Spinal Cord Injury - More Than a Wheelchair! | SCI Awareness Month

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Spinal Cord Injury - More Than a Wheelchair! | SCI Awareness Month
Subscribe: bit.ly/sub_CC | Follow our IG: / roll.with.cole
Watch next, “Will Cole ever walk again? | SCI Research Update": • Will Cole ever walk ag...
This week we are discussing secondary conditions that stem from a spinal cord injury. Many people think those with a SCI are simply paralyzed and unable to walk. The truth is, there is so much more to an SCI than the inability to walk. In this video we cover weight shifting, pressure sores, bladder and bowel control, autonomic dysreflexia, temperature regulation, and suppressed immune system. We hope that you all will learn something from this video!
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About Roll With Cole & Charisma:
Hey everyone! We’re Cole & Charisma. Since the start of our relationship we've gotten a lot of questions about how we make things work as not only an interracial couple, but an interabled one as well. There are certainly differences, and despite them we have a great time, all the time! On this channel, you’ll find travel vlogs, Q&As, couple challenges, how-to/educational videos and more. We started this channel to bring people into our lives so we can answer some questions about how we navigate the world. We’ll show you behind-the-scenes stuff people typically don't see, and hopefully raise awareness surrounding accessibility and dating in a wheelchair. You'll quickly see in our episodes that we're all about positivity, inclusion, and keeping a great attitude no matter your circumstances, so if that's what you're into, you're in the right place!

Опубликовано:

7 сен 2019

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Комментарии : 490

@coleandcharisma 4 года назад

Hope y’all learned something you didn’t know about SCI!

@evangelinelane321 4 года назад

These are definite important facts that are not easily shared to the general public, but your unselfishness in sharing and making us all aware of what could and does happen on a daily basis is so helpful to us. It helps to educate us so we are not ignorant to these important issues of life and i just want to say thank you so much for sharing your lives with us. We are better because of you two. We love you much, praying for you both and your families, and when you're in southern California after you're wedding, and you need a baby sitter for the twins, call me! G-Mommie Vangie's got you covered.

@sewcuteankara7555 4 года назад

You guys are awesome!! Most positive RU-vid channel ever!!! Just FYI, I WILL hug you both if I ever run into you. You've been warned!!!!

@kathleenevers7016 4 года назад

Don’t feel ashamed explaining the UTI, I work with the elderly and I have seen those UTI take them out so please educate as you guys have been doing.

@olivemoses453 4 года назад

Cole and Charisma are truly advocate for SCI. Thank you for informing and explaining the facts of a Quad's life. I love the amusing and candid way it was done. WOW! I am continuously praying for Cole's healing. CC may God's richest blessing strengthen and sustain you 💘 ❤ 🙏 💪.

@mylene.b2336 4 года назад

👌Cole, je prie pour que vous remarchiez un jour🤞Vous êtes réellement un être EXCEPTIONNEL👍avec Charisma vous formez vraiment un beau couple👏✊J'espère que tt ira toujours pour le mieux dans votre vie🤞Que Dieu vous bénisse et vous garde!😇😇😇😇😇😇😇❤❤❤❤💖💖💖💖😗Mylène

@keyonnashawl 4 года назад

Cole thank for being personal when I know it can be uncomfortable at times.

@lifeinawheelchairadventure4034 4 года назад

When I get overheated, my daughter says I do “puffer fish breathing”. When I get AD, it’s usually from pain, I get nauseated and too weak to speak. I have a funny feeling in my throat right where the trach scar is if my bowels needed attention...now the ostomy solves that. I taught my service dog to alert me to bowel, bladder, now full ostomy bag, AD, thirst, hunger...none of which I have any sensation for. I don’t always read his alerts accurately. If I get overheated in public, he yaps once, then noses my alert tag to get a passerby to read it. One alert is “if I am unresponsive, pour water on my hair and get me into an air conditioned building and lay me on the floor (bare concrete, if available.” It happened on a plane once. The passenger beside me said my dog was antsy and I was sleeping. He has a patch that tells people where instructions are for my health needs. When we are flying, it’s in his vest. When in my chair, it’s in my backpack. That backpack would be on my lap ot on the floor with him while flying, too. He has a red rope to pull to open the zipper, to show someone. We travel alone a lot.

