What is PPPD; 7 Common Things About PPPD You May Not Know 

I feel worst im the morning and get better as the day goes by weird 😕 but i have hope & trust god has healing for us

Hey, my name is Emma too! I think I've been dealing with PPPD for almost a year now (November 25th, 2022) and I'm trying my best to get better by watching these videos made by others who suffered just like I am. Thank you for your advice, and best of luck to everyone else in our boat!

Hi Emma, I am more dizzy when I am standing still. It is horrible. Standing in line is unbearable. I've been experiencing symptom's for over a year, but just recently found PPPD information. Thank you so much for your videos I am glad to hear you are healed. I am using every video I can to improve and appreciate your information. So far doctors do not seem to understand PPPD. I have not had any luck using that route.

Thank you so much for posting this. This has completely my taken over my life. Almost everything I do I’m anxious about because I don’t want to be dizzy.

Thank you so much.. I really appreciate your knowledge and encouragement! You have described exactly what I'm dealing with.

This was so informative and helpful! Wow!!

Miss you and your videos.. Thank you for still posting.. And yea I have all these.. I was so happy to see this new one..❤️

I got triple PD October 2021. For 8 months I've been struggling with vestibular migraines, GERD, dizziness, feeling faint, lightheaded, nausea. Was on Xanax and hydroxyzine for a while. Just a Band-Aid. Not on those anymore. It was at the beginning when I was so so desperate. I've been to so many doctors. Got my gallbladder removed April 2022. Finally got off of Prilosec. Was starting to feel better, then got covid end of May 2022. What a setback. It really affected my triple PD. Had to start Prilosec as every time I got nauseated it would affect my nervous and digestive system. My anxiety is not as bad and I'm not that sensitive to light and sound lately. Got back on Prilosec 40 mg daily keeping my gerd and acid reflux in check. If my gerd is okay my head is okay. It all interacts with each other. Last few days I've been able to feel a bit normal and just wondering when it's going to come back again. Also had a counselor that helped me with coping skills that I am safe and nothing is going to happen. Looking forward to being normal again. Doing vestibular physical therapy and some of the exercises are helping. Can anyone tell me how neurology could help with triple PD. It has to do with the nerves, but no one can tell me. How can a neurologist help and how do I find one that specializes in Vertigo and triple PD. It is very hard. My vpt has been very helpful because she's going through the same thing.

Super duper tnx now I understand the true reason of my dizziness

I feel the rocking and swaying when I am still walking had been my go to for feeling some what normal thanks for reminding me that I am not alone... Going to practice on sitting still

Thank you so much for this! I have every symptom and feel very seen. Doctors have been useless and have ultimately made me feel like i'm going bonkers! This has given me some hope and reassurance xx

I have been dealing with all these symptoms for three years off and on, mostly on, and have been diagnosed with all kinds of things that don't make sense with all the symptoms the way this makes sense with all the symptoms. I am so glad I found your channel, and I'm going to mention PPPD when I see my neurologist next month. Somehow I think that having an actual diagnosis that makes sense and finally knowing what is going on will help in and of itself. Thank you for creating this channel!!!

Finally I found out what I have! Thank you for the information! I’ve been having this for years now and getting worse. It’s crippling. I can’t do anything 😢and I have tons to do!

Agreed with the car driving thing, it seems that paying attention to something else helps. My 3pd is a legacy of 2 BPPV attacks I had some years back. After those the 'insult' appears to have confused my cerebellum [the bulb at the lower back of yr brain which handles vestibular inputs of ALL kinds including nerve signals from all over the body, not just ear canals] and it has been struggling ever since. As the name suggests, my 3pd limits head positions when I sleep, if yr tired enough you can drop off through them if you are brave enough. Repeating epley once a month seems to help. Watching TV, playing computer chess has helped. I have to say it was A W E S O M E that me and my 2 sisters all had the BPPV attacks within WEEKS of each other, can't work that out.

Restaurant’s are still challenging for me. But I’ve replayed some of your quotes in my head such as “I am safe”. You’ve helped me so much to get through my scary symptoms. Thank you

Hi Emma, so lovely to see you again. Thank you for such a great video. I’m so much better but I can definitely relate to all of your points and still struggle on and off. The head pressure and neck pain I had at the beginning last year was awful. I also found my longest lasting is the sensitivity to movement when I’m still. It’s such an awful uncomfortable feeling and I still vaguely feel it now sometimes but it is improving luckily. I have to say pppd has been the most trying time for me but although I have good and bad days, I’m definitely getting there. I love your reassuring, informative videos though so thank you. I look forward to more soon hopefully 🙏 x

Thank you this was interesting 😊 I have the opposite on a couple of things, I feel worse in the morning & I feel worse in n the move. It’s a living hell as I have been locked in this for 8 years. My diagnosis is PPPD/VESTIBULAR MIGRAINE. I find the PPPD to be more debilitating. I have recently started injections for the VM but so far no help, nor has a long list of of medications over the years helped. The stress of breast cancer 3 years ago has made things worse. I work on a busy hospital ward with lots of stimulus & bright lights & unfortunately lighting & computers are my main trigger! 😮

Thank you so much !

This is me I get all them and nauseous did you get this brilliant video 👍👍

I am not diagnosed completely yet ( after 4 years) but dr mentoobed PPPD. A big help for me is riding the bike. I have problem with straight walking but i xan ride a bike without any problem. I akso can drive.

