osTEAo - Navigating Campus: Limb-Salvage and Amputation Patient Perspectives

Osteosarcoma: MIB Agents Osteosarcoma Alliance

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OsteoWarriors Camille and Mia are joined by OsteoWarriors Daniel and Kara in this episode on navigating life and campus with limb salvage surgery and amputation, which are the primary treatment options to remove an osteosarcoma tumor. Listen in as they discuss why they chose limb salvage surgery or amputation and how they manage getting around school, and share challenges and horror stories they've experienced which are sure to make you both grimace and laugh.
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What We Do at MIB Agents: PROGRAMS: ✨ End-of-Life MISSIONS ✨ Gamer Agents ✨ Agent Writers ✨ Prayer Agents ✨ Healing Hearts - Bereaved Parent Support ✨ Ambassador Agents - Peer Support ✨ Warrior Mail ✨ Young Adult Survivorship Support Group ✨ EDUCATION for physicians, researchers and families: ✨ OsteoBites, weekly webinar & podcast with thought leaders and innovators in Osteosarcoma ✨ MIB Book: Osteosarcoma: From our Families to Yours ✨ RESEARCH: Annual MIB FACTOR Research Conference ✨ Funding $100,000 annually for OS research ✨ MIB Testing & Research Directory ✨ The Osteosarcoma Project partner with Broad Institute of MIT and Harvard ... Kids are still dying with 40+ year old treatments. Help us MakeItBetter. 🔗 www.mibagents.org Help support MIB Agents, Donate here www.mibagents.org/?form=donate ✨✨SUBSCRIBE for all the Osteosarcoma Intel ✨✨

Опубликовано:

15 мар 2023

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Комментарии : 3

@rodvb1 Год назад

Id love if you can fin different perspectives on the decission process, and the different things you have to face with each different decission. I've heard of cases when they choose amputation rather than limb salvage but they dont explain all the things they took into account to make that decission. I had LSS 13 years ago and despite the first year was very rough i had very good results and a very functional leg. Except ive had pain crisis from time to time. Now my prosthesis is becoming quite loosen and i may have to face revision surgery in the near future anf the thought of dealing with all of that again makes me wanna rethink my options. And despite ive had so many good years the fact that these are not permanent surgeries and that ill have to pay to go through all of that once again is really scary. Idont know id just like to listen to more perspectives on that subject.

@osteosarcomaMIB Год назад

This is something near and dear to all of us OsteoWarriors. Great suggestion! Will share with the osTEAo hosts for their consideration and discussion of how best to deal with these decisions.

@osteosarcomaMIB Год назад

Also, check out OsteoBites where there are several episodes where LSS, Amputation, and Rotationplasty are discussed with both the surgeon and the patient as guest speakers.