Suicide headache 

Not only the most painful headache you can get, but the most pain a human being will ever know.

My mother has this pain, and when it happens she just collapse and crys in pain, but she just sucks it up and takes care of me and my sisters. She's getting surgery on December 4. Hopefully nothing goes wrong, I can't lose her Im only 12.

Mine too are changing to a chronic format - I am sick of consultants and live in fear of attack - I have never wanted to apply in the past but I am considering applying for Disability due to the life altering nature of the clusters and the effects on my work . For those that post comment who have had no experience of cluster either as a sufferer or as one who has seen a friend or a loved one go through it - think very carefully before offering comment - this condition is no laughing matter -

I suffer from terrible ibs pain on a daily basis. It can be bad enough to drive me to tears, but cluster headaches would most likely drive me to suicide. My heart goes out to all those who suffer from this horrific affliction.

been dealing with these for 8 years now, plus migraines on top. nobody understands what it's like. coworkers think I just get alot of headaches, I think my boss thinks I'm full of shit. I can only hope these people never have to experience this for themselves. I wouldn't wish this on my worst enemy. stay strong my brothers and sisters.

I am a 35 year sufferer. Oxygen has worked in the past and Imitrex (Sumatriptan) injections. Because of the cost, limitations and side effects it has become an option that I choose not to use if possible. The success of Psylocybin has been amazing! Just my experience.

I've been dealing with this monster since I was 12 years old!

Mine feels like someone is taking a pair of pliers and breaking my jaw out of my head. No one, who doesn't actually have it, can truly understand the fear of attack, the pain and the desperation we experience. Because of this, I do not get angry with others who tell me to take an aspirin or say: 'Oh yeah.. I had a really bad headache like that last week"

Radio Frequency on the nerve!! I got it done this year and now out of a 7mo cycle 8x's a day. Deaden that nerve it worked for me. I've had clusters for about 30 years now and last year was the worst, they don't call it the Suicide headache for nothing!

For some reason, LSD works wonders for me. I use it twice a year, and it makes the attacks less frequent to almost entirely gone

It took nearly twenty five years for me to get diagnosed and my working life has been wrecked because sickness benefit and employers' patience never lasted as long as my 3 month cluster. Working through attacks when I was younger required extremely high levels of aggression, so I'd need a new job after each cluster. Big respect to my woman of 12 years for sticking by me and to all the people who have worked to help her and our children understand it's not just me.

Psylocybin Mushrooms and LSD better than any prescribed drug period

I absolutely admire you people who have this disease. I had a fracture on my leg when I was young wherein you can even see the bone out of your skin, I though it was the most painful pain anyone could experience until I saw this video. I hope they get you cure fast! That's literally living in hell.

ive been a sufferer for 4 years and im 20 now they come on randomly went to the doctors and everything they gave me hasnt worked, ive had no breaks or a "cluster period" ive had them everyday for 4 years, sometime i will have one a day and other days 5 or 6, ive been taking my mothers tramadol and codiene tablets because the doctors wont prescribe me them for myself and at the start they helped a little but ive been taking them so often ive become immune to them, i really hope they come up with a cure for the soon because they are terrible, i feel so sorry for anyone who is like me and suffers with these

I've had these headaches for over 25 years, but 10 years in complete remission. They just started again all of a sudden two weeks ago. I've had them every day since; usually three times (30-120 minutes) spread out by 6 hours of remission. I'm tired of debating with my doctor when he assumes sinusitis or migraine, and of course was prescribed a useless antibiotic. Of course I was referred to a neurologist, and went through those useless expensive CT scans again, and a spinal tap to rule out Meningitis. Since the attacks started my blood pressure has gone sky high, I feel so weak from the Sumatriptan, the Tramadol, and the increased dose of blood pressure meds. My doctor now wants to hit me with an antidepressant and something normally used for epilepsy. I really hate all these drugs and I feel like they're killing me.

Holy SH*T, I'm so sorry for anyone who has these

I'm incredibly thankful I only get migraines.

