I feel your pain. Its so hard for us not to get stressed. Only thing we should do is that we should find a way to get rid of stress, frustration, and fear.
@@lifewithmelissa2351 Try BITTER APPLE fruit. Just apply the raw juice 3 to 4 times a day @ the infected area, and rinse your hair once a week with plane water, within 1 month you'll notice the change... I have the same problem but the magic fruit is giving good result..
You have so much courage . I'm starting to lose my hair and I hear you . I have others health conditions and by the years I accept them . So I believe that this hair condition will not be a difference. You are brave and as you said " you want to be free" you don't want no more pressure . That's so great. Your honest with your feeling and I can relate with your feelings. Thank you for sharing your story.
Thanks for being brave enough to share your story. My 6 year old daughter has alopecia totalis and is almost completely bald except for one patch on the side of her head. It's really hard for me as a mom to deal with this condition because everyone thinks she has cancer. I refuse to get injections or take meds due to the possible long term side effects. We just use cute scarves/headbands to cover her head when out in public. In addition I always tell her how beautiful she is despite whether she has hair or not. I do pray for a cure one day but in the interim just stay confident. No one is perfect. People will judge you no matter what. Love yourself first no matter what and that confidence will come shining through.
i've had alopecia 3 times, and im very thankful that i haven't had it in over a year. i'm really scared that i'll find out that i have it again. i relate so much to your video, thank you so much for sharing your story
I read on another site a woman who was in the beauty business.So her looks were her pay check.She did a donor transplant.I know that I could not do.I am sorry you are going though this at a early age. You will learn it is what is inside not so much the outside that counts.Woman of color can shave their hair and look fabulious.Your telling your story is helping so many people.
HI THERE! IF YOU ARE LOCATED IN USA, CANADA,IRELAND POLAND..GOOD NEWS OUR PRODUCTS ARE HELPING THOUSANDS OUT THERE! THE SOONER THE BETTER (NO MEDICATION ) A TREATMENT LINE. I CAN SHARE THOUSANDS TESTIMONIALS IF INTERESTED. -SHAMPOO/CONDITIONER -HAIR SPRAY - HAIR OIL. THAT'S ALL. MY INSTAGRAM HANDLE ARIANA @business_hairskin
Thank you for sharing your story. I’ve been dealing with alopecia areata for over a year now and it’s encouraging to see others “own it.” It’s an emotional rollercoaster and a real confidence killer because, in our minds, our hair is a part of our identity. Our beauty. And to have no control over that is frustrating. So I’ve become an avid hat wearer day in and day out. But I’m honestly just tired of trying to hide it. Hopefully this time isn’t as severe for you and it grows back but for myself as soon as one spot grows it seems a second and a third show up. And so this disease is a slow killer - wearing you down emotionally. Funny how I can look at Covid and the WFH setting as a blessing because I can just let my head breathe and not hide. But I’m tired of feeling like I can’t be comfortable with what I’m living with. I want to share and be free. I don’t want the weight of “hiding something” and feeling like I’m not bringing my full self. And that starts with accepting it and owning it. And there’s true beauty in that - we just have to remind ourselves. Watching this, seeing similar stories/ struggles helps. So again, thank you for sharing with us.
Your story is exactly like mine, I am suffering from AA since 2018. Thank you for sharing this video, we shall overcome this soon. Insha Allah.. Be strong.
Thank you for sharing, it was so helpful and I feel like I'm not alone. I was in tears as I watched, just started down the path of diagnosis and its hitting hard....
watching your video and seeing you breakdown i feel your pain. I have been dealing with Alopecia Areata for a year now and it has drastically all fell out. One day you have a full patch of hair and then all of a sudden you have none. I've been hiding it from my friends and bf. Thank you for sharing your story, I can relate so much to you. never lose faith
I feel your pain. Finding a bald spot after thinking you're done with this is the worst. But wig/ no wig you're still an awesome person with so much to offer
4 года назад
I got this condition 5 months ago and it's a pain in the arse!! I actually cried once then I decided I won't let it affect my mood again, but I put that down to being a male .. I have a huge amount of sympathy for women who get this condition! If you're a woman with AA I hope you know that men will still find you to be attractive... I personally love the bald look on women even before I got AA
I completely understand...I have alopecia areata. I developed after a surgery I had last year of my ovaries. After 6 months of my surgery I began to lost my hair, until all my hair was gone..I cried so hard. I began to use rogaine and other creams, until my hair started to grow. I still have some parts without hair, but I'm getting there. As a woman alopecia is hard. But the people who really loves you. Will be there for you no matter what. Lots of love.
