Myositis 101 with Dr Robert Wortmann at The Myositis Association's 2015 Annual Patient Conference 

I was diagnosed a month ago with an aggressive lymphoma non Hodgkin's affecting t cells, and at the very same time developed severe polymyositis (it paralized my whole body to a 90% in 10 days! Could only move my fingers and toes) Started chemo 3 weeks ago and physical therapy 2 weeks ago. Like explained in the video, by treating the cancer it clearly improves and fix the myositis. I am doing greeeeeat! I am walking almost normal and now started cycling 4 miles this week. I hope to reach a full recovery from myositis in a coyple of months. My chemos are working beautifully I love them. My expectation is to be cancer free in 6 months and be stronger and healthier than EVER. It is happening! If someone has my combo (lymphoma + severe poly myositis, -dont give up!- there are huge hopes of Full recovery !!!

I have DM and find this is an excellent explanation.

Very informative lecture for a beginner.

Very good explanation

Diagnosed 4yrs ago with polymyoitis after experienced chronic weakness, frequently falls and unexplained weight lost. Im still on treatment battling, this unpleasant disease

If you get treated and go into medical or medication free remission, will the MRI normalize? Can MRI be used to validate status of muscles?

I heard animal protein and fats are not good for this condition , SO i should take vegetal protein instead , something like HEMP PROTEIN ? pls answer :)

I have a positive EMG for non irritable myopathy. My bloodwork with CK and some others are normal. I have all the symptoms proximal weakness and the rash of DM and my skin biopsy showed some signs but it wasn’t clear or non specific. My muscle biopsy was normal so my neurologist dismissed me and sent me onto Dermatologist. I feel like I probably have Hypermyopathic Dermatomyositis but Nuerologist wasn’t looking at the whole picture. My Dermatologist thinks it’s possible I have DM still so she is trying to treat me as if I have it and see how I respond but no diagnosis. I also have signs and symptoms of Myasthenia Gravis and am on a trial for Mestinon and it seems to be helping some of my weakness. All my symptoms that don’t fit one fit the other. I don’t know why they don’t think I could have both. I think it’s definitely possible and makes complete sense of all my tests and my symptoms. But it’s a been all long road for me and at least I’m finally in care of a Dr who seems to care to try to figure it out. Even if she can’t she is trying. So I hope and pray this Dr can help me. I would love to be see. At the myositis center in Baltimore but traveling is very hard on me. Maybe I can get in in the future.

What is a typical long term prognosis. Does it get worse with time. Will you end up using a walker or need a wheelchair?

This is a great lecture. However, as an FNP student, I think the content and verbiage goes far above the head of the individuals that he was presenting to.

The more I watch with IBM the more depressed I get sometimes dr google is not good 🥺

my 7 ur old daughter has dermatomyositis n it is so hard for me to keep her body rash under control can I get some tips pls pls...

Can you get severe itching with these diseases?

I have this...After I had my daughter my body changed extremely fast-lost muscle-began to fall-could barely walk up stairs-was not able to run anymore-Now 6 years later i cant even step up a curb,severe weakness in y knees and i suffer with severe chronic pain.

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