Spasmodic torticollis - cervical dystonia - treatment with prolotherapy - Ross Hauser, MD 

Hi Kathy, Very sorry to hear that you have cervical dystonia. Sounds like you are suffering. Yes, we are an out of network clinic and thus, any treatments are paid for at the time of service. We certainly hope that you will not need to live with it for the rest of your life and that your Medicare doctor will be able to help you resolve the issue. Please take care.

I am the same. I'm in the UK not sure NHS does Prolotherapy. I'm 33 and had this foir one year now 😓. I don't have health insurance.

@@sarahfellows3074 If you can pay cash. You can bargain with a Dr. The Dr can't go lower than a pensioners insurance. You do have to pay upfront.

Your right it is Basel ganglia damage I've had dystonia for 18 years, and have Botox injections every three months.

​@Susan Smith Could You Please tell how this disease progressed for you?did symptoms relieved after you started medication or did they got worse?

I recent was diagnosed. I see everyone has different types. Did yours progress?

Hi Tatendra Kanyere, Thank you for sharing that. So glad it's helping you. Wish you all the best in health!

I’ll have to try that! What differences have you noticed?

@@BB-uz8pn well the spasms decrease or stop almost immediately for a while, and the more often I did the routine, the spasms became less rigorous and happened less often

@@tjay_aicheck out Dr Joe Dispenza. He's done extensive research on reprogramming the mind to heal the body. Many people have experienced great success if they can let go of excuses, doubts & former beliefs that kept them stuck in a limited paradigm. The mind & body have miraculous capabilities. Any improvement is beneficial. Wishing all abundant Blessings!

Hi, I have cervical dystonia for about 3yrs now.Had some botox done but my third time l had a allergic reaction. I was watching your videos and prolotherapy looks promising.A local physician does it here.I had my first treatment 4 days ago.The.only thing is we don't have motional x-rays up here so l am unsure about getting them in the correct locations. Any ideas.

Hi Mir Mir, Good for you that you are looking into some possible options. We would be happy to review your case and see if you sound like a good candidate for our clinics. Feel free to reach out to us through our website, email, or phone. Wish you all the best in health!

You described exactly the same problem I have. Besides pain I also have tremors

How are you going with it?

Hi Kevin, So sorry to hear about that experience you had at the hospital and your worsening symptoms. We would not know for sure the extent of what is causing the damage or the underlying cause of your condition without a more extensive case history. As we discuss in our videos, our center specializes in diagnosing and treating underlying spinal instability, especially in the neck. We do have patients who were previously diagnosed with Lyme disease and the treatment regimes for Lyme were not resolving the symptoms so we helped them to uncover whether or not cervical instability was involved and then treated appropriately with Prolotherapy and cervical curve correction. We hope that you and the doctor who originally prescribed the medication can have a discussion about what they feel happened and what they suggest you do moving forward. If you feel stuck and are looking for another opinion relating to a possible structural issue in the neck, and would like our team to help, you are welcome to reach out to us with the details of your case and we can let you know if you sound like a good candidate for our center. We wish you all the best in health and resolving the dystonia, tremors, and other painful symptoms you're experiencing. Take care, Kevin.

I am a patient of cervical dystonia from 2007, got treated by Medicine, botox injection but did not get any satisfactory result, instead contracted many other problems like enlargement of prostate etc. Now I am in very bad condition, feel difficult to walk, abnormal head posture alongwith deshaped body alignment, fail to stand properly. Life has become full of frustration. What should I do now. Sometime I feel segregated from others , in high depression, feel like committing suicide.Can any similar patient guide or help me by providing genuine guidelines. What breathing techniques can do good to my disease.

@@dilipkumardilipkumar364 same problem im young thats even more frustrating. The wim hof breathing method is a good way to releave the symtoms for a while. Hope we will find a heeling in the future. Keep your head up🙏

@@dilipkumardilipkumar364meditation is the one thing that has really given me my life back. Not normal meditation, but the kind where you expect to go to other worlds where spirits teach you new ways to use your body. I don’t know what direction to point anyone, I just know from hearing many testimonies about meditation that something truly spectacular happens once it gets “mystical.” Good luck to you friend!

