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Scanning for Trial Eligibility 

Caitlin's Cancer Chronicles
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Things did not go smoothly during the multitude of scans I needed to do to try to get onto a trial!
Contact details:
Caitlin Taylor
PO Box 264
Harlaxton Qld 4350
AUSTRALIA
Stage IV Thymic Carcinoma
(Rare Cancer of the Thymus/Malignant Thymoma)
Diagnosed 2017 - Chemo and Radiation
Lung Metastisis 2019 - Immunotherapy
2020 - 2022 Ongoing Immunotherapy, Radiation, (twice) Chemo (twice)
2023 - Radiation, Clinical Trial attempt, Chemotherapy
2024 - Carbo-Taxel Chemotherapy - cancelled due to two major reactions
Current: Radiation

Опубликовано:

 

11 сен 2024

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Комментарии : 70   
@mariaursillo1560
@mariaursillo1560 Месяц назад
Dear Caitlin❣️ I’m a retired RN from WA state & I want to thank you so much for sharing your family’s life & your incredibly brave CA journey! It’s a very tough Go w/all the tests, labs, scans, medications! It takes over your life…I admire you so much! You have the most Positive & Loving Personality! Stay Strong & 🙏ing that you will be Healed! & When a patient says they are in pain, it needs to be addressed & see what can be done to make the patient more comfortable! I would file a complaint w/the technologist’s supervisor!
@rachelkeyte1002
@rachelkeyte1002 Месяц назад
Wow, I'm with you; I absolutely hate Canlas! They hurt like anything. That guy was inappropriate, as others have said. Wow! I think you need to let the other staff know if you hadn't already. I'm so sorry you went through that. When I had a cannula put in once, she totally went through to my muscle. It absolutely killed.
@caitlinscancerchronicles
@caitlinscancerchronicles Месяц назад
Oh my that sounds horrible! I don’t think I’ve had that before thank goodness!
@susanehlava3808
@susanehlava3808 Месяц назад
You are so brave,,driving yourself to appointments that are sometimes traumatic. Don’t know how you do it. Trying to be everything to everybody. I don’t know how you do it. I have even through cancer and all that goes with I thought I was strong but nothing compared to you. ❤❤❤
@caitlinscancerchronicles
@caitlinscancerchronicles Месяц назад
I guess we all just do our best with the hand we are given!
@iamcranjismcbasketball
@iamcranjismcbasketball Месяц назад
That's inappropriate behaviour from the medical technologist! I'm so sorry for that experience. I'm praying for you, Caitlin!♥
@caitlinscancerchronicles
@caitlinscancerchronicles Месяц назад
I didn’t feel he was very professional.
@1991sjw
@1991sjw Месяц назад
Medical PTSD is a real thing…. Thank you for sharing your story, you are so strong for sharing.
@caitlinscancerchronicles
@caitlinscancerchronicles Месяц назад
Yep. Cannulas definitely elicit a response from me!
@user-gt5xb4dv1z
@user-gt5xb4dv1z Месяц назад
Caitlin that’s terrible, I fully understand why you felt the way you did. I hope everything is finished now and you are feeling better😊
@caitlinscancerchronicles
@caitlinscancerchronicles Месяц назад
Feeling much better!
@bettyconnearney7943
@bettyconnearney7943 Месяц назад
Caitlin you have so much on your mind, how do you manage it all!?? Wish I lived next to you and i could help you out!! We live on opposite ends of the world. Praying you get the new trial and feel better!! I will send Hugs and Love and Prayers...❤🫠🙏🙏🙏🙏🙏🙏⚘️🌸🌼🌹Sorry you had a bad day😥hopefully you sleep well 😴
@caitlinscancerchronicles
@caitlinscancerchronicles Месяц назад
You are very sweet. I did sleep well after all that!
@marydrummond8832
@marydrummond8832 Месяц назад
Love your Lego flowers .
@caitlinscancerchronicles
@caitlinscancerchronicles Месяц назад
Thank you 🤗
@kateford8649
@kateford8649 Месяц назад
Oh darling Caitlin, we're here with you in spirit. So sorry that you have to keep going through hard times. Thank you for taking us along on your journey with you and being so open and honest. Love and hugs to you!
@caitlinscancerchronicles
@caitlinscancerchronicles Месяц назад
I’m grateful that people keep watching, thank you!!🤩
@lreppy10
@lreppy10 Месяц назад
You poor thing. That was terrible! Such an awful technician! I’m so sorry that you had such a bad experience. You handled it much better than I would have. Also, those Lego flowers are beautiful! My kids always beat me at everything, lol. I hope this week goes much smoother for you. I also hope you are accepted into the trial! 💞☀️🌸💫
@caitlinscancerchronicles
@caitlinscancerchronicles Месяц назад
Thanks. If I walked in and saw him again, I’d walk straight back out! The Lego flowers were so fun to make.
@SSr1030
@SSr1030 Месяц назад
What a terrible experience he should have been reported. Prayers for you 🙏🏻🤗🙏🏻🌻
@caitlinscancerchronicles
@caitlinscancerchronicles Месяц назад
I did tell my trial supervisor, so I was hoping she would deal with it. I didn’t have the energy!
