I am nearly 6 months into Dan’s ANS Rewire Program. I am 53 and had Fibromyalgia and CFS since childhood. I no longer identify as having either. I have started volunteering at a local castle - doing 1 or 2 shifts per week. I don’t think I am 100% recovered yet, but that is fine. I am working on issues with Menopause too. This video comes at the right time. I had been looking at other programs as I see them mentioned on this channel. Perhaps I need a slightly different angle to get me to 100% ? I would definitely recommend ANS Rewire. Go and check out the trial videos now.
Thank you, Dan! I have made steady progress since starting the ANS program last year. It looks like it will take me about 18 months or more, but it doesn't matter to me how long it takes. I went from 25% to about 80 or 85% functioning now. The two pieces of advice you gave that have helped me soooo much and relate to this topic: 1. Invest any new energy/wellness I gain back into my recovery. and 2. If in any 6 week period I don't see progress, I look for what new thing I can try to add to my practices/therapies. The things I have used have been mentioned directly in the program, and also things that made sense to me based on the education I learned in the program. (For instance, I did the book the Artist's Way as a type of therapy, because I understood why it would help my nervous system build more safety and calm. And I recently started a free on demand singing course through the library). Thank you again for your help.
Exploring your creativity or discovering new aspects of it is wonderful, isn't it? I too recovered 80% from MEFM after 45 years - but I managed to do it on my own! I had 3 other "incurable" diseases (according to the doctors), but they all disappeared or got hugely better when I got OFF 5 medications and took my healing into my OWN hands. Journaling, shaking and dancing, storytelling in the community and writing of the experience in a blog - all helped me hugely. Sing out!
Such a good chat. That pull to ‘do more’ /prove yourself as soon as you feel better. It is a real head muck - good days and blah days. I have a lot of respect for Dan. Anyone who acknowledges that their way is not the absolute only way to go is a good sign of authentic caring for peoples recovery. I have learnt a lot from him!
I was just reflecting on how great doctors and healers are curious people who never stop digging for answers, especially if their patients are not improving. Great interview, despite no doggies 🐶
Unfortunately, a lot of radical self care is dependent on having people available to do things for you and having sufficient financial resources to pay for their help if necessary.
So I get what you are saying and LOGICALLY, I agree with you. HOWEVER, I have seen people do it without such support and resources, which frankly seems impossible. Desperation can drive us to do such things at times. Maybe you have seen this in some of the recovery interviews!?
I hear you - I am low income myself. But I recovered 80% from 5 "incurable" diseases (according to doctors) including MEFM on my own. Part of it was quitting meds that had harmed, instead of helping (including benzos), listening to my body and mind, journaling and dancing OUT the emotions trapped in the body and sedated by the meds for decades, exploring the trauma that led to being prescribed the meds. I got great books on trauma from the library - Peter Levine is one of pioneers in somatic work. And I used a lot of free videos on RU-vid. I recovered more and faster from benzo withdrawal than people with lots of money! I think learning that most healing was SELF-healing was vital. Best of luck.
Yes yes and yes… if you have u addressed celiacs or diabetics or even the MTFHR mutation etc ect, or are in an abusive relationship with people or work environments, or in trauma drama daily… how is brain retraining going to progress and hold to a recovered state. It will be a roller coaster or relapses or plateau. What he says is so true. It doesn’t mean that brain retraining can’t elevate you to recognize these other things but all medical or structural hindrances, such as hyper-mobile instability in cranial or other areas sending signals 24/7 something is off or nutrient imbalances unaddressed. Brain retraining is one tool. Just like mental health being the only thing offered when you have a medical driver to the nervous system issue. You can’t fix celiacs with antidepressant and anxiety meds. You can’t heal trauma when you are currently in a daily in a narcissistic relationship or environment. But often, brain retraining will make you aware something isn’t right… because it’s not working. I feel better in mood and maybe optimism yet it’s not working. Look deeper but don’t throw out the brain retraining element as an excellent life tool.
Agreed - you can't teach your crocodile brain you're safe - when you're NOT, and still in an abusive relationship. I have a double MTHFR gene myself - yet I'm OFF all diets, as they didn't help, and despite being diagnosed with food sensitivities now eating everything. (Yes, I mostly stick to healthy non-processed foods -- but "low histamine" and "acid reflux" diets are a thing of the past - it was trauma and stress causing the symptoms, NOT the foods. Learning to calm the nervous system is key - but first I had to quit useless medications and stop seeing a couple of toxic people in my life. The body is trying to tell you something with symptoms - and they can heal when you're in a safe environment and learn to create safety for your brain. Best of luck!
