hi friends! I included timing breakdowns in the description if there's certain updates you're interested in listening to over others. thank you for watching and supporting my content!
Hi, Chelsea. I keep getting an invalid gmail when I put @realchelseabear. So I will just give u this important message here. First, don't get anymore injections for your knees. The more injections u get, the worst your knees will get. Second, don't take any CALCIUM. Instead, take MAGNESIUM. Calcium will give you bone spurs, Magnesium reverses it. Third, stop doing strenuous exercises. Your bones will continue to fracture. I know it's rough. It took me a long time to learn these things. U can Google these things too. Please don't be afraid to reply to me. There's a lot more stuff I have for u. 😚❤️
As someone living with cerebral palsy too, I have learned that I'm more likely to get panic attacks if I'm worried about not walking "properly". Distancing myself from people who kept suggesting things that I could do to walk "properly" has helped.
Stay strong, beautiful lady. Hope your knee pain goes away. You’re such a beautiful lady stay strong as a person with cerebral palsy myself. I appreciate your videos. They are very relatable to me.
@@realchelseabear you are very welcome pretty lady always remember to stay positive and strong even on tough days and someone always has it worse than you I have a spastic quadriplegia. I am wheelchair-bound and do not have the ability to drive but at least I have complete cognitive ability so that is a blessing and I’m proud to smile in the face of challenges every day because adversity makes you a stronger person over time.
@@meghanjaramillo1897 same here Megan it is nice too communicate with people that have the sum of the same challenges it makes you feel like you’re not alone and it makes you want to achieve more like you said is motivational.
It's been tough for you lately, but it also sounds to me you're taking the right steps to deal with it all. Panic attacks are no fun! I used to have them back in the '90's. I was really sick with Lyme Disease and splitting up with my first husband(very verbally abusive and managing). So you can kind of see how it happened with me. I developed arthritis in my spine and neck. I've had both knees replaced and my left hip. I developed a scoliosis in my older age. Found out I have degenerative disc disease and will need more surgery in my neck and lower spine. Since I started with panic attacks, I took care of my emotional health as well by going to a counselor. I do take medication since then but not the amount, it has helped immensely. Someone else mentioned meditation here & that's a really great help. It's important to take care of your emotional health as well as physical health. I'm not recommending medication, I only mentioned that as part of what I do. My Neuro diagnosis is MS, which thankfully hasn't acted up but the worry is there in the back of mind. Thank you for sharing your experience, strength and hope. You are most definitely an inspiration.
I have Multiple Sclerosis, I too have similar difficulties with my PT experiences. 😢 it’s stressful and discouraging. I empathize with the trial and tribulations you face. ❤❤❤❤you are a warrior ✊🏼💪🏼🧡🧡🧡🧡
Hi Chelsea, I'm sorry to hear you had a panic-attack. It must be scary and frustrating to feel like you can't depend on yourself to get around when making small trips. ( nobody likes feeling helpless, and panic-attacks take away all your confidence when you need it ) It's great to hear that you finally found some people familiar with CP at the Stretch Zone. I'm sure they will help you to bring back your confidence in being able to get around. I don't know if you've ever tried meditation to help calm yourself when you're feeling like your confidence is floating away. Even 10 minutes of meditation can make a difference, so you start to feel like your confident self. ( lots of meditation recordings you can download to your phone : I like short guided meditations with ocean waves in the background. Really helps to center myself. ) Hope you enjoy what's left of the summer. Thanks for the update. Take care ! ❤
Hello Chelsea. so much is still unknown about neurological disorders and disease. I have a form of Muscular Dystrophy. It was inherited from my father and my three brothers suffer with this disease. I have started using a rollator walker and can relate to the uneasy feeling you experienced while returning to your car. It is okay to slow down, take a step back, regroup, rest or rethink your options. Thank you for sharing and inspiring others. Marc.
Whenever you feel like that just think of all of us here in the comments saying "you can do this!" We have nothing but love for you and even though we're not physically there to cheer you on, we're all with you in spirit! Stay strong!
