What to expect, not expect, and ask about from your Hospice Team

Подписаться 432 тыс.

Просмотров 15 тыс.

50% 1

When dealing with any medically related events or medical emergencies, please communicate with your primary health care provider.
Join this channel to get access to perks:
/ @hospicenursejulie
PRE-ORDER THE BOOK HERE: www.hospicenursejulie.com/book
To learn more visit: www.hospicenursejulie.com/
Instagram: / hospicenursejulie
TikTok: / hospicenursejulie
Facebook: / 100077937666311
#endoflife #hospice #activelydying

Опубликовано:

18 июн 2024

Ссылка:

Скачать:

Готовим ссылку...

Добавить в:

Мой плейлист

Посмотреть позже

Комментарии : 118

@cindyhalpern3187 3 месяца назад

I was a Hospice Volunteer . There was one particular patient I really clicked with. I felt I offered her a lot of emotional support. She was a Holocaust Survivor and so was my Mom. So I could connect with her in ways others couldn't. It was a very positive experience for the both of us!

@hospicenursejulie 3 месяца назад

💕💕💕

@user-gt2hr8yk4x 3 месяца назад

Yes, I hear you. I'm a lesbian and offering lesbians support through illness has often resulted in a strong connection. I think the key is empathy.

@scottlindstrom6743 3 месяца назад

As someone with a terminal illness, I want to thank you for what you do. I've learned so much from your videos! The Internet is only as good as the information available and that information is only as good as the experience and delivery of the provider. You're doing something valuable and you are doing it very well. Thank You!

@Outsider4JC 3 месяца назад

Just want to remind you about the most most important decision we need to make before we die, and that is to accept Jesus as our Lord and Savior. My father just passed, and wasnt able to pass this on to him in time. I just wanted to let you know a little about what the bible says. For all have sinned and fallen short of the glory of God. So no one is good enough to get to heaven due to the law of the 10 commandments. Bible also says, its not by works should any one boast. So being a good person does not get you to heaven either. The only way to heaven is by repenting of your sins, and putting your faith in Jesus. Bible says, Whosoever shall call upon the name of the Lord shall be saved. So you see, there is a need for salvation to get to heaven, that is why Jesus died on the cross. He took all of our sins upon him, so that if we call upon him, and accept Him into our Heart, we can have eternal life. We must be Born Again to enter the kingdom of God. You do not get there being a good person, or doing good deeds. Jesus also says, that I am the way, the Truth, and the Life, no one comes unto the father, except through me. So please make that decision, so that you can have peace and comfort when your time is up. Its the most important decision of your life. you can then have that eternal peace and assurance before you die. All you you need to do is simply, humble your heart and pray with faith, I repent of my sins, and I turn to You. You said in Your word that if we confess with our mouth the Lord Jesus, and believe in our hearts that God raised Him from the dead, we shall be saved. I ask You Father to forgive me of all my sins, and ask You to fill me with the Holy Spirit, and take control of my life. Its the most important decision of anyone's life. Jesus is the only way to heaven. Please believe me, and research for yourself. Once its over, there is no turning back. Jesus cares for you, and does not wish for you to be separated from him. So many people think that being a good person gets you there, and its simply not true, so please don't ignore. Today is the day of salvation. He loves you, and does wish for anyone to be apart from Him, but to have eternal life in heaven. Be blessed.

@bonesbadbones 3 месяца назад

My dad passed away from lung cancer on Friday. Your videos were very helpful for me and my family during this difficult time. Thank you.

@chipdayton1625 3 месяца назад

My condolences.

@redneck3583 3 месяца назад

So so sorry for your loss @toomanybats. May you all find the peace that passes all understanding during this difficult time. Hugs and prayers for you all🙏🏻

@smajd86 3 месяца назад

Wishing you whatever brings you peace and comfort during this difficult period. ❤

@lindabenny4454 3 месяца назад

So sorry for your loss. May peace be with you & your love ones now your Dad is at peace & no longer in pain💜

@julesa.5887 3 месяца назад

So sorry for your loss. I'm glad you've been given good advice through Julie's videos.

@classrockin 3 месяца назад

Hi Julie, I'm in CA too. My Mom was in Alzheimers care for the last 6 months of her life, and was on Hospice for about the last 6 weeks until her passing. She passed in the middle of the night, the facility contacted the Hospice nurse, and she was amazing. Took charge, contacted everyone that needed to be contacted and by the time she called me at 7am, she had all the details wrapped up and made life SO much easier during such a sad, stressful time ❤

@hospicenursejulie 3 месяца назад

💕💕💕💕

@Monica-gj2yx 3 месяца назад

Please discuss home hospice versus residential hospice.

@koreyb 3 месяца назад

Yes, I would like to see a video about this, too.

@ronndaniels3972 3 месяца назад

What is residential hospice? I live alone, no family, unsure about ability of friends to care for me when needed. Not a lot of money, too. Any other service available?😊 14:02 😊

@Monica-gj2yx 3 месяца назад

@@ronndaniels3972 I am in the same position . . .

@debrajimski3540 3 месяца назад

Yes, I would like to hear this too. Also, can you have hospice care at an assisted living facility? The last three months of my mom's life was awful because my sister didn't want to put her in a nursing home and the expectation level of what she could do was overestimated by my sister and the assisted living home. For example, she was expected to still eat in the dining room and if she ate in her room, it cost more, the food was late and cold and often times she didn't want what they were having. Many days she just wanted to sleep, and I didn't understand why she could not be allowed to just sleep, but they made her get up and get dressed every day. She was too ill for this expectation. I think this stressed her so and made her sicker. She wasn't in the right place.

@dotted8- 3 месяца назад

I’m going through this right now. Mom in assisted living but now in a separate focused-care section where more care is given (big extra cost). In-home hospice just started a few days ago so they will work in conjunction with the separate focused-care personnel but with hospice in charge. I think the issue with regular assisted living is they often have a rule that a resident must be able to do basic daily living things like ambulate, use the bathroom, etc in order to be able to stay at the facility.

@skipheart4 3 месяца назад

Im a hospice volunteer and we have an amazing team, especially a rock star of a chaplain. I feel like we are under utilized which is a shame. We have so much to offer

@hospicenursejulie 3 месяца назад

💕💕💕💕💕

@debprice8869 3 месяца назад

I'm retiring this summer. For a few years, I cleaned houses for hospice patients. I charged a small amount, if the family or patients could afford it. I plan on doing this again ❤️

@kalm911chick9 3 месяца назад

I've had a lot of experience with hospice. My father-in-law, mother-in-law, an aunt and friend all passed at our local hospice house; my dad died at home under hospice care. Every single person we encountered was absolutely wonderful. We were especially blessed in that one of my dad's nurses was also his cousin and spent a lot of extra time with him. When I retire in 3 years, I plan on volunteering with hospice in order to repay all of that kindness.

@hospicenursejulie 3 месяца назад

💕💕💕💕💕

@Dwight201989 3 месяца назад

The more I have seen death of my loved ones around me,the more I’m not afraid to die,I suppose death can’t be that bad of we all have to do it,rich or poor we ALL end of in the same place in the end,6 feet under.Best wishes and health to everyone who reads this! ❤️

@koreyb 3 месяца назад

One of our neighbors was an 86 year old widow who got terminal cancer and she had no one to be a caregiver, so she had to be admitted to a live-in hospice where they could provide her with the care she needed.

@jilldornbush6960 3 месяца назад

We utilized as many of the hospice resources available. We should have utilized the chaplain sooner. Not only did my mom connect with her, the chaplain was able to relay that mom was holding on due to things that she still needed to resolved. We then worked as a family to make sure she had the closure needed to pass. Thank you Nurse Julie for sharing your knowledge with all of us.

@cheryljohnson206 3 месяца назад

My dad died almost 1 years ago. I was extremely disappointed in the neglect and lack of care by the nursing home, which supposed is a very nice place, and the hospice nurse. Hospice nurse was off over weekend, said nursing home nurse would be checking him over weekend and keep in touch as he was very close to dying. Nursing home nurse did not check dad over the weekend like they said they would and neither checked him Monday. He died Monday evening. Fortunately I saw him that Sunday and did a video chat with my siblings for him. I could clearly see he was failing fast and almost didn’t leave. NO nurse checked him all weekend or Monday, hospice nurse said she would after being off weekend. She knew I wanted to be with him when he passed and they failed dad and me miserably. I’m sure most hospice nurses are not like that, but I still feel angry with the neglect of my 92-year-old dad during his last days. The Chaplin, music therapist and massage therapist were amazing.

@BR-kk9qu 3 месяца назад

I really enjoy being a hospice volunteer! I think a patient/family can truly have a strong support system if they are open to it!

@robinbarrett5301 3 месяца назад

Care giver burn out is real,trust me! Take the help, so you don't snap. I took care of my mother, which had azlhemers. For ten years, before she had to go in the nursing home. It's hard!!! And they can be pretty, scary at sun downing.

@Monica-gj2yx 3 месяца назад

I was a hospice volunteer in a hospice ward in a hospital in Brooklyn, NY. Years earlier, I volunteered for a residential hospice in Tampa Bay (Clearwater, St. Petersburg and Tampa), Florida.

@hospicenursejulie 3 месяца назад

💕💕💕💕💕

@jankarel6454 3 месяца назад

This video hurt my heart. I was a caregiver for my husband for a very long time, and had educated myself about hospice services. However, my husband's serious decline occurred during lockdown, and the only hospice service available was a periodic nurse visit, which consisted of taking vitals and a couple of minutes of questions. So even though my husband was on hospice, there was only a 70+ year old wife providing all care. There was no backup at all, of any kind. There was not even a phone call from a social worker or chaplain, which could in no way have violated any safety protocols. Certainly there was no help with hygiene or even an hour's respite. Of course I couldn't leave my husband alone, which meant I couldn't leave the house for any reason. It certainly made a heartbreaking situation much more difficult.

@ottogray4699 20 дней назад

Nurse Julie, first would like to say, I love your topics. I have had hospice care for 3 of my family members. I was very fortunate to have, 24-hour care for my grandmother. I had to work, but they stayed with her during the day, and when I got off, of work, they remained with me, what a great comfort they were for me, threw this difficult time, since I had no support at all from my family members. I was not present at my grandmother death, due to the fact, that I went home to take a shower to go back to her home. But the most comforting thing was that the hospice nurse, was waiting on me, for my arrival back. What a comfort she was to me through all of this, and she took excellent care of my grandmother. Thank you, for all you do. God Bless You!

@hospicenursejulie 20 дней назад

Thank you so much for being here and especially THERE!!! 💕💕💕💕

@pegs1659 3 месяца назад

I do not want my children to have to take care of me. I hope if I don't die quickly from a car wreck or whatever, I hope I can go to a hospice hospital.

@mthivier 3 месяца назад

My father passed away seven years ago at age 84, after a long struggle with both pulmonary fibrosis and moderate dementia, and the hospice nurse whom they assigned to him was a literal angel. I can't speak highly enough of her. She managed to connect with him, despite his general grouchiness (I loved him dearly, but he was definitely a curmudgeon),and he very much appreciated her compassion. She also always made time to sit and talk with my mother during each visit (which was certainly beyond the scope of what she was there for), and my mother truly appreciated the company and conversation. She encouraged my mother to call any time she needed to, day or night, and even if she was off-duty, and another covering nurse called back, Beth still also called back my mother herself each time later on, to make sure the the problem was resolved. She was just an overall calming presence, who made my father's final weeks less scary and traumatic, and my father was lucky to have such a dedicated, compassionate person taking care of him.

@patriciaflaherty5029 3 месяца назад

I became a hospice volunteer after caring for my sister and then my husband as they left this world. A great suggestion from a friend is to ask, Would it be helpful if...I came over Tuesday at 3? If I brought lunch two days per week? Would it be helpful if I had your car washed? It's a much more effective way to help rather than saying, I'm here if you need me, etc. Don't wait for need, get creative.

@tking747 3 месяца назад

God bless you nurse Julie!!!!

@mickmash13 3 месяца назад

I've worked as a paid caregiver for 5+ years, and I know from experience that caregiver burnout is a HUGE issue. Never be afraid to take a break & ask for help where you can. Burnout doesn't just affect you. It affects how you care for your loved one. Even if it's just once a week or even once a month, have someone (paid caregiver or friend or family) come in for a while. Knowing there's a break coming can help primary caregivers a lot. Just don't forget to take care of yourself.