@@dilipkumardilipkumar364 Where do you stay? The medicines from dr vikas deshmukh(neuro psychiatrist) in navi mumbai really help me with my cervical dystonia pain and tremors, and one neurologist told me that head tremor can happen if you didnt sleep enough. anxiety and depression increases the pain . i have tmj too which can make cd worse i think(saw a video on utube wer dr explained tmj and dystonia are related), i knowingly touched my lower jaw teeth always to my upper jaw teeth 24/7 for 15 years i think until i saw a video on utube that where the doc explained that the teeth should not touch the upper jaw teeth more than 10-15mins a day. when i followed her advice my pain reduced alot. If you want we can connect so that we can help each other through this.

Hi Kim, So sorry to hear about what you are dealing with! If you have chronic pain through multiple joints, there may be some issues that would be worth talking with a provider about to look for/rule out various systemic conditions that could be affecting your joints and help you determine what the best course of action would be. Poor posture certainly does not help but if there are unexplained reasons for some of your joints to be chronically in pain, it is worth a more comprehensive look into what is happening by a medical professional who deals with chronic joint pain through the body. If you would like our office to help you, we would be happy to review your case in more detail. We deal with cases like yours every day. Feel free to reach out to us directly through our website, email, or phone. Wish you all the best in health! Take good care, Kim.

@@CaringmedicalProlotherapy Thank you very much for the quick answer! I will surely look into it

Hi Lorine, Thank you for sharing your story and very sorry that you have been through surgeries and still have cervical instability and dystonia. We would be happy to review your case in more detail and see if you sound like a good candidate for our center. You are welcome to complete our detailed case intake form and upload your surgical and imaging reports so we can have a better understanding of your whole case. We wish you all the best in healing and finally getting resolution of your symptoms. Take care for now, Lorine.

Can't still believe that i got cured from hepatitis b virus through herbal treatment from @dr Eromoselewho I met through the internet.Because God could not be everywhere he made sure that we have doctors like you who have the gift of healing mankind. I am so thankful to you for treating me so tenderly. I feel very healthy now. If you are interested contact dr Eromosele +234902 091 8458 Thank you so very much.

Hey dear hoping you are better by now but maybe the root of the issue is neurological. Getting over very severe generalized dystonia and learning there isn’t a single area on my body that doesn’t respond to neuro plastic principals of building new nerve connections that work as they should and forgetting the old damaged ones. Hope you’re well take care

how are you now and how long it lasted

@@pragatisingh4619 I'm better now, seems like it's a bile duct related issues.. It's a referred pain from bile insufficiency

It sounds like it. Could be that you knocked something out of alignment I’d go to a physical doctor who works with the spine

Hi Jas, Sorry to hear that. Hope you are feeling better now, or have found a local chiropractor, osteopath, or other physical medicine specialist who can help you get your neck back in alignment. Wish you all the best in health!

Hi Pursuit ofHappiness, An exam and history is necessary to give a patient. proper diagnosis. Cervical spine instability can cause various twitches elsewhere in the body, yes. Wish you all the best in health!

Hi Rajneesh, So sorry to hear about your traumatic injury and how it has affected your neck to cause these chronic symptoms. We would be happy to review your case in more detail to see if you sound like a good candidate for our clinic once you are able to travel. Feel free to reach out to us directly: www.caringmedical.com/conditions/prolotherapy-neck-pain-cervical-instability/#get-help-now We wish you all the best in health. Take good care for now.

That’s absolutely horrible. It sounds like abuse

Hi Mike, Thanks for the question. In our office, we see the botulinum toxin injection failure cases. The muscle tension that accompanies so many cervical instability-related conditions is a symptom and only addressing the muscle tension did not resolve the issue for these people. We talk some more about botulinum toxin injections specifically in another video: ru-vid.com/video/%D0%B2%D0%B8%D0%B4%D0%B5%D0%BE-e9OJkYgxTw4.html Hope you find the answers you're looking for and the help for your case. Wish you all the best in health.

Can't still believe that i got cured from hepatitis b virus through herbal treatment from @dr Eromoselewho I met through the internet.Because God could not be everywhere he made sure that we have doctors like you who have the gift of healing mankind. I am so thankful to you for treating me so tenderly. I feel very healthy now. If you are interested contact dr Eromosele +234902 091 8458 Thank you so very much.

