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Pediatric Specialty Care - Abigail's Story 

MaineHealth
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www.mainemedica... - After Abigail became suddenly ill, it took an entire team to help with her diagnosis. Learn more about her story, and the role her pediatrician played in coordinating the care that is helping her return to normal.
Maine Medical Partners Pediatrics locations:
Falmouth Pediatrics
Portland Pediatrics
Saco Pediatrics
South Portland Pediatrics
Westbrook Pediatrics
VIDEO TRANSCRIPT:
-- Hold on to the reins.
-- AMY: You don't imagine your child who's
perfectly normal is all of a sudden going to,
you know, get really sick.
-- ABIGAIL: I knew I had something wrong,
but I thought, oh maybe I'm just not
exercising enough or something like that.
I couldn't get dressed by myself.
I couldn't get out of bed.
I was kind of wheelchair bound at that point.
-- AMY: It was extremely difficult to watch
your daughter have kind of the life sucked out of her.
I chose Dr. Silco as our pediatrician.
He's our, what do you call it?
our MVP, our most valuable player?
-- DR. SILCO: It took a little bit of time to kind of
get to the bottom of what was going on.
And so it was super important for the family and I
just to keep those open lines of communication.
-- When we're in the room with him,
he always makes us feel like she's his top priority.
-- Look at that!
-- He was of course keeping track of how fast
things were changing and he was corresponding
with all of the other care providers.
-- Whenever there's any kind of specialist,
whether it's just one or 5, 6, or 7 specialists,
you know, I view my role like a leader of the team.
It's my job to make sure that all the pieces are in place
and that all the parts are kind of functioning together
rather than separately.
-- He said "we're going to refer you
to see a neurologist."
And so he confirmed the diagnosis of JDM,
or Juvenile Dermatomyositis.
-- ABIGAIL: I'm feeling better.
I'm getting there, back to normal.
I went rock climbing the other day.
-- It was almost a year ago
that she was diagnosed.
And we're thrilled.
I mean, she's almost back to the Abigail
she was before she got sick.
-- Watch out buddy!
-- She's doing great.

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30 сен 2024

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Комментарии : 3   
@saravanans-tu2py
@saravanans-tu2py 2 года назад
My daughter JDM diagonis how long treatment folitrax50mg injection wysolone 15mg ttablet my daughter age 4 quik the report apply pls help me helpme helpme
@tommy.schreiner
@tommy.schreiner 2 года назад
keep it up Abigail! thanks for sharing your story. Our 2yr Daughter Sophia Schreiner has just been diagnosed with JDM. Rash symptoms started 6 months ago, muscle/moblity issues 1-2 month ago gradually getting worse which prompted us to run blood test, and end up here at Chicago's Lurie's Children Hospital. Starting standard treatment today. if you're willing to share further video updates or storys would certainly appreciate and view them
@carasmussen27
@carasmussen27 5 лет назад
Bless you and your family. And also your fantastic care providers.
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