@traceyjkirkby 3 месяца назад

My sweet grandpa passed last Saturday. It was a diagnosis Wednesday, hospice Thursday, death Saturday. At the very end of his life I personally couldn’t have imagined being at home. Having a nurse there all hours monitoring pain, bathroom changes etc was invaluable. I think at home hospice is incredible.. until a certain stage in the dying process… especially if it is a painful sort. Unless it’s a pain free natural death.. My gramps would have “fits” of pain that made us all run for a nurse. Had we not had that there 24/7 I would’ve been terrified at home. I only share my story as we considered at home hospice too. Again, there is definitely a space for it for a longer term situation or painless situation in my opinion! But my story made me realize how hard that very end stage would be at home. All depends on your disease etc.. just sharing as I know Julie and her lovely commenters helped me SO much. I didn’t realize how much caretaking work was required on the family with home hospice as well. I am in Canada though so I have no idea how in hospice care would compare with home hospice and Medicare.

@traceyjkirkby 3 месяца назад

He had a port for medication and when he had fits a nurse could help him within seconds. At home I don’t know how fast we could act….

@lacey.alexandria 3 месяца назад

My grandma passed a few weeks ago and I completely agree. I was her only caregiver, family lives out of state or weren't willing to help (I also have two young children, lupus, and other health issues.) I couldn't imagine being the only person there for her at the end, 24/7, doing all of her care by myself. Ultimately she passed in the hospital (they took amazing care of her and kept her comfortable and I stayed there with her the whole time) but they tried to send her home for her last couple of days but there wouldn't have been a nurse there 24/7 and I was so terrified and felt she was in better hands there with 24 hour care from qualified nurses rather than just me. There wasn't an option for in-patient hospice in our area so it was hospital or home. I don't know how people do it and I feel so guilty for not being physically able to do that by myself 😔 It's comforting to know that I'm not alone in these feelings ❤

@toyahailey 3 месяца назад

My dad was on hospice his last two weeks, and when I say It wasn't what I expected, I expected hospice to be there, and they were not. I did get supplies, though. They were "short staff" medicine drop-off happened at 2am instead of normal times. The Social workers visited more than the cna or the nurse. The nurse, my dad was supposed to have got sick it was hard for them to get a replacement. The day he passed, we had to wait almost 3 hrs for someone to arrive in order for the medics to leave. I am still receiving supplies 2 weeks after he passed. I know it's not hospice fault, but it triggers me. I do like the therapy that is offered after the passing of the patient.

@SharonY515 3 месяца назад

Thank you for all this important and helpful information. I had no idea of how many different people are on the Hospice team that we can utilize. Have you done a video on how taking a loved one to a hospice facility works? 🙏👏👏👏👏

@annetnabuyondo7607 3 месяца назад

❤I think she has

@susanweiss1439 3 месяца назад

Check and see if they - hospice company- work with an agency to provide 24/7 care. That is the job I do, I do continuous care, prepour meds for the night shift CNA to give. (I'm an LPN).

@packslysol 3 месяца назад

Thank you for all of the info. It has helped me manage my loved ones transition into hospice care.

@willieboy3011 3 месяца назад

Julie, this is your best hospice video yet. This is basic yet unfamiliar to those of us who have not dealt with hospice. Thanks again.

@patriot534 3 месяца назад

My mother passed away one week ago last of 3 days she was unconscious and then passed away due to brain strock, every time I thought about her last mental condition that what did she feel at their last moments. Though I found your channel later but really really thankful to you.

@jaxx9204 3 месяца назад

It is very difficult but rewarding to care for family. I would help someone out if I didn’t have to work to provide for my family. Unfortunately I need my insurance and pay right now otherwise I’d consider contracting for hospice care. I’m not a nurse or cna but know how to do all of it I took care of several family members through hospice. I pray for families that are facing this.

@saltystone103 3 месяца назад

Now I really feel like a doedoe bird. My best friend was dying so I offered to sit with her. I had no idea what was going on, I see now. I think I got there at 9 a.m. My daughter came with her family and stayed for a few minutes, but at midnight my friend was resting very soundly, and I thought I'll just go home and come back at 9 a.m. again. In the morning her aunt called, and she had passed. I feel so guilty I wasn't there with her, and I wasn't supposed to leave but I look at the other side. If I had stayed all night, I know she wasn't willing to leave and she might have tried to stay on longer. I talked to her though that evening and said, "Martha I know you are scared, I would be scared to, but it's ok, you'll be fine". The moment I said that I could tell the stress left her body.