Hello Raelan, have you ever done an interview with an old person. I am 80 years old and have had ME/CFS for the last 5 years, took 2 different programs but at the moment go through a very difficult relapse and nothing seems to help me. I would be really interested in hearing an old person speak about their discovery.
Thank you SO much for what you do, Raelan. This interview was again SO eye opening. Have you got experiences with people getting out of abusive relationships and finally being able to heal? Need some hope here... Had made SO much progress so often already, only to find myself back in the pit again... But so much in this interview made sense. Thanks for what you do!!! 🙏🙏🙏
Trauma counseling with someone familiar with mind/body healing would likely be helpful, and support from groups familiar with the cycles of abuse. I loved Peter Levine's books and videos on trauma very helpful. I got out of a subtly abusive relationship - which made a HUGE difference to my healing. Verbal abuse IS still abuse. I also found havening helpful for trauma, and that's on RU-vid too. Michelle Paradise and Robin Youngson are great for trauma, anxiety, and challenging emotions. Best of luck.
@@Carmen-p1k You're very welcome! I learned about trauma work from someone who commented about Peter Levine. Said she had PTSD, and somatic healing work had helped her more than all the talk therapy in the world. I've been helped by both - but the somatic work has been a revelation. Best of luck!
This was gold to me⭐⭐.. I found myself nodding+ then laughing at sommany truisms.. I was pre med, am. Long COVID, w comrbidities.. celiac, ibs, mold injury, gut dysbiosis, dermatitis, type A, aging w no help.. see 11 Drs who treat 11 body parts.. non understanding what in talking about.. have studied this 2😮💨years w Drs all over the world . Avoided all fix it bandaids ie head helmets, tilt table tests, cure all probiotics, etc.. truism: NO ONE FIX🙏❤️
I purchased Dan's ANS rewire program back in 2019 for around $500. The main reason I purchased the program was to have access to Dan for private consultations because of the complexity of my case and indeed he didn't offer consultations unless one bought his program in which he included a free one hour consult. So I bought the program in the hope he could help troubleshoot some of the more complex mysterious facets of my CFS. I was shocked to find in my consult that Dan had a completely different personality then he portrays in all of these interviews. He was tense, impatient, demanding and downright rude. I was shocked. I was at an all time low at that time and desperately needed help and came away feeling even lower. Dan video tapes all his consultations for legal reasons and so Dan if you're reading this you have my permission to publish that consultation so that people can see the other side of your two faced personality.
That was great, and put together several things I was thinking. I’d suffered many years of an abusive relationship when I got Covid, I think that was the trigger. I also think that’s why I couldn’t then recover from chronic fatigue and related issues. I’ve been doing breathwork, awareness and yoga nidra which I think helps, but it’s easy to lapse back in to that fight and flight mode. As well as stopping the abuse, I wonder if I should try to do things to address trauma. I hope to figure out what else I need to recover. I’m hoping I can find the answer. Certainly interested to know more. Thanks.
Hi! I don’t know if this will help or not, but in my case, I had to look at myself. My parental attachments. It has been really helpful, although difficult and painful at times. The thing that’s helped me get over the plateau is going back to my hometown. My parents are no longer here- or even close relatives. But I’ve opened myself up to more distant relatives, our old church, old classmates, new friends, etc. I think knowing I’m somewhere where I can get support if I need it, that I’ll be ok on my own, and just a general feeling of belonging has helped a great deal. Ina small town, you can also see what’s really going on with people and know you’re not the only person with problems- and have a chance to help others, which can boost your own self-confidence. People often dismiss community, but I think it’s very important, at least to me.
I did DNRS for 1.5 yrs but plateaued. Later i was diagnosed with CCI. So got to check the physical problems as well! Im about to go into surgery to fix inter-cranial hypertension. Id like to be able to do brain retraining prior to the surgery and afterwards. Do you have any suggestions for doing brain retraining with bad brain fog and memory recall?
So true. Thank you for this interview. My problem is, that I can do almost everything. But I have to pay a price. And the price could be being ill for 6 weeks. How do you explain, that I can do things in the morning, but not in the evening. That I can meet a friend, but then I need two days to recover and can't see anybody? Thankfully I learned to deal with it, but it took me a while and it is tricky and was a reason for many plateaus. My first responsibility for now next to some others is my recovery. In my family there is a new rule. We deal with things, when we have the capacity and energy unless it is a real emergency.
