i was diagnosed with LCH when i was 14 years old (im now 16). i felt a big bum on the top of my forehead and went to the doctor. after a few monts they diagnosed me with LCH. they removed the bum by surgery and now i have a little hole left on my head. im very gratefull it's not lifethreatening.
Same i was diagnosed in 2019 when i was 13 but i had my pain in my bone. The two spots we're my right arm and left shoulder . My left shoulder still hurts but my right arm is healed also I'm still taking medicine. I have question did you take prednisone and vinblastine