Ryan, thanks for your change. It's comforting to know we're all not alone. Your attitude (and your awesome sense of humour) and your information (especially the bit about stress, distressing methods, and such) is all very helpful. Thank you! ✌🏼❤️✨🌻
To anyone new watching this because you're scared, have hope! I've had Displacusis 3 times in my life, once in 2017, once in Feb, and once in March. Sometimes this can come and go. For those episodes, the one I had in 2017 lasted for a day. The one in Feb was in one ear and it lasted for around 2 weeks. It was painful, I could hear music all wrong, and even some voices just sounded odd. Felt like there was some sort of bad echo to them. Robotic, you could say. The most recent one lasted just less than a day, honestly - this was the one I didn't care about the most because I knew it would come and go. Pray to God. He'll hear you. But, have hope. I can't have this promise for everyone obviously, but if you're here looking for hope, I'll give you some!
As for the visual snow, not sure I have experienced this; but in the same timeline with the auditory problems (also-- inner ear disturbances, such as balance and some nausea/vertigo on occasion) I have experienced some visual annoyances, and the last two years my vision has changed rapidly. Also as annoying as the hearing issues. That has been equally disturbing. All of this has been exhausting! But I'm so glad I found my people here in this channel. ✌🏼❤️✨🌻 to you all!
Hi Ryan, my Hyperacusis experience is the same as yours. I faced it head on and tortured myself with cutlery, dishes etc and after 10 months It improved. I've still got it but it's better. Try not to fear it or be startled. Each day if different. Yes kids are the worst (sounds). Light switches caused me pain too.
This is so helpful. It feels so good to know that someone gets it! I think I have diplacusis and this is the first time I am experiencing it. Its horrible! I feel like everything has a robotic sound effect on it particularly higher pitched sounds like my daughters voice and my own voice! Describing to people that everybody sounds like robots and just hearing it makes you feel crazy. So grateful that you shared this. I'm really sensitive to noise too which makes me come across as moody sometimes so maybe hyperacusis is something I'll look into as well. Thank you thank you thank you. Side note: Those skin tine leggings throw me off too lool
JRozalini9 so that diplacusis will definitely go away I’ve talked to another person with our symptoms and it went away after a couple of weeks. Mine hasn’t come back since my last episode a year ago. All the symptoms will get better over time I think. My tinnitus has changed so much since i got it over a year ago. Not necessarily for the best but change is good for sure. You welcome man. I just want to help others and spread the word
I just started experiencing this yesterday! Was coping well with my T and now have another hurdle to cope with. Do you think it will gradually get better? Thanks
Cheers Bro, this really helped me out. I started getting Tinnitus, around 6 or 7 months ago.. And then a couple of months after that, I started Visual Snow Syndrome, I remember waking up one morning and my vision was all fuzzing, And I seriously thought I was going blind or something, Specially during lockdown, that's all I needed haha. But it feels good that I'm not alone, Thanks man! :)
Thank you for this video. Actually makes me feel better. I’m experiencing Diplacusis and tinnitus sometimes. It’s scary, and I’m noticing certain pitches cause my diplacusis.