@GILane 4 года назад

I love that Cole is always hitting on Charisma. I love when my husband does that. It makes me feel so loved and wanted. It’s so cute.

@michellekirby3734 4 года назад

I'm in nursing school, a new subscriber, and I LOVE watching your videos!! Im currently studying spinal cord injuries and the complications and interventions related to it and because of this video, it helped me remember a ton of questions on my exam today! P.S. I PASSED. So THANK YOU!!!!!

@patbrown5665 4 года назад

God put you together because you are such a team, blessings to you. 😘😘

@SincerelyAshima 4 года назад

Hey, my name is Tierra. I live in RVA an I'm a Quad. You guys videos help me stay positive an keep me going on days I feel like giving up. I hope to ROLL into you guys one day. Keep up the good work & always STAY POSITIVE!!

@anissaray6002 4 года назад

Teede Redd God bless you🙏🏽🙏🏽🙏🏽❤️

@SincerelyAshima 4 года назад

Anissa Ray Thank you ❤️

@olivemoses453 4 года назад

@@SincerelyAshima 🙏 ❤ stay 💪

@tamaraislandstarrr2966 4 года назад

You stay positive also😘

@kenya9540 4 года назад

Live your best life!

@meslynmorrison3100 4 года назад

Cole's personality is off the top..great spokesperson for his kind of condition....keep being strong..God bless you and Charisma

@ruthanne7170 4 года назад

Before I found your channel (a while back now), I did not realise all the conditions that can come with an SCI. To be honest, I new nothing about SCI’s at all. I have learned so much from you two. Thank you for continuing to raise awareness, even though the topics and conversations may sometimes be difficult.❤️❤️❤️

@mandyjsmith 4 года назад

Don't ever feel you have to share anything you don't want to share just know that by sharing anything you'll be helping more than you'll probably ever know. Your information, experience and knowledge is so valuable. Thank you xx

@traceyfrati2579 4 года назад

Very informative to this nurse. You can read it in a book but with you two explaining it with examples makes it so much clearer.

@TwoCoolScienceChix 4 года назад

Awww...Cole, I know it's hard sharing such personal information, but, we (and I know I speak for many) really appreciate you being so open to share this information. Those who do not have spinal cord injuries take a lot of things for granted and these videos bring awareness to us. So, thank you!!! And, Charisma, I really felt for you when you guys told the story about Cole's shoes, but thank goodness Cole has such an awesome attitude. ♥️ 😊

@eddierios1068 2 года назад

Hi Cole my name is Edwin and your story is very interesting

@alijane6675 4 года назад

I find myself increasingly excited about Cole's creative process and ever-improving editing skills. I've lost focus completely on the chair. I think that's a testament to both of you, and I thank you for changing my perspective.

@coleandcharisma 4 года назад

Ali Jane thank you! Although I must say, A LOT of the creativity on our channel comes straight from Charisma. She’s really the idea person! -Cole

@alijane6675 4 года назад

@@coleandcharisma omg I didn't mean to exclude her in any way...It's just she emphasizes your editing and the wotk you put into the actual video being uploaded. I see Charisma. Her input is undeniable. Charisma envelops everyone around her in an aura of beautiful colours. You are a perfectly positive pair of gifted influencers, and neither's light could shine without the other's shadow. Much love, from Toronto

@fitzy2 4 года назад

...Cole, there is so much more going on than you just sitting in that chair looking good...I know it’s not always easy to do, but appreciate your sharing what we don’t see...And talking about your shared experiences shows the love between you two...Overall you help viewers like myself to be more empathetic to anyone in a similar situation...Again, Thank you for sharing!