Wow, a lot has happened since your great Alaskan cruise. I'm sorry to hear about your recent health problems and setbacks, but you just keep going. I'm glad to hear you've been sensibly avoiding the excessive Florida heat. Good to hear your concentrating on your own health. If you have to use your walker, then so be it. You've done remarkably well Chelsea and you are an inspiration to other. Best wishes. 😊✌️
Following you on your journey. At 74, mine is likely close to the finish line and I find your courage inspiring. Just got back from Miami after a 7-day cruise and felt the heat. Sadly, I jumped from the frying pan into the fire. Here in Oklahoma, we're averaged over 100 degrees for many days. I may seldom comment but know that I'm listening and sending my best wishes.
thank you for following along! I hope you enjoyed your cruise besides the heat! hopefully it'll start to cool down soon. I truly appreciate your support and following along. Have a great rest of your day :)
I'm also 74, and share your sentiments about Chelsea. Still looking forward to another twenty years or so of active and useful life. Best wishes to you on your journey.
Thank you so much for sharing about your journey. Ever since I’ve been an adult, it’s so difficult to find a PT. I’ve had people look shocked I’m an adult, because they said CP was a “childhood disability”, which shocked me even more. I definitely relate too to the sudden onset of being fearful of just…moving around in the outside world. You got this and know you are not alone 💚 sincerely, Evie, another adult with CP
Thank you for Posting this. It is nice to be able to relate to someone. I am 44 years old and have CP. It for the most part only effects my legs. I two have recently dusted off my walker due to the fact that my left hip is now Bone on Bone with arthritis. Makes more sense now why I fell in front of a gym full of people at my daughters Volleyball game. After that fall I knew it was time to go back to the walker at least till I could figure out what was going on. I have had those moments in my life that 4 or 5 steps feels like 4 or 5 miles away. Like you though it doesn't happen often so it surprises me when it does. I also have had good and very bad experiences with Physical Therapy some know what to do with me and some DON'T!!! I probably am going to have to have the hip replaced in January or so if all else fails. I have gotten some help but I am not where I need to be. The Thought of Surgery Scares me to be honest because it has been since 1998 since I had my last Surgery and I didn't bounce back quick then and I was 19 not 44. However I know the Lord will carry me through He has always been faithful even when I tried my best to reject him when I was younger. Anyway thank you for sharing your Video's I really enjoy them and they are a blessing to me I know a few people with CP but not many and the ones I know are unfortunately for them not like you and me they are in wheelchairs. Respectfully Submitted, Brad Stover
Your willingness and ability in sharing, is very valuable. How you inspire offers transferrable resource. That is, how you are going through and communicating your CP journey, offers insight and hope that applies generally, where a resourceful effort is required to see things made better. I'm thinking of a neighbour in his 50s who needs to recover capacity after having a massive stroke, where one area of needed recovery has to do with speech and speaking. I can't quite put it in to words, but the way you draw on your total self and person, offers something of a meta-perspective on what needs to be accessed and tapped to motivate that neighbour to the effort required, so that they can use their total self and and person to drive forward.
Chelsea, thank you for sharing. You are a real trooper. I’m glad that I found you today as I have been thinking about you and am praying for your safety as the hurricane is approaching the west coast. Thank you for sharing your journey. Whilst I am not having your experience, I am compassionate and have a great appreciation for you. 😊
❤❤❤ Hang in there, you are an amazing person. I know panic attacks, I went to the hospital thinking I was having a heart attack, after all the tests they said I was fine. I was so confused, never heard of panic attacks. 😂 Now I’m just used to them. The power of the mind is amazing in good and sometimes bad ways.
You hang in there young lady. I appreciate your tenacity. I'm 70 and my knees are paying for my youth today. But we're still vertical right! Keep up with the PT. I believe it helps. Stay strong Miss Chelsea.
Thanks, my son is about to go through the process of finding a therapist as an adult. His therapy will end when he turns 21. I appreciate your honesty and your determination.
Hi Chelsea, glad you're doing OK. I knew someone who has CP as an adult, she's around 50 right now. She was able to go through some therapy as a child, and her symptoms essentially disappeared. In her early 40's they came back after she experienced a wave of traumatic persona experiences and at the same time she was highly active and walking several miles each day. It mainly affected one leg, she would get the muscular tightness and cramping. Seeing a good physical therapist was really starting to help, she was able to walk places she could not have done before. One thing added to her therapy that she enjoyed and found very helpful was swimming and exercising in a pool. The ability to take weight off her leg combined with the smooth water resistance did wonders. I hope you can find a therapist you like and keeps up to date on the most current treatment programs. You're a lovely, vibrant young woman, full of positivity and energy, I wish all the best for you in working on your mobility and becoming more independent. Big hugs to you!
