• #mygenesandme : example video if you had trouble hearing it!
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Submit videos to: gsnvinfo@gmail.com, info@gsnv.org.au or via our Facebook Messenger.
#mygenesandme will be used to create a conversation about genetics and genetic diversity in the Australian community and build some inclusiveness momentum. Our goal is to:
- To build health literacy
- To promote inclusiveness and community
- To build public familiarity with genetics and the power of genetic data for good
- To involve the genetic, undiagnosed and rare disease communities in positive engagement with the broader community
The project will seek to being a conversation and create momentum in social media raising awareness of My Genes and Me.
The community will be encouraged to make 10- 20 second videos on their phone answering - What my genes mean to me.
These will be entered onto a social media platform, moderated and put up for viewing by the community.
We will use and promote the hashtag #Mygenesandme.
FURTHER INFORMATION:
The genetic, undiagnosed and rare disease community, including people with lived experience and the support sector will be encouraged to make fun, short videos for inclusion.
The GSNV educates the general community on genetic and genomic health, with much attention given to access and utility, health technology and the functional elements of testing and the implications. Awareness of the ethical, legal and social issues are important elements of all education efforts with the community/consumers and health professionals. An understanding of genomics is much more than a grasp of the technology, clinical and service outlay. Growing the awareness of the social implications of genomic technologies is increasingly important and we believe it is imperative to begin a fun, engaging and community driven activity to promote an understanding of genetics and genetic diversity and develop a common platform of engagement.
It’s easy for the general community to view genetics and genomics from a science and medical perspective. This immediately puts up a barrier for lots of people. In fact genomics and genetics is a very personal subject that most individuals don’t have any relationship with. If we can build a positive relationship then we can potentially impact some of the issues surrounding consumer engagement and confidence in sharing health data, introduce concepts such as genetic diversity to reframe discussions around bullying and discrimination, familiarise people with the language to empower them in their own health journey.
As the pace of genomic technological advances moves in huge strides, we have a role in ensuring that the community keeps pace. Steps are underway to mainstream genomics in our health systems which could further disengage people from their health journey if it remains something of mystery.
21 фев 2021