Hiiii emma so sweet of u atleast u spreading information but I want to know whether symptoms varies every day and when u start noticing that ur symptoms actually reducing??

Hi, thanks for your advice! I'm Spanish and I developed pppd a year ago; the isrs didn't help, not even the rehabilitation; and the doctors here 99% don't know about pppd; I'm going to take your advice on neuroplasticity; a neurofeedback question can be a way of neuroplasticity? I will try not to be so afraid of the symptoms and not see it as something so horrible; thanks for everything!

Thanks for this video, I've been diagnosed with pppd. I have all the symptoms you mention apart from mine in worse in the morning which is odd. I'm pleased you mentioned sports etc as this has confused me and my friends and family. I feel better doing things as apposed to sitting like you say. It's very hard to explain to people you have a balance issue when they see you playing football or tennis.

Hi Emma. By month 18 in your recovery, on a percentage level, how would you say the dizziness was at?

Sometimes we need vision therapy to help our eyes work better together.

Hi ive been dealing with this over a year done so many tests and scans and seen multiple drs but no answer I also have tinnitus pressure and the ear and and jaw is this part of pppd pls

I am from India and I am suffering from pppd after COVID. Worst part no one in my family believes me they just say I am over reacting sometimes they mock me also

My biggest problem is when I’m walking and then I meet someone along the way and they start talking to me. As I’m standing there I start to feel sickly like I’m going to faint. It’s the most troubling sensation. When I restart walking it goes away. I’d like to know how I can change this. I’ve just started walking again too. It’s the most uncomfortable part of this dizziness.

Hello thanks for the videos...... What about neck pain around C1 and C2 area? And when I'm walking the nonspinning off balance come on and off and when I stand next to someone I have to hold something like if I'm leaning against something to feel comfortable...

One thing which makes me very curious is the nature of relapse in pppd, you do all the right stuff and you start to heal, everything is good you're walking 5 miles and then a little panic attack type stuff happens or you just wake up with dizziness and now you're at level zero again

I can't drive at all. Driving has triggered 3 anxiety attacks. I've had to hire and pay a driver since 2016. I seem to be the opposite of what you're saying. Sitting still calms it a bit. Walking, driving, shopping all triggers. And I'm a landscape construction contractor. Very debilitating.

I feel dizzy when I’m moving and during head movement and spinning sensation

I am moving 24/7, pulling, pushing, tocking, bobbing. In a car it stops but i hate being stationery. I cant drive anymore and panic attacks constantly. I struggle to get to appointments and only leave the house for medical appointments. I was doing the VR and seemed to gwt bwtter then ended up in ED after two strange turns that put me hypertensive. Now imback to square one. Just started antidepressants and hoping they settle my nervous system. This is cruel

Hi Emma I have this 24/7 did your symptoms last this long 😮

Hello, my dizziness is worse/triggered as soon as i start walking outside, but it must be just outside, when i walk inside i am fine. Please is this common for other people too?

Hi Emma. One of my main symptoms is eye instability. My eyes can’t focus on an object and feels like it’s shifting. Seems like my brain is over relying on my eyes. (I’ve had my eyes checked there’s nothing wrong). Practicing stillness and just letting my brain figure out what’s happening should help correct?

How long did it take you to be 100% again? What did you do? My main problem is i get dizzy When im visually stimulated and i have also light sensitivity, im doing vrt for the last 3 weeks and they just told me to start optokinetic exercises

Hello how have you been I have also struggled feeling great to going back to feeling dazed and fatigued. How are you symptoms now? Are you mainly 100% most of the time or do you still struggle at times?

My mum is suffering from PPPD and your pointers are very relatable . Could you tell me , is it possible to get cured from PPPD completely?

Mam my all tests are normal but my vitamin d is extremely low. And i have earthquake like feeling when i put my feet on ground. But it vanishes when i walk or run. Is it pppd?????

Hi Emma, I heard somewhere that your dizziness started after drinking alcohol? Is that true because I have a similar onset Yes I feel better in motion

Do you think caffeine makes it worse? Like it's almost guaranteed if I have coffee and I feel a little bit nervous I'm going to get really dizzy

My doctor says I have pppd, but I recognize actually nothing from the symptoms. I have had vestibular neuritis and I still suffer from intense fatigue that gets triggered in busy surroundings, but Im not dizzy anymore. I don't know what to think of my situation. I'm so tired I still can't work, having a meeting for example is way too difficult for my head still :(

What about feeling ok while driving but then terrible when you get out of the car, especially when going 30 or more minutes of driving?

Driving is when its the worst for me.

Has anyone else experienced head pressure and constant pressure behind the eyes, this is the symptom that gives me the most worry, along with the dizziness

Is anyone experiencing less symptons when drinking an alcoholic drink? Or is that just the anxiety that is getting less worse?

Did your symptoms become less and less? Instead of 24/7 as you recovered? Xx

Hello Emma, you were bad laying down ? Or just sitting

I had a stroke eye and ear bad, so balance is off can't sleep either 2:06

Driving is ok most of the time but as soon as I stop at the lights boom it hits hard. Must be the stillness. I feel so dizzy like I'm going to faint or fade away. It's so horrible 😔

Hi

As soon as I sit still I feel my head buzzing and just feel off. What's weird is I can watch videos and scroll on my phone but tv makes it much worse.

that sounds like MdDS, not PPPD?

Driving makes it worse for me.