Listen to Brooke's, Isabel's and Tatum's parents to learn more about Rett Syndrome, the challenges as well as the hopes and dreams for their children.
About Rett Syndrome:
Rett Syndrome is a debilitating neurological disorder diagnosed almost exclusively in females. Rett Syndrome has been thought to affect 1 in 10,000 females. It is now believed, however, that the prevalence rate of Rett may be much higher. Although rare, it is possible for boys to also have the disorder.
Children with the disorder are born without any signs of the syndrome, but they lose their ability to speak by the age of two. Then the children become profoundly disabled, requiring 24 hour assistance with every aspect of daily living.
About Rocky Mountain Rett Association (RMRA):
The Rocky Mountain Rett Association is dedicated to improving the quality of life for children and their families impacted by Rett Syndrome. We provide resources, engage in advocacy, education and awareness efforts, and raise funds to support the search for a cure and to run the Rett Clinic at Children’s Hospital Colorado.
2 мар 2020
