all you have to do is provide your best care and accept the fate. If you believe in one God then He will reward you on the Judgement day. Be patient and take care.
I hope this doesn't offend you, but RS is really a gift I wish I could go back to when Skylar was diagnosed and shake myself "This is the best thing that will ever happen for you!"
Why is there always sad music on these videos RS is the greatest gift god ever gave my family and I wish it hadn't taken me 20 years to understand this