This Is A Moment I Never Dreamed Would Be Mine!

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[Vlog 6.29.22] - Treasured moments as a mom & update on my port situation
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Welcome to The Frey Life daily vlogs! We are Peter & Mary, a married couple in our early 30's, showing the ups and downs of everyday life with #CysticFibrosis, a genetic lung disease that Mary was born with. In August 2019, Mary started a new CF medication that changed the trajectory of our future, and life has changed dramatically - including our son, Elijah, joining our family in December 2021. We also have an adorable standard poodle, Oliver, and a hairless sphynx cat, Harry. It's our hope that these videos can be an encouragement to to celebrate the little things in life and find joy amidst a world full of hard realities!
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Опубликовано:

28 июл 2022

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Комментарии : 170

@jacquelynnjones1372 Год назад

love that you guys sit down and eat and chat. it’s so calming! I am overcoming shameful eating practices and disordered eating (with a history of bulemia) so watching you all eat “normal” food helps me to remember that I don’t have to eat perfectly nutritious food all the time. I can enjoy foods I love and have fun with it!

@keric3673 Год назад

Food can be both nutritious and enjoyable! I’m glad they’re helping you heal, I hope you continue to go on this positive journey

@sunrisedesign3267 Год назад

Having MRI IS SO ANXIOUS DUE TO SEVERE CLAUSTROPHOBIA from severe Child ab… so I use to be put to sleep so the one upside to my Pacemaker and Defibrillator is I can’t have an MRI. New problem was I didn’t want to be put on ventilator but my thoracic surgeon said I would probably need to since I had waited until I was almost dead (no joke) before going to ER I was Dry Drowning in my own blood from blown Heart valves most people get a new valve and go home in 4or5 days I died on the table, 4 blood transfusions and on ventilator for a week and in hospital for another month Once you get your chest sawed open and literally die not much freak’s me out.

@catherinekennedy7731 Год назад

Praying for you! I suffer from ED.

@lirpa1981 Год назад

If he isn’t the cutest baby ever!!!!!! Still can’t help but say congratulations on becoming parents!!! God is so good!

@abbykuusisto6417 Год назад

Elijah really is cute!

@dothatch5147 Год назад

Mary I had a heart cath in Feb. The dr went in my wrist. From the time I got there I never had pain. So much better than the leg. So much safer I think. The truth it was easy peasy and I am 76 good strong heart

@lorrainedunsmuir283 Год назад

Love the way you say Edinburgh correctly.. We Scots do appreciate it.

@carolyn9157 Год назад

Its great to see you as parents that dream is a reality. Elijah is loved and happy and has loving parents who love and care for him that is a true blessing.

@melcerra2375 Год назад

I remember when you got that port and could tell right away that the armpit placement was going to be super annoying. I hope they get it all sorted. E is so so cute with his giggles!

@marieinparis7492 Год назад

So do I remember all hostpal videos from long time ago now Mary doing so much better now in2022

@lauriegermain5041 Год назад

You're doing so wonderful with your health and. Elijah is getting so big. He's at the fun stage where he's starting to recognize his surroundings. He should be starting to crawl any time if he's not already. Love you all ❤️

@gaynorboyle5573 Год назад

Bacon rolls are a staple here in Scotland 🏴󠁧󠁢󠁳󠁣󠁴󠁿

@dothatch5147 Год назад

I love how generous and kind you are to others

@Jen-zz7nv Год назад

Its amazing that you two get to experience all these wonderful moments of being parents. ❤❤❤ So happy for you.

@deborahfriederichs1012 Год назад

I was borne with Dandy Walker Syndrome with only 10% brain tissue. Iin my case unshunted hydrocephalus ...water on thr brain...in both hemispheres, controlled seizures, etc.Recently was told I have a tumor and am being referred to a neurosurgeon. EXTREMELY stress inducing.

@evercuriousmichelle Год назад

Sending hugs your way!

@lindafrazier8799 Год назад

Many blessings sent for healing!

@jenniferlester5126 Год назад

Hi you guys. So happy for y'all in this stage of your journey!

@Sarah-tm4nn Год назад

So glad you were able to get some answers.

@joane.3533 Год назад

@14:39 That is called a simple act of kindness that gives a wonderful impact. Thank you for sharing

@margueritehebert5389 Год назад

I worked in a nursery and our 2 major foods the babies loved were sweet potatoes n butternut squash.

