Actually,my mom has trait and NO SHE HAS NEVER BEEN IN THE HOSPITAL NOR DELT WITH ANY PROBLEMS SICKLE CELL BRINGS They ARE 2 DIFFERENT!! THINGS. TO MAKE IT SEEM LIKE ITS THE SAME IS LIKE SAYING DRAG QUEENS HAVE PERIOD CRAMPS.
@@toniphillips4422 Your mom is one person. To compare your moms experience with millions of others is like saying "I don't have periods so no one else does."
@@toniphillips4422 I have the trait and I have been in the hospital several times. I think it is good to be cautious when in extreme hold or cold environment, when working out, when il, when dehydrated. Sickle Cell Trait is very serious and a person could die due to the body’s extreme reaction to the environment. Many MDs are not aware of the seriousness of having the trait.
This is false, I have the trait and I’ve had complications that only those with the disease are supposed to get, I’ve had my spleen removed because it infarcted. Pretty much ceased function, I’m currently in the hospital right now because I just had my first pain crisis at 24. I’m a pretty healthy person i player divison 1 sports for 5 years and the university I played at took my conditionin very seriously even if it was just the trait. And that’s the point I’m trying to make people need to stop dismissing the trait because they have just as severe complications as those with the diseases. Maybe not as many cases but it DOES HAPPEN
I always drink water but I wanted to add me exercising more what else can I do I have the sickle cell trait and I noticed a year or two ago my joints started bothering me what else can I do someone recommended that I use refined sugar
Even if what you say is true it is DEFINITELY as you put it not “just as bad” and you shot yourself in the foot when you said your first crisis was 24 people with the real disease are lucky just to make it from toddler to adolescent I’m 25 and have had WAY more than 1 crisis and honestly shouldn’t have made it in multiple occasions See your doctor and get your pain properly diagnosed and don’t downplay real sicklers
@@israeladeoye I didn’t down play those with the disease, I’m trying to get people to stop dismissing those with the trait. Yes those with the disease battle with it from birth and is a lot more serious. I want more people to be aware that folks with the trait have issues as well. Especially those who play collegiate sports because those programs do not acknowledge sickle trait and often over work them into bad situations. I’m not throwing a pitty party for who has it worse. I want awareness for all
@@israeladeoye all he was trying to say is that they make it seem like nothing happens to the people with the trait and as his experience shows that’s a lie
I have been sick all my life and no doctor ever pinpointed what was wrong. I have a whole long list of health issues. I only recently learned that I have sickle cell trait. So some people can have bad symptoms with sickle cell trait; it is not just about high altitude or participation in extreme physical activities!
Drink 3 liters of water a day and more during stressful times, activities, hot days and preventing permanent damage to all body tissues like bones, joints, organs, skin which is the largest organ of the body. If I don’t drink 3 liters of water a day my skin gets extremely dry. Drink a gallon of WATER a day and you can save your life of misery
Drink 3 liters of water a day and more during stressful times, activities, hot days and preventing permanent damage to all body tissues like bones, joints, organs, skin which is the largest organ of the body. If I don’t drink 3 liters of water a day my skin gets extremely dry.
I have the trait, and I am a specialist in hematology and this video is quite upsetting. You guys really don't consider the voices of patients and think that only specialists know about the trait. I am specialized with sickle cell and carry the trait myself and no, it isn't benign and it has symptoms, and it doesn't need to be exerted to happen in any way. I had many medical emergencies with the trait. Whether it be pain, or complications. I made a video on the trait, and the fact that we actually do have pain too. #SCTAwareness
May I ask if people with the trait prone to more sickness? My toddler was diagnosed with it when she was still in my womb, her dad has the trait and has one other daughter with the disease. I notice that my daughter is always sick whether it’s the flu, a cold, ear infection which is usually every other week, covid twice etc I’m curious because I’m concerned why she keep getting sick
I know someone with the trait that went running & was told they had a sickle cell crisis unknowingly which led to Rhabdomyolysis which the dominos was kidney failure & leg amputation… More trait research needs to be done.
Not true we have pain as well. I was in the hospital several times for chest pain and I didn't even know I had the trait. I finally asked the doctor to just check me for sickle cell because I happened to research my symptoms and they were similar to those with sickle cell. And sure enough I have the sickle cell trait. I no longer listen to doctors anymore lol, I don't want to hear shit from anyone who does not have the trait. How the hell would you know?
I used to be active in sports. I played volleyball, a type of baseball and then i started training to run🏃♀️🏃♀️. I used to pass out in school during PE. But with the running i started finding it very hard to breath. Everything around me went from colour to grey to dark one day. I sat beside the road until i could walk again, went home and never took up another sport. Now im out of shape, unnaturally tired all the fucking time and different parts of my body hurt everday. My yearly check ups show no reason for me to feel this way. Its the worst that people assume i dont eat right or take care of myself enough. So basically i have no one to thank for the way i feel, but myself. And I'm pretty sure my doc thinks im a hypochondriac. Today someone told me to be careful cos i could get worse. In that moment i imagined dying and i felt nothing but calm and peace.
Video: almost all sickle cell trait carriers live normal lives SCT Carriers In the comments: this is false Video is still up??? It’s weird to me how everyone knows more about SCT than those of us who actually have it and suffer? More research needs to be done and it needs to start with those of us who actually have the “trait.”