Ryan, I too have had Tinnitus for (aprox.) 20 years - it just came on me one day as a whooshing sound, sort of like a running faucet. Lately, it has gotten a tad worse on my left side (I work in a Medication mix Hood, pretty loud environment) ~ the other day, about five or six days ago, I noticed that I was hearing things at a Higher pitch (or "key" if you will) in my left ear as compared to my right ear - plus, a fair amount of sound distortion in my left ear, like a badly tuned old-fashioned transistor radio. I should explain that I worked as a nightclub singer for about 17 years as a very young guy - I'm sure there were times when the music behind me was louder than it should have been - I do know that I currently have Diplacusis and a "kind" of Hyperacusis in that I am very sensitive to sound and do NOT like noise - when my Tinnitus is quiet, which lately is a rarity, I try to enjoy my quiet time. The THOUGHT of going to a club or to a crowded party right now, forget it - Tinnitus really impacted my life, but this Diplacusis, it's just horrible. The Weather gal on TV if I just listen with my left ear she sounds like a Munchkin on Speed but when I listen with just my right ear she sounds normal - I thought, am I crazy? I have NEVER heard of this - but it's very real and I don't know for certain how long I have had this - it seems like even two months ago, I could hear music in a fairly normal manner - so I don't REALLY know how long I have had Diplacusis, and can hardly find anything about it! I can hear "talking" although almost everything right now has this "electronic edge" to it, a little difficult to explain. Being a former singer, I mean I still sing in the shower but not out in clubs, it's difficult to feel I can't really enjoy a CD in my Car while driving to work - my ears feel like blown speakers. Hearing someone sing in a higher key (and a little faster!?) in my left ear while my right ear hears it relatively Ok is really stressful and emotionally draining. I'm sort of used to my Tinnitus but I can't stand this distortion and diplacusis - Is there something you can recommend that would improve the Diplacusis? Should I ask my Doctor for an antibiotic prescription? I "feel" like maybe I had what they used to call a 'head cold' although I wear a mask all day and my temperature is checked every day (never a temp) - I work in Healthcare so we are always checked. This is a terrible condition and I would like some advice, my late Dad wore a Hearing aid and my Mom still wears a hearing aid and I feel like I am headed down the same path. Can Diplacusis improve on it's own? Should I try Tinnitus all natural Ear drops in case it's built up wax? Any suggestions you can give me would be much appreciated! I hit subscribed to your vids - Johnny
Im sorry to hear this. I will tell you what my experience with this was like. I have had diplacusis 3 times now. Each time was less invasive then the previous. It takes about 2 to 3 weeks to go away on each. It will go away though dont worry. I think diplacusis is the inflammation period after injury. I think the nerves are being inflamed and it gives the ear a different tonality. What i found worked was wearing a hearing plug in the affected ear and eating anti inflammatory foods. You could try taking naproxen but im not sure if that works. But from what i researched and felt as a person, it is a reaction to injury. The body will try to heal the damage to the ear or cochlear by beginning the process of inflammation to protect the area. However, the body cant successfully heal that organ so its just a cycle that it must go through. try protecting it from loud noise for a couple of days to trick the body into thinking that it has healed the area. Inflammation will go down and diplacusis will be gone. Hyperacusis is something that needs to be worked on over time. It will never go away but for me mine has gone down about 75% since initial symptoms. Get good sleep and eat lots of fruit and vegetables and red meat. NO SALT!! salt will make the inflammation stay longer. let me know how it goes. Good luck
@@ryanstinnitus6530 Thank You, Ryan - I can't say for certain how long I've had it - my Tinnitus is just so freaking annoying - and comes and goes for no reason - but the Diplacusis is dreadful because of the sound distortion, I have to keep everything down, most TV shows are too loud anyway - naturally these days we can stream what we choose and I prefer quiet programs. I have a semi-profound statement to make and that is, when complete silence is denied to Someone, that person will totally embrace quiet days and appreciate them more. I PRAY that you are correct and that the Diplacusis will go away, please God - I never played hard rock music and I have avoided 'loud' places for years - I live in Las Vegas and casinos can be loud (at times) but not unbearable for the brief visit that my friends and I might be there for - Is it possible to have had a "head cold" and not have been aware of it? Could I have gotten an infection in just my sinus area that sort of inflammed the cochlear region? I am still waiting for the freakin' ENT office to call me back - how ridiculous right now with this Pandemic going on that one can't get in to see a doctor! I will take your advice and try more fruits and vegetables - I appreciate your Advice very much! P.S. : I take Lipoflavonoid around the clock and have tried Tinnitus drops albeit with very little (if any) relief - Also, I share your frustration with how LITTLE info there is on Diplacusis - if one looks it up, it pretty much sounds like a permanent sensorinaural condition ~ I hope that there will be some hope for me, I don't mind that my left ear doesn't "hear" as well as my right, but the distortion and the fast speed and unnatural high pitched tones are intolerable to me - Again, I thank you sincerely for getting back to me and I will keep watching your vids for advice!
@@ryanstinnitus6530 I recently just went to an ENT doctor Ryan and the whole office looked at me as if I were crazy when I said I have Diplacusis....and then I had to explain what that is! Really? An ENT doctor, a Nurse Pract. and an Audiologist acted like they never heard of it. Doctor put me on a full week of steroids.....can't say they helped, cannot say for certain they did NOT help - however it's been six week or seven weeks and the "diplacusis' has eased up to the point where most tones are close in each ear (no longer unbearably higher pitched in my left ear) HOWEVER it has left me with unwanted distortion which is only noticed if something loud comes on the TV (I hardly watch TV for this reason) but music currently does not sound the same to me, so, I am hoping that, as the Diplacusis has eased up so shall eventually the distortion (I hope) When ONE of your keen senses is impacted it is a very traumatic experience. My tinnitus has been bad this year, I do all the exercises on You Tube and I take supplements, I do the best I can. When I pick up a Land Line Telephone, the dial tone is still somewhat higher pitched in my left ear as opposed to my right ear.....that's odd, because other tones seem closer in pitch. Those of us dealing with Hyperacusis, diplacusis and Tinnitus need to let Doctors know what these conditions entail - thank you Ryan for all your videos - they assist people with the knowledge that they are not alone ~ Debi Susan
I have Visual Snow and tinnitus since i was a kid. I always thought it was something normal, something every person have. Didn't think it was a problem at all, until i woke up one morning a few years ago, and both my Visual Snow and tinnitus was gone. That's when i realized i had a problem with my vision and my hearing, however It came back that night; and still have it 24/7.
@@ryanstinnitus6530 i woke up feeling great. my concentration, mood, thought process and breathing was unlike anything I've ever experienced. There was a big difference. I really believe it means there can be a cure. Most people get it when they wake up from their sleep. There might be something going on in our brain while we are asleep.
@@ryanstinnitus6530 not good. I have on and off days. I have a sleep disorder. I can't sleep throughout the night. I'm always tired during the day or my mind is racing. Sleeping meds doesn't work. I wake up every 2-3hrs. I feel depressed i think.
Official Colors oh no. I know how you feel. It’s rough. I hate this too. I complain all the time about it. I feel better when I meet people that have the same problems as me Makes me feel not alone. I’m trying to start a foundation. Something like a support group. To help others. Would you like to talk?
Hi ryan thank u for making this video u make me feel better tha im not the only one with this condition I have tinnitus , hipercusis and diplacusis and i understand u so good and yes doctors don't know tha much about it or they dont understand is so sad well i wish u the best !!! 😊🙏
Yamilka Licea your so welcome. We can do this. Be strong as I’m sure you are already. I’m always open for conversation on bad days. Thank you. Much love.
I've had diplacusis twice, the second being while watching this video. The first time I was playing guitar. I thought it was screwed up. The only way I found out was accidentally putting half of my noise cancelling headphones on. The. It sounded fairly normal. Today I listened to piano music and horror music, might as well make this shitty thing an experience.
Listening to white noise helps get rid of hyperacusis it help me when I came home and the volume was lowest on the tv but it was so loud in my ear it hurt some one talking normal was to loud.
Michael Mc Cormick ya, that’s normal. I believe they go down over time but I think it’s a case to case condition. Mine are loud and then leave me a baseline.
I too just went to an ENT doctor Ryan and the whole office looked at me as if I were crazy when I said I have Diplacusis....and then I had to explain what that is! Really? An ENT doctor, a Nurse Pract. and an Audiologist acted like they never heard of it. Doctor put me on a full week of steroids.....can't say they helped, cannot say for certain they did NOT help - however it's been six week or seven weeks and the "diplacusis' has eased up to the point where most tones are close in each ear (no longer unbearably higher pitched in my left ear) HOWEVER it has left me with unwanted distortion which is only noticed if something loud comes on the TV (I hardly watch TV for this reason) but music currently does not sound the same to me, so, I am hoping that, as the Diplacusis has eased up so shall eventually the distortion (I hope) When ONE of your keen senses is impacted it is a very traumatic experience. My tinnitus has been bad this year, I do all the exercises on You Tube and I take supplements, I do the best I can. When I pick up a Land Line Telephone, the dial tone is still somewhat higher pitched in my left ear as opposed to my right ear.....that's odd, because other tones seem closer in pitch. Those of us dealing with Hyperacusis, diplacusis and Tinnitus need to let Doctors know what these conditions entail - thank you Ryan for all your videos - they assist people with the knowledge that they are not alone ~
Hi, I got tinnitus 4 months ago and I have all the same symptoms that you do. The visual snow started a week ago. It's been very difficult to deal with. At least I'm not alone. Acupuncture has helped with my anxiety and depression . Getting back to work has been difficult. Hope you keep improving.