No questions. These headaches are the most painful thing, ever.

I'm praying that I never get this.

When I have the attack - I get so violent because of the excruciating pain. I can't help it. I fell so sorry for all of us who has it..

My clusters are in my left eye and the tightness goes to the back of my neck with constant eye watering! Pain wakes you out of a sleep and immediately your blood pressure goes up, you start panicking cause you feel it behind that eye and you wake up so tired and so wanting to go back to sleep ,but, you know what's gonna happen next!! 45 mins to an hour of the worst torture ever! In the worst part of the headache (for me) I planted my face in the couch cushion and lying (doggy position) the only way I know how to describe it sorry!! I rubbed my face into the couch cushion pulling my hair while rubbing my eye and banging my feet on the carpet, Rubbing my face back and forth into the cushion! As the pain got too the peak. I literally had to get up and walk. As any Clusterhead knows, you can't sit still during the attack! Just keep waiting and moving and praying and begging until finally!! You feel the fist that has had your eye squeezed in its hand, finally start to let loose! It goes away rather quickly and there you are on the floor breathing heavily and completely exhausted but so thankful. You crawl to the bed ready to sleep but in the back of your mind know that tomorrow IS another day. I've had these headaches since 2002 on a yearly basis. There is so much more knowledge now on these headaches, although no cure. In 2002 no one knew what was wrong with me. Always diagnosed with sinuses! I felt so helpless and alone. 2008 I googled my symptoms and there it was, Cluster headaches with every symptom I had suffered right there on the screen in front of me. I cried like a baby!! I'm not crazy, it's not just me!! Since then I've still suffered every year, but at least I know I'm not alone and that makes it just a bit better!! The only thing that helps my clusters is the Imitrex injection! Unfortunately they are super expensive even with insurance and very limited in length of use! So many times I've just had to suck it up and wait for the beast to come to me at 12:00am and endure 45mins to 1 hours of unbearable pain. Every night for 30 days during my cycle!! It's not just a headache! It consumes your entire life when your in your cluster cycle. Your life revolves around your cycle! I'm happy to say that I've been cluster free for almost 3 years, however, reading others comments has me a bit alarmed as many of you have been in remission just as long and they came back!! That honestly scares the shit out of me!!

It's not "one of the worst headaches", it IS the worst headache.

I have cluster headaches (which is "suicide headaches") and I have since I was about 9, and I am 12 now. I always get them everyday at the same time, in choir, language arts, newspaper, and math. Sometimes I have to leave class because of it and I am literally immune to any headache medicine now. I have to try the oxygen treatment now, but I am glad some people understand it sucks, usually people make fun of me for it. But yeah, it happens everyday for me :p

I suffered from clusters headaches since i was about 4 years old a lot of my life was in hospitals. The pain is just too terrible. While staying w my grandma in Mexico she took me to a doctor that works w modern medicine but is more focus on natural medicine and I began a treatment for about a year when I was 8 and I never had an episode again since I was 9 .

Others will never know how bad these really are. Takes your life away until the cycle is over. Then you pray it stays away, but it doesn't.

I have these they are horrid what was described in this video is how i have felt ,suicide to get rid of it , it last for a few hours its affected my work big time! made me collapse and lose feeling on my life side of my body ,i thought i was a tumour but mri came back with nothing and my doctor said its migraines and he sending me to see a neurologist thanked goodness but i know its cluster headaches. hope you all have working treatment soon! :)

No amount of painkillers seem to work, but, if you can, take sleeping tablets - the drowsy antihistamines seem to be strong but 'safe'. Obviously, most people are not in a position to just take a couple of hours and sleep, but for those who can...; I also suffer from hypertension (high BP). When I first started taking meds for this my CHs eased. You may wanna check your own BP with your doctor. Much love, amigos, CHs are truly beyond the beyond, xxx

I suffered from cluster headaches over a period of twenty years. The pain was so intense that I had considered suicide several times. The last time I had an episode I was in Phoenix, AZ, in 2012 and took an emergency flight back home to Canada, where my treatment and hospital visit would be covered by healthcare. The doctor there prescribed me prednisone for 12 days (had relief the first night) and then Verapamil. I have been on the Verapamil since 2012 now and have had zero episodes. (Knock on wood) Honestly, if you are suffering please ask your doctor about Verapamil, you might find it works for you too. Good luck to all. Cluster headaches are just the nastiest in terms of pain.