@jennyyip2185 3 месяца назад

It seems to be a better home hospice service in Hong Kong for private setter. Patients can receive nearly all the services they expect that your hospice care team can not provide with a reasonable price based on "you pay for your own service." Patients in Hong Kong (private healthcare) can choose their health care professionals and frequently doctor home visits base on their own preferences

@khill6510 3 месяца назад

Great information. Thank you!

@user-js8kq9zh5r 3 месяца назад

Thank you Julie. You are a tremendous resource.

@rachelaleigh 3 месяца назад

While custodial care is not currently a benefit - someday it will be because people like me are sick and tired of the amount of money spent on everyone else.

@meghancronin9156 3 месяца назад

Such great and important information ❤

@user-je4jr2mo2n 3 месяца назад

Love you Julie, doing good work here.

@jackieisabelajaso 3 месяца назад

Yes! I just posted a few days ago about if you can do a video about "caregiver burnout" and I appreciate you putting it out there cuz it is no joke it is really hard to sit there and juggle everything and also taking care of somebody, I appreciate this video so so so so so so so so much again thank you nurse Julie, 🙏🏻🙏🏻🙏🏻🙏🏻🙏🏻🙏🏻

@pi1810 3 месяца назад

Thank you.

@kerrylouden4833 3 месяца назад

Thank you great information!

@hospicenursejulie 3 месяца назад

Glad it was helpful!

@TheBlazeFangirl 3 месяца назад

My poor mom got diagnosed with terminal lung cancer in January 2020. Because of COVID, it was just my husband and me with Hospice. We couldn’t let anyone come help. It would have been wonderful to be able to use all those support options!

@patriot534 3 месяца назад

Hello sister such amazing information delivered thanks to you

@idanvane 3 месяца назад

On the 9th of February, not even three weeks ago, my grandmother passed at home, with me by her side. She had been on morphine since a few weeks earlier and she seemed to have slipped into a coma or deep sleep during the night. I didn't get to talk to her anymore, but I do have a few questions regarding her death, seeing as it went exactly like some of the videos you have been sharing with us. 1. Before she slipped into a coma, did she have any pain? It was during the night, so is it probable that she just "faded" in her sleep? Or did she almost choke to death, resulting in her coma? 2. Did she hear me talking to her and feel me holding her hand, even when she was in the last hours of death, completely unresponsive? Sometimes she tilted her head a bit when I said who would be arriving soon, but she obviously couldn't open her eyes or respond, so I... I don't know. I'm still pretty young - 18 years of age - and it made a huge impression on me, seeing her leave this life and everything in it. Therefore, any advice is welcome! Thank you in advance. :)

@tadreaming1 3 месяца назад

The social worker was very valuable in my case. Hospice of the Valley was very good, at least here in Phoenix, Thanks to them!

@BazzMann48 3 месяца назад

I'm an Australian. Thank you for this valuable information. At 75, I have a couple relatives and friends with some or all conditions mentioned. Currently I receive help from family members and two neighbours. First, I found it hard to accept help with mowing the lawn, I was too proud at first but have accepted that they're only to willing to help. My poor wife wants to go for regular day drives, but guess what, my pain is worse in the morning but later in the day, I'm able to sit pain free. Sorry, I hope to soon feel better so I can do the things I once was able to. Your videos, even though they don't necessarily address my particular condition, but I now have the opportunity to ask for help and assistance when required. I also need to cease procrastinating and get things in order, just in case tomorrow is "D - day". Thanks, every blessing to you all and I will find professionals here in Australia like yourselves and seek their professional help. Cheers..

@rkatrails 3 месяца назад

This was a very informative video, it really provided a lot of useful information about how hospice works. Frankly, I was a little surprised about some things. For instance, I always thought that if you're on home hospice, that you would have a nurse with you until you pass away. I sure am glad I found out that's not how it works. My concern is that if I come to the place where I need hospice, I don't have any family members who could be a caregiver, nor could I afford to pay for one. I guess I need to bone up on how Medicare works with regards to hospice so I'll know what it does and doesn't cover. I just don't know how I can go through the process of dying without a caregiver. I guess the process of dying will go a lot faster without one.😊

@panamafloyd1469 3 месяца назад

@Hospice Nurse Julie , I just wanted to say thanks for your series of videos. I was diagnosed with lung cancer in May of '23. I have no insurance, and I'm too young for Medicare. I'm still ambulatory, so my fam/friends don't have to do much 'caregiving' yet. I'm among those who wouldn't call the Chaplain (I'm ex-Southern Baptist, and have serious mistrust for people who still believe in the 'supernatural'), but it's nice to know that there are other people who can help. That 'Musical Therapist' might be the only emotional/'spiritual support I need! 😊 Sorry to be so long-winded (if you'll forgive the pun), just wanted you to know you're helping people. And not just those directly under your care. Even before I got sick, I said, "..I'm not afraid of dying, I'm just afraid of the process of it." I find consolation in your observations of that process. Thanks again, I needed it.