More attention needs to be given to sickle cell in general but as a disease holder I’d prefer if they started with the more urgent predicament don’t you?
@@israeladeoye So you'd prefer if they started with you? This video is about carriers. We are told we have zero symptoms, this is what my comment is about. I'd prefer for them to stop saying this. Now if you're in the mood to go toe for toe regarding who has it worse then do that under someone elses comment b/c I said what I said. I feel they need to do more research with SCT b/c we (carriers) all are complaining about having crisis and everyone else who doesn't have it are telling us no. That's an issue.
@@kaycatajen Totally agree with you. I have the trait, I am not an athlete but while doing an exercise routine I developed Rhabdomylosis. I could have died. This is not at all a competition with those that have the disease. We know only too well how much you, the ones with Sickle Cell Disease suffer. But.... it is important to those of us with Sickle Cell Trait - that the medical community recognize we too have issues and we too can die because no one recognizes that our problems started with the trait.
The name sickening cell trait is severely misleading. There are soooo many things that are dangerous for us that are not for normal people. Straining exercise, regular anemia, high altitude, low altitude, heat, and even scuba diving cause you to have full-blown sickle cell crisis episodes. You also have inflammation and swelling more often. Also, some of your blood cells ARE sickled. Just not as many. The more strain you put on your body causes complications. You do NOT have to be a college athlete.... just work really hard physically (in other words, losing breath, etc...). I went scuba diving and got VERY sick afterwards.... because I didn't know it caused complications. Also, they are still learning more as this is NOT a disease heavily focused on in the medical community (it only affects a small demographic already least cared about.
My mom had the sickle cell. Disease so she passed away but me and my twin has the trait nothings been happening lately I’m learning about the trait though to see what may happen in our life we’ve been normal nothing has been happening I’m just wondering what happens If you have it..just to make sure
Pain in the chest area in general for disease holders is a full on 🆘 and most times can mean death 💀 from a condition named acute chest syndrome I’m an anomaly just being able to speak from experience YES more research and attention needs to be given for sickle cell in general but to all “trait holders” this is still FAR more true for the disease holders than I think you give us credit for
I m a Medical professional n I will advise to be honest there is nothing to be serious Live normal life do some Regular Exercise ( Not so hard) drink water on regular basis ....keep distance from extreme Cold n Heat ....Eat Everything u love ....Dont Stress It can never be Disease.... little bit pain is Common during Winer n Cloudy Weather... Try to keep yourself in Favourable Conditions always God bless ❤❤❤❤❤❤
They definitely need to do more research because most of us with the trait , still have some of the same symptoms , I definitely get sick out of no where . And they definitely wouldn’t no if they don’t have it .
If both parents has the trait they can do IVF and genetic testing of the embryos there's no need to give up. I have the trait and my husband does not both my kids have the trait no symptoms for me.
Same here but I can't pinpoint who she inherited it from. Because my brother found out that he has the trait when he went to the military, but my child's grandfather on the dad side has the sickle cell trait I believe and I had neither one.
It is 100 parsant wrong sickal call trait not crisses sickal call trait get more painful life fatigue weknes and more coplaction I am sickal call trait patint
I have the trait and my bones and body been hurting all my life. L-glutamine supplement in water or juice is the only relief to keep these crises at bay. Went to a 7500ft altitude city and got so sick I had to take meds. I'm tired of European doctors saying the trait can live a normal life. Its just not true. 45% of my red blood cells are sickled.😢
Im confused is it really a bad thing? I see comments saying this video is false information and that it should be taken serious which got me worried because I just found out from my mother that I have it but I haven’t had any problems so far and Im 18 years old
@@naushadali3740 So True, Doctors aren't being honest about sickle cell trait because it can and does effect those like it does with disease. More and more people are experiencing problems with trait so this video needs to be updated.
I am 2 months pregnant and my sickling test is positive. Sickle trait is found. What are the chances that my baby will not be affected? Please help me. Is there any test by which we can get that my baby didn't got sickling cell from me?
THAT IS NOT TRUE I WORK IN THE HOSPITAL AND SEE MORE PEOPLE WITH SICKLE CELL THAN HAVE THE DISEASE ME AND MY SISTER BOTH HAVE THE TRAIT AND IN THE HOSPITAL FOR PAIN MORE THAN PEOPLE WITH THE DISEASE
Honestly ngl I think some of y’all who have the trait may have to get retested or go get checked out by a hematologist(I think that’s how it’s spelled).. might have been misdiagnosed especially if anytime before the 90s when this was fairly “new” ..
No, it is the trait, but the name "trait" is just misleading.It needs to be changed to mild Sick Cell Anemia disease. When you are "trait" some of your cells are still sickle, just very few, and stress on your body (namely oxygen related and heat related) cause your cells to change. People are just putting stress on their bodies that they don't know they shouldn't. Me for example, I have always be heavily athletic, but I would always go through big bought of being sick after 2-3 weeks of hard running. I had to learn (still learning how) to take it slower and allow myself more recovery time. Also that losing my breath while training was not the best for my body. I also tried Scuba diving several times in the ocean, each time I got sick life full on flu symptoms. I JUST learned today that people with the trait should try to avoid deep water scuba diving! They are still learning more and more about both the trait and the full-blown disease, but it is hardly a priority in the medical community as it only affects a small demographic.
