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Where Have I Been? Health & Life Update

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Opening up about what I’ve been up to, dealing with Omicron and why I stopped posting on Instagram after 5 years!
My Instagram: @stelasulzdorf
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Get to know me: My EDS Story
• What is Ehlers-Danlos ...
#LifeUpdate
#OmicronSymptoms
#Hallucinations
#HealthUpdate
#EDSLife
#HealthAndWellness
#HeartBlock
#Omicron
#Sickness
#Vomiting
#Norovirus
#ViralInfection
#infection
#BabeWithAMobilityAid
#EDS
#EhlersDanlosSyndrome
#EhlersDanlos
#HypermobileEDS
#BabeWithAMobilityAid
#MobilityAids
#HypermobileEhlersDanlosSyndrome
#ChronicIllness
#invisibleillness
#lupus
#AutoimmuneDisease
#disability
#dysautonomia
#LymeWarrior
#LupusWarrior
#LymeDisease
#SLE
#migraines
#LateralFlowTest
#Covid
#covidtest
#covidpositive
#autoimmunedisease
#clusterheadache
#illness
#invisibledisability
#Arthritis
#HyperMobility
#GoingOutWithDisability
#GoingOutWithChronicillness
#DisabilityVlog
#ChronicIllnessVlog
#SpendTheDayWithMe
#Epilepsy
#Seizures
#Fits
#AutoimmuneEpilepsy
#PoTS
#DisabledRU-vidr
#PoTSSyndrome

Опубликовано:

26 авг 2024

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Комментарии : 39

@chrissulzdorf456 2 года назад

Been a rough holiday hun. Slowly returning to better health. Very hard to see you that unwell. Just glad to see you are slowly recovering. 💖💖💖💖

@stelasulzdorf 2 года назад

I’m so happy we’re both recovering now! 💕

@taniabaltakova1149 2 года назад

Glad to see you on the mend. Sending you big hugs and stay safe. 🤗🤗😘😘

@stelasulzdorf 2 года назад

Thank you so much! 🤗

@KatRosUrb 2 года назад

So nice to finally see you in action,I was rather worried but did not want to disturb you.I wish you a speedy recovery and as always sending lots of hugs and love ✨⭐🧜‍♀️🧚‍♀️✨

@stelasulzdorf 2 года назад

Aww thank you so much, Kat! You could never disturb me. Sending you lots of love and hugs too. I’ll be back on the gram soon with my challenge next week! 🧜‍♀️🧚‍♀️⭐️💫✨

@amyberube6814 2 года назад

Love you babe ❤️ Glad you are starting to feel better it’s been a rough few weeks for you . ❤️❤️❤️

@stelasulzdorf 2 года назад

Thank you babe. Love you lots! 💕

@AsanaVanessa 2 года назад

Love you! Happy to see you're starting to feel better ❤️

@stelasulzdorf 2 года назад

Thank you babe! Love you too 💕

@kirilbaltakov6607 2 года назад

Yoooooo it was interesting to hear your experience with Omicron glad to hear you and Chris are better now #nocovid

@stelasulzdorf 2 года назад

Thanks so much! It was definitely interesting to experience. So glad we’re on the mend too! 😅

@sashabahanlon4072 2 года назад

Oh my!! I’m so glad you’re feeling better!! This sounds so much like when I have reactions due to MCS (multiple chemical sensitivities). I can imagine chemicals could hurt someone like you as well. Just getting together with family could trigger me (even if I don’t eat any foods that trigger me which is usually what goes wrong) cuz someone could have a perfume or have used laundry detergents that are just too “poisonous” for some but fine for others, but like wow. I’m so glad I saw all this! But please my gosh put your health first babe. Ig is fun but like, keep it that way. Don’t let it drain you. Much love darlin 💕

@stelasulzdorf 2 года назад

Thank you so much! I’m definitely feeling so much better these days. I’m sorry you have MCS - it’s so challenging to live with! I have it too-especially with certain scents and even with things like the glue on sellotape, leather coating and petrol. Just going past a gas station is the worst. 😫 It’s so interesting how some people aren’t affected at all. I’m definitely finding the perfect balance between having fun on social media these days, and not burning myself out. I used to just post because of the unspoken rule of needing to post everyday. But I just don’t feel the need to do that anymore. Thank you for your kind words and support. Wishing you a wonderful day and sending you lots of love! X 💕

@skyy_yoga 2 года назад

Oh my gosh Stela 😭😭 so awful. I’m so glad you’re both feeling better now. Love you 😘. I’m so glad you are taking care of you. I know we will always stay in touch my friend ❤️

@stelasulzdorf 2 года назад

Thank you babe! I’m not leaving Instagram, just putting my health first. I love the challenges and all the connections. Xxx 💕

@skyy_yoga 2 года назад

@@stelasulzdorf ah i know I’m just saying outside of too 😘😘💕

@GeorginasJourney 2 года назад

So glad you’re starting to feel better 💗 I honestly wonder if you may have had BOTH norovirus & omicron at the same time, which is definitely possible with it being winter & seeing people for Christmas, either way, this really sounds horrendous & I’m so sorry you went through that! 💗 Sending love xxx

