PPPD Recovery: Why Healing the Nervous System is Important for Dizziness Recovery 

I did it recovered nearly 98%. Somedays are 95% but yeah I can do everything that I was doing before PPPD. I am not pushing through my symptoms, not fighting Dizziness, I just don't give PPPD attention and I simply allow myself to give plenty of time to heal. There is no better advice than to "Do whatever you were doing before you had PPPD". Don't let fear drive you!

Thank you for your videos! I believe I have had PPPD for three years beginning after a panic attack, but the real rocking sensation of dizziness began about 6 months ago. I was terrified that I was dying when I was just having an even scarier panic attack. The anxiety was out of control. I am now on 75mg Zoloft and have weekly psychotherapy. I also receive physical therapy which mainly focuses on simple vestibular rehabilitation exercises, eating well (low sugar low salt no caffeine no alcohol) and managing stress - I also am thought to have endolymph hydrops, which when I don’t manage, causes tinnitus and exacerbates the dizzy feeling to more like a feeling that I am going to faint especially after having caffeine. The nervous system component is huge. I have gone from 100% of my day feeling the rocking sensation and feeling completely-not-myself level anxiety to maybe noticing it about 10-20 times a day and being okay with it, my anxiety has gone down a lot. I couldn’t drive or go into a store and now I am nervous but okay with going out. I’ve gone from having no idea what triggers the dizziness and anxiety (because it felt terrible all the time) to being able to see clearly what makes the symptoms worse. When I feel down my therapist reminds me that I am still on the path to healing and I have more healing to go and I am not done. I hope someone reads this and feels hope about their situation. Give yourself a lot of compassion for all that you experience. Even though the specifics are unique to you, are not alone in this and you deserve compassion. Videos like these are a life saver. Thank you.

I've had pppd since 2009 and 24/7 non stopping， relentless。 And I'm only seeing your message today and that gives me a lot of Hope. Although I have tried to get out of my Walker since about a week ago now with your message I have got more encouragement and direction. Thank you so much.❤️❤️❤️💪💪💪

I've also started on a low dose antidepressant as I am past the point of being able to calm myself down. Having massive panic attacks that are raising my blood pressure and putting me in ED. I don't leave the house unless it's for a medical appointment which scares me because I fear driving and I can't stand being a passenger. This video is very correct in that calming the nervous system is key before it starts playing havoc on other systems on the body like it has done to me. Thankyou

Hi Emma, I want to thank you for taking the time to make these videos. I’m 4 months in and it’s been a journey and a half so far. It’s hard to put into words what it’s like isn’t it and the way days can be so different. I’ve learnt so much from your videos and believe that I’m starting to heal and I am believing in myself to heal. Meditation for the last 6 weeks has been absolute key and if I had to put one word to the last 4 months it’s been ‘fear’. I’ve very slowly been able to start letting go of fear and as I have done so, I have felt real steps forward. Thank you again x

I literally cried when I watched your video about the symptoms. I have every single one. I went to 2 ENTs, Neurologist, Neuro-ophthalmologist, and I did all test possible everything came back normal. I also had regular anxiety basically your average that turned into full blown panic attacks late last year which is when the dizziness got worse. Thank you for sharing. I really need to work on telling myself the dizziness is safe. I’m going to do the exercises. I started meditation about a month ago. Did you have eye issues? Blurry vision or double vision? How are you feeling now? Will you post soon? Thank You so much❤️

How have you been ? I just want to say thank you for the videos! And for everyone sufferers with this illness , stay strong and stay positive. I suffered for so long and finally found relief. Get all the testing done and if everything checks out watch all of her videos . She is great and can help you on your path of healing.

Make more videos for people like us plz

Emma, you are describing perfectly how I've felt the past few years. My first thought every day is "how am I going to get through this day with my dizziness". I've felt that my docs are missing something and that at any moment I may have a catastrophic event. Just hearing you describe your experience, which mimics mine exactly, gives me hope that this is treatable. I need to start trusting my rational mind, not just my emotional mind. We'll all get through this. Thank you again for discussing this very real, and very awful topic. Being dizzy is just horrible and those who haven't experienced it will never really understand how debilitating it is. I hate that others are struggling with this, and at the same it gives me comfort that I'm not alone. Thank you Emma!