@sinjon 4 года назад

OMG! Thank you so much Cole and Charisma. I am a para and never heard of AD. That would explain why I get the cold sweats sometimes. I never knew why and just thought it was a coincidence that it let up when I used the restroom. This series about spinal cord injuries is awesome and very informative. Thank you.

@Christy-og6kz 4 года назад

Thank you for being so open! New para t4 - it makes me feel better that I’m not the only one who has to go through a checklist every time chills or hot flashes hit. My body is hot more than cold. Makes it difficult here in Texas! Blah! take care and keep posting! You are making a huge difference!

@catiaVanPT 4 года назад

Hope you're doing well and staying safe

@sybilmcpherson2240 2 года назад

I agree - you posts remind us that we're not alone!

@caropapa 4 года назад

Every day we all learn something new no matter what it may be. we never know what is around the corner. Thank you to both of you

@NIda-ot4rx 4 года назад

I understand why you not feeling comfortable to get personal on certain of the complication you may experience but trust me its amazing to share that we us. Its a present cause knowledge has great value. We are more aware indeed thanks to you guys!

@zaitunkeji5990 4 года назад

Thank you.

@GeorgeJansen 4 года назад

I will forever love the way Charisma watches him/Cole, like a Mama Eagle ❤️❤️❤️🦅🦅🦅🦅❤️❤️❤️🦅🦅🦅

@kathleenevers7016 4 года назад

GeorgeJansen and so protective of him🙂

@TheLaurels5210 4 года назад

This is such important information. Thank you for your transparency. Love you both. I took care of a quad for 8 years as a massage therapist! My life was forever impacted in such an amazing way! May God bless you as you navigate your way together, through your beautiful love story!

@evalinalewis5540 4 года назад

Do ya'll know I think of ya'll as my children and I'm really,really proud of ya'll I talk about ya'll all the time I know God got your back stay blessed

@dorothyjanediaz3642 4 года назад

I'm not in a wheelchair yet but the doctor said that I should be but I'm to stubborn! I had a severe UTI in June and in no time it turned into sepsis Shock, I was transfered out of town to a bigger hospital and on the way there I had a heart attack, then when I get to the hospital and see my husband is there waiting I just passed out because I knew I was safe with him. I went into respiratory failure after arriving at the new hospital and while the doctor was intubating me I had a massive heart attack. So in all I had a UTI, Sepsis Shock, kidney failure & damage, respiratory failure, 2 heart attacks, heart failure & damage and I was on life support for 10 days! Love you guy's and I enjoy your video's.

@gloriasmith128 4 года назад

@Jane Diaz, Jesus loves you and you are in my prayers

@fanolawilkinson8309 4 года назад

Thank you for being so open , honest and helpful. Since I started watching I have learned so much.I look at people in wheelchairs differently because of Cole and Charisma. Thank you.God bless you. Love

@lindanolan895 4 года назад

Hey sometimes I work with people in wheelchairs and I know how it is but thanks so much for more information very helpful. Love love love always

@cheriegraham4004 4 года назад

Am glad to know all of this Cole drink a lots of water take care of yourself I know that your wife will be there for you and that's a good thing love you guy's so much stay positive God bless your marriage 🙏

@Millie-il7in 4 года назад

These two are amazing ☝🏽(just as simple as that)

@lezup 4 года назад

Thank you for taking the time to talk about this. It’s a constant battle to bring awareness of disabilities. Cole just needed an excuse to hug Charisma with the pressure sores. Watch out for those bars. I have heard UTI’s are common. I wish there was a way to stop them for you. Temperature regulation is a problem for me too (brain surgery involving the cerebellum). Cold showers and heated blanket are my friends. Shoes can cause problems. Don’t feel too. I have done that. I don’t have feeling in one foot. Heart attack talk. You are too young for that.

