*Trigger warning* This show contains hard topics on life with HD which can including speaking on topics of abuse, neglect, su*cidal ideations and more. Please listen with caution.
A Speech-Language Pathology graduate student (Paige Wikman) and her professor (Dr. Therese O’Neil-Pirozzi) at Northeastern University in Boston are doing an IRB-approved study to explore perspectives of individuals with Huntington’s Disease and their caregivers in areas of quality of life and eating/swallowing (link to study flyer).
They are interested in how self-reports of individuals with Huntington’s Disease compare to those of their caregivers in these areas. If you have a medical diagnosis of Huntington’s Disease, you and a caregiver who knows you well, may be eligible to participate in this 20-30 minute-long study.
If you are interested in participating or would like to know more about this study, click here: calendly.com/w... to schedule a time with Paige or email her at (wikman.p@northeastern.edu) for more information.
I hope you enjoy our conversation!
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15 апр 2023
