Sickle Cell Disease 

The information within this video is not intended to replace any advice provided to you by your health care team. For your safety, we ask that you do not act on the information within these videos without first discussing your treatment or healthy living plan with your qualified health care providers.
0:01 - Introduction
3:21 - What is Sickle Cell Disease
8:24 - Screening for Sickle Cell Disease
9:03 - Pain with Sickle Cell Disease
13:35 - Self-Care
15:49 - Treatment
18:43 - Bethany's story - A Patients experience and story living with Sickle Cell Disease
30:45 - The Social Context of Sickle Cell Disease
32:25 - Anti-Black Racism and Sickle Cell Disease
40:09 - Income and Geography for Sickle Cell Disease
43:37 - Steps for Change
46:20 - Resources for Sickle Cell Disease
49:40 - Questions and Answers
58:53 - Next Health Talk topic
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Resources:
- Truth and Reconciliation Day - Learn more about Orange Shirt Day: orangeshirtday...
Red Blood Cell Disorders Clinic: www.rbcd.ca/
- UHN Anti-Black Racism Policy www.uhn.ca/cor...
- Ontario Health's Sickle Cell Disease Quality Standard: www.hqontario....
- CanHaem Consensus Statement on the Care of Patients with Sickle Cell Disease in Canada​: www.canhaem.or...
- In Their Own Words - Documentary​: • Video
- Sickle Cell Association of Ontario​: sicklecellanem...
- Sickle Cell Awareness Group of Ontario sicklecellanem...
- Sickle Cell Disease Association of Canada ​sicklecelldise... ​
- UHN Patient and Family Libraries: call 416 603 6277 or email twpfl@uhn.ca
For more information about UHN Patient Education & Engagement, visit www.uhnpatiente....