What do your NAILS say about your health? ru-vid.com/video/%D0%B2%D0%B8%D0%B4%D0%B5%D0%BE-ZXLMnRtrjuU.html Is KNUCKLE CRACKING good or bad? ru-vid.com/video/%D0%B2%D0%B8%D0%B4%D0%B5%D0%BE-5O4qXQj-o9o.html
I’d be interested in a video about what your face says about your health and include rosacea. A lot of people have it, and I’m curious what you think of it as a rheumatologist. Thanks!
I have ankylosing spondylitis and osteoarthritis. I feel like my hands are exactly like the grapes! I love to hear other rheumatologist thoughts on this subject. Especially that neither one of my doctors ever looked at my hands.
Hand therapist (OT) here ✋ Love this video, there were even some things mentioned here that I had never heard of. Thanks for always making your content so informative and interesting!! 👍
When I was a baby my mom turned my skin color orange. She was so freaked out there might be something wrong with me took me to the doctor and he asked her quite a few questions The main one being so what she could eat her what do you feed her and Mom said carrots that's all she'll eat. Yep I turned orange because I love carrots so much. Doctor's advice was stop feeding her carrots and she will loose the orange in her skin.
I have RA and raynauds too, since 20s. I've been lying on a beach in summer in Hawaii when I get a sudden attack in my feet...if I hide everything else under my towel I can be mistaken for dead...for a while. Gotta try to have some fun with something that's otherwise pretty annoying, and at times painful....
I get aquagenic wrinkling of the palms and no doctors can tell me why. If I have my hands in water for even a short time the fingertips prune, if I leave them longer it happens to the whole palm. This only stated happening about 5 years ago. The dermatologist said it would most likely go away but it hasn't. What could be causing it? I thought this might be an interesting question for you.
Oh thank you Dr. Siobhan for explaining about our hand gestures and movement which tells about different illnesses. Siobhan, I have clumpsy fingers and I cannot stretch my fingers so much. My hands are not strong as other men. Doctors said I'm suffering from Amiotropic Lateral Sclerosis ( Anti-Horn Cell. Disease) Siibhan, Do you have any treatment for my sickness?
Hi Siobhan.. I’ve been watching you a while , I get this really weird thing with my fingers and veins that seem like they squeeze , hurt and seem like they pop & bruise !! Nobody knows why..I’m just being diagnosed with liver disease , wild weird things are happening.. I’ve been so sick, I have a high CRP and lots of arthritis & spinal stenosis in 3 places , has cervical neck surgery & a hip replacement surgery too .. I enjoy your videos 🙏🏽🇨🇦💎👏🏽♥️
Your segment on hand joints made me think - I have TS, and completely forgot until know, but it's common for TS girls to be missing a knuckle. I am missing my third one in one of my hands. Not really sure why!
Hey Loved this video very educational, I am studying to be a nurse as my pre med req. but I live in the Island of Puerto Rico and I cannot stress more about the diabetes, hipeftension and fongus. Can you try to help with the nail fongus on tropical island?
What does a longer ring finger than index finger mean if only on the right hand? Also, I read a german study on dermaglyphics that said people who hand circle finger prints instead of comma shaped ones more likely have Down Syndrome in their family or can give birth to a baby with it
My Dad was not able to turn his wrist upward as if to accept something put in his hand. I have tingling hands in the morning and I have hypothyroidism. I also have Reynaud's Syndrome.
Thanks for sharing lots of good knowledge. I don't have longer fingers and arms but my fingers and wrists are thin/small. My left lung collapsed 3 times spontaneously when I was younger. So it must be related to my body types/ genes? Are there any ways to fix this fundamentally? The lung collapse hasn't happened since my last surgery of removing the top part of the lung. But I am always worried about my lung if it would happen again. I am wondering if there's any remedy / medicine to cure this completely. I am not sure if it's true but the doctor told me that I would have the lung collapse again if I get physical impact on the chest or if I loose weight. I have seen lost of thin people who don't have pneumothorax. I am almost thinking that the spontaneous lung collapse is related to underlying lung diseases or genes..