@wendyhawkins1591 Год назад

He is a gorgeous baby what handsome chap he is going to be when he’s older.🥰

@angelathompson3920 Год назад

Praying for you that all will be good with your port procedure!!!❤️🙏❤️ and I wanted to say, you and Peter are such Amazing Parents!!!! I just love yall so much!!! I am so so Happy for yall to!!!❤️🙏🙏🙏❤️🤗

@marilan3455 Год назад

I love how Elijah has always has been so fascinated with the camera! When Peter moves it he is just locked on it and follows it wherever it goes. He’s just adorable with those beautiful shapely lips…wish I had ‘em! Yes, those ‘mom moments’ are priceless and not to be forgotten. I’m just so happy for you guys! Praying the whole port problem gets straightened out with no hiccups at all. Love to all!

@youser6088 Год назад

Peters hair looks nice 😊You two always remind me to enjoy the little things in life, good to see you!

@penelopepolinsneemeyer4757 Год назад

Good Shabbes guys! I’m so glad you spoke to the Interventional Radiology team, Mary. Dealing with the unknown is so difficult where potentially traumatic procedures are concerned. Wishing you a beautiful and restful weekend xxxxxxxxxx

@allisonfalcione Год назад

Watching you eat breakfast and thinking back to the days when your mornings were so so rough...praise God for working in ways we couldn't even imagine!

@MsTitanic99 Год назад

I've had a heart ablation where they threaded a wire, catheter, through your femoral artery in the groin to the inside of my heart to stop an SVT event. Amazing how medicine has advanced! I chose to not be awake for this procedure. If this is the course you will be taking its not that bad but you do have to lay still for many, many hours afterwards. I'm pretty sure you can handle this procedure if it comes to that. Which ever way it goes Mary, you can handle it! I wish you all the best.

@MsTitanic99 Год назад

@@astrodog5833 I wish you all the best.

@melissamartin5506 Год назад

I have been watching you guys for years and you truly live according to God's will. I love to see the blessings God has given you and you bless others with it. Thank you so much for all the encouragement you guys give in this tough life. ❤️❤️❤️🙏🙏🙏

@user-vm5ud4xw6n Год назад

The other day in one of your videos you were walking up the stairs in the library holding Elijah and you looked like you were going to burst with pride! It’s not something that can be put on a woman’s face any other way. I’m truly happy for you both.

@christineblack5719 Год назад

Mary you are the momma... I love this!!!!

@Back2Eire Год назад

I've only been skimming your post for the past while. Just so happy for all of you. Your life is a real miracle from God. Praying for you all!

@kaylabarnes Год назад

I was like "what are those noises? Oh yeah Hero."

@chricanddogmomof1 Год назад

I remember that you always got a twix bar from one of the nurses in Scotland

@pandacorn1214 Год назад

I just found out I am pregnant and I am soooooo happy to be able to learn from yall and to grow in my Christianity 🥰🙏

@darlarohde1010 Год назад

God never stops blessings such miracles he gives…✝️💟💜

@sandracollins7938 Год назад

I can't go in a MRI either so they have given me a calming med & a cloth across my face ------it works!!!!!

@nicolel6442 Год назад

You are one of them. I always enjoy your updates.

@angiemettler8770 Год назад

Your home is beautiful! I love your backyard!

@catherinekennedy7731 Год назад

He looks like the two of you! Our God is amazing !!!!!! 🙏🏽❤️

@ailanisd8594 Год назад

Those hard belly laughs are some of the best memories of my kids being little. Two are adults now and my youngest is 16…still amazing memories.

