You go ladies!!!! Kick ASS! I don't think people that have mold sensitivities get to umbrella themselves in CIRS Population. We need to be a disease not a syndrome. Insurance would have to cover. You ladies are FABULOUS FABULOUS
What a great podcast! I am probably one of the worst C.I.R.S cases out there.I have been ill with this for about 60 years now and it was only 2 years ago that my PCP attended a lecture by Dr. Heyman because he has cirs also. I have been trying to figure out what I have for the last number of decades and have been to a number of doctors and specialists, like everyone else. My PCP has left his 2 practices and has become a Shoemaker certified physician here in Utah and joined another clinic here. He knows all the other physicians involved in cirs and meets with them regularly. It took me all this time to FINALLY get to VIP. I also had a major brain injury 20 years ago and this brought cirs out even worse than what I had had before. This is scary,frightening stuff and its really touch and go on a daily basis. So, like everyone else I've been through HELL! I have spent at least a few thousand hours here on RU-vid studying from all the familiar people involved in this field. I've only been on VIP 1 1/2 months with a few noticeable changes. Anyways I intend to catch up on all your other podcasts. You have a great format and you both are HIGHLY intelligent and your giving some great advice that will help many.
Wow! What a journey you have been on! We're so happy to hear you've found CIRS, a practitioner who cares, and you're on the last step! We'll be rooting for your healing and please keep us updated. Thank you so much for watching and leaving this comment! We so appreciate it. :)
I try to send everyone to this podcast to learn about CIRS. They don't like to hear me say, "you have to get out of exposure, you don't have a choice." You ladies are much nicer about it than I am. LOL I've gotten a lot of remediation done, and I'm still cleaning! But already can tell my VEGF, ADH and MMP9 levels are improving, based on how I feel. Now, I have to brave the welchol again. My last dose of that was so awful, I had to quit taking it. Hopefully, reducing the toxin load in my house will help with that.
I’m using TOXAPREVENT which is basically Clinoptilolite . I also use Chlorella Pryenoidosa prescribed by my practitioner to bind the mycotoxins.Could you please give your opinion as to wether these will work.Thank You.
I'm in the middle of a protocol but during a pause right now as I'm working on my house and mediation however I did start off on cholestyramine regular from the pharmacy and I have a real problem with the fact that it has aspartame and dyes in it. We're trying to get better from one thing but creating or continuing to exacerbate other problems. I ended up going to a compounding pharmacy and of course paying 10 times more for a compounded form then the regular RX.
Yep, that's the trade off. Many people have healed from CIRS without the aid of carnivore, keto, or other super clean diets, so if money is tight, the "dirty" version of CSM can be good for some. Another option to look at would be welchol, which might be cleaner than the sucralose version of CSM.
I really like how yall make things feel do-able and also how you make the mental health of it important, not pushing going so hard on yourself all the time. It makes this feel realistic and like I can do it as long as I go slow and smart. Ty guys for all the things you do, group and public 💜
So glad to hear. We value our mental health possibly above ALL ELSE so we love to push that in others too. Good job working on that! So happy to hear we're helpful too :)
aww, that's a bummer. You may want to ask your doctor about backing off a little on the dose to see if that helps, and just increasing more slowly. Hope you're feeling better soon!
Can you provide the name of the doctor you referenced who was not a fan of mycotoxin urine analysis tests? I could not get the full name from the transcript. Thanks!
Well with CIRS, we're not able to create antibodies to the biotoxins - that's the whole problem. The best comprehensive list of CIRS related bloodmarkers to check can be found here: www.nutritionwithjudy.com/shopping/lab-work/chronic-inflammatory-response-syndrome-cirs-testing
@@thecirsgroup I love Judy! For the record, according to Judy (I emailed with her) I tested positive for the HLA-DR gene, which I thought meant I was part of the subset that couldn’t create antibodies. But my mymycolab antibody report came back very positive. As well as all the shoemaker bloodwork. So I’m a bit confused here 🤔
@@dimitrideychak8939 Maybe try consulting an actual medical professional or functional practitioner, as opposed to all these RU-vid gurus (who have zero medical training or qualifications....)