Hey what's up Siobhan!! Thank you for another great and informative video! You're helping make the world so health smart!😁 And I think that's AWESOME!! I really appreciate all that you do for us and always look forward to your content!! Keep these awesome videos coming for as long as U can and I'll see you in the next one!!! Cheers!!
I have had an issue with my hands frequently turning golden yellow. Mainly my right hand but it has been my left before. It is most prominent in the morning and seems to resolve as the day progresses. My liver tests have been normal. I did have a crypto genic stroke around age forty but am otherwise healthy. I have been referred to a rheumatologist but since I am in general healthy I have not been able to see one.
I've got a question for you... I'm 71, female, overweight and my arthritis has wandered from time to time, shoulder to hip to elbows, to knees, to the other shoulder... round and round we go... however I never get it in my fingers and I wonder if that's because I shuffle cards aprox 120 times a day, 7 days a week and have been doing so since 1990. Do you think shuffling cards could be the reason. My logical mind says it must be, but logic isn't always right.
As someone with multiple types of arthritis, who has had not so positive interactions with rheumatologists, you must be such a ray of sunshine for your patients. Never lose your passion and kindness, it is sorely lacking in medicine and in rheumatology in particular.
change your diet to Keto...no carbs. Intermittently fast. Move into longer fasting sessions to reset your immune system. Google: Autophagy. Carbs = sugar = inflammation. The American diet cripples and kills people.
I love your passion for what you do! It doesn’t matter what a person’s profession, if they are passionate and fascinated by it, the excitement is contagious and it’s really a beautiful thing to see.
My neurologist wrote a referral letter to an ENT doctor. The ENT doctor casually mentions he notes I have Ehler Danlos. My college roommate and best friend had Ehler Danlos, so I know what it is. I'm like, "No, I don’t.. why do you say that?" He shows me the letter from the neurologist. Turns out he was talking about my excessive daytime somnolence (EDS). Having educated, trained, edited and transcribed myself for 23 years, I recognized the error that both the neurologist and his transcriptionist made. If the dictator doesn't expand the word he is expressing as an acronym, and there is no absolute reference to the actual word(s) in the report, it is up to the transcriptionist to clarify and spell the words out completely with the acronym in parentheses following it. Then the acronym can be used throughout the rest of the report. This, among many errors between dictator and transcriptionist, can cause medical errors. Just a boring comment, but I have seen way too many errors on my own medical records, and edited many that were wrong. It's a complicated relationship that creates an accurate medical report.
Not boring. Informative. One of the problems people have is that an acronym for something social or psychological or medical or a descriptive of it can mean something completely else in any of the rest of them and something else again if in court. AKA: I have a deviant thinking pattern. Psychologically, that just means different from the usual. In court they assume it means perversion and probably dangerous. Also, thinking pattern is vastly different from thinking. As in, a deviant thinking pattern might mean you can see both sides of every situation- and I usually do- as opposed to deviant thinking, such as that it is okay to take people out in the desert and bury them alive if they fail to return your items as soon as promised. So it is very important that anything said in a report, acronym or description, is accompanied by an explanation of meaning.
You are the type of Dr. That everyone needs. You obviously love what you do and educating others. Thank you. I can share these gems 💎 with my family. :)
Thank you for spreading a little awareness of Ehlers Danlos Syndrome. So many people don’t know about it and it’s really frustrating as a person who has the hyper mobility type.
Yes I totally agree, I have hypermobile eds and it took 10 years to get diagnosed with countless dislocations, I also have marfans syndrome that was ignored because I did not have a mitral valve abnomaly.
My auntie has Ehlers Danilo’s, it’s not nice at all and I agree that more awareness needs to be spread. All her joints came out a lot. Her shoulders were always dislocating. I had to go take her to a&e once when I visited with my mum, you could see the difference and it’s crazy how one minute all was okay and then had to get in the car and peg it. She now has two shoulder replacements and no issues with that since luckily but it was so worrying watching her in pain even now so I have sympathy from a different point of view but I see it all the time and have done all my life. ❤
Yes, agreed! I was FINALLY diagnosed with h-EDS at age 58 after many surgeries for joint problems. Even my rheumatologist dismissed my symptoms, so it’s a huge relief to see this discussed. Siobhan, now that you’re finished with your residency, can you play us a song on your violin every now and then?
