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Reflections of the long term glioblastoma survivor 

Brains For The Cure
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Tom Sadowski is a long-term survivor of glioblastoma.
What it's like talking to hundreds of people facing brain tumors.
Worry won't change anything, but it's still easy to catch yourself worrying about things you can't control.
"Is this normal?"
The value of having time to plan and reflect.

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1 окт 2024

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Комментарии : 23   
@RhodaLevy
@RhodaLevy Год назад
This ads hope to an already frightening situation. I thought my husband was given a death sentence....turns out, maybe not so much, it's almost a year since his diagnosis and surgery, everything's looking exceptional even the doctors are excited... here's the thing, the guy in this video is right, hypervilligence is the only way to stay on top of it. Plus finding out that others have lived long term is relieving to those of us left wondering what's next...thank you for posting this, I can breath a little better...it's too soon to call it in the clear just yet, maybe it never will be but for now I'm just blessed to hear his peaceful snoring on the lazyboy in the other room. God's got us, this I know for fact....may those of you searching for answers find your blessings as well.
@valexwalker
@valexwalker Год назад
So glad to hear things are going well for your husband! What a blessing. Just curious if you’ve looked into Professor Thomas Seyfrieds work as well as Dr.Nasha Winters. They both are helping so many people with GBM’s. Many blessings to you and your family!
@TheMuseLuci
@TheMuseLuci Год назад
I am so far a 3 year survivior, and honestly yeah. do everything ya'll can to be a long term survivor. But in the end its as he said. what will be will be.
@nancymosby7369
@nancymosby7369 2 года назад
Yesterday is gone tomorrow is not here, be present! Enjoy survival today !
@imnotastatistic.survivingg5206
@imnotastatistic.survivingg5206 3 года назад
Diagnosed on Jan 2021 After craniotomyI I was one month on radiotherapy And now I’m using Optune
@PVDofc
@PVDofc 2 года назад
Still going strong?
@byandreasousa6229
@byandreasousa6229 Год назад
My healthy strong farm father lasted 3 months after diagnose 😢so sad…
@mbmochinski
@mbmochinski 9 месяцев назад
Almost always there is nothing that can be done. My husband died at 50 from a GBM after 12 months of brutal chemo. He couldn't tolerate the chemo anymore and died a month after he discontinued it. It's a horrible disease!
@mariannehey9509
@mariannehey9509 3 месяца назад
My Hubbie too…only 2 month death sentence and gone..,so sad, miss him so much
@georgehays4900
@georgehays4900 3 года назад
18 months out after craniotomy, radiation and chemo. Still wondering what is next?
@BrainsForTheCure
@BrainsForTheCure 3 года назад
Hi George! We'd encourage you to explore the resources available on www.brainsforthecure.org. As well, we'd like to invite you to our monthly calls with other patients across the country. These calls, Patient Perspectives, meet the 1st Thursday of each month at 6PM CT. You can register for these calls at bit.ly/38bGSbn and you must register to receive the Zoom link information.
@imnotastatistic.survivingg5206
@imnotastatistic.survivingg5206 3 года назад
How are you doing George? Sending prayers and blessings 🙏
@joools1953
@joools1953 Год назад
About the same time frame for me.
@sarafletch
@sarafletch Год назад
@@BrainsForTheCureMy mom has just been diagnosed and I am wondering if you still have supports and resources? Thanks
@brandoncarlsness3080
@brandoncarlsness3080 2 года назад
We lost our 19 year old (my step son) same year I found about my grade 4 Glioblastoma
@dyfrigshandy
@dyfrigshandy Год назад
Herbs n spices
@impressiimpressi1287
@impressiimpressi1287 3 года назад
@imnotastatistic.survivingg5206
@imnotastatistic.survivingg5206 3 года назад
Question, What treatment are you current on? Sending blessings 🙏
@brandoncarlsness3080
@brandoncarlsness3080 2 года назад
On resection 3 then gamma tiles
@DK-zm2fq
@DK-zm2fq Год назад
hope its going well
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