My Top 5 Runner's Dystonia Tips

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These are my top 5 things that have helped me over the last three years on my runner's dystonia journey. I ranked them starting with the least helpful to the most helpful, but honestly they have all been integral to my rehabilitation.
Helpful Links
Postural Restoration Institute website: www.posturalrestoration.com/
Neal Hallinan's Channel: / @nealhallinan
Connor Harris's Channel: / @conorharris

Опубликовано:

23 окт 2023

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Комментарии : 17

@suebillo3874 8 месяцев назад

Yes,yes, and yes! I totally agree with everything you have so well described in your video. I too feel that PRI has been transformational in my recovery from runner's dystonia along with wearing the Asics cumulus 23 & 24's.What a shame they had to change the shoe for the 25's. Neal and Connor are amazing and i hope everyone who watches your video will check them out. I have had amazing progress in my condition this year since discovering PRI in 2022. I have had this dystonia for a great many years so do not anticipate an overnight fix. PRI is not a quick fix but my progress is certainly evident and sustaining and it sounds like yours is too. Thanks Maria for highlighting all these helpful strategies and the focus on breaking up the run is a great tip!

@mddruns 8 месяцев назад

Thank you for your comment - I appreciate you watching ! I thought PRI was crazy at first... literally thought it was voodoo or something when my therapist had me biting a popsicle stick and blowing up balloons haha.

@danakification 8 месяцев назад

I can identify with SO much of what you’ve said here! I haven’t tried PRI but I’ve been weightlifting, doing Pilates, and worked with Ruth Chiles’ brainspotting and feel that those have all helped me as well.

@mddruns 8 месяцев назад

Thanks for your comment ! I did Ruth chiles as well, read her book and worked with one of her therapists… it didn’t help me too much but I could see how it could be helpful to others.

@RMSM0204 8 месяцев назад

Thank you very much for sharing this. I’m 11 years in! Virtually everything you’ve said is the same thing I’ve experienced too. Tried so many therapists, MRI’s and nothing has ever really helped. Changing the mindset is something I am going to do. I have watched Conor’s channel and Neil’s, but never sure I’m doing the exercises correctly. I’m in the UK, so struggling to find a PRI therapist nearby. You have given me hope, thank you.

@mddruns 8 месяцев назад

I forgot to mention this in the video - but if you have instagram, there is a woman on there named Katie St. Clair who posts alot of stuff that is PRI-ish and she has a weekly online exercise class called Alchemy Strength... its really really good. It is on zoom, but if you can't attend the live class, you have access to the recordings and she sort of walks you through what you should be doing/what you should feel.

@RMSM0204 8 месяцев назад

@@mddruns thank you, I’ve subscribed to Katie’s RU-vid channel & for emails from her website.

@jeffmorris9523 8 месяцев назад

Thank you Maria for posting this. Focal dystonia is the strangest thing I've ever experienced in my 40-plus years of running. I'm 62, ran cross country and track in high school and two years of college. Did six marathons, including Boston. It has grinded my running to a halt after I had every test, just like you, that seemed possible. Was diagnosed by neurologists at WVU that I had focal dystonia and have been taking carbo/levo and get botox injections every three months. My dystonia is also in my left leg and left foot. Flailing leg and foot that kind of points down. Sensation makes me feel like I'm pitching forward when I try to run and that I might fall because I couldn't get the foot to land right. Had returned to running some, awkwardly, but then my left hip started bothering me. Went straight to walking and tried regular physical therapy. Have almost convinced myself that it is what is, and I will just have to be a walker, but I think your post has given me some inspiration and I will investigate your suggestions. Rethinking where I am and accepting it just may be different with running, just have to find a way to go about doing it even if it is in segments, with breaks.

@mddruns 8 месяцев назад

I may be wrong in the way I think about this, but I view this as something that can be managed, almost like any other injury. I have started running races again and I almost view my racing now as a new "era" of my running so i have my pre dystonia PRs and my post dystonia PRs. Definitely try the segmented running, see how it goes. One thing that helped me in the beginning was to break up the segments by running to a certain object, rather than time, like run to this tree, then walk. The external visual cue was helpful for me.

@jeffmorris9523 8 месяцев назад

Great suggestion on picking out points instead of time. When I first tried to run with dystonia, I was using a GPS watch and my horrible pace just depressed me. Then, I tried running for time but that kind of forces you into a box, too. Picking a point and just running to it may be a distraction I need. Wondered if the dystonia affected your walking, and if so, how did you combat that? I have a hitch in my gait when I walk. That has hindered running because I keep thinking if I'm not walking right, why should I be running?

@jeffmorris9523 8 месяцев назад

Also, when you run to a point you pick in the distance, do you hit a split to see how much time you ran, or do you just do it and not worry about how long the running segment lasted?

@mddruns 8 месяцев назад

I@@jeffmorris9523 It definitely affected my walking more so in the beginning, but it still does from time to time now. I have found that if my walking is bad, it doesn't necessarily mean my running will be bad. sometimes I find I can run easier than I can walk for some reason. One thing that helps with walking (and running) is arm swing, when I relax and swing my arms more I generally feel better when walking.

@mddruns 8 месяцев назад

@@jeffmorris9523 I would wear a watch and just let it run continuously for the whole run/walk. During that time I would pick points to run to and then walk and repeat. I never hit splits or anything.

@catherinebrown2933 Месяц назад

Do you notice that you have "flare ups" when symptoms are worse than other times? When I first got dystonia, it slowed me down a lot. I ended up taking a long break and slowly got back into running (somewhat back to normal). But recently I feel like I have backslid a lot, to the point where I had to stop a run because my foot was "malfunctioning" so badly. Do I just need to back off for a little while? Do flare ups happen to others?