Sean Scaplen it’s been rough for sure and I’m sorry to hear that you have to go through this. I just went through a pretty bad spike but I’m still here. How did you get it?
@@ryanstinnitus6530 I'm not really sure because I had so many contributing factors like sever anxiety, lound noises at work, a bad tooth infection a month before. I just went to have my eyes checked for the visual snow and everything was normal and now I have to go to a neurologist. Is it common for people with tinnitus to also develop visual snow?
Sean Scaplen ya I think it’s a combination of all those things, same as me. So a lot of people with tinnitus do have VS. Something to do with the excitability of the certain parts of the brain. VS sucks but it’s not so hard to just get used to.
@@ryanstinnitus6530 thanks for posting these videos, I hope you keep at it and spread the word . I'll keep watching and support your channel. Good luck and get well!
2 months with noise induced tinnitus. It's gone down a bit but when it's quite the T gets louder. Also developed hyperacusis and visual snow. I feel your pain. Going out and doing normal things is not possible. Just going to the grocery stores is painful. Shopping carts and people dropping things is bad for my ears. Just sold my quads and dirtbikes(two stroke). From what I've heard it is not good to over protect your ears if you have H. Also, ENT's and doctors have been useless. They don't even know about the first steps that you should take after noise induced T. For example, prednisone, steroid injection, and HBOT. If done very early your chances for T to go away are high. Has anyone taken anything for noise induced T that helped them?
Hope your doing better I have been dealing with tinnitus for about 11 years . Had a massive spike due to medication now have hyperacusis as well hope we both get better. Glad to see a fellow hispanic going through it as well . Best wishes God bless us all.
crazystang399 - had 3 months a few days ago. The tinnitus has been low but when I lay down and it’s quiet it gets a bit loud. Have you tried anything for this madness? What medication caused your spike?
@@Jas_01101 For the past 11 years I was doing fine. It takes about six months to get used to the ringing. Little by little You will start to forget it . But hyperacusis is a whole different beast I've never been thru it and it sucks, I can't stand the dishes ,sliver wear loud people. They gave me a medication called lamictal for anxiety I only took it for 9 days. Be careful with medication it can really make tinnitus worse.
@@Jas_01101 I take xanax when it really gets bad . How long have you had the hyperacussis for? Im told it take 6 months to a year for it to start seeing improvement
Mines linked to stress and anxiety. Since getting more exercise and working out it’s calmed. Check out visual snow initiative RU-vid channel guys and let’s beat this
Hey man glad I found your channel cause I'm suffering with the same shit, do your ears feel full or clogged often? Also I have hyperacusis recently but no pain with it.. only like if keys jingle or forks hit plates or squeaky breaks on cars etc.. when I hear these sounds my head feels weird and my ears kinda pulse to the sound as it happens. Also do you have any issues with sounds being different? House fans and AC units now make like loud echoing type noises when they're on, the second I turn them off it stops.. idk it's weird New subscriber BTW
Limitless313 hey brother. It’s nice to talk to you and I hope other then this all is well. Yes I have the echoing sounds it’s strange but from what I understand it’s because we have more damage done to one ear then the other. I think the fullness will go away after awhile mine has steadily been getting better but I get it often like every 2 weeks. The hyperacusis is a bitch lol. I hate when people drop plates or forks omg it’s the worst and the feeling your getting with your ears is normal it called tympanic tampony, it’s a muscle that protects your ears when you are exposed to loud noise. But now your brain thinks forks being dropped are really loud so it engages this small muscle when it happens and that is the feeling your getting. It think it will get better over time as well as mine isn’t as bad as when I first got it. But that’s interesting and I’ll bring it up in my next video. Hang in there bro. Your not alone and we aren’t far from help. If you want to chat I will leave you my facebook address. facebook.com/profile.php?id=100017833505687
Limitless313 oh and yes my ears are always feeling full and clogged. That what I think we feel because of the inflammation, the body trying to heal. Unfortunately we can’t heal from the damage that has happened so it’s a cycle that never ends. I think that will also get better as mine has gotten better over time. These things take awhile specially with the ears. Much love bro. Peace. Thx for the sub.