@waltererhart3161 3 месяца назад

I wish that we had your company in my area. The one that we have is ok, but does not have volunteers in our area. Even if I give them a two week notice of an appointment that I have, they still are not able to help mostly. We also don't have anyone that wants to help us or asks us to help. I do like you videos and will watch as many as I can to be informed.

@Emy53 3 месяца назад

Hospis was at my dad's side nightly, for almost 2 weeks, until my dad passed away. During the day, we took care of our dad, but he had nightly care. We were not allowed to administer his night time meds.

@97JoMiller 2 месяца назад

So if my loved one needs 24 hour care, is there a hospice facility to take them to? My dad was in a home and he really wasn't getting his needs met as he should have so putting someone in a retirement home is not really someone that I'd want to do, especially at end of life care. Thank you for all of this information, it's enlightening.

@dianaa4149 3 месяца назад

My Mom has vascular dementia, and it just seems so different than what I see and hear about Alzheimer’s. She is in a memory care facility. Despite being in what seems to me very much an end stage, she has been discharged from hospice care twice. Two companies. She’s bedbound, sleeps 23 hours a day, only waking, reluctantly, when staff wakes her for meals. She’s constantly falling asleep during the meal or just refusing to eat, or sometimes even drink. She continues to lose weight, but sometimes plateaus. She cannot care for herself in any way, or even know that she should. However, she can speak in full sentences if she’s awake enough to do so, and it seems that’s mostly why hospice releases her. Quality of life is absolutely zero. I really want hospice services for her because it means she’s cared for better than relying only on the facility staff, and because I’m scared to death to face the end alone. If you would do a video about hospice discharge, I’d love to hear what you think.

@ginnydeluzio3223 3 месяца назад

Are these support people for the care giver or patient. I will probably need to go on hospice at sometime in the no to titan future. I am trying to decide what would be best for me, but all the videos seem directed to caregivers not the dying person.

@Papa-hs6yg 3 месяца назад

This seems a lot like the book I just read called The In Between by Hadley Vlahos, RN

@jennifermccalmon9375 2 месяца назад

My mom just discharged from hospital today under hospice. She was on over a dozen medication for years. They discharged her with zero of her meds. She’s been restless all day and now I know why - she’s going through withdrawals! I knew the meds would be adjusted/rolled off but i thought I would be consulted about it (as POA). Is this typical?

@heatherjones6647 3 месяца назад

So if someone doesn't have a caregiver and cannot legally be taken into custodial care, then are they just expected to hunker down and rot? Things are different here in Canada. I will be choosing Medical Assistance in Dying; I am glad to have this option and won't have to rot alone at the end of my life.

@lindableau8333 29 дней назад

I understand what you are saying. That being said, do Hospice facilities translate that information to new enrollee families?

@jooleebilly 3 месяца назад

I wish we could get *anyone* to stay at her home longer than 25 minutes before she died. My mom's pain was NOT under control and it took a full day for the nurse to order another pain med (who didn't visit at all during her last week, because they were "short-staffed and it was a holiday weekend.) Even that wasn't enough. We told her and she said that was "all they could do." So we had one terrible new CNA, one Home Health Aide (who was an angel), and a nurse available during business hours only. The chaplain came once. The information binder didn't have anyone's names on them. They kept forgetting the supplies they were supposed to bring for her. We used a hospice company and paid for it. They didn't offer to do anything for us during or after. They asked us if we had a mortuary and that we should call them. My stepdad said he gave them the mortuary information and he thought they did that, and the (TERRIBLE) CNA said "Oh no, you have to do that." She also told us she could tell my mom had been in terrible pain. WHY?!? Why would she tell us that when mom was already dead? Then she puttered around and padded her time without doing anything useful. Except spilling caustic substances on their new floor and not cleaning it. What's worse was their "grief counselors" after. They were so terrible that my psychologist told me not to work with them anymore after I told him what the woman said to me, and about me. So me and my stepdad found our own support groups. I wish you could have been there for my mom, Julie.