Hang in there I understand. I have spina bifida myself had surgery in 2020 to remove vertebrae with pinch nerve. I used a walker and canes. Its so hard get the strength back. But I workout at home. Thanks for sharing your journey. I might start sharing as well.
it's been hot everywhere.. we hit 100 AGAIN up here in Montana today.. im glad you fixed your knee, I broke the top off my tibia (front lower leg bone) on Jan 3, was in P.T.for 4 months, still not 100% my 'advice' is stick with your P.T. for the knee as long as possible, 'my' insurance cut me off and now I'm on my own, I too get panics especially on my stairs, I have a full set of stairs between my apartment and the street, 4 times now I have had to SIT at the top of the stairs until I 'chill out' and THEN I still need to get back UP and go down the damn stairs.. it ain't easy, I wish it were especially for YOU..... keep on and try to enjoy the ride.... God Bless you young lady.
Does this so relatable Chelsea! I had that same situation where my legs just locked up and I couldn't walk. I had a feeling that anxiety was behind it too! Thank you for sharing your story!
You are a very good inspiration for other people that have disabilities, you are a very very wonderful person Ms Chelsea your great and Beautiful Thank you Ms Chelsea
Thank you for sharing Chelsea!! I had a similar instance going to another clinic to have a test done for my heart so my cardiologist could assess how my heart was doing ... going into the clinic, I only made it half the way to the front entrance, due to unavailability of handicapped parking spots. And 'no' resting spots to 'sit' 'anywhere' between the lot and entrance at all!! And being 400 lbs, if I go 'down' there's no getting me 'up' due to my conditions and 'everybody's' inability to 'lift' 400 lbs!! So THIS generates some fears on my part when just trying to get from the parking lot to the entrance on a good weather day in Minnesota (which are 'rare' generally and can be 'deadly' in the winter). So I feel your pain, and thank you for making our fears felt and understood by a few out there!!! You're an angel sent from heaven. Giving me hope and strength to push on when I have nothing left inside to do it!! I should get a powered wheel chair but living on disability alone by myself leaves nothing for any other aids at all. So many 'other' bills no money for 'anything at all. Money needed for roof repairs/replacement, vehicle replacement, etc. and winter coming soon. Thank you for giving hope no matter how short lived. You 'ARE' an 'Angel'!!! Hugs - Greg Leonard 💜💗💜
Hi Chelsea! I’m so happy to follow your journey. I’m 48 and live with CP also. You are so inspiring. I’m rooting for you and grateful for your sharing.
I' started in home physical therapy there is no co pay and I found a wonderful pt who gives me what I need above and beyond ....my cp is similar to yours..I've learned to keep stress low
I have 3 kids with CP One with hypertoned hemiplegic spastic cp 2 with Hypotoned cp I love watching these to see what things look like for their possible future ❤️
I am 48 years old and I have had a pretty good life I am single and loving it I have cerebral palsy in my legs don't worry they will adjust to life my advice is just encourage them as much as possible . God bless you and your children .
@@jeremycarpenter5550 yes we encourage them a ton! My daughter struggles the most with spasms and dystonia in her legs. They’re just getting to the age where I’ve started to look into the special Olympics for them!
Chelsea, I've been following you for a while and the one thing that I have noticed is that you are a strong, smart woman who doesn't let anything get in her way! I hope your knee continues to get better. 🙂I'm from Minnesota and it's been hot here as well and supposed to get hot again but I'm flying to Seattle tomorrow for a much deserved vacation visiting my niece, where it's a lot cooler!
Thanks for sharing, yea it’s been really warm here in Northern California but not to crazy heat, but hot enough that I’m happy I have a pool! Sending you good vibes for your knee, glad you are not in pain. massage therapy dude didn’t try I’m so so sorry. It’s ok you have to let those emotions loose from time to time and you’ll decide what to share. I had a friend with CP growing up as a kid and there was a lot I didn’t know about it then. You go through a lot daily you are amazing and strong with a great sense of humor. Truth being an adult makes you think so differently about what you can and can’t do I’ve been there. It’s definitely a mental challenge. Just wanna say Big Bear 🐻 Hugs 🤗 for you and I believe in you!!Did you name your walker yet? Wish we had a stretch zone here! Stay Strong 💪🏼 ❤
Hi Chelsea, I also have Spastic Diplegia CP. I don't know if you've tried this before, but if you haven't. You may want to consider asking your doctor about botox injections. I have gotten them in my legs, and it helped loosen up muscles and ease spasticity.
