What is Frontotemporal Dementia? 

I'm so sorry. I'm hustling now having symptoms or slurring and lazy tongue. Praying for all who are victims of this horrific ignored disease

@@sherylcurry2000 my heart goes out to you 🙏 praying they find a cure for these awful diseases.

God bless you!

Thank you for sharing. 💖

❤

My mother passed away in 2021, she was diagnosed with bvFTD only one year before. Although she had symptoms for 5 years and was being treated for anxiety and doctors assumed it was an onset of Alzheimer’s. She was physically fit when symptoms started and 5 years later was wheelchair bound, unable speak and then passed away. I had never heard of bvFTD before this, and after researching it saw that many of her symptoms were clear for FTD almost immediately after she started showing symptoms. Unbelievable that doctors didn’t diagnose it for four years.

I used to excel creative writing in writing, but I find since my diagnosis it's hard to pick up a pen and actually write. I still think I'm going through the process of acceptance. What is the title of your book and can it be ordered on Amazon?

@@sreneethomas unfortunately, that's still the case. My primary doctor here since I moved out of my circumstances and couldn't work anymore had to move from Alaska Oregon. I've been seeing my primary for over a year and they are still in denial even though I've been diagnosed with three pet scans and an MRI from 2012 I'm so sorry that you went through this I'm trying to get the word out Bruce Willis has helped a little but we still have a long ways to go.

Sending you so much love. 💖

I love your last comment so very much. I will put in front and centre for my dearest sister. I've been documenting her journey too. Sorry for the loss of your dearest father

I understand. I wish I could tell everyone that no matter how bad the patient gets .they are STILL HERE on the earth!

@@maureenbarton9606 thank you for the kind words. The best thing to say is take things day by day, there will be some good days and some bad days but after they are gone, you will appreciate each day you had with them.

I'm watching my mother endure this horrid condition and would not want her to suffer one more day more than her body, and God allows her to.

My husband was diagnosed 2 years ago. He hit the freeway wall while driving and sleeping, he refused to stop driving. My rib was broken, head injury...

I'm sorry that you are having to go through this. So challenging. I think my friend may have this...Can I ask are hand tremors a symptom?

@@kathyrickard9442 yes, they can be. They have calmed down so I think it was exasperated by the stress of my diagnosis; however, my neurologist says that they can come back for sure. It's just so much to do it all at once in my whole identity, unfortunately was my career and losing that was hard to handle now I'm just learning to live in the moment and take it one day at a time one moment at a time, and hope for the best.

@@sherylcurry2000hi! How are you doing nowadays? Do you have any help? How did you find out? My father-in-law has it too, he lives with us now… Best wishes, take care!

Check out Dr. Joe Dispenza's method. It may help.

@@kathyrickard9442 yes, they are

Glad to hear that he's still around after 12 yrs. Thx for the info to help patients out there. My hubby just diagnosed from FTD.

Sending you and your husband so much love.

@@DementiaCareblazers ❤️

Wise words! 💖

Easier said than done but so true

There are agencies that will help you. My friends husband has some kind of dementia he has home care 7 days a week also they come to her house pick him up and take him on outings for the entire day. It's a great help to her and he seems to love it and looks forward to it. She goes through a mental health hospital and they have a great reputation . I'm from RI so this hospital is called Butler hospital which is affiliated with Brown University. You should look into something like that in your state. And call Blue Cross Medicare and nag people and get the help you need Good luck

Sending you love and so wishing you an ongoing recovery! 💖

Good for you! Blessings. How did you heal?

Thank you for your kind words.

You can have both my mother in law has just been diagnosed with both they said the Fdt is the one that she will die from also has stage 4 cancer we think the last chemo round is what started it off,I just hope she doesn’t suffer for too long she’s having to have 24 hr care and this is so hard as was so independent and still tries to be and now a risk as neighbour s have caught her on camera at 4 am just wondering around.

Absolutely! Will add it to the future video list :)

Here is an older video on LBD that you may find helpful. ru-vid.com/video/%D0%B2%D0%B8%D0%B4%D0%B5%D0%BE-jhgKhiWB8_8.html

@@DementiaCareblazers Thanks!

My husband has this diagnosis also. LBD and Parkinson’s. We take one day at a time and it seems to be a slow progression but he’s now in an advance stage and in a dementia community. His caregivers are ‘angels on earth’ as well as my daily caregiving. Our faith, family and friend support and love give me the strength and courage needed for his/our journey! ❤

Here is an older video on LBD you may find helpful: ru-vid.com/video/%D0%B2%D0%B8%D0%B4%D0%B5%D0%BE-jhgKhiWB8_8.html

Yes I interesting

I am sorry. You wrote very clearly. Please read , or listen to the Gospel of John....We can know we have eternal Life.

am@@lindaanderson1016 amen to that ! I think I may have this disease. I've had a lot of language issues. Mixing up words. My psychiatrist says it's my anxiety , but I think she's wrong. The language issues stated May 2020 . It's not getting worse but it's not getting any better either.

My mother recently claimed she has "Chemo brain"...she won't say how or why or even when she had it. Her last radiation was in 2014. I'm not sure exactly what she have been diagnosed and she has been someone who I don't know anymore. I'm going thru a huge court custody case between her and myself too at the same time. She has mislead her Attorney therefore her Attorney withdrew after 2.5 in this on going suit. She is a retired CPs supervisor. I'm an only child. Since she filed this suit against me which I was never served or had the knowledge of she has slander me lied about me like I'm a villain to the court and the new community we just recently moved to which is her hometown. She moved me up to north texas under false pretentious from Houston. She filed an Emergency Order over me. Kick me out and Alligated her self from me and gave my daughter to someone I don't know and hid my child for 4months. Now it's all coming to light trying to start pre-trial in my favor. My mom was my best friend non judgemental all my life. Cool as a fan. Now I don't even know her and don't trust her. I have a clean record and she has nothing but hearsay. She ALWAYS goes back to 20years ago what I didn't di right like that's why now she is the way she is....Chemo brain...what is that and what does it fall into? Close family friends have told me she shows many signs of dementia but I will never get a straight answer out concern for her.