@palmisano I'm sorry for you. I have frequent headaches and i can only imagine how hard your life can be. No1 deserves to feel that costant pain.

I have suffered from regular kidney stones in the past. Incredibly painful. I have also experienced migraines a few times which strangely subsided quite quickly after vomiting. Once the migraine was gone, I craved salty food. Then after I wake up the next day, I felt better than usual. My experiences with these are nothing compared to what I imagine CH sufferers experience. I feel an innate need to help them get through it when watching people going through and attack on video.

Just keep quiet. that is what I do, nobody understands who doesn't go through it. It's not being melodramatic but I don't need to hear that you had a headache too, or your sinuses bother you. I have had Dr's look at me like I was crazy after I said the last about an hour. Luckily I don't get too many episodes, so I suffer for a month or so, then pray the next one doesn't hit for a while. There is stuff you can do to help, but overall, you have to just deal with it when it comes. I am just trying to not kill myself this cluster. Its only begging , I know it is going to get worse.

These are exactly what I get....i've had them for around 8 years episodic. I just use Propranolol for prevention when the bout starts, and then Migraleive, Ibuprofen and Sumatriptan Succinate tablets when the pain begins...usually last between 15 minutes - 4 hours. If anyone is doing any other documentaries I'll be involved !! I've always wanted to try Oxygen tanks but there is no funding for them where I live through the NHS.

Fellow CH sufferer for 20 years and I feel your pain my friend...

Excellent explanation of very real pain.

My husband has it. i got really emotional watching this. Its a terrible thing to have to live with. X

a special person in my life has these horrible things and the one thing that has stopped them is psychedelic mushrooms. they arent happy about it, but taking them once a month staves them off. i feel for anyone suffering with these, i hope that info helps!!

Word. I'll self harm (bite myself, bore things into my skin) out of perceived necessity but ive never seriously considered suicide.

"ONE of the most painful headaches you can get"??? Try THE most painful BY FAR.

The only thing keeping me alive is my mum and bf . I would of topped myself years ago and if they die tomorrow I end it the same day cos I hate this stupid illness... its plagued me for almost 25years

I have just gone through 15 attacks in 26 hours and am at my wits end. I have high flow rate oxygen with a non re breather mask and my oxygen co is amazing.....I went through 2 tanks in the 26 hour bout and am still not getting any respite. The worst thing for me is that my doctors are more than happy to prescribe some truly toxic drugs...some of which I am not brave enough to try as I have a history of unusual reactions to drugs but they won't even consider anything less toxic with no licence??

so I'm watching this because I heard about it in a article I read and they said in the article that "LSD" the drug apparently helps with this... but what would you rather have schizophrenic symptoms from LSD or are major headaches. catch 22 I'd say. I feel bad for these people.

Good documentary. Thanks.

I suffered for many years, I wanted to jump out the window and end my life, it was horrible. Verapamil and Imitrex worked for me. Don't give up, find another doctor. and they will go away eventually. I have been in remission for 10 years.

Suffered with these for 10 years. Absolutely horrendous. Only thing that eased the pain was the sumatriptan injections. Tried the oxygen, no effect what so ever.

Yes we are not suicidal out of an attack but in attack it can sometimes seem the only option of escape, I have been there it is not something I would wish upon my worst enemy

oh my gosh this is me, the doctors are saying migraine...but I always want to blow my brain outs...Yes, before cat scan I thought it was a tumor....I'm 44 years old and considering going into a nursing home cause I no longer can live on my own, I'm bed ridden. :(

Maybe the reason we get these headaches is because were THAT smart. Were so smart that are brains cant fit in are head.