@sheilabridge5434
@sheilabridge5434 Месяц назад
I’m so sorry for your really bad experience and,it’s not just where you live but here in uk ,I can’t tell you what happened with my girl it was horrific and so bad I tear up when I think of it ,I love your smile and positivity,you put me and many others to shame ,love your cat ,take care god bless you &your family,I’m praying for the trial for you ❤️
@caitlinscancerchronicles
@caitlinscancerchronicles Месяц назад
I am so sorry that you and your daughter have your own trauma story. It’s tough. Sending love.
@user-tw5ts4uh8h
@user-tw5ts4uh8h Месяц назад
That is so terrible you had to go through this darling 😢. You didn't need that at all. God bless you. Sending lots of love from Ireland 🇮🇪. I could listen to your voice all day... xx
@caitlinscancerchronicles
@caitlinscancerchronicles Месяц назад
Thank you! I’m fairly certain I would feel the same in reverse at listening to your accent!
@sandrasonger8765
@sandrasonger8765 Месяц назад
Doctors can be so insensitive. I really wish they would listen and take to heart what we are saying. Im sorry your going through this. Sending hugs
@caitlinscancerchronicles
@caitlinscancerchronicles Месяц назад
I’ve always found doctors to be caring people. This guy wasn’t a doctor, the worst part was he didn’t apologise for the mistake.
@user-to4sp3gi2u
@user-to4sp3gi2u Месяц назад
Bless your heart. It sounds like the technician needs to be retrained, and to say you aren't really hurting is ludicrious. I enjoy your videos and pray for the best for you!
@caitlinscancerchronicles
@caitlinscancerchronicles Месяц назад
Yes! Thank you!
@sandrabaxter2865
@sandrabaxter2865 Месяц назад
Your an amazing,strong woman Caitlin❤🎉x
@caitlinscancerchronicles
@caitlinscancerchronicles Месяц назад
Thank you
@marydrummond8832
@marydrummond8832 Месяц назад
Praying for you .🩷
@caitlinscancerchronicles
@caitlinscancerchronicles Месяц назад
Thanks
@DebraWright-md7sd
@DebraWright-md7sd Месяц назад
Sending all my positive thoughts to you ❤. I really hope you get on the trial 🤞 xx
@caitlinscancerchronicles
@caitlinscancerchronicles Месяц назад
Thanks!
@Esther-bi3vj
@Esther-bi3vj Месяц назад
I’m sorry you had such a bad experience. You are always so sweet and i am shocked he didn’t do something immediately to help your pain! It doesn’t matter why it hurts!! It just hurts!! Many prayers for you Caitlin. 💖🙏 Take care!
@caitlinscancerchronicles
@caitlinscancerchronicles Месяц назад
I was telling him in advance that there would be pain. I think he was trying to make me feel better, didn’t work!
@muscleNPmama
@muscleNPmama Месяц назад
You are hanging in there woman ❤ Sending love and strength.
@caitlinscancerchronicles
@caitlinscancerchronicles Месяц назад
Thanks 🙏
@premilabenjamin4444
@premilabenjamin4444 Месяц назад
PRAISE the LORD GOD ALMIGHTY FATHER in the mighty name of JESUS CHRIST the LORD GOD our HEALER. JESUS took all our infirmities and bore all our sicknesses. With His stripes we are healed. Believe on the LORD JESUS CHRIST and you will be saved you and your family . My grandson Joseph Jacob was diagnosed with 4th stage Lymphoma. Must undergo chemotherapy for six months. But within one month he was cancer free. God is always the best and greatest HEALER. Read the Bible and pray. He will send his word and heal us. I couldn't walk for three days and l wanted to go to the hospital on Monday. Sunday l got this verse from God. "The prayer of faith will heal the sick'." I just repeated the verse again and again and exactly at 12 a.m. Monday morning a power from above touched me and I was healed instantly and started walking since then. PRAISE the LORD GOD ALMIGHTY FATHER in the mighty name of JESUS CHRIST the LORD GOD our HEALER.
@caitlinscancerchronicles
@caitlinscancerchronicles Месяц назад
Those are wonderful stories of healing
@jennifermulholland9412
@jennifermulholland9412 Месяц назад
Sending love and prayers! ❤
@nathaliemann3145
@nathaliemann3145 Месяц назад
Sending hugs and love to you sweet Caitlin💞💞 you have a friend for life right here in Oregon🩷🩷🙏
@caitlinscancerchronicles
@caitlinscancerchronicles Месяц назад
Aw. Thank you. 😘
@carolescharacters
@carolescharacters Месяц назад
Oh Caitlin I am so sorry you had to go through that, how awful! The Lego flowers look great 👍 😊 xx
@caitlinscancerchronicles
@caitlinscancerchronicles Месяц назад
Thanks, it was so relaxing playing with Lego!
@krisjames4276
@krisjames4276 Месяц назад
❤❤❤❤
@melodyrollins5114
@melodyrollins5114 Месяц назад
Thank you so much for sharing your journey. May God bless you and keep you ever in His care. 🎉
@caitlinscancerchronicles
@caitlinscancerchronicles Месяц назад
Thank you so much!
@renaewinkler4940
@renaewinkler4940 Месяц назад