@@amandabarnard2072 My mother had chemo therapy at the age of 85. Then she was prescribed tamoxifen by her oncologist which she took for 5 years to help prevent the return of her cancer. It is known that tamoxifen causes dementia. So, between the chemo & tamoxifen intake my mother became demented although she could sound as if she knew what she was talking about most of the time none of it was true! So, because myself another sister were closest to her and managed her care when she became ill again at the age of 93+ we were falsely accused by her of many things as were some of her nurses. At one point while she stood accusing me of all kinds of terrible things that would never even occur to me to do I looked at her and said, “I don’t even know who you are anymore.” Matters snowballed and everything became worse so much so that even after her death at age 95 our lives have become hell for the last 4 1/2 years due to some very malicious younger siblings who have done some really terrible things to us including suing us multiple times. The false accusations from our mother began the entire nightmare.

"I do know you anymore" is the exact term I use all the time in my head towards her.

Will add "chemo brain" to the future video list!

Yes, like the old vinyl records get stuck in one place. They say the same thing over and over and over.

Yea I have been living with dementia and with FTD for quite some time. You’re born with it and it’s in your genes. Just eat healthy and stay away from sugar, caffeine , smoking, drinking and stress. It all triggers flare ups and makes for bad days/weeks. You will be ok stay strong but yes it’s tough. I been living with the known symptoms of it for the last 20+ years but now it’s starting to hit me good with memory and muscle weakness. I’m 47 now and my dad is 75 and he’s got it as well but he has been bed ridding for the last 20 years. Praying for you but stay strong. There’ are some good days ahead for you.

I work with people affected by dementia. When one of them sees someone who’s not there, I don’t argue with their reality. Instead I ask how old the person they see is and try to start deflecting their attention with questions like, What’s the “visitor’s” favorite room in the house, or he/she (the “visitor”) likes springtime and is on their way to go outside. From there hopefully you can move to changing the topic to, for example, listing spring flowers, etc.

This has happened to me with family members. I do not argue or say "you are seeing things". Instead, I say something like "I just asked them to wait outside for the person who is picking them up." I might ask "DID they have any important family news to share or were they just visiting?" Then we can talk about other family members or otherwise change the subject a bit.

It progressively gets worse. There is no cure.

As all the different dementias progress, they tend to look the same. We see the most differences in the early stages.

My partner was diagnosed by CT, mri and a neuro cognitive testing

Neuropsychological testing is a must. brain imaging is also likely to happen to help with the diagnosis.

How is it diagnosed?

@@cindycarver2492 the doc looked at his MRI from 2020 and accessed him in the office. He ordered a new MRI and a FDG pet scan of the brain as well as the genetic swab. He said it wasn’t vascular because he has no symptoms such as high blood pressure, high cholesterol, heart disease etc.

No one knows what the future holds. I have two fam members with two diff kinds… find a good neurologist, get your tests, stay healthy and enjoy quality of life… we each only have one day at a time. You can lose a lot of todays worrying about tomorrow. God bless. Oh God says Don’t fear six hundred times in scripture. He is a God of order. Tell Satan to get behind and live your best life. Find a support group for caregivers. You got this! And the men in your life are counting on you!

@@cindycarver2492 MRI, physical and cognitive tests.

@@susandiggs5121 thank you so much.

If I attacked a person with dementia I would be trash but the ones who forced everything on dementia is not trash they knew I had it

No medical treatments yet but having a healthy diet as a kid and maintaining it throughout life is very important. And keep your self from getting nervous and anxious cause it only leads to the progression. Stress kills and progresses it quicker

When you know which type of dementia, you can kind of know what symptoms are going to happen. My husband started getting violent when he didn’t get his own way, and the Dr put him on Paxil. It’s an antidepressant that “ puts the brakes on” his compulsive behavior. We tell him it’s heart medicine. He was always a mellow person. Full of energy. Now he’s just like she said. Apathy, no motivation, ect. Shocking to see him change into a whole different person.I’m trying to not be resentful he doesn’t care if it kills me doing all the work! God Bless you. Keep asking questions!

My mother recently claimed she has "Chemo brain"...she won't say how or why or even when she had it. Her last radiation was in 2014. I'm not sure exactly what she have been diagnosed and she has been someone who I don't know anymore. I'm going thru a huge court custody case between her and myself too at the same time. She has mislead her Attorney therefore her Attorney withdrew after 2.5 in this on going suit. She is a retired CPs supervisor. I'm an only child. Since she filed this suit against me which I was never served or had the knowledge of she has slander me lied about me like I'm a villain to the court and the new community we just recently moved to which is her hometown. She moved me up to north texas under false pretentious from Houston. She filed an Emergency Order over me. Kick me out and Alligated her self from me and gave my daughter to someone I don't know and hid my child for 4months. Now it's all coming to light trying to start pre-trial in my favor. My mom was my best friend non judgemental all my life. Cool as a fan. Now I don't even know her and don't trust her. I have a clean record and she has nothing but hearsay. She ALWAYS goes back to 20years ago what I didn't di right like that's why now she is the way she is....Chemo brain...what is that and what does it fall into? Close family friends have told me she shows many signs of dementia but I will never get a straight answer out concern for her.