It's beautiful and empowering to find people that share their stories, but also open a space for many others to come and share theirs. When I look at this comment section, I see lots of people that are starting their journeys, and some others that are just educating themselves, and there's so much value in that. This is how we form a community, and this is how we stop feeling alone.
I’m so sorry you went through this. I hope it has gotten better and I really appreciate you sharing. I am going through it and trying a carnivore diet. The diet is suppose to help with auto immune disorders. I wish you the best.
You are so beautiful and brave ! Thank you for being vulnerable❤️. I’ve had Alopecia totalis for 7 years and it’s still a journey of acceptance. The journey may not get easier , but YOU WILL GET STRONGER !! Sending you much love and light ✨#AlopeciaStrong💙
My husband had alopecia spot a couple of years ago and he said he rubbed garlic on it until he it turned red. I do recommend using garlic juice and maybe a Derma roller let to let it penetrate into your scalp.
Thank you so much for being so brave and sharing your story. I just shared my story on youtube for the first time and I am so excited to be another voice! Keep being so authentic. You are blessing people more than you know!
I'm 60, and I just developed this disorder. It's very upsetting. And my pattern is very similar to yours right now. Bare behind each of my ears, a. rather large spot (the first I saw) behind my left temple. I went to the dermatologist immediately and he shot me full of steroids and gave me a clobestal (sp?) steroid solution to treat the spots. the loss has slowed somewhat, but I'm still shedding all the time. You said something about how hair is SO important. I want you and others to know that it is important, but it isn't important, too. You still have a whole beautiful life to live, and you can't let this condition (not disease) ruin your happiness. Pursue your dreams and ambitions in life. If you're one of the lucky ones whose hair does grow back, then think of yourself like a bird that molts (loses it's feathers) every once in a while. ("Well, I guess it's molting season, again!"). Invest in some better wigs, learn how to wrap turbans, and have some cool hats you like to wear. Here's the deal, too. If people, especially younger people, see you accepting this condition with a shrug of your shoulders, they will learn from your own acceptance of yourself, that it's not a big deal. Of course there might be assholes and bullies who make fun. But MOST people will not. Most people will follow YOUR lead. I never had great fabulous thick and luxurious hair, and life was still pretty damn good. I know sixty probably sounds ancient to some of you, but it's not (especially when it's you who's sixty!). One of the things I told myself when this started, to help me keep it in perspective, was "How bad am I going to feel about this? I don't have much control over it, if any. While it is upsetting, it's not the end of the world. It's just hair. It's not cancer, I'm night dying and I'm not disfigured or paralyzed from some accident. I can still dance, sing, laugh, swim, think, write, work, cook, travel, make love, get around by myself. And if this happened to someone younger that me, what would I tell a 10 year old, or a 15 year old or a 24 year old? I'd tell her, get on with your life! Keep swimming. Keep smiling. None of us knows how much time we have on this earth, or what's going to happen. But rest assured, bad stuff is gonna happen. And if it's only alopecia, consider yourself lucky it's not something worse." So if any of you out there are crying your eyes out over this, stop. Love yourself as is. You're gorgeous with or without hair. Put your hat on, wear sunscreen. Go. Do. The world needs you as you are.
I'm going through the same tough times like you girl. 60% of my hair is gone and spots all over my head, but we are alive and can do anything we can! Your soul is beautiful! You are beautiful! Don't forget about it ;-)
Thank you for sharing your story Melissa. I also have alopecia areata, and I'm hiding this secret from a lot of people...i know it's just hair, and I always feel guilty for feeling sorry for myself for something that's a "cosmetic desiese ." I went to my family doctor, and she referred me to a dermatologist. I live in Vancouver bc so unfortunately there was a six month wait list. My condition kind of just cleared itself and I also have no idea what I did different. It sucks having this desiese, it tears down every bit of self confidence I have, and I'm always ashamed of having anyone find out about it. I hope to find the strength like you to just come out and tell people about one day and stop giving a fuck about people think.