It's hard sometimes to put yourself first - but I always say that during your recovery, being selfish is the most unselfish thing you can do. If I hadn't recovered, I could never have done the things for my family that I have, let alone helping others in the chronic illness community!
I feel what you're saying, Frances. I think of it like this: A healthy person could probably stay up for 48 hours or even more OCCASIONALLY and if ABSOLUTELY NECESSARY, but they will have to rest eventually and it will probably be more than a normal 8 hour sleep. Many of us CAN do anything, but we have to focus on not just what's POSSIBLE but what's SUSTAINABLE. It's a difficult process to figure that out and learn to be ok with it, but that's what will get us there.❤
Oof…. How odd that this video comes out now. I’m probably the sickest I have ever been. Trying to decide to leave or stay in my marriage. Such a huge and hard decision. I’m unwell with MCAS/CFS etc with an unwell daughter with the same conditions. I’ve wondered on and off for years whether my marriage is a factor or not. 😞
Just got out of an emotionally abusive relationship and it is as if a switch has been switched... I guess it really is the stress response that is switched finally off... Cannot begin to explain the deep, deep relief and HOW important that was. Of course, I don't know what will come, but I do believe this can be a huge contributing factor, unfortunately... Wishing you lots of wisdom and the right decision, whatever that may be!
@@Truerealism747 I am hyper mobile. Not sure if I’d qualify for HEDS diagnosis or not but definitely hyper flexible joints. Always have had. Im sure it’s a factor.
@@lizw4176yes it surely is Dr j Campbell has recent one in mcas and Dr says it 89 percent comorbid check out rccx gene theory to it's highly linked to OCD autism ADHD fir which now diagnosed do you have much pain? My worst symptom
I hope addressing my ptsd will be my final puzzle piece. I’ve come a far way but I feel like I’ve kinda stagnated. The healthcare here is pretty slow, been waiting a while to get help. Hopefully I’ll get it soon 😅
PTSD held me back for years; I just couldn’t find anything that helped. I’ve now got to a place where it’s not too bad and I’m hoping I can move forward now. It’s such a big emotional drainer. Good luck x
Yes getting help from a professional is key, BUT, it's not necessarily the sole solution. I would encourage you to work on this yourself until you get there - I have seen people make substantial PTSD recovery progress on their own. Reading about others experience, using a range of training strategies - all these things can help. Be prepared to work with different professionals if you don't get the results you seek right away. I also had PTSD before I got ill and whilst I received the wrong kind of therapy, I did eventually get over it myself but it was a slow boil.
@@CFSUnravelled1 Yes, someone wrote that Peter Levine videos and books (I got them from the library) helped them with their PTSD more than all the talk therapy in the world. That inspired me to read him - and it helped hugely.
That's the external stress. But you always have a choice how you react to it. Always. I hope you can learn to feel carefree on the inside. Sending gentle hugs.
I think this is very interesting. There is a lot you have to go through to recover. Im not sure everyone can be as self-focused as Dan suggests though I see the point it will help.
So true - I think it's a struggle for most of us - we have good and better times, somehow we need to find enough to do something to move forward and when we make progress, invest that to be able to do more. It's not easy, that's for sure.
Is it possible to let the viewer know that some of your videos are glorified advertisements at the beginning.. it would save many of us countless hours. Thanks
I paid a lot of money for Dan's course, ANS rewire. Unfortunately it didn't help me recover from CFS. The worst aspect of it was that after a number of months, you no longer have access to the program material. He says all he cares about is people succeeding? He's operating a business, the sole objective is profit. People with CFS are vulnerable, they would do anything to get better and they are easily exploited. Wouldn't it be great if there was someone who could help you get better for the right reasons rather than to simply fill their pockets.
Compared to how much I had spent on doctors (just the copays) and got nowhere, I felt Dan charges pennies. I’ve had a number of plateaus. I wrote to Dan and he extended my access for free. It’s hard when you’re in the ME/CFS mindset. It’s naturally negative- as our brains and bodies are on constant alert. But you can’t expect someone to fix a problem they don’t know exists unless you tell them. I imagine Dan has a reason for an expiring subscription- probably so we won’t lay around for 11 months saying we’ll do the program tomorrow because we don’t feel well today. 😂. Wishing you full recovery.