@stelasulzdorf 2 года назад

That’s a thought, I didn’t even think of that. It’s hard to know, but either way I’m glad to be over the worst of it! Do you ever get hallucinations with your vomiting condition? That was definitely a first for me. Sending lots of love back. Xxx 💕

@GeorginasJourney 2 года назад

@@stelasulzdorf 💗 When I’m in & out of sleep I do, yes, I don’t like to talk about it as it scares the crap out of me, but I sometimes get it when I’m falling asleep or just waking up when I’m in a sickness episode xxx

@stelasulzdorf 2 года назад

@@GeorginasJourney Oh gosh, that’s definitely frightening! It scared the crap out of me, so I can only imagine how horrible it must be for you. Thank you for sharing that with me. Xxx 💕

@slongv1547 2 года назад

Glad you are on the mend. Oh I agree luckily I not actually had covid I have chronic illness myself and I am scared to actually leave the house. Do what makes you happy and what is best for you.

@stelasulzdorf 2 года назад

It’s definitely scary to catch it with a chronic illness. I really hope you don’t get and thank you for your engagement! 💕

@slongv1547 2 года назад

@@stelasulzdorf always support chronic illness community as they understand variability in health and isolation frustration and loneliness

@stelasulzdorf 2 года назад

@@slongv1547 I meant to say thank you for your encouragement 🥴 so many typos with my brain fog. I agree, we understand all the loneliness! Sending you big hugs 🤗

@slongv1547 2 года назад

@@stelasulzdorf I knew what you meant it late in the day and functioning gets worse as day progresses. Take care stay safe

@stelasulzdorf 2 года назад

@@slongv1547 That’s very true! Take care too 💕

@stelasulzdorf 2 года назад

Have any of you experienced similar symptoms with Omicron? Chris and I had completely different experiences with it. I hope you’re all keeping well and staying safe! Thanks for watching. Xxx

@chrissulzdorf456 2 года назад

My sense of smell still hasn't returned. Coffee will never be the same again!

@stelasulzdorf 2 года назад

@@chrissulzdorf456 I hope it won’t be like that for too much longer 😩

@13Aerosmith13 2 года назад

Hubby had almost the same migraine, vomiting every hour, weakness effects (no seizures and alucinations but skin alergies days later) with his Astrazeneca booster instead of the classic 24 h fever and tiredness I got. I hope he doesn't get that way again if he gets the real disease 😑 I'm glad you're better now and your family is OK too! Take care! 😘

@stelasulzdorf 2 года назад

@@13Aerosmith13 Thank you so much for sharing that! I really hope your hubby is better now! Stay safe please 😘💕

@kirstinvincent1247 2 года назад

Hey Stela. I started getting into your videos last night. They are very interesting and informative, and I really admire the way you try and live as full a life as possible, despite your multiple conditions. Just a question about the heart block you mentioned. I know someone who was diagnosed with this a couple of years ago, they're 35. He doesn't have any other medical conditions, and currently manages his condition through monitoring it, and careful lifestyle choices. He's in otherwise good shape. But was just wondering how much this condition affected yourself, outside of your other conditions? I've watched the videos or your cardiac tests, they looked stressful!! xx

@stelasulzdorf 2 года назад

Thank you so much for watching my videos and saying that - it really means a lot to me. 💕 The heart block is still so new to me and I’m still trying to figure it all out. I will have an appointment with my cardiologist later on in the year to discuss if I need a pacemaker fitted or not. Everything is just really slow with the pandemic. As for how it’s affecting me now, I get really bad chest pains, it hurts when I turn a certain way. I also faint a lot more than I used to before. One of the reasons why I’ve calmed down on posting Instagram is because I also have to go easy on the exercise and be monitored if I do anything potentially strenuous. I’m not sure if this was very helpful. But I’ll definitely talk about it more as I get more acquainted to living with it-and when I speak to my cardiologist. Xxx 💕

@kirstinvincent1247 2 года назад

@@stelasulzdorf My younger brother has it, he was diagnosed after suffering chest pains, and I think he may also need a pacemaker in the future. But for now, he's doing okay, can still exercise, just has to be careful with high intensity stuff. He's got really into bouldering recently, which is a bit like indoor climbing, but without ropes. We're optimistic about the future with it, and I hope treatments and symptom reducing methods improve and become increasingly effective for you as well, for all your conditions. Thanks for all your fantastic videos. May I also say, your husband seems amazing as well, you're really lucky to have such a supporting and caring guy by your side. Nice chatting with you xxx

@stelasulzdorf 2 года назад

@@kirstinvincent1247 The good thing is there are treatments available and it seems to be manageable in a lot of cases! I’m wishing your brother all the best with his Heart Block too. Was lovely to chat to you as well! Xx 💕

@kirstinvincent1247 2 года назад

@@stelasulzdorf Thank you, and all the best xxx

@stelasulzdorf 2 года назад

@@kirstinvincent1247 YW all the best to you too! Xxx

@reveillusoire3853 Год назад

Hi new subbie💜🪻💫 I find you sublime and support you with all my heart my two sons are epileptic diseases rare genetic syndrome Haemochromatosis too much iron in the blood and girls no iron deficiency, I have an autoimmune disease multiple sclerosis it's difficult but I always say what doesn't kill makes you more courage✨⭐️🌟🌎🩵🌎blessings love