I totally understand how you feel!! Even to this day, I feel guilty for feeling sad about my cosmetic disease when others actually have a life threatening disease. But I came across this saying which now, I don't quite remember how it goes but pretty much it was like... just because someone broke 3 bones in their body and you only broke 1 doesn't mean that you can't feel pain too. Originally I was going to take this secret to the grave with me but since it happened again, I just thought it was better to just tell people. It took a lot for me to just say "fuck it" and tell people. I really hope you are able to find the strength one day to let people know! I really like this feeling where I don't have to hide a part of myself to others anymore. Please don't hesitate to reach out to me again. I am more than happy to be your support system when it comes to this disease!
@Karen L you tell people when you're ready. I made a video nearly a year ago telling my story, but I just posted it a few days ago. I was ready. There will be mean people , but not as many as supporters . Stay beautiful !
@@edgarpedro1859 I waited almost full year to see Dr khalia at the skin care center. By then my hair had grown back and He looked at me for five min, and just said I didn't need the shots for hair regrowth and to call them If my hair fell out again. Kinda useless.
Well in my case i also have vitiligo. So he better take his time with me. And i dont remember his name. Its a japanese last name. 2 star reviews... apparently not a ver empathic dr. But i still have a month to wait :(
I’m still 13 years old and in Grade 9 right now. I’ve had this sickness since I was Grade 5 and when I was in Grade 6-7, I got bullied alot alot alot alot..... Because I’m going bold. Because of that I got depression and anxiety. At March-September that’s when my sickness comes in and the other months it goes away (because of steroid injections). Now I can’t do steroid injections because of the pandemic. What I also wanted to say is that this video helped me alot even tho I’m crying w/u rn. Mann Girls have it more worse than boys tbh. Well thank you so much for this video because it helped me alot!
Hey I have a son dealing with this no matter what condition you have don’t let it define you and don’t ever let anyone bully you period ok. I know it’s not easy but and time it will get easier
Thank you for posting this video! I’m riding in the same boat with you. I had my first spot at age 16; then it grew back. It comes and goes for me. I lost about 70% of my hair in the last year, triggered by severe life stress. I’m in my 40’s now, it’s still a challenge to deal with this mentally. I feel like a Saint sent to experience hell. I just want to know you’re a beautiful young woman, never forget that, also you are shedding light on those suffering by sharing your story. Facebook has some great Alopecia support groups. I don’t wish this disease on anyone, but going thru hell is easier when you have strong comrades at your side. 👍🏼
Hey ..Did u face hair fall in patches or extensivr hair fall all over ? As i am facing severe hairfall from past 4 year its not in patches but its very extensive ..can it be alopecia areata ? None of the doctor are able to diagnose it properly so im pissed off completely
@@nn-cl6sm My hair falls in patches all over my body. I have Areata. I stopped eating gluten and less stress. Hair growing back now. It comes and goes for me. Since age 16.
@@nn-cl6sm Prolly You might be having Telegium Effluvium or something else. Have them do a scalp biopsy and blood test. Also check Thyroid and allergies.
Yes i do have hashmitos from past 3 yr and hair is falling from that time ..i dont think it should be TE because it should not be for this many months. Dermotologist is not ready in india to do scalp biopsy ..i m tired of asking them
My first alopecia was when I was 9 years old(2009), there were 8 spots both in big and small size, that stayed for around 2-3 years,it eventually filled out, it stopped for 2 years then back in 2013 with only one spot then stopped, it grew back, then this year 2019,one spot popped up again....
@@lifewithmelissa2351 Do you see any patterns as to timing? What I mean is...like was there a time of big time stress when ....that's when it came back? I know for some ppl its due to stress and others maybe not eating nutrient dense foods. Meds...I have a family member who started loosing lots of hair and their teeth were getting messed up because of the meds. I feel these chemical toxins sometimes do more harm than good...so one has to see the pros and cons. Has anyone tried an alternative treatment? Like idk accupuncture, etc?
-- So with research I’ve been doing, there is a doctor on youtube (i wish i could remember his name, but if you type in proven hair growth methods he should come up) and one of the methods he mentioned was using rosemary oil (diluted of course) as it is proven to work like minoxidil but without the side effects. So you dilute a few drops in a carrier oil and massage it into your scalp .. not sure how many times a week though. I think in the experiment it was everyday. There are also rosemary hair tea rinses you can do. Fenugreek seeds or the powder is supposed to help too. Grapeseed oil is also supposed to help if you are stressed, it prevents stress from affecting your scalp to lose hair. I really hope this helps. This is what I’m trying .. Fingers crossed we all heal. I recommend Deepa Berar’s channel.
Ive had alopecia my whole life now I'm 12 y/o and its amazing to know that im not alone. Im not sure if you have been to CAP (CHILDRENS ALOPECIA PROJECT) But its like a camp you can go to for about 2-3 days and do fun things with people that have alopecia too. I hope this helped and you want to look into CAP. ❤
Aww that sounds like an amazing program for children! I'm not considered a child anymore but I'm so glad they have programs like that for people with our condition! :)
Hi Melissa, Ive just come across your video and I think you're doing an amazing job in accepting what your condition is. I have alopecia universalis and I've had this condition since I was 1, so this disease is really part of my life now. As I grew older, the hair gradually grew with me. I have not experienced a full head of hair yet, but I know the day will come soon. Im now 21 years old, social media doesn't necessarily help with self confidence but its a work in progress. I suggest to stay entirely away from steroids. I have not used steroids and I dont think I ever will, since I believe it gives a temporary satisfaction or worsens the condition. I used to follow ayurverdic and homeopathic treatments growing up but that did nothing obviously. I have followed different regimes which has encouraged hair growth, these are; applying onion juice and leaving it over night, castor oil, coconut oil. Defo incorporate essential oils onto the scalp, massage your scalp daily, meditate whenever you can. The one thing that Ive noticed a great difference in trying to treat alopecia is the AIP diet (Auto immune protocol), for a month I did the Paleo diet and by far has done the most change out of the other regimes I followed through out my life, I havent been quite strict with it now since Im quite lazy and it is pretty hard considering paleo doesn't contain any carbs lol but Im planning to go back on it soon. I hope this helps and stay positive, tell your mind it will grow back and I do hope this disease will be avoided permanently for all those suffering, whatever type you have. Good Luck!!
Thank you so much for this comment! I actually have tried steroid shots and it did help temporarily but I truly believe there's something within that's the problem. I've been looking into the anti-inflammatory diet and have been trying to incorporate that into my life. Hopefully it helps! Good luck to the both of us!
Thankyou for sharing this ♥️ i've been diagnosed with alopecia recently and I still don't know where it will take me but I just needed to hear people who relate to me so thankyouuu
I discovered mine October of 2018 and I’m a junior in high school. I just found my fifth spot and it is so hard for me because it’s in a spot that if it gets bigger here is no way to hide it. It really takes a toll on my emotional health especially being in high school. I’ve been getting shots for a year and tried the AIP diet summer of 2019. My dermatologist said that I have a really stubborn case because I have a good amount of growth but new spots are appearing. Doctors aren’t really helping because my dermatologist just gives shots and topicals, my family doctor says she can’t really do anything about it, but hopefully I’ll find someone that will actually want to help find the root of my problem.
