I hate recording seizures because I feel so vulnerable, but I feel it’s so important to spread awareness for non epileptic seizures. Sorry if this is hard to watch I found it hard myself watching it back
I am epileptic and unable to do something like this because my warnings are very quick. Thank you for the vulnerability it takes to post this. From watching you, I can understand the feelings that folks have when they watch me. I feel more empathy in my body for you than I do judgement and I needed to experience that. It makes me feel less embarrassed for my own seizures. Thank you again.
I have adult-onset juvenile myoclonic epilepsy, which is the most ridiculous diagnosis name ever lol. Essentially JME is typically diagnosed in teenagers and young adults, but I didn't have my first tonic-clonic seizure until I was 32 when I started having many all at once. I do recall experiencing myoclonus when I was younger. I had several unwitnessed tonic-clonics before I knew what was happening, until I finally had one in a crowded restaurant. I had never been diagnosed with epilepsy until then. I've injured myself on several occasions when I had a seizure alone, including once when I fell off my parents' kitchen counter while I was standing on it fixing a shelf. Seizures can be so isolating, and I can't imagine if I had been dealing with this as a teenager with school and everything else going on. Thank you for bringing awareness to these diagnoses and being brave enough to film yourself!
I was diagnosed with hypoglycemia in the first grade and it has been coming and going ever since, this can and has caused fainting and seizures (non-epiletic seizures) thank you for spreading awareness!
I have non epictic seizures and epilepsy but it is so important to spend awareness of non epictic seizures you done really well of posting the video of it
im so sorry that this happens to people and its a really horrible thing to go through, I know that you're very strong and you can pwer through it, so keep pushing!!
They really are real and I have episodes of non epileptic seizures sometimes and they are a struggle at times especially when people think they know it all and run their mouths. My one neurologist called me crazy and told me to never come back to him because he said that I was wasting his time
I have epilepsy seizures and they really are not fun at all when I was younger I would be in and out of the hospital all the time middle school was ok high school not as great but I managed to control them sometimes my last seizure that I had my mom and the doctor said I could have died from it because it was bad. I don't get them as often but some when I work and I feel like I'm about to get one I distract myself but I force myself to keep working. All the jobs I've had before I've been let go from one time I was wondering in a factory the air conditioning wasn't that great I went to the ba because it was cold once I got out it was so hot and I had to tell someone about it so I did I haven't been able to keep a job for that long. Thankfully with this job that I have right now I don't plan on telling anyone that I have seizures because I don't wanna lose another job. I've tried so hard to keep a job that's all I want. My boyfriend told me one time you don't have to work I'll take care of you I told him I appreciated it but I have to work for myself because I'm not always gonna rely on him for everything.
Your video has helped me understand. I had a close friend with epilepsy. I never understood what it was like. I didn't pry. We guys don't talk about stuff like that.
I think my daughter has these as she only started having seizures when she was 15 , and she is 33 and on medication for epilepsy that l don’t she has , because when she had a seizure while on Hoilday the doctors referred her seizures to stress and high blood pressure they gave her Xanax and she never had another seizure the whole Hoilday that was last year and she still hasn’t told her doctor what the Spanish doctor said ? I keep telling her to tell the specialist when she goes for her mri but she doesn’t just keeps taking the epilepsy medication ? And the side effects aren’t nice .
I would not be able to video any of my seizures as I never know when I'm having them even a wierd feeling so what's the point in me trying to video mine ide never know when or where😮😅
I have non-epileptic seizures but I have epilepsy. I know that sound strange😂 I mostly have Petit Mal and Sub Clinical seizures, but I have been diagnosed with focal discognitive epilepsy. I admire you for posting this! I have never gotten the courage 😘 much love🤍