@gothgirlpunk1919 Год назад

Every time I watch you every time I put you guys on my 2 month old falls asleep I think she finds Mary and Peter's voice soothing

@lenac7655 Год назад

I love to hear Elijah laugh...so darn cute!!! 😂❤

@latanyafrancois6108 Год назад

Super excited 😆 for y'all to deciding to become parents ❤️❤️👏

@blueskies7538 Год назад

Oh my goodness Elijah looks so much older!! He’s growing up so fast!!🥰

@lifewiththelawsons365 Год назад

You guys make me sooooo excited, just to watch you guys and your journey through adoption and CF. I don’t have CF, I have severe heart problems and am in need of a transplant one day. My situation is just like yours, I’m hanging in there but I have my bad times where I’m super close to needing a transplant. I’m pushing through it though and we just changed my meds around again. So my heart has been feeling a little better. Me and my fiancé are getting married in February of 2023 and we have been slowly preparing to adopt a baby also. We just started getting the baby room set up. Watching you guys from years ago (being in Scotland) all the way to now, just motivates me so much. God is so good 💙

@bonnie1089 Год назад

Hi Mary, I just wanted to mention that I always .... close my eyes and just keep them closed, before they slide me in any MRI machine... I just relax and think about other things, and let it finish... So I don't feel claustrophobic at all ! I hope that will help. You are so very good with your cute baby! I watch you a lot. I don't know if that was you that I met briefly in a Houston Costco a few years ago, with Oliver. I was saying that he was so big and beautiful then, that my mother used to breed poodles. I didn't know you then. You are a very nice family !!!

@JustBethTrying Год назад

My You Got This tee shirt came the yesterday. I love it. That brick red color is just what I hoped it would be. Thank you!

@abbykuusisto6417 Год назад

I Love The Frey Life!❤️❤️❤️❤️❤️❤️❤️

@tracydownie169 Год назад

Mary I agree with you about the Brain MRI …absolutely hated it and only just made it through. I give myself injections & had infusions in hospital and that does not bother me…I need to gave a tube down my nose for a test…and that’s my worst nightmare. Elijah is just so adorable!!! Love his laugh

@billiebluesheepie2907 Год назад

I agree. I keep having to have endoscopies because I have lots of ulcers in my stomach, pylorus and duodenum (none of the tablets they have given me have worked, I think I’ve had 8 or 9 scans). They have gotten worse every time. I keep telling them before they start, if I start gagging please just stop moving so my body can stop - instead they carry on going as fast as possible, constantly pumping my stomach full of air and it’s horrible. Afterwards it makes it impossible for me to keep food and water down for about a week. The pain from the stretching of the muscles takes even longer - all because they couldn’t just wait a minute for me to overcome the gagging reflex.

@maddieadams75 Год назад

Always a pleasure

@nleb1993 Год назад

Elijah, is getting so big! I hope that Elijah's birth will one day be able to watch these videos and see how well he is doing.

@annrut1 Год назад

I could not do a MRI because of the PANIC/ANIXITY kicks in HIGH GEAR, I have learned for me as long as I keep my eyes shut the entire time I am good. I DO NOT open my eyes even for a second because I would hyper ventilate. Maybe you could try my trick, I am praying for you.

@buckeye460 Год назад

I hear your Hero. I got one for my husband after his brain surgery from your recommendation.

@leticiadetrow5348 Год назад

God bless you!!!!

@sarahpreston1478 Год назад

Totally agree with the stress levels of medical stuff. I have also found something which was easy for years can suddenly become anxiety inducing. It's like your body says enough, we have done this so many times and no more. I also had numerous ERCP's and was fine for the first few but felt really anxious the more I had, it is like you feel your luck will run out and you will have a bad reaction.

@masunshine2970 Год назад

Bless your heart Mary. I am so very happy to hear they are doing a study first before going in blind. This i hope for you is a open type mri. When my daughter has a type of test where they had to inject dye while she was on the machine it was a type of machine like the MRI machine but a big round circle around just maybe 3 feet and her head was out. When I had my last MRI I asked them to please turn off the forced air because in the closed one I had before I literally felt like I couldn't breath because of the forced air. So the next one the guy was so nice and turned it off. I like the open MRI 100% better and my clostrafobia was none at all.

@julielumsden5184 Год назад

I love Scotland my husband is from there. Visited several times .

@ellenshuman1369 Год назад

OMG, he is so cute!

@lisatracy2914 Год назад

Baby cackles are the best!

@coolchristian6707 Год назад

I’ve had a cerebral angiogram which I’m pretty sure from what you described is somewhat similar. I was awake as well but I could not feel a thing. I remember some bruising for the next couple of days but I think that was about it. You’ve got this!

@emilyh.9240 Год назад

I hope that whatever happens with your port, it will all work out and be okay! Hopefully the worry ahead of time will be the worst part. It’s good to hear you talk about this as it helps you and others know that we are not alone. MRIs are hard for me too. I needed a brain MRI several years ago too, but I just could not do it. Luckily, they were able to get what they needed by using a CT scan and some blood work instead, phew! Now there’s another challenge ahead for my family. My mom will be having surgery for thyroid cancer next week. She’s feeling positive about it and not too worried, but I have been feeling super nervous about it. But I know it will be okay, I just keep telling myself that and praying. Life can be scary sometimes, but it’s also great and we can all do it! ❤️

@Joy.Elizabeth Год назад

Amen!! Praying for u n ur mom 🙏🙏 i know its always scary whether its yourself or a loved one having surgery. 💗 I actually had my total thyroid out last year w an almost 5 inch tumor n i was so terrified. but i can say even w all my health issues n higher risks it went so smoothly! (better than any of my other prev surgeries) Of course its still surgery but even in my thyroidectomy group on fb SO many said it went much easier than they ever expected n i pray it would for your mom too! 💗 She or you might find the fb groups helpful too. Theyre great for the fears before n recovery after. I could also share a few tips that really helped w recovery if u like. Either way praying it all goes smoothly n they get every bit of cancer! 🙏🙏

@emilyh.9240 Год назад

Thank you so much! I really appreciate your prayers and kindness, Joy Elizabeth! ❤️ I’m very glad to hear that your thyroidectomy went well despite your health issues and the size of the tumor. It’s scary for sure, but just hearing that has made me feel a little bit better. I would love to hear your tips to pass along. Thank you so much again for sharing your story and for praying for my mom! ❤️

@Joy.Elizabeth Год назад

@@emilyh.9240 Hi im so sorry for the late reply ive been very sick but you n your mom have been in my prayers. 💜🙏 Im not sure if shes had the surgery yet but ill keep praying for a successful n smooth surgery n easy recovery! 💗 Here are some of the things that helped me through my total thyroidectomy n recovery. I hope its helpful to her! *Ice packs! This is huge! they should give her some for the car ride if its esp long otherwise just have some waiting at home. the flexible ones are a lifesaver! *Neck pillow. Some say they found it better w.o one n others like myself found it to be very helpful n nesc to get sleep bc you dont want you head to hang down esp in the beggining. *Easy clothing, i thought my clothes would be fine but they were higher cut than i realized so at least one or two low cut shirts or dresses. I found a button down shirt the best for day of surgery n first few days after, no pulling shirt over my head lol *Shoft chew rolaids were so much easier than the chalky ones seems silly but they made it much easier to get down n those are vital while recovering bc it can make your calcium drop so shell be taking quite a few everyday but only temporarily. I hope those help some n really hope n pray everything goes super smoothly n is successful for her! 💗🙏🙏

@emilyh.9240 Год назад

@Joy Elizabeth Sorry for my late reply now. We just got back in town because we traveled out of state for my mom’s surgery and have been pretty worn out. It went very well! They were hoping to just remove half of her thyroid, but their scan ahead of time showed that it would be best to take it all. The surgery took a bit longer than expected because of that and because she had some scar tissue in the area from a previous surgery (not thyroid related). Luckily, it all went well, and they don’t even think she will need the radioactive iodine, so we are very grateful for that. So far, her recovery is going well. Her voice is very hoarse, but they say it should recover. She hasn’t had much pain at all. Thank you for sharing what was helpful for you! I got to read your message before hand, but I didn’t have time to respond at the time because things have been so busy and on the road. I shared your tips with her and she appreciated them very much. She made sure to bring easy clothing and a neck pillow. The ice packs helped a lot! Definitely less swelling because of them. She already had some regular chalky Tums so didn’t want to buy something else, but the chewy ones will be a nice change if she has to keep taking them long term. Thank you again for all of your prayers! I’m sorry to hear that you’ve been sick. I will pray for you and hope that you’re already feeling better! Thank you again! ❤️🙏💜

@felixcat9455 Год назад

I hear you on the anxiety. A couple of months ago I had a mild heart attack which required heart catheterization. I was terrified. They went in through my wrist artery. They put in five stents to open my arteries. While I’m glad it’s over it wasn’t bad at all. Virtually no pain. Only complication was that I wasn’t careful enough with my wrist after the procedure and got a hematoma. Wasn’t really a big issue though. Hope they get your port sorted. I have to get regular infusions so I know about the port option. Fortunately I have good veins so I’m an easy “stick” and haven’t needed port.

@chloemahr Год назад

Aww precious moments 💜 all i hope in my life is one...day... somehow ill be a mum

@andreanittel2240 Год назад

I would love a video just of Elijah!!!!!!

@shawnanicole4962 Год назад

Your hair is so long Mary! We never see it down anymore!

@MsLizzy2010 Год назад

I hope the port testing comes back just needing a cleaning. Praying everything goes smoothly. I know exactly what you feel like with MRIs.

@donnareynolds1541 Год назад

Mary I've had quite a few heart catheterization and I'm a big baby too when it comes to procedures. It's really not bad at all. You're not in a closed capsule. It's open and you wouldn't feel claustrophobic. Hop all goes well. You're in my prayers

@guardiansanimalrescuestate7289 Год назад

Not every place has an open MRI.

@sophieamarant1536 Год назад

Peter saying Houston we have a problem made me laugh. I grew up in Houston suburbs for over 15 years. I now live south of Daytona and north of port Canaveral. I have seen so many launches over the years

@carolynlong9148 Год назад

O all the important appoints. I had an ER vist I having severe back pain. Today I went to Radoligy for an x ray. Hope you're bread comes out yummy. Elijah those laughes are precious god bless.

@cherylemaybury9967 Год назад

I suffer from claustrophobia and many other health issues. I need an MRI on my mouth for a tumour and with emphysema and arthritis I was terrified of laying flat and still for 40 minutes. I have real difficulty breathing when flat on my back. I am going to take some ventolin to open my airways and do some deep breathing and meditation exercises to get me through it. It has worked well for me in the past. And I have had the heart catheter test and it was really painless and nothing to worry about. I know it’s hard to deal with health issues and the medical invasions on your body but using meditation is the best way to get through them.

@suzykauffman1831 Год назад

If you need the cathertazation, it is possible to do it through your wrist. Ask if that is an option. The wrist entrance is sooooo much easier than the groin.

@katherynkennedy5881 Год назад

My son was so funny recording his two when they were wee ones. He did all sorts of story stunts and the looks on their faces always made him start to laugh. Just like Peter when he was filming him.

@bloodlacerose1688 Год назад

I have been watching you since the beginning, I think the vlogg is named " We are on fridges everywhere" Anyways... I have to thank you for sharing all your medical stuff. When I found out I was diabetic and had to give myself a couple needles every day it was scary. I thought to myself what would Mary do. Being diagnosed during a pandemic I had no one to show me how to it all, they sent me a kit and was told it was all in the pack and good luck. It was all confusing, not only that but the pen was broken it was replaced 3xs. I almost gave up so, I tried with a syringe while watching you. I was so proud of myself when I didn't even hesitate. I will always be thankful to you for giving me the courage to do what I had to do. With all my other medical things going on, Diabetes is the easiest to through. Again, Thank-you. Have a lovely day!!

@beccacoleman498 Год назад

For some reason, the sound of your medication dispenser is entertaining lol

@marjanf56 Год назад

the first time he says mama youll smile till your face breaks lol

@ElaineSharon358 Год назад

Good luck with the bagels 🥯

@Mom2AutisticBabies Год назад

Best parents for real I am a mom of three and def that baby has the best parents

@CoolKid-td7ej Год назад

Hi Mary and Peter plus lil man

@lillyanhood3525 Год назад

I have had a heart cath and experienced no pain. They did go in thru my groin and I felt nothing while it moved to my heart.

@elizabethbaird8950 Год назад

Your baby is sooooo cute❤️❤️❤️❤️

@carolynhall1302 Год назад

Hope they are able to sort out your port issues x

@amypearsall Год назад

Another great video!

@fralinsandfriends Год назад

If you've had a pic line the tiny cath is threaded up through your subclavian. I had one in my arm once, at the time I didn't know they got that close to the heart. 😁😁👋👋❤❤

@KirstinRN Год назад

Glad to hear you are able to do the port study first! I’ve not heard of port stripping to rid the fibrin sheath. I wonder if your port line is kinked somewhere? I’ll pray the port study gives you guys some answers & it’s an easy fix!