I had a bad ear infection in my left ear a couple weeks ago. I was unable to get into an ENT immediately because it happened on a Friday evening. I have diplacusis now and it's insane! I've been getting treatment with inner ear injections and oral steroids, and it has eased a little, but I'm concerned I will be stuck with this. Sounds had a quarter second sound delay, at first, but that has eased off. Most of the bass and low midrange has dropped out of my left ear. This is weird, but I can hear some midrange sound normally in my left ear, but it's also like there is a small broken speaker inside a tin can just off to the side. The sound pitch is dropped about three halfsteps too. As a musician, it has halfway ruined music for me. Sounds have a hollow feeling and there is constant tinnitus. I have to turn the ceiling fan on high to sleep at night so it balances out the tinnitus; otherwise I just sit there and hear the tinnitus in my left ear only. This is crazy. I'd never heard of this before and I'm worried I'm stuck with this for life. I'm trying to get used to it, but it's going to take a while. The doctor says it might take a few months but he says there is a 65% chance of some recovery.
L J the diplacusis will go away. Trust me. It’s just the reaction to the initial damage. I thinks it’s inflammation of the auditory nerve. But you won’t have it forever. It will take 2 weeks at most to go away. I have talked to many people that have been freaked out by diplacusis and they all msg me back saying. You were right. It’s gone now. Don’t stress. It sucks for sure because it’s very annoying. But when you inflammation goes down. It will be gone. Try eating food that have anti inflammation properties to quicken the healing process. Good luck
@@ryanstinnitus6530 Thanks brother. I hope you're right. I'm learning to cope. This is definitely life altering. I'm a musician and it's crazy to hear everything out of tune on one side and all distorted. The mild hyperacusis I have makes it hard to watch a movie or be around a crowd, which I guess makes this pandemic not so bad, haha. People who don't have it don't understand. Take care and thanks for the kind words and quick reply. I hope you find a solution/cure to your hearing problems. Total sympathy from me.
Wow. Just, wow. I'm so glad I found your channel. Been deaf in my left ear all my life, only ever had my right ear. And life was fine. Music was great, tv , radio, no problem. I am 60. Several years ago, my right ear began to have all the issues you, and all the comments here, describe. Over the last 3 years ( and oddly enough, on the heels of my divorce and newfound freedom to be myself after 36 years) the symptoms have worsened, including fluctuating hearing loss. The ENT I've worked with eventually decided it is Ménière's disease, an inner ear disorder, and we tried every protocol for that, including the intratympanic steroid shots some have mentioned here. In the last year alone, my symptoms have been absolutely evil, severe. It's made work difficult, and listening to music literally only happens for me 2-3 times a month. I track good days and bad days, and now there are more bad days than good. It was the opposite only 6-8 months ago. I gave up seeing the ENT, because it has just ceased having any effect and it's expensive even with insurance. Am going to try the hearing aid route, just so I can understand people at work. ( Yes, my experience and audiograms shows low time loss, amd for me mens voices are difficult-- any lower tone voice it whisperer/mumbler. And I work in a hardware store, mostly dealing with men all day. Some gave clear voices, most are tough. I'm mentally & physically exhausted at the end of a day. ) I feel like most days, my world is experienced through a bad mono speaker in an AM band radio with a bucket over my head. If someone is talking to me and turns their back, the sound mostly goes away. If they're on my already deaf left side, the right ear no longer picks it up it compensates like it has all my life. It's frustrating. Knowing I was already half deaf, I've protected my good ear all my life. No known reason why this stupid malady has appeared. . I know a hearing aid may not restore music for me, but I also need to hear without the interference of hyperacusus and tinnitus, am hoping an aid will help. Bonus: I only need to buy one, not a pair, because the House Institute confirmed, when I was a kid, that the left ear is dead and not salvageable. At least I'll save some money, haha! Glad I found this channel. I've found my people, people who get it. It's really hard to describe to normal hearing family and friends!