@inspired2createl.l.c563 4 года назад

Hello Lovebirds... thank you for sharing your story about UTI. I had an individual who would get UTIs. I’d work with him for 16 years & no one not even his doctors had explain to me it was in relationship to his urine bag he was getting UTIs from time to time. He has CP (Cerebral palsy) & is in a wheelchair. I’m a (DSP) Direct Support Professional, an ambassador for Ohio DSPs. I advocate to bring awareness about proper care of those who have disabilities so they don’t have to experience things like pressure sores, just to name a few. It is the right of those who have disabilities to live a normal life with out being identify by their disabilities. I am also a DSP Council board member through OADSP (Ohio Alliance of Direct Support Professional). The information that you have shared in this video will help me take issues that I’m seeing within my field to our Director of Ohio developmental disabilities. Thank you so much lovebirds this video has truly educated me. Continue to Stay Positive 💋

@denisegarland1815 4 года назад

I absolutely adore you both!! I'm learning so much about SCI.... thanks ❤❤❤

@janettecarattini1812 4 года назад

Absolutely love learning more about spinal cord injuries with y’all!

@juliemiller8437 4 года назад

Thank you for being so open and having the courage to share your personal business 💛

@BelladonnaDevereux 4 года назад

Thank you for continuing to be open and informative❣️

@brailynnbrai8189 4 года назад

I came rite over here I love when you post your videos are not only fun and friendly but also informative and positive thank you❤️💓

@carlaborja4978 4 года назад

I must confess that I have become addicted to his videos, his love transcends all barriers and is very pure, blessings and greetings from Ecuador 🤗

@goldielocks3354 4 года назад

I don't see how people can dislike your videos. You both are amazing always positive. And making people aware to things about people with spinal injuries. God bless ya'll are amazing.

@saraha9591 4 года назад

I'm an OT and love watching your channel!

@pamelawiggins9131 4 года назад

Thank Cole for being so brave and puttimg yourself out there like that. The more we know the better off we all are. You and Charisma are doing a great job educating the public. I must be your calling.

@lisamarcelle4416 4 года назад

What a treat today. I watched your mother’s video early and I just finish watching this video. Loved both of these videos. Like I said before you guys are an inspiration to so many people.

@valeriegonsahn9717 4 года назад

Working as a team reaps massive success! What you both are doing is just the tip of the iceberg. Your channel educates, informs and entertains effortlessly. STAY POSITIVE 😊

@heatherbarnes9829 4 года назад

Thank you got being so raw and honest. You two are an inspiration to me!

@valeriegonsahn9717 4 года назад

It takes guts and selflessness to open up like this. Thanks a million.

@teresaharris3899 4 года назад

Again, great information. Keep it up. Happy Sunday, beautiful people.

@ednanelson1897 4 года назад

Wow very informative. I know you shared a lot of personal things but you don’t know how many people you have helped. Thank you for being so open and vulnerable.

@sherryyoung3109 4 года назад

I am enjoying SCI month! Awesome Information!!

@lisaackroyd2203 4 года назад

Thank you for being so open. Knowledge is power. It could save a life. Love you guys!

@ishie0196 4 года назад

Thank you for the information! Never realized all the extra complications. I definitely look forward to the rest of the month and learning more.

@anniespeller6833 4 года назад

Really enjoying listening to your series on Spinal Cord injury - very informative. Charisma, you are such a jewel with your knowledge to assist Cole with his everyday living-bless you! I never knew so much was involved with a quad -getting schooled for sure. Until next week, stay positive!

@splchicago4636 4 года назад

Great video! You guys are really educating me.

@shirleyfretty487 4 года назад

This video was so so informative! Cole you are so Blessed to have a fiance that is so knowledgeable and there for you. God Bless your relationship now and in the future!!!!!!

@chitocookiechihuahuaville4690 4 года назад

Cole thank you for sharing such personal information. I absolutely adore both of you and this information. For each like there are probably 20 people that forget to hit the like button ....so know you are helping more people than you know.

@minaclark9813 4 года назад

Love how you explain everything. This is very informative.

@nancywoitynek4756 4 года назад

I really like watching your videos and this series about sci is great. Thanks for taking the time to share and educate the public.