Can't still believe that i got cured from hepatitis b virus through herbal treatment from @dr Eromoselewho I met through the internet.Because God could not be everywhere he made sure that we have doctors like you who have the gift of healing mankind. I am so thankful to you for treating me so tenderly. I feel very healthy now. If you are interested contact dr Eromosele +234902 091 8458 Thank you so very much.

How did the botox go?

We have an article on this topic, uncontrolled hiccups could be a result of cervical instability. caringmedical.com/prolotherapy-news/cough-hiccups-neck-pain-phrenic-nerve-injury/#:~:text=Patients%20may%20need%20to%20undergo,their%20irritating%20cough%20and%20hiccups.&text=Hiccups%20%E2%80%93%20Irritation%20of%20the%20phrenic,treat%20medication%20non%2Dresponsive%20hiccups.

May be a long lost cousin. :)

Have you tried taking the baby to see an Osteopath or a Chiropractor? The misalignment at that age tends to be relatively easy to adjust and correct, I have been told.

Physiotherapy as well

No, get him surgery because you will ruin his life just like my parents ruined mine by negligence

Hi Zahid, Thanks for reaching out. We replied to you in the other video as well and would be happy to review your son's case and see if he sounds like a good fit for our center. We treat teenagers here for these neck issues, and look forward to helping you. Wishing you and your family all the best in health!

Don't drink any caffeine. No stress. When you sleep, let your head shake left to right until you fall asleep. Don't try to hold your shaking in public. Let it go. There's no cure that I know of.

Do more research.

Go on the Keto diet. take high dosage of cbd oil and use topical magnesium

@@BB-uz8pn Viridipharm CBD Salve 500mg or 1500mg is the best. Apply a very small amount, massage into neck with back of a stainless steel spoon. It eases pain to do slow stretches with deep breathing exercises. It's like Yoga for the neck. I've tried consuming CBD oil but didn't feel much relief. A hot bath with 1-2 cups Epsom Salt is good. Add optional aromatherapy with an essential oil of lavender, eucalyptus, sandalwood or any that help you relax. Apparently Epsom Salt is magnesium & it's absorbed more efficiently through skin than digestion. You said magnesium, what type & how do you use it? Thank you.

Hi Bijvemula Divya, Thank you for your question and sorry to hear that the other doctors were not able to tell you what could be going on with your son. It's very scary when unexplained things are happening to your young child. Sorry that you are dealing with this, and glad you are looking into options. Perhaps you can find an upper cervical chiropractor who sees young children to take a look at him and tell you if there is something that should be done or if they believe he will outgrow it and it will resolve with time. Wish you and your family all the best.

I have the condition, but I am not a doctor, so don't take this as medical advice, however from what I've researched it is extremely rare in young people. It is considered a disease of middle age. Now, having said that I got it in my late teens, which I believe is considered the earliest onset. I'd get a referral to a neurologist to confirm that this is what your son has. In my uneducated opinion, think its unlikely, though one has to wonder how much is known about this rare condition to begin with.

I saw a story like this on social media and the kid had something wrong with his eyesight!

Hi Bill, Yes we have, and there are a couple other patient-related videos on our channel that you may find helpful. Here are links to them: ru-vid.com/video/%D0%B2%D0%B8%D0%B4%D0%B5%D0%BE-QCZg9AlRcSQ.html and ru-vid.com/video/%D0%B2%D0%B8%D0%B4%D0%B5%D0%BE-zjNbtCoFxAU.html If you would like to talk with our team about your case specifically, please reach out to us directly through our website where we have a case intake form, or email us at info@caringmedical.com. Thanks for your question.

It could be - hearing issues and ear fullness can be associated with cervical instability, we would love to see you in our office! At a minimum you’d had a proper diagnosis and we could help develop a treatment plan that is right for you!

@kellymcdonald1895 so sorry to hear about your wife. We are accepting new patients and would absolutely love to help her on her road to healing. Prolotherapy has shown great success as a treatment plan - we have a lot of great resources on our website if you would like to further your research. Here is an article on this topic www.caringmedical.com/prolotherapy-news/getting-help-cervical-dystonia-spastic-torticollis/ We are praying for your wife's healing and hope to meet you in person in the future.