@MoniqueBoulangerMSG 3 месяца назад

Here's a question: Have you had pediatric patients? I'm just curious, because death and dying has become so institutionalized and hidden from us. And even though parents never want to think about it, kids get terminal illnesses as well. I understand that this is a super touchy subject, I just started wondering when I saw a story on here about a 4yr old girl with cancer and has been fighting it for years chose to stop treatment and go.

@yedafeio257 3 месяца назад

With your great experiente, please make a list of what we, family and friends should have around in those last sad and hectic days. All I can think about is a lot of tissues, a spare change of underwear, toothbrush, charger... What is mostly needed ? Thank you for sharing. Very helpful

@sheilawebster1753 2 месяца назад

At the end patients are usually incontinent ( no bowel or bladder control so get underpads and incontinence briefs, both available through Medicare. But more important ask for help per Julie! A collection of your loved one’s favorite songs (e.g. Jimmy Buffet, Talking Heads, David Bowie, Billy Joel, Queen for me-guess my age!😂) Candles or aromatherapy if that is something your loved one liked. Sports on TV if that was their favorite. And if they loved happy hour 14:06 then give them a little of their libation of choice if they are taking fluids by mouth- what the hell! And touch and talk. Reminisce, maybe massage if that is not painful to them. I have found holding their hands is so very comforting to all my patients! 14:06 14:06

@sheilawebster1753 2 месяца назад

Don’t know why those 1406s jumped in-disregar

@nsb8285 2 месяца назад

My mom is under hospice care. She will need extensive dental work with the oral surgeon using a twilight medication. I asked her hospice team if someone can help me get her to the car afterward and into her assisted living facility, but no one seems to know if they can do that. Am I asking too much?

@reneenolan3163 3 месяца назад

Cautionary tale! My brother was given 2-3 months to live. Wanting to “fight” he refused hospice. He died only a month later. We were left to do everything ourselves! Are we responsible for his unpaid medical bills? Who do we ask?

@lisam8044 3 месяца назад

I still cant believe how many people around Ontario, Canada anyway who dont know what a hospice is and hospice care

@kframe1208 2 месяца назад

Did you get your medication? My husband and I have been thinking of you.

@lindyloo2265 3 месяца назад

Does Hospice ever work with Final Exit Network?

@ruthmallery5601 3 месяца назад

The hospice chaplain at my program was a reL jerk. Not my denomination which was fine, but they crossed the line when they felt like they had the right to proselytize. Nope. All done. They were a huge reason I fired hospice. The wait for new hospice company was 6 months. Well....yeah that doesn't work. And waiting for one who supports MAID? GOOD LUCK. people can find me when they find me.

@margaretiovino6063 3 месяца назад

I don't have a family to care for me. I have terminal cancer. What will happen to me?

@facsmom 3 месяца назад

My first thought was that many chaplains have had training in counseling. Even for families who do not buy in to religion, the chaplain could still be helpful. I’m sorry some of you had bad experiences with hospice. Until this post I have never heard negative feedback on a hospice involvement.

@valerieoconnor4462 3 месяца назад

I'm so afraid of dying since I was a kid but I'm 51 now Julie please help X

@lovesallanimals9948 3 месяца назад

If I'm dying, why do I want that? Second, the only thing I want around me is animals . And nobody is bathing me I will stink ,Lol

@MohawkHalfBreedTheShredder 3 месяца назад

This woman is cute even if I was dying and she was my nurse I would flirt with her.

@user-gt2hr8yk4x 3 месяца назад

You can't provide preventitive measures for bed sores? This is depressing. The NHS here in the UK, however underfunded by the tory government, is hot on preventative measures for sores and infection. I'm sorry for you.

@midnyte6195 3 месяца назад

That's exactly why I would rather NOT die at home! But at a hospital instead!

@tyronenewman455 2 месяца назад

*promosm* ✅

@RABPWarrior 3 месяца назад

Julie, hospice nurses have BIG shoes to fill now. This Karen plans to create a smart chart to compare with your wisdom. Every statement will begin with: get it right beloved, “because nurse Julie says…”. 😅. Then I will get on my knees and beg for forgiveness because they will be very much needed…. I volunteered for a hospice company once and the silence was deafening. I needed patients to respond to my funny madness.