@reneques8962 4 года назад

Charisma is so supportive, gentle and understanding. A true angel. Cole is a real inspiration too, just exudes light. You two are so well matched and I'm loving binging your channel!

@cleverkins 4 года назад

We're all in the same leaky lifeboat and personal goes right out the window - because of our shared experience. Thank you for your honest openness!!

@amandacamp5427 4 года назад

Thank you for doing this series! It’s so informative. I really appreciate how open y’all are with everything. Hugs!

@udokafestus5433 4 года назад

You guys give me hope. This is what real love looks like

@praisehim798 4 года назад

When I think of all you have to deal with and how positive you are all I can say is amazing!!!

@ThePIPPIIPPI 4 года назад

Thank you. This was very informative.

@bronelove565 4 года назад

You two are so adorable, always trying to bring awareness to others who are in similar situations like Cole, your information given are always so we'll accepted. Thank you for sharing with everyone ❤️

@leahunfeigned5955 4 года назад

Very informative. Thank you for teaching us more about the issues and challenges people with spinal cord injuries face.

@wyndolynpappion6898 4 года назад

Yes!! Look forward to your videos!! I always learn so much!! ❤️❤️

@btarajoey6046 4 года назад

I absolutly love you both. Cole is so amazing and I really have had learn so my things from you both. Keep up the good work Cole N Charisma.

@taneishakim3673 4 года назад

Cole you are so Blessed tht u can count the amount of sores u ever had.....A caring,loving and supportive finance and family.... Like seeing this side of you as well Cole been vulnerable and informative at the same time... I'm always excited when i get a pop up video...God's Richest Blessings...Stay Positive

@Nicole215 4 года назад

Very informative video. This is helpful for so many people. Thank you for sharing! ♥️

@kimbackus4904 4 года назад

I love your positive attitude Cole! You should get a medal! Charisma is the perfect woman for you too! God Bless BOTH of you!

@rjwoodson7690 3 года назад

I am a new watcher and have learned so much from you guys, Some topics may seem personal but they help people like me that think... what they are thinking are " stupid questions." of which i learned a long time ago those are only questions that you let linger and never ask. Keep up the good work, It is working. OH !!! I did subscribe.

@clairemurphy6265 4 года назад

Thank you for all you do to spread awareness about spinal cord injuries! As an OT, I love referring my patients to your channel/instagram to give them perspective and hope!

@OnyinyeNwokorie 3 года назад

I know this is a year old but your channel has been one of the most educational. I have learned so much. Thank you both. I will continue to watch, support and watch you both grow 😊

@arrinannaa 4 года назад

Wow, Charrisma you are an angel girl, Cole you are the luckiest man alive🙏😍

@maritza5625 4 года назад

Hi y'all! Cole i learn so much from you being so open and raw with your truth. A year ago, My friend had a terrible car accident that changed her life. Today she can NOT move from her neck down. But watching you gives us Hope! Hope to laugh again, hope to feel happy again! Hope to live life to the fullest 🙆

@carloslovesmandy248 4 года назад

Thank you for your videos. It helps us with our own journey living with a spinal cord injury. Our life was essentially ruined but we still have to live. Thank you for helping us learn how to live rather than exist. Love y'all, Carlos and Mandy.

@lachelleburroughs7040 4 года назад

Thank you for teaching me something new and for being vulnerable enough to educate.

@margueritescott9104 4 года назад

Thank you, Cole and Charisma, for your unselfishness and willingness to share! I think you are a wonderful couple! God bless!

@hawi634 4 года назад

you are doing so good guys.

@KaleidoSaurus 4 года назад

You're sharing so much information and it is so very helpful to others regardless of motor ability. It's priceless information and you shouldn't feel bashful or vulnerable for sharing with us. We're lucky you're being so open. Thank you for that. Side note, you two are just the most charming pair.