Hi Ken N Jane Wall, Thank you for your question, and very sorry to hear about what you're dealing with for this long. We would be happy to talk with you in more detail about your case. From the brief description, you sound like someone we could help, yes, because these symptoms often have a structural cause (cervical instability). If you would like to submit your case for review, we have a very detailed intake form on our Neck Pain help section on our website, or you can email or call us too. Hope to help you soon. Glad you are doing your research about possible causes and solutions to your dystonia. Wish you all the best in health!

Hi Gabby, Yes we regularly treat cases of bulging discs. The goal is to correct the reason why the disc is bulging. Thus, a comprehensive treatment really needs to go beyond the bulge itself. Would you like to talk more about your case and what you've been going through with your neck pain? We would be happy to see if you sound like a good candidate for our clinics. You can contact us directly via email, phone, or through our website chat. Wish you all the best in health!

Hello Bilal, Thank you for your question. Sorry to learn about your cervical dystonia but glad that you are looking into possible options to relieve your pain. As we discuss in our videos and webinars, we specialize in Prolotherapy and curve correction to restore stability and integrity to the cervical spine. Our clinical team would be happy to review your case in more detail and see if you sound like a good candidate for our neck center, if you are interested in our help. Please feel free to reach out to us anytime through our case review form and you can upload your pertinent medical reports here too: www.caringmedical.com/neck-patient-candidate-form/ We wish you all the very best in health and healing!

What country do you belong to I am from pakistan

@@BilalKhan-pc1tn We are in the United States.

You do not have a clinic in Pakistan

Sir I am very difficult to tease the United States

How did you go about teaching your nerves to work again? What was your protocol?

@@kevinl3323 holy cow was it hard. Doctors wouldn’t work with me so I was mostly shooting in the dark. Eventually I used a pump designed to help with a straight neck to manually move the muscles in my neck until I had about a mm of moment I could do on my own, took several months of straining to get it. From there I spent many hours in a dark room with music on, controlling the tics as best I could and focusing a lot on just understanding what it means to have a body. I started to remember what it was like to be in control, some movement came back, I struggled with direction for a while and after balance came right back. From there its just been real serious rehab, learning to contract and relax muscles again. Its been painfully hard and breakthroughs happen slowly but now my brain knows how to do impossible things… when my nerves are out of whack I ask myself what’s wrong, “listen” to my body really hard and send my brain to the source of discomfort, it’s usually somewhere that’s badly twisted and as soon as I find it it releases. There’s a lot more to it but essentially it’s been a process of learning to understand the nerve impulses, then to control the impulses, then to learn to send signals to muscles to contract normally. Its a lot but I’ve gone from wishing my home was wheelchair ready to lifting HEAVY weights. My dystonia is generalized and I have seen few cases as bad even on RU-vid. Hopefully this brings hope to someone! 🤞 I will add I don’t think I could have figured this out without marijuana. It was actually when I started smoking 3-6 times a day very heavily or eating outrageous amounts of edibles. I did not allow myself to sober up as I could tell the dystonia was losing strength like this. Any doctors that said I wouldn’t recover also seemed to discourage cannabis use and would not engage in any dialogue, mostly just wanted me to take psych meds thinking they would do the same for me . At one point I had a dystonia storm that wiped me out and sent me to the hospital where for 8 days they “treated” my marijuana addiction by substituting Tylenol and advil and it was a huge set back. what a freaking nightmare trying to deal with brain dead doctors when you’re getting over brain damage! 😂 I just share because I suffered for years when I didn’t need to and would be wheelchair bound had I listened to the people I stupidly payed for healthcare

I agree it doesn’t. But I do feel like a lot of dystonia has a spinal instability cause. I’d like to see patient reviews and results.

I find it interesting that many doctors claim to be able to correct conditions like dystonia, fibromyalgia, CRPS etc. I notice spine health, especially the neck to be a common target for all these doctors. Im personally comforted by the fact that science currently does not understand dystonia. This to me means a few things that make me hopeful. A) many doctors who are extremely specialized may hold more knowledge of this condition than what is published. And B) there might yet be many effective treatments that are not currently well known. I plan to try prolotherapy myself once I can afford to spend some time in Florida but til then Im impressed that there doesn’t seem to be anything I can’t learn to do again and I’m actually getting stronger than I was BEFORE the accident that started the dystonia. I actually just blew through a years old squat personal record without much effort 😅. It’s proven to me the science is not in on dystonia and there’s every reason to keep hoping for a cure!

Yeah