Dr Dawn Leighton, has suffered from Ehlers Danlos Syndrome, her whole life-This has meant waking up ever day with multiple joints dislocated and in pain! That all went away after she adopted a carnivore diet.
I have Raynaud syndrome. I lived in the northeast and it used to happen all the time. I’ve found cashmere lined leather gloves were my best defense. I’ve moved south 2 years ago but sometimes it still happens when it’s cold and I am taking a delivery (I’m an operations supervisor)and it takes a while to come back to normal especially when I can’t get to warm water. I sometimes shock people with my corpse fingers. And it does hurt.
Me too. I live in Northern Ontario, and have electric handwaemers that fit into my alpaca wool mitts. The pain that follows the burning as the circulation resumes is debilitating at times
I have Reynaud's every day. Yes, air conditioning is a problem. It could be 100degrees outside and I will have it happen in a place with really cold air conditioning.
For years I suffered with pain and disability and all the doctors just said, it’s not RA. I finally got into a specialist and he diagnosed me in minutes. Psoriatic arthritis. I’ve been treated for the past couple years, use nothing for pain as I don’t have any more serious plain and I got my like back!
love your content and me and my mom absolutely adore your vlogs in the hospital. whenever my mom catches me watching you she's like "oh, it's siobhan!" and sits down and watches whatever it is with me. 💕
aw that makes me so happy to hear! i'm planning to film in the hospital next week if i'm not too swamped - looking forward to getting back to the vlogs, I've missed it!
My college boyfriend had Marfan syndrome. We were hanging out on my bed one day and he suddenly had a really sharp pain in his chest that wouldn't go away. We went to the ER and it turned out his lung had collapsed and the doctor at the ER diagnosed him with Marfan's. Didn't even know it existed until then!
About 40 years ago, in my late twenties I lost one of my best friends to Marfan's syndrome. His aorta blew out. I went to visit him shortly thereafter...he didn't die initially but suffered horribly and then died a couple of months later after being badly debilitated. He had a master's degree, newly married and had his whole life in front of him but was born in the wrong time prior to genetic screening. We are still living in the stone age of medicine 40 years later with countless medical misdiagnoses and inability to cure maladies like tinnitus as just an example. I remember his body shape which was kind of like gumby. His hands were like rubber bands...and fingers were hyper flexible which is the polar opposite of my rigid digits which hardly bend at all. I remember at this funeral, the look on his parent's face as they looked around the room and thought, why wasn't it one of us who came to celebrate his short life and not their special son who was such a good person. It could have been other than for fate.
I empathise with you because a good friend of mine had asked his SO to marry him which, then, they were engaged for a few years, and then he was diagnosed with cancer. They sped the timing of the ceremony because the were both catholic and anyone who knows those weddings will tell you, theyre LONG, not to mention difficult to schedule at a time they could both do it with their jobs. My buddy....his cancer became stage 4 months before their wedding day. They asked their jobs to be able to move it up because they just wanted to be married when he passed. Both jobs accepted! so it was moved up I believe 3 months. I was to attend this wedding, yet....I got the horrible news that he had died literally the DAY BEFORE his wedding. .....not a day goes by where I dont feel the exact same way "WHY ME!? WHY DO I GET TO LIVE!?" It is hard, but with the right people, we both can learn to reminisce rather than be debilitated by it. :) feel free to PM me. :)
@@Atixtasy Survivor remorse is a terrible burden to bare. I beg you to try and find a different way to reframe those thoughts. You are here because you are purposefully here and you will be off to the next world when it is your time, not sooner, not later. This life is so short...live each moment being the best you that you can be. There will be hard times, and great times...it is all part of the process. I find at my saddest and hardest times in life...I learn the most and can use those skills to help others. And turning attention to helping others is really what makes the most difference and brings a ton of value. God Bless.