@dewdan11dnd46 4 года назад

Your openness and frankness serves to bring your realities to life, which then positively informs and equips the community at large. Your videos are a dynamic resource, naturally well presented, beautifully edited and a joy to watch. The iceberg principle was genius. Cole and Charisma, you are appreciated. 💞✨

@emilymitchell3393 4 года назад

Thanks for the videos! I really enjoying watching and learning!

@vivianhamilton616 4 года назад

Now that was very informative. Thank you guys for taking the time to do that. Some very personal stuff ( Cole I'm sending you a hug for sharing) but we are much more knowledgeable and have greater insight because of your video. Love y'all.

@NinjaJoanie 4 года назад

Another great video! Thank you for being vulnerable and sharing!!

@nicolemitt1 4 года назад

I love your channel and you guys are a wonderful couple with such a positive attitude ❤️

@Ann-xp9np 4 года назад

I have enjoyed your videos so much! You two are an incredibly blessed and precious couple. You both radiate hope, love, kindness and respect. Last night, my husband and I ate at a restaurant and the husband of the couple sitting next to us, (while we waited to be seated) was paralyzed and in a wheelchair. Because of your channel, I had so much respect and admiration towards this couple! I hope I get to meet you someday.

@peachyic 4 года назад

One of my favorite couples of the world. So helpful for sharing 😇 all these info. Y’all are adorable ❤️❤️❤️

@annwatrous1289 2 года назад

Cole watching you both has help me get through my husband becoming disabled

@darlenevendryes9050 3 года назад

Thank you for being so open and honest you would never know all this stuff can go on behind the scenes. You are both blessed with your love for each other and I love you for that ❤️❤️❤️

@inekogary8870 3 года назад

Hi Cole and Carissa, I want to say thank you for doing these videos. Because I for three years worked in SCI at the VA. So I know a lot about what y’all are talking about so thank you so much for educating those who are not sure or don’t understand I don’t know thank you so much. Because again for three years I worked in spinal cord injury at the VA until Covid so I definitely understand what my two lovelies are talking

@franchescaparker8617 11 месяцев назад

I love how you guys love, support and interact with one another. It’s very inspiring ❤

@demetriuswilliams7879 4 года назад

Another great informative video! Thank you!!

@starbright1 3 года назад

Well again a very informative and interesting video. You guys are so patient to take your time to help people understand circumstances.

@cortneysmith8899 3 года назад

Wow, I am loving the information. It's always interesting to learn more about a topic you have a superficial understanding of. Y'all are the best!

@cassandraalls5633 3 года назад

Wow! That was eye opening. Thanks for sharing. Also I have to say that as I’m listening to you explain how you experience these different things I don’t leave your videos feeling depressed or sad or sorry for you. And I mean that in a good way😊

@folaf3207 4 года назад

You guys never seize to amaze me. Thank you for the education. The so called "little things" we take for granted actually is there for a reason. The ability to feel pain or sweating! Again thank you for sharing.

@denisedean2446 4 года назад

Wow this is a lot! Cole you are so positive Cole and I love how sensitive you all towards each other.

@vrobinson5100 4 года назад

Thank You for sharing! This has been very informative. I appreciate your honesty.😊❤️

@StringSun 4 года назад

Thank you for being so candid about your condition; very inspiring. You’re an adorable couple who look very much in love ♥️

@rebeccaprime5120 4 года назад

Blessing to both of you. Charisma you are a wonderful soul may you all love each other forever ❤❤

@maggiemacha5552 4 года назад

Excellent video, very informative, thanks for sharing 😀

@MsThorma 4 года назад

Thanks for this video - it was really educational!

@akinyiokeyo4618 4 года назад

Now i know why am addicted to your channel,informative.

@ElusvOptmst1 4 года назад

Thank you both for such an important topic. Able-bodied individuals do not realize the everyday struggles. Very informative. Thanks again, Cole and Charisma for this important information. Its good to be in the know.

@kiikat 4 года назад

AD is pretty cool (given that you catch it and interpret it as quickly as Cole describes here). The direct cause and effect warning signal system is so valuable. Learned something new.