This was the toughest case I have personally encountered so far. My son had severe MAS, resuscitated at birth. Anemia. PPHN. Had a TRALI. 3 cardiac arrests. For pphn they tried iloprost (it did not work) Sildenafil made a significant improvement. The first 2 years of his life was really challenging because of reccurent pneumonia. On his 7th year of life he was found to have a genetic condition, distal deletion on his chromosome 18. He is now 10 ang thriving. There are some delays in his physical growth but overall he is doing well. Dr. Kho, a neonatologist and her team in UST Hospital was amazing in managing my son's condition during his first month of life. If you are reading this and you are a doctor or nurse, I want to thank you in advance because you will be saving lives.
My new born baby boy is affected by this and admitted now.Please pray for my kid ..could not control my tears ..breaking my heart seeing the little one suffer
Hi Kamala...I'm in NY, USA and my son went through a severe bout with PPHN I will pray for your son....God saved my child and I believe He can do the same for you....maybe he's already recovering...🙏🙏🙏 My boy was in the NICU for 4 weeks, at Cohen's children's hospital. Will you share an update please.
@@B.Mega.D My son has recovered from severe pphn after 3 weeks of NICU treatment. He had still mild ph as per the scan report which was taken couple of week ago but doctors believe that will eventually go away when baby grows. Further he not got any symptoms of pphn anymore . My son and your kid are born champions. Thanks to God’s blessing ,the one who is above all , Dr. Hari Priya from PHC hospital, Chennai and well wishers like you 🙏🏿👍🏼👍🏼
That's excellent news Kamala! I know now you are just catching up on holding, and loving him like you couldn't when he was getting treated at the hospital... May God continue to bless you🙏😊👶.Be well ! Bye,bye🙂🙂🙂...(I am happy because of this tonight, thank you).
my baby have it pphn and he didnt make it 😢 main cause is disseminated intravascular coagulation 2nd is severe pphn and 3rd is meconium aspiration he only live 2 days
My daughter was born at 34 weeks with idiopathic pulmonary hypertension on October 25th 2022 at 4 days old she was put on ECMO after 2 1/2 weeks she came off better than she was she had coded twice before ECMO and once on ECMO for 20 minutes after ECMO she was still having trouble on and off the regular vent and non invasive well finally she was on bubble CPAP for a week was doing good then had to do a heart Cath procedure that put her back on the non invasive vent due to the pulmonary hypertension acting up they said babies and people with pulmonary don't do well with surgeries or anything stressful well fast forward to today may 5th finally went down to 29 or 30 on her PIP peep still at 30 on FiO2 peep is 34 or 40 but in the results of having to stay on oxygen she contracted bronchial pulmonary dysplasia as well plus she has underdeveloped lungs they upped her protein in the formula so hopefully that starts helping her lungs grow I don't know if anything is working honestly she is on bosentan sildenafil and steroids and Albuterol steroids my poor baby just can't get back off the vent 😭