Hi, is your hyperacusis still bad,? My hyperacusis has come back after having gotten rid of it for a year,only thing I think is I have a cold this last few weeks but hard to know. Hyperacusis is the worst
Michael Mc Cormick oh ya man. My HyperQ comes and goes up and down all the time. Today it’s medium. But I never know what it’s going to be. It’s really hard to figure out.
I’ve been going through the same shit man.. except I don’t have visual snow.. But I noticed your a vet, are you sure you didn’t get your tinnitus and hyperacusis from the military?
Hey man, I suffer from tinnitus, I developed visual snow about 2 or 3 months ago (jan-feb 2020) and a few days ago tried to see if I have the blue field phenomena thing since it was a bright blue sky.. all I could see was my horrible floaters but no crazy fire worm looking things and I thought to myself " well at least I'm not suffering from that" ... By the time I finished that sentence in my head... You guessed it, the sky was filled with them.. just hang in there bro , I'm doing my best, granted I am currently stressing about it and it's 1:00 am watching this video. But you are not alone
I see dots in blue sky. Like little white fruit flies or something. I also get after images, floaters, I have tinnitus, migraines, muscle fasciculation..annoying sht! Oh also TMJ issues and neck pain. I did have hyperacusis for like..3 weeks then went away.
@@rjrod1326 dude!! I just started to have a bunch of muscle fasciculations!! What's going on!!! Where do you get them, I've been getting them all over , literally !!.. I even got on on top of my head! , I also got this crazy twitch while driving a few days ago, it was on my left tricep and you would have thought I was shaking spray can or something
Hey man, did you only get the diplacusis symptoms once? Did you ever get anything useful from a doctor about that at all? I got it once for about 3-4 weeks and it scared the shit out of me, but it's just come back again this week after over a year of it not coming back. Have some killer tinnitus, but that is pretty manageable compared to the robo-ear. Thanks for your videos.
Hi, sorry to hear man. But ya I got it 3 times. Each time I got it It lasted longer in duration but after the third time I never got it back. The only thing that helped was anti inflammatory medication. Like a powerful anti histamine. Don't worry it will go away for ever. I think its just the bodies response to damage. I believe its inflamed nerves.
@@ryanstinnitus6530 Did you get that from a doc, or yourself? It's creepy stuff, though, but can be handled if you know it's gonna get gone at some point. Exercise seems to be a game changer for me too. Did you find any of the noise, sound or music stuff any use?
Dann Gronland I got the medication from my doctor. Its not hard to get the medication if you explain you condition and what you think is causing it. It’s a very light drug and has no side afffects so no risk in trying. Music and noise help with nullifying the hyper accusis but not the diplacusis. Diplacusis just takes time. Stay away from any foods that cause inflammation and drink plenty of water. Also I found putting a hearing protector in the ear that is affected helps it heal faster. Almost like it’s taking a break from noise
@@ryanstinnitus6530 thanks man. You don't happen to remember the name by any chance? Instinctively, I plugged in a noise reducing ear plug. Am a HS teacher, so my ears get whacked a lot every day. It did go away last time literally the day after I started working out again, so hoping I can keep this bout a bit shorter. The audiologist I saw said these bouts can be caused by viral infections, but I dunno.
Shit is horrible bro. Hyperacusis just popped up on me. Sound shocks my head hits me in the stomach like s panic it fear, feels like ur leaving a mini seizure like a surge or electricity in the head because of certain sounds. Hv no use how this happened. Anyone experience these same symptoms? Also with like electric surges in the head sort of?
Regal Khan I know the feeling, don’t panic. It will get better over time. I’m going to make a video on things that helped me soon. Try to relax and do things that make you happy. Also protect your ears at all times. Peace