You sounded just how I see my 27 year son at the moment, who is TOTALLY dependent on me until this dizzyness goes. Diagnosed with vestibular migraine and vestibular neuritis 2 years ago, suffering an ear infection 3 weeks ago has created extreme dizzyness and spinning/swirling. Even at night his eyes swirl so he cannot get to sleep. He never had this with his vestibular conditions. His GP said to him this week he doesn't know what to do..... 🙈 this leaves us feeling helpless

Gosh I wish I could have a q and A with you. My stuff seems so circular. I know there’s a lot of anxiety that triggers it and then Causes more anxiety. Which then causes more dizziness.

I have suffered from PPPD for almost 4 years now. I have been doing vestibular exercises that have been helping. recently been getting panic attacks and bunch of anxiety. ty for the video.

Thank you for posting these videos. They make me feel a bit less alone and gives me some hope that I can eventually be in control of my symptoms and therefore my life. I've been dizzy since Oct 2014 when I had what doctors believe was a subarachnoid brain hemorrhage. I've had so many incorrect diagnoses (Lyme, CIRS, etc) that it's difficult to trust any particular diagnosis. So even though the diagnosis of PPPD came from the Mayo Clinic, I'm still dubious. What I always say is, "I'll believe I have diagnosis X when the treatment designed to help diagnosis X actually works." Of course this gets into a chicken/egg problem. Do I have to believe in my diagnosis to actually start to feel better? So some questions either for Emma or anyone else reading this. First, "dizziness" is a very imperfect term in my case. I do not feel the earth is moving nor do I feel false motion. My dizziness does not change based on position/posture (so the second "P" does not apply to me). But it is exacerbated by the sorts of environments that everyone talks about: large indoor spaces, grocery stores, etc. I also have constant tinnitus in my left ear, ever since the dizziness started. So basically... Have you run into others with PPPD who A) has symptoms that don't change based on position, B) feels no false motion, and C) has tinnitus as a friendly accompaniment to the PPPD? Thank you.

I am convinced a lot of these problems folks have is to do with the post BPPV machinations of the CERUBELLUM. this coordinates all sensory inputs including vestibular but also including nerve returns from teeth, feet etc. The lower back of the head has a lot of nerve tissue apparently, and personally I suspect the tri-geminal nerves on my head were conscripted at an early stage by the C causing very weird tingling all around my head at night. BONKERS. I still get relief when reperforming epley about monthly when there's been no BPPV attack. Found that positional tiggers much reduced by early morning after reasonable sleep. INTERESTING: I found that during my second BPPV canalith event, blinking my eyes reset the rotate.

Your testimony is very encouraging, Em! I appreciate you taking time to share and encourage others! God bless ya, babycakes!

Thank you for your content on PPPD!

I’ve had this for 5 years and just now found out what pppd was

Thanks Emma from John really helpful

Love your positivity. Really amazing advice. I will watch your other videos as this is really helping.

Hello Emma, give me hope that this dizziness will pass. I have listened to your advice and at this point I am so stressed and can't do anything, breathe calmly, do vestibular exercises. I am going to the psychiatrist tomorrow to get lexapro. the only progress I have made is going for walks since yesterday. Sorry for my English, I am writing with the help of translator.

If your constantly dizzy how to you sit with it? I’m dizzy every time I move around, cleaning, cooking and just sitting I feel it and I try to keep doing these things even though I’m afraid. After I’ve done things I’m very anxious because now I’m afraid of more dizziness. I wake up afraid of what will happen that day, even though I’m on clonazepam. Can you recommend meditation videos for this? It’s very hard being afraid to move. Like you said it’s like my system is so messed up that I’m waiting for the serious thing to happen. Thank you for sharing your videos and any suggestions you have.

i wonder if there is a connection between Adrenal Fatigue and PPPD . I had develop PPPD this year but for the last 7 years i was under alot of stress due to a hostile work environment and dealing with crazy co workers and was always constantly in a fight or flight mode . And then with more add stress from having to take care of my sick mom who passed away from cancer 2 years ago . So i haven't even had a chance to even heal or take care of my self since the last 7 years . Although i have quit that job since the Covid outbreak which has tremendously cut out alot of my stress but i still think i might have adrenal fatigue and other issues.