Please do one on feet, I have seen so many patients with diabetic neuropathy, unfortunately it affects First Nations 5x more than other groups of people. I’m a nurse so I see it lots. Thanks Siobhan for your consideration of my topic.
this video really further confirms my suspicions… i’ve been dealing with raynauds and also symptoms of EDS for as long as i can remember but anytime i bring up EDS to my doctors they excuse it as something else. i was a gymnast for many many years which somewhat explains the mobility i still have, but i’ve always had freakishly flexible and hyper mobile joints which has always been dismissed. i don’t do gymnastics anymore, i haven’t for a couple years now, and i still have the same hyper mobility issues and a lot of pain along with it.
Same with EDS suspicions. My joint are not dislocating all the time, but I've been flexible all of my life too (I did ballet in childhood but my flexibility is still there after 12 years). I can bend elbow joints in opposite direction, kinda do this fingers twisting and stuff, and I am scared now if it turns out as it is some form of EDS 😭😭, bc I was experiencing some knee problems and I don't remember hurting it at the gym (like it just randomly and gradually got to the point that it is hurting all the time), so I just sit there hoping that it is some usual ligament injury and not EDS. Will have my MRI soon tho 🤞
If your doctor won't take you seriously, fire him/her and find a better one. EDS and Marfan's have some issues that need to be paid attention to before it goes south.
I have EDS that has caused an aortic aneurysm. Thank you for mentioning it! Doctors so often know nothing about it at all or they think it is *only* "loose joints" (oof, I wish).
Wow! You are amazing and you're giving me hope for the future of having quality doctors who don't seem to be connecting any dots and looking deeper . Big hugs! Thank you!!!
Hey! A video about my condition! I have Marfan syndrome. I was diagnosed before I can even remember. I used to be surprised that every doctor I met knew what Marfan syndrome was (there are so many syndromes, I assume a doctor might forget a couple). But I suppose it's memorable because it's one of the few disorders where the defective gene is dominant.
I have Marfan Syndrome! My hands are HUGE for a girl lol. I used to photoshop them as a kid when I took mirror selfies bc I was self concious. I NEVERRR hear bigger channels talk on my condition! Thank you!! I almost died from it since it is so rare.
I love seeing people so passionate about their jobs. You are clearly very passionate about all medicine but the way you lit up when talking about joint inflammation was just so beautiful. I honestly could watch or listen to anyone talk for hours about anything when they have that passion. I just love to see it.
I’ve been recently diagnosed with EDS after two years of symptoms (joint issues, migraines, POTS, gi dysmotility, and a condition called SMAS) and they did lots of tests on my hands! So facinating!
I'm similar. I have arachnodactyly, wider joints than the rest of my finger (think of a ring being loose, but not falling off because the knuckle is too big, it made it hard to size, and other joints are similar), was diagnosed with POTS, hypermobility, hereditary gluten intolerance, multiple chemical sensitivity, and now I'm waiting for testing for EDS, reynaud's, and a type of pollen allergy that makes certain fruit hurt my mouth. I've been complaining for 11 years now about migraines and pain, 8 years about fatigue and dizziness, and I've been on the wait list for a connective specialist for over a year. It sure is a pain waiting, and all I can say is I'm glad I can afford to go to physio as often as I do. I subluxed a rib because I sneezed too hard, and that sure makes it hard to breathe.
I complained about issues for more than 25 years before I was diagnosed, the doctors kept telling me that I was exaggerating, making things up or the symptoms I were describing didn't exist. Or that I was too young to have health issues 🙄
Wonderful vidoes. A suggestion to you from a Certified Hand Therapist. If you teach Phalen's test for carpal tunnel to residents/ med students, I would NOT suggest doing it this way. When you press backs of hands together, especially if you have stiffer wrists, you will raise your shoulders way up, flex the elbows a lot which could provoke numbness from TOS or cubital tunnel syndrome that also cause numbness - and confuse your results. Recommend passive wrist flexion with arms relaxed to sides, elbows at 90 degrees or more. Keep up the great information videos!