just thought of sharing our experience with you as we know the emotional pain. Even now I will be in tears the moment i think about the helpless situation we were going through and how it felt to see our son like that. For our son (age:12 years now) this condition 'Alopecia areata' started from Jan 2020, started as just one small patch, by June he lost around 80% of hair. Till Oct we tried allopathy, ayurvedha and sidha methods of treatments. Nil result. It kept aggravating. Came across a naturopathy doctor video in internet, spoke to him, followed his instructions from Nov. By a week's time hair started growing (i mean that 0.01% result we look for/deeply stare at the head every day), it took almost 6 months to gradually grow back to normal. No medicines, no ointment, no application, no oil. Find below the gist of what we did; Stopped all medicines immediately 'Oil pulling' every morning in empty stomach 'water enema' procedure twice a day (internet search 'jala basti in yoga' video) Practice yoga or exercise or walking atleast 15 to 30 mins daily in open/fresh morning air Spend time in direct sun for atleast 10 to 15 mins around 10 to 11 am Strictly no hot/warm water bath Bath in cold/normal temp water (bearable temperature for your location/weather condition) thrice a day, incl head wash, no need of soap/shampoo everytime Eat 80 to 90% (per day intake) only fruits (esp seasonal fruits) Balance % can be cooked millets with lots of vegetables and some greens Totally avoid following : dairy products (all forms) wheat related products ( all forms) dal/pulses (all forms) meat, egg (all forms, no non veg) No snacks, no fastfood, no oily / deep fry items, no bakery items. No sugar, no cofee, tea. Strictly sleep early - atleast 9.30 pm to 5 am This is just a glimpse of it. Might look wierd and impossible for a normal person, but I know we would do anything for our hair to grow back naturally. It was difficult at the beginning. We all followed these as a family. Especially the diet. We made sure there are no other eatables present in the house which would be tempting. Will not cook anything that he is not allowed to eat. It's art of living rather than treatment I would say. This system believes in detoxification in a natural way by giving minimum work to the digestive system/respective organs along with healthy life style and therefore allowing the body some time to repair itselves. If interested I shall forward the detailed guide as a link which the doctor shared with us.
thank you for sharing, I experienced the same thing. since I was 3 years old until now. and now I am 20 years old. it's been running for 17 years. I never remember how it started, because when this happened I was very young. my parents never told me in detail. I had undergone treatment when I was a child until I entered elementary school. after that, I have never been treated until now. I am a woman, and I feel very bad when I am different from other women. I was resigned to everything, and I do not care about bullying. but I never stopped hoping for a cure. thank you for giving a story that makes me feel better. ♥
Hello. Thank you for sharing your story. I have suffered with alopecia areata for over 10 years. I lost most of my eyebrows and facial hair too. My doctor prescribed me Olumiant It just arrived yesterday so I didn’t take it yet. I’m gonna start tomorrow. Perhaps you can talk to your doctor about it. It was recently FDA approved for alopecia.
I'm so glad I've watched this video, I feel so alone right now as my alopecia is the worst it's ever been. Waiting for the doctors to get back to me on the best treatment but I just feel hopeless about it.
I just got suscribed to your channel, watching this video, I guess it made me feel kinda better about my alopecia too ( with this I mean that i realised I'm not alone and there's more amazing people)...so let's keep strong and fighting!
I'm sorry this happened but thankfully it's only alopecia and not Cancer... Praise the Lord! However its great to see other races share their story, because its a stereotype that people of color have it due to neglect. Its tough to get people to understand that alopecia with the exception of traction alopecia is beyond a persons control. Areata, runs its course and there isn't anything you did to help it grow. It just runs its course. The emotional roller coaster is real. I get it, because I have it. I was 23 year when I found a quarter size spot. It got worse of course as the years went by. It's ok, you're beautiful and thanks for sharing.
Thank u for posting this . I currently have alopecia areta and thanks to this video I know I’m not alone. To anyone who’s going through it I just want to let you know you are loved and this doesn’t define you! You are strong ❤️
I’ve coped with my alopecia areata since December 2018. One spot grew insanely large, new spots formed. Spots regrew, and repaired, and rather recently thinning has been crazy on my crown. Lol I live with it, but fr I don’t do any water sports or swim with anybody. One day I’ll break thru that block.
My barber found a spot a few months back and I was slow to see a doctor and Ofc now it’s spreading since I procrastinated so much. I’m assuming I probably will struggle hiding it in the following weeks and I’m scared the doctors will be slow with fixing treatments and such. I started taking a 5% minoxidil solution on my own when the doctor said I will have to wait 2 weeks for my appointment, but it’s too late or something. Really hope this all will work out in the end. Stay strong everyone, we can probably get through this :,) one love❤
Thank you so much for this video! I am 13 and got diagnosed last month and it hurts me so much. I dread going to school as I’m afraid i’ll get bullied and the thought that i might have to shave my hair scares me. Luckily at the moment i am just about able to cover it up with a side- parting but i am dreading the point when i can’t do this anymore. Your video has really helped me and I now have hope for the future ❤️
💗💗💗 It makes my heart hurt to see you cry. I am going through this same thing for the 2nd time. I just shaved it today. Just know someone from Alaska is sending you lots of love.