I really really hope for the future that we find ways to relief all pain, because hell and pain are about the same level to me.

Perhaps because of the extreme pressure in the vein and the forced breathing at the same time. It's really tiring, but I say, it's worth to try out! Have a good luck for you.

@palmisano ,no it didn't, it does give me some idea of how painfull this must be.

I was unfortunate to have 3 six month long bouts of this separated by 2 years at a time in my 20's - completely destroyed me - my GP's response was that I was a 'Hypochondriac' which was absolutely no help at all till I took a video of an episode with one eye streaming and eyelids fluttering..he then sent me for a sinus scan at Guys Hosp...despite all the tests etc they found nothing...NOBODY believed the severity of what I was feeling, and like in the video they thought I was 'playing up'.....

I smoke pot and it works ..takes the headaches away all the time. I only smoke when I have a headache.

I'm 44 I have had ch episodic was chronic since age 19 I pray we find a cure!!

Yeah, I'm not suicidal.And I suffer these for about 3 weeks, every couple years in the springtime.

I just watched a show on NatGEO that showed eating mushrooms twice a month keeps the headaches away.

@2upendra I don't have this, but the fact that this is a possibility makes me not even want to live here. If you have this honestly don't want to live, my advice to you is to try everything you can to help it. From weed to Oxycontin to mushrooms. Ive heard people say lsd or mushrooms help. That or live life at 1000 miles an hour. and enjoy the pain free minutes as fast as you can. I'm sorry that this happened to you if you have this and I really wish you the best of luck in your future.

Dear All, I'm a sufferer from Hungary, that's why my english is soo poor.... To tell the truth the only solution for me - even in the midnight, awaking from my deepest dream!!!! - to begin work-out, especially a huge amount of dips. It means not some 10 or 20 repetitions, but as much as i'm able to execute. Almost till death. I know, this would sound as an unbelievable "method", but it really works!!!! (for me...) Everytime I begin to push my dips, pain break off in no more than 10 minutes.

The pain comes from an inflamed nerve in the nerve bundle behind the eye. Medical science dose't know what causes this inflammation. That is the mystery. After i learned this it made sense to me to try something other then a pain killer like an anti inflammatory like Benadryl and it worked very well for me.

Oh my god, may this people find some sort of cure, nut just releive.

im having one right now and its been going on for 16 hours

f#cing CLUSTER HEADACHE!!! After 8 years Ive learned that I have CH only today!! Its pity! I left my university 8 years ago just because of this headache and no any doctor and professors believed me!! i was pushed to quit my study and now I dont have university degree (((((((

Breathing exercises done with discipline help very much. Learn to breathe. And pay attention to causing factors. Some people are very sensitive to a bit of cold or toxins in food. So, LEARN if you really want to escape it.

I just had a weird thought. What if these sufferers were shot with a x26 taser, 50,000 volts of electricity. It would have to effect that nerve somehow.

I'm just wondering, do you suffer these? It's a serious question, if you do and that works for you, that's great. It obviously doesn't work for everyone or no one would have them. I don't have these, luckily, and I hope I never do, but do you?

ive had cluster headaches since I was 7 years old. I still get them now and im 25. I use to cry myself to sleep and tell my mom that my eye was hurting and felt like something was eating it from the inside. she took me to the doctor, however he couldn't find anything wrong. so I suffered for about 7 days, 2 times a year for a long time until I did some research, went to a few doctors and found out what this paralyzing pain was. I find that Fioricet mostly takes the blinding throbbing pain away for me, but I do have a low tolerance when taking medication. some people say that Fioricet does nothing for them. what are some other good meds that help subside the pain that most will never feel?

@qahhari I saw an documentary on the television, scientists showed that eating shrooms once a month the attacks can avoid. Of course it's no good using hard drugs, but if i see this, i see this is a hell if you got this disease! So if you can avoud this cluster attacks with shrooms, maybe it's worth trying sometimes

how the hell do you survive a shotgun blast to the eye?