I have psoriatic arthritis, rheumatoid, and the beginnings of osteoarthritis. In my left hip/buttocks I have all 3, plus neuropathy, bursitis, tendinitis, sciatica and piriformis syndrome. Plus, 4 bad discs. Thanks to this, I’ve barely left my bed in nearly 4 years, and I just turned 42. At this point, it’s like, just take my entire tailbone, left buttocks and left leg lol!
Hi Siobhan, I tend to get severe wrinkling on the tips of my inner fingers all the way to the palm on both hands. Like when you're in water for a long time, but mine happen when I'm not around water or any form of moisture, and I'm only in my early 30's. So, I was wondering there's different forms of wrinkling in your hands and/or fingers?
I’d love more content about psoriatic arthritis. I think, out of what I know as someone who has psoriatic arthritis, the enthesitis is particularly important to talk about and so often overlooked. Many informational resources identify the dactylitis, DIP joint involvement, and nail abnormalities, but enthesitis is something I had to find in medical journals and it’s apparently quite indicative of PsA.
I have swirls in my fingerprints. I did have hypertension on the past. Now I have type 1 diabetes but I'm very healthy now. 4 years ago I was almost dead. I am clear of all the other tests you shared. Thank you for sharing. Your super cute too . 😁👍
Thank you for this post. You always have great content. I have diffuse systemic scleroderma. Yes, Raynaud's is usually an early sign for this autoimmune. Also, Sjogren's is also an early sign. I was dx by an arthritis panel (blood test) that showed the scleroderma. I was also dealing w/ SOB just trying to walk a few 100 ft and I never smoked so I knew something wasn't right. I have a host of specialists following me and my care. This is quiet the journey from being healthy until the age of 63 and then this dx. Rheumatologists are helping me a great deal with what this autoimmune does to you. Thanks again, Dr.
It is a shock!I'm 55 I've got a slew of specialist too started when I was 50. It's hard but keep your chin up and your fighting spirit! I'll keep you in my thoughts and prayers !!
I could be wrong but can’t you also have Raynaud syndrome from repeated vibrations as well? Like regular use of a chainsaw? Not just from temperature? Love the video- didn’t know my fingers were uncommonly long, good thing I play the piano
My husband's palms developed a hard bump under the skin. The bumps do not cause my husband any pain, but it has worried me every since they showed up in his hands. Any suggestions?
This is the first video I've seen of yours and I actually thought you were going to be a quack. I've known someone who had Ehlers Danlos Syndrome and another person who had osteoarthritis and you were spot on about their conditions! I'm definitely going to start watching some of your other videos. Thank you for your youtube public service!
How many tens of thousands of dollars will genetic testing cost me I can't afford the only 2 days I spent in a regular ward in a regular room which was $8,000!
As a spider finger haver and diagnosed with hEDS, I have to have my heart monitored every year despite not having the vascular type. Another symptom of EDS is having very smooth skin without moisturising, especially your hands and arms, and generally looking younger than your age. I am nearly 21 and get asked if I want a kids menu at restaurants.
I was sitting on a bench and some 12 year boys started talking to me, thinking I was one of them, when I was already in my second year of university. When I was getting tacos for my 21st birthday, I said it was my birthday, and the cashier asked if it was my sweet 16! Even at 24 I still got asked what grade I'm in. My fiance has smooth skin and can do weird things with the tips of his fingers, but doesn't have the joint pain and long fingers like I do, so it seems to be a strange collection of symptoms. I'm waiting to get testing, but there's only one person who can diagnose it in my region of 1M people.
Love this one, I was having numbness in my hands and my GP sent me to a Neurologist. The Neurologist did an EMG and noticed something so he referred me to another specialist. This specialist did more test and did a DNA test and I have CMT type 1A disease. I still have carpal tunnel and am dealing with the CMT as well.
Please keep learning and making content about EDS! My first rheumatologist was excellent except he had obviously not kept up to date on EDS and even told me I didn’t have it. He said there were three kinds (there are thirteen!) and said because my skin wasn’t super elastic and I was overweight that I couldn’t have it. I do have hEDS, POTS, and MCAS, which are a classic triad. I also have psoriatic arthritis, fibromyalgia, Reynaud’s, and a lot of related issues. Did you know that dystonia and small fiber neuropathy are common comorbidities of EDS? We are also at higher risk of getting autoimmune conditions. It sucks because by the time we see a rheumatologist, likely due to a positive ANA or high inflammatory markers, some of our hypermobility may be hidden by arthritis thanks to autoimmune issues or due to the hypermobility causing permanent damage. It sucks that the diagnostic criteria is so dependent on hand mobility! Anyway, please watch out for my zebra family. It’s such a long road to diagnosis and we very much need your help.
Great educational video! I got Raynauds in my late 20s (now in my 50s) and I get the reaction in both my hands and feet. Mine can trigger even in the summer when it is 70-80 degrees if I start to feel cold. It also triggers after eating sometimes, no matter the temperature, which I think is not a normal Raynauds trigger. Keeping myself warm in the winter with a good hat, jacket, and gloves helps. In the summer, I have to make sure I remove any sweaty workout clothes right away. I'm having issues now with my knees swelling and some random joint pain (mostly in my thumbs). Not sure if it is just age. Hopefully, I am not getting RA.
My daughter suffers this in winter. She uses tissues to hold in her hand as it absorbs any moisture and keeps her hands dry, warm and helps the blood circulating to her fingers.
Had metacarpal swelling for over 10 years to the point where closing the hand was difficult and that was gone after 6 months avoiding Ω6 oils and limiting carbs to 20g/day. My T2D officially went into remission as well
I have slightly short fingers and thumbs (My mum has the same short fingers and thumbs), Camptodactyly in my pinkie fingers (Only slight in my right hand, worse on my left hand), hyperextension, Scleroderma (I have tight skin on my hands), Raynaud's (I get cold hands and feet and sometimes tingly thumb and pinky finger tips) and eczema (worse in winter and barely noticeable in warmer weather) on my hands which I have gotten help for all of it. Despite the issues, I can and do play piano (sometimes), Irish whistles (can't play low whistles that have wider distances between holes) and play saxophones nearly every day, but I find it a little hard to hand write .
trying to play an instrument with short fingers and thumbs is always interesting, lol. raynaud's makes practice piano tricky, but i have managed to work on guitar. for guitar...using my pinky is usually not worth it if i can use my ring finger instead, so only about 4 of the songs i play do i use my pinky for. i end up with an uncomfortable hand position if i try
When I was in Junior High, I went out for wrestling and hey had us practice moving our thumb to forearm, like you were showing, to help us get limber .
I have always been impressed by people who can put their back of the wrists together WHEN holding elbows lower than horizontal to the wrists. I actually had something akin to the carpal tunnel resulting withering away of the thumb muscle, but my issue was that in fact that hand's thumb root area was bigger than the other, slightly swollen, yet it had zero strength. I couldn't hold an exercise band under my left thumb for more than 1-3 seconds. I think it had something to do with passivity for years, playing guitar which demanded stretch and tension, and then going to play ice hockey where the stick slams your palm hard repetitively for an hour or couple. Now it's much better after exercising the thumb muscles and going to the gym regularly.
Dr. Siobhan, I would be really interested if you did a piece on supplements. I'm particularly interested/worried about Omega 3 fish oils. I have an incomplete right bundle branch block (genetic), and when I took omega 3s I got chest pressure. I also have naturally low blood pressure. I wonder if the fish oil went rancid inside the capsules, or if it made the blood too thin? Anyway, I would be really interested in your take on supplements. Not necessarily medical advice (as I know that has to be in person), but maybe the dangers.
Thanks so much for your info on EDS. I was diagnosed almost 2 years ago along with POTS. It has been a very rough ride and miserable ride for sure!! Love your videos.
My mom’s finger tips began to look like balls. Dr. saw it, had her take a chest X-ray. They found a mass on her lung, it spread to her brain. She died six months later.
A pt who has you to receive care, is a lucky one! Your thoroughness and positive attitude is wonderful. You will have a very successful career in this field!
Thank you so much for mentioning EDS specifically hEDS it such an under diagnosed thing and can affect your whole body causing thing like MVP ,POTS ,CFS ,Gastroparesis , MCAS , small fibre neuropathy&more