Hi Caitlin. Wow! That's a lot of tests to have just to see if you qualify for the trial. I am so happy you were able to get your white blouse clean. It seems as though inexpensive clothes rarely get stained. I have intended to tell you that my husband has quite a bit of pain when he has to have a scan with dye. The radiologist now puts lidocaine into his veins before adding the dye. It makes his pain much less. By the way, why are the children having holidays now? I know it is winter there. Keep the optimism going. You have already gone through so much. I admire your tenacity. Renae from North Carolina
@caitlinscancerchronicles
@caitlinscancerchronicles Месяц назад
Hey Renae, I’ll have to keep that trick for the veins in the back of my mind, although coming in a video soon is a solution for now! In Australia we have four terms in a year and holidays at the end of each term so they get a holiday each season. For our private school it’s usually two weeks in Easter/Autumn, three in Winter, two for Spring and the. We have our big holiday for 8 weeks in Summer. State school holidays are a bit less. I couldn’t imagine not giving the kids a break throughout the years, they work so much better after a holiday.
@katb2005
@katb2005 Месяц назад
I am so sorry to hear about your awful experience with that ct tech, that was definitely uncalled for he dosnt know what pain different people feel. I actually had an almost identical ct scan experience 2 months the ago on the sunny coast, they couldn’t find a vein first off, and kept stabbing me over and over, well that’s after the First Lady gave up, then second man comes in he tried 2 places and failed, eventually he thought he was in in the back of my hand, which is a very painful spot, but he wasn’t 100% confident he was in then either. But on getting that in my hand it starting really dripping blood, all over the floor, my hands, and his ungloved hands and he is trying to hold the cannula in with one hand, clean me up to tape it in place and clean the floor with cotton balls, meanwhile he is opening up sterile packets with his mouth ! So I had the first half of scan then he comes in and does the dye and hands are over head behind me, but I could feel it wasn’t right, well when I sat up at the end all the contrast was all over my hands, the bed everywhere. Again came the cotton balls trying to clean up the mess and poured saline all over my hands trying to clean them bad it’s pouring all over the floor again. It was a nightmare. I still don’t understand why they didn’t get the ultrasound machine when I requested it earlier to find the vein. After all that the results came back with a note of failed cannulation.
@caitlinscancerchronicles
@caitlinscancerchronicles Месяц назад
Oh that sounds horrendous. I hate that many medical staff consider an ultrasound machine a compromise. It should happen a lot more quickly for bad veins.
@Judith-wb3jl
@Judith-wb3jl Месяц назад
Hi Caitlin, I have subscribed many times and I get kicked out. Maybe check with RU-vid, no one would unsubscribe to your channel. PS, I am a nurse, pain is what the patient says it is!❤️🙏✝️🇺🇸
@caitlinscancerchronicles
@caitlinscancerchronicles Месяц назад
Well thank you for re-subscribing! That’s disappointing to know! I will have to see if I can get this rectified! Thanks for letting me know!
@northernlitez1
@northernlitez1 Месяц назад
Beautiful kitties and flowers. God cover and carry you. I'm so sorry for all your going through. Love hugs and prayers
@caitlinscancerchronicles
@caitlinscancerchronicles Месяц назад
Thanks
@rhondahelfrich2563
@rhondahelfrich2563 Месяц назад
Your in my thoughts and prayers ❤
@caitlinscancerchronicles
@caitlinscancerchronicles Месяц назад
Thanks
@susanakins7985
@susanakins7985 Месяц назад
What a hard day you had. I'm disappointed the person doing your iv was tone deaf to your declarations of pain, that should never happen. I guess we pick our battles and while you certainly have cause to pursue your complaint, sometimes it's better to use that energy on positive, moving forward steps. Perhaps all of the discomfort will lead to something positive for you. You deserve everything good, always wishing the best for you.
@caitlinscancerchronicles
@caitlinscancerchronicles Месяц назад
I think he was trying to console me to re-think that I wasn’t going to feel “pain” since he had to do it anyway. His reasoning was faulty though!
@karinasanchez3285
@karinasanchez3285 Месяц назад
💛💛💛🙏
@marylanglais6919
@marylanglais6919 Месяц назад
Sending hugs and prayers
@caitlinscancerchronicles
@caitlinscancerchronicles Месяц назад
Thank you
@willowithywindle
@willowithywindle Месяц назад
~~❊💚❊~~
@jennyvdwesthuizen2478
@jennyvdwesthuizen2478 Месяц назад
💙💙💙💙💙🙏🏻🙏🏻🙏🏻🙏🏻
@caitlinscancerchronicles
@caitlinscancerchronicles Месяц назад
🙏
@sandrahartigan5335
@sandrahartigan5335 Месяц назад
🙏❤🙏❤
@natalielong7804
@natalielong7804 Месяц назад
What’s the natural drink you took with your porridge? X
@caitlinscancerchronicles
@caitlinscancerchronicles Месяц назад
It’s a powder I mix with water called “cell plus”.
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