I just discovered this headache. I just want to say to everyone who has this disease, that I hope there will one day be a cure. I have never seen anything like this, and I hope I never get this. I could get any disease in the world except this one. I am really certain that I would commit suicide if I got this disease

I dont even wanna live on this earth anymore

please tell me what helps, I can't take the pain anymore

Prednisone ?

I'm Eastern Cherokee Native from the US. As far as I know, there are only a handful of our people who have these, as it's mostly a European disorder. Yet when I was put on Prozac at the age of 11, these headaches almost went away entirely. I have one maybe every other year, if even that, and it's mild. Would that work over there?

Hi ive been having episodes of these attacks for about a year now and ive take. Tests online and i know for certain they are clusterheadaches ive tried overdosing just to take away the pain. My doctors seem to think its just a migraine i can assure you this is hell. How did you guys persuade your doctors?

2020 and starting to suffer again, worse than ever on record. I'm scared of going to sleep, my real life Freddy Cruger. Four hours of hell screaming; my neighbours could hear me as they mentioned to me the next day. Oxygen and Injection primarlily.. Unitl Ocipital Nerve block can be had from my Headache specialist. Surley someone has to have come up with a cure by now? I will try magic mushrooms soon.

Hi I've noticed two people on this video have a stammer and suffer from cluster headaches . I stammer and also suffer from cluster headaches , are they linked ?

It's on u n top 10 list over pain to human, so the only thing is, I bond with the other 9

SMWhit3out Do you still live on this planet?

I feel sorry

pain killers cigrrets and suffering a loooooooooooooooooooooooooooooooooooooooooooooooooooooooooooooooooooooooooooooooooooooooooooooooooooooooooooooooooooooooooooooooooot is what get me throw my attacks

i dont suffer for it but i would blow my brains out if i did just because of the fact the human body is that much of a universe fault to destroy itself

So sad, "more NOT- as a LITTLE BIT help" to me. CH comes as first i was 21 in 1999, til today i didnt find anyone of medicine that can help me. 4 to 6 attacks a day, i think i know that some of us would like to die. Sometimes i am too... Greez to all from Germany

when i was 10 my sinus was full of mucus it started to go in my head causing painful headache that i had to take 2 times stronger pain relief medication that i could stand it

I'm 14 and having this right now. Will this last forever? I don't want it to please help I'm suffering. What do I do it hurts

Has anyone tried histamine? It is given by iv and it can put clusters in remission. My husband was in remission for 7 years but they have recently returned. He has just finished another histamine treatment and so far it has worked.

I have had them now for 8 yrs. As of late I am having about 4 a day. I can't do it any longer. I'm tired of the shots. Suggestions please.

How can I get this diagnoses with a 7 cm hit scar fracture in the head, neck broke And scar in spin, and fosfor scar, do millitsry run from pay up,

You cant meditate during a cluster headache, and if you can your on par with superman

Has anyone thought about the psilocybin containing mushrooms?

Has anyone tried alternative medicine? Such as meditation--that sort of thing is known to cure cancer naturally. Just curious.

i got this and i am living hell every night 1 to 3 time a night 30 min. to 3 hours every time every night

Do you think they could sedate themselves during the headache so they can't feel the pain?

I wouldntve thhought you were all suicidal but it mustve passed your thoughts. X

I had the thought last night to use a drill. I'm absolutely desperate.

I hope I never experienced this omg..

I've lost a good job behind this🤬

I don't think admire is the word you are working for.

@jackrabbittt333 Like... shrooms? or the stuff you put on pizza?

Magic Mushrooms work I've heard, I've never tired it myself but i've heard it works really well

Great video with all the information.Iam facing this since a week and what helped me is a yogic breathing exercise called Anlom Vilom (15 mins twice a day ) look it up on RU-vid. Tell me if it works for you

Psilocybin Mushrooms.