Look forward to these videos! Thank you 😊

I was told my PPPD happens because of my panic/anxiety disorder as well as my recent diagnosis of FND and the lightheadedness is terrible, everything triggers symptoms

Such a wonderful video!😀❤️😀

Thanks a lot blessings

Why aren’t you making more videos? They were so helpful and I’m so thankful.

Thank YOU so so so Much!!!!!!!

Good morning to you sister, l am so discouraged, l have everything you’re talking about, even hiatal hernia now , make my blood pressure so high, shortness of breath breathe. Please need your advice 🙏🙏

I feel all this!!

I don’t know a lot about how to start meditating….any videos, tips or advice on that? Also can pppd start from a very bad episode of bppv? Thank you!

Helloo..What is ur opinion about some micro nutrients that support nervous system? I think about some minerals and vitamins..Like magnesium ,vitamins B and D..As I read,there is stand that majority of people are deficient in magnesium so it's main source of many problems..I find I am vitamin D extremely deficient and I have now PPPD..But its some kind related to me with gut problems and bloating...What is ur opinion about suplementation and healthy food ? Thnx

Hi Emma. I’m finding your videos so helpful and reassuring so thank you! Could you tell me where you got the diagnosis of pppd? I’ve spoken to countless GPs and paid for a private ENT consult. Also paid for a vestibular physio who knew less than me. No one has ever mentioned pppd. I feel like it’s not a condition most medical professionals are familiar with. Thanks 😊

Has anyone ever heard of this being started related to the use of psych meds? I’ve had this for 25 years. It Started after tapering off and anti depressant and a benzodiazepine which I took for a short time. When I spoke of the boaty waterbed sensation, I was told it was a worsening of anxiety and to get back on the medication. I got better for a year tops maybe, since that first year back on the anti d/benzo, I have been battling a worsening of the condition, at first tolerable but slowly completely disabling for all those years, trying one anti d after another. I am looking for hope.

Hi ive had this problem for 4 years now due to trauma. Does anyone feel that their toes are numb and have difficulty walking?

Hello, just want to ask if lightheadedness cause dizziness? I am having lightheadedness everyday the whole day but the things around me is not spinning. Does it mean I have PPPD?

Hi! Your videos have been very insightful. Whose the specialist who diagnosed you with PPPD? When I had mentioned this to my gp they had no idea what that was and mentioned BPPV.

Is it good to massage the vegus nerve?

So how do you fix this?

Hi Emma, did you also have 24/7 back and forth rocking and side to side swaying sensation?

Are you familiar with the book Rock Steady by Joey Remenyi?

Hola Emma, te curaste completamente de los mareos? sentias los mareos todo el tiempo? Yo siento mareos todo el tiempo, hace 6 meses, y tambien escucho un zumbido. A veces tengo miedo de no poder curarme. Gracias por los videos

Hi please can someone tell me their experience with exercise after PPPD recovery? I was very active before and I always wanted to start boxing, is it possible? I am like 2 days in recovery 😶

How do you sleep? Me its hard to sleep and if i sleep and suddenly woke up i cant sleep anymore

1 months ago i started feeling vertigo whenever i turned my head on the right side during lying down.the doctor told me that i have bppv in my right ear.after that,docor did few exercises and my bppv gone and i was fine in 1 week.but now i feel dizzy while moving my head, walking,lying down,going to upstairs and downstairs. Also i feel lightheaded and a type of weird sensation in my head.why is it happening? Please give me few suggestions that what should i have to do now?i am so scared of my present condition. Please help me.

Did your doctor recommend an antidepressant for this condition?

How many times meditate every day?

When i walk the ground shakes and i feel unstable is this pppd?

Does vaccination affect PPPD

Have you had any relapses?

Will this help with the constant head pressure too?

How will i get rid off my DPDR hun so i can feel normal again