@sherryfichtersherry6823 Год назад

I just seen ollie's ball they are the best and last forever! My Baxter had like 5 all different sizes he has since passed unexpectedly this June I just recently adopted a puppy and he's not sure about them so fingers crossed he will one day love them!

@wildk2425 Год назад

The port study was really not bad. I thought it would be a huge, complicated, and scary thing but it didn't hurt at all and they found a fibrin sheath. My port was replaced completely because IR thought it would be more simple to replace it than to do the cath and strip it. Hope it goes well for you and you get good news with a more simple solution.

@ItsMeCoffee Год назад

Elijah knows the camera well. 😂 father/son facials

@sharylfuller9277 Год назад

Put the dough in the fridge then pull it out the next day and let it do first & second rise

@TheNeskvik78956123 Год назад

I left a comment on your last video 😁 which if you are having a heart cath done, maybe read later 😅😅 I've had heart cath done because of my WPW syndrome. Needless to say, I will be getting full anesthesia this time around. The experience was a little too much for me being awake 😆 but I wish you all the best! 🥰🥰

@ailanisd8594 Год назад

I have had the port study and stripping (along with my fair share of other issues). Going through your groin is easy, only thing is after you have to stay flat for a while so you don’t start bleeding. The port study is easy, they take pics first (it is under fluoroscopy), then inject the dye, and take more pics. It’s like a “C” arm that rotates around to take the pics. I’m hoping all goes well for you!

@slongv1547 Год назад

Tip due to people saying don’t like knowing it a month behind then don’t put this in. I understand to be behind with video and releasing this ensures when away this will not be broadcast til they return.

@Joy.Elizabeth Год назад

**hugs n prayers mary** 💜🙏 Im so sorry ur going through all this w your port 🙁 Even though I have different illnesses i still relate to a lot of what you said. I do the same thing w playing music that reminds me of God's Truths n Promises. And repeat to myself "im okay im okay" when im clearly not lol hey technically we've made it through 100% of those times! 😊 I actually found a really good battle song a few months ago ive been playing it non stop its called One More Round by Barlow Girls n its such a great fight song reminding us that we can do this n that God's helped us win every battle before n He won't stop now!! 🙌🙌 I hope itll help u too! 💜 Praying for you! Dear Lord please carry Mary through this port study. Let it go smoothly n show good clear results. Help the drs be able to fix her port n please surround Mary in Your overflowing peace, comfort, n strength! Thank You Lord!! I lift up all these things In Your Name Jesus Amen 💜🙏🙏

@yomama8873 Год назад

More Ollie please 🤩🤩🤩🤩🤩💖💖

@annetteturner5954 Год назад

Would love to see the Isle of Bute in Scotland home of my long ago family, hope all goes well beautiful family

@sonia15702 Год назад

I do believe if you go into uploads you can get them by the year they went to Scotland

@doriswalsh3929 Год назад

Interesting 🤔 video 📸🙂 I'm new to your channel . My teacher from a day program I went to he came from Scotland I love how they talk . Glad your healthy 🤗 get well .

@BNHAalltheway Год назад

You guys are such great parents hope everything goes well with Your port

@cherylh1916 Год назад

Oh sweetie I feel you on the claustrophobia, the older I get the worse I get!!! I have to be put all the way under with any type of test like MRI and CT scans. It so bad!!! 😢

@patty3188 Год назад

Lol he always looks so serious dang it he's sooo cute I miss my baby's being g babies

@sandyfreyman3501 Год назад

Nope sweet potatoes don't taste like carrots, but, you can boil carrots and put butter in the water and brown sugar and cinnamon. 👍

@sheriturner6118 Год назад

I agree, however I boil my carrots just until fork will go in. The drain them put butter, brown sugar a drizzle with maple syrup they are SO good that way. I am going to try you cinnamon way. I love trying new ways

@trishameloling2367 Год назад

You should try a plain bagel 🥯 with honey ham on it an melted cheese on it . Use to eat that alot it's delicious

@francespat96 Год назад

I had cataract surgery, thought I was going be fine , but I started hyperventilating, they were worried so had check my heart beat and sugar levels , but thankfully all ok 🙏🏽

@catherinekennedy7731 Год назад

Use butter in your coffee! It’s delicious!!!