I was born with CP. I went from deploying as a contractor to Afghanistan Iraq and Qatar in my 30's with mild CP. To excruciating chronic pain and weight gain by 45. This is no Joke. Doctors want to diagnose every problem and pain as CP related. I started declining when the apartment had a saver black mold infestation. Overnight I went from what was my normal. To falling 3 times a week on the way to work. There were even days I was furniture walking to keep my balance. I even had physical and visual hallucinations of bugs and lice infestation. To this day I have chronic pain and inflammation. I keep a recumbent bike, an elliptical trainer a starch machine , a 60-up balance trainer and recently got a treadmill for what I call "the little gym" in my home. I moved to a dyer climate to get away from the mold and got a job where I can work from home. I work in IT. I figured out that the full body vibration machine really really really helps. So did getting away from the black mold. I am Leary of walking in public. I brace myself against vehicles or reach for objects when climbing curbs. I use curb cuts and ramps . I climb and descend stairs slowly. Holding on to railings. Most of it is fear. I would fall 2-3 times a week going to work in Washington DC. And I did not know what was making me worse. I will say. I figured out the music benefits by the time I was 9 years old. Music also helps calm all the spasticity and thus the pain associated with muscle tightness.. An also pretty sure I have a lot of undiagnosed micro fractures from falling and an undiagnosed hernia. Last time I went to the ER after an Ice-cream freezer bowl dropped on my "good foot" . I was given x-rays and told it was not broken and accused of doctor shopping for pain killers. 5 yeas later the bones where the ice-cream bowl fell. The bones are crooked and the toe nails do not grow right. That has been the kind of care I have gotten all of my adult life. The doctors are not only dismissive. They are hostilely accusatory with pain management. Keep in mind I have made 6 figures and have some of the best medical insurance in the United States. Because of my chosen profession. Doing any kind of unnecessary medication prescribed or not would interfere with my job. I have known that for more than a decarded. I refuse to ask Doctors for help at this point. I make Arnica tinctures and tea baths for Pain Management and listen to music to keep my muscles looser during the day, Once a month I spend a Saturday sleeping for 24 hours or longer to fight fatigue. And just call it a "CP Day" so people don't bother me about it. Friends and family act like I am crazy and just treat me like I am lazy and fat because I workout less. Relatives fat shaming and laughing about my growing struggles. Where there used to not be makes is worse. I cut them out of my life too. My advice to Adults with CP. Check your physical environment for Black mod and Toxic Mold, Toxic People, and Toxic Healthcare Provides . Build yourself a "Little Gym". Get a good chiropractor, and schedule a weekend or two each month to sleep the clock around. Make Arnica tea baths. Take Arnica Flowers and put a hand full in a knee high sock to the sock to the bath spigot and run the bath water to fill the bathtub over the Arnica Flowers. That will numb and loosen the muscle es without drugs. It has been my experience, the reason there is not enough research on Adults with CP. The medical community is either hostile, dejected or both. Towards adults with CP. The best thing you can do for yourself is help yourself. And check and remove the things and people that are toxic to you.
I also have CP, was classified as mild I used to be pretty active but I got sick just before the COVID shutdown ( I had traveled) was negative for COVID but never fully got better. Have a cough that won't go away and now stomach issues , my pain is constant and all the Dr tests are negative.... I feel so lost in a sea of pain with no one who can help.
I was born in Ketchikan Alaska in 1962. I was premature and weighted 3 pounds 10 oz. I was not diagnosed until I was 3 years and was not walking. My doctors name was Dr Alan ''bones" Leroy. 13 experimental operation I was able to walk with out assistance 4 operations on my eyes corrected the wandering. Because of my knee's, I can no longer walk . My cousin who is the 1st born also has CP. I was told it was not hereditary but I did not have children. Now I am 59 and wondering what changes next
Me too. I’m still walking and I’m 46. A hot water lap pool has been extremely helpful with my spastic CP. Adults with CP need to unite, to create more info for better future care and understanding
Joined me for the treatment of cerebral palsy, sickle cell, autism, paralysis, stroke, with the stem cells therapy and is curative tps://chat.whatsapp.coNgYEraQlqEj5FvTEe1sy
@Jacob Ferreras There’s different forms of cerebral palsy. Look it up! Get educated about it. With physical therapy and other things the doctors did for me, I’m able to walk, drive my car too. So learn before you judge others. RESPECT PEOPLE WHO ARE DIFFERENT FROM YOU.
Me too, spastic all over now at 46. It was just diplegia when I was young. It seems to be progressively debilitating for me, although my Dr acts like it’s not and has pain shamed me for years, while overlooking my medical challenges and under treating my pain and anxiety. The anxiety began with being pain shamed, while I nearly died with and abdominal infection I had for 5 years before the gynecologist caught it… 10 bladder infections later and after developing thoracic outlet say and cervical dystonia.
@@206doglady2 I've been through the ringer as well when it comes to utis, and severe muscle spasms. I have the same type of cp spastic diplegia. In 2001 had a couple MRI's done and it appeared I had 2 bulging disc's lowerr spine. It's 2022 now. I'm 40. Now have 4 bulging disc's. Constant pain I deal with. Thankful for switching to medical cannabis. It's the best thing I've found that treats and numbs the pain. It's just a repetitive cycle though unfortunately but it does help me.