I have cerebral palsy to, and I have a fourth grade brain bleed, but I walk with a limp. It’s still hard for me to do stuff like get up from the couch without hanging onto some thing. Or jumping I can’t just make friends because they have no idea what I’m going through I’m 20 I’m isolated, except for when I talk to my dad and my stepmom, but I exercise every day I do five laps on the treadmill and I am really trying to eat healthy
Unfortunate that discussing health issues here seems to compel others to write long descriptions of all THEIR health problems, even if they don’t have CP. the hazards of mentioning health issues online. It inevitably causes some to think it’s an invitation to detail their unrelated heath issues. I’m glad that you share your travail and what you are up again like so many others. We are certainly interested in you and your well-being.
Hello Miss Chelsea, thank you for the update on your knee. I'm glad that at least that is mainly a non-issue for you now. I am very sorry you had a slight setback, and i truly hope you forge ahead. It sounds as if you are doing exactly that. The physical aspects are one issue, albeit a larger one than most, but not insurmountable. Especially for a strong-willed person with the personal fortitude that you've got. We have seen what you can do and what efforts you go to to achieve your goals. A small step back is not a failure. I understand that a trip up can seem enormous, and there just isnt anyway to go on. That is the biggest obstacle that there is, the one that is perceived in our mind is the worste of all. That nagging feeling of I can't do this or that, or something might happen if i do. Always remember, fear make tge wolf bigger than it is. You are stronger than you think, physically and mentally. You've shown us what you are capable of. Look back at your life, look where you were at 10 years old, 20 years old, and now at your tender young age of 30. If that doesn't incourage you nothing will. As far as tge mental part, I wish I could give you a magic piece of knowledge that would cure all. But I can't, God can, but I can't. Anyone that had any sort of numerological issue, from CP, such as yourself, or MS or stroke or any of the other disorders would love to have that magic word. There is nothing more frustrating than knowing in your mind you can do something, but when your brain and body dont communicate, that is the most frustrating of all. But, you already know that. Now, take your deep breathe and move forward and build on that. You've shown what you are made of and what you can do. As already stated you are stronger than you think. You are a beautiful, amazing, smart young lady. I have all confidence in you and what you can do. You are blessed to have your Channel and the ability to help folks the way you do. You are an inspiration to anyone that has physical issues. A set back is not a failure. Know that there are folks that love you and want nothing but the best for you. All I can offer is a big hug from Texas, and tell you to keep moving forward. God bless you young un and I hope you get all the help you need and know that even though we are not there with you, that you are with us. Prayers and good wishes Chelsea ❤.
Thank you for the great info Keep going and I am cheering you on, Chelsea! Mine is super mild, but I still got kicked out of 2 personal training programs because they said they couldn't help me (liability). It's hard to find an adult PT who gets it. I will look into stretch zone. Thank you, dear Chelsea!
Congrats on getting better after the knee injury. I don't have cerebral palsy myself, however I've got several other things like the spinal injuries that's made me permanently disabled. About the 2018 timeframe, being on Prednisone for about 3 years too long, I developed osteoporosis, I then developed chronic nerve damage in my left leg. Combine those and that gave me some falling episodes that fractured all 5 lumbar and 2 or 3 thoracic vertebrae in about 7 months. I needed double kyphoplasty on L2 and L4 vertebrae. I've had to have a spinal cord stimulator surgically implanted to block some pain electrically, and lost about 6 inches of height. I use my walker daily, had to get a carbon fiber Drive Medical brand for the extra weight savings. Jumbo 350 pound power wheelchair was provided, but I'm walking OK enough so it sits. Add in my lung condition, emphysema based COPD, complex sleep apnea, and the heart condition called PVCs (premature ventricular contractions). Just to round out the list of disabilities. My only source of strength comes from God. Without His never-failing grace, comfort, help every time I need it, I'm absolutely done. Anyway, just saying kudos to you for not letting any disability prevent you from living happy. Best wishes for better days ahead. PS: PT equals Pain & Torture if I were asked.
I think you were holding many things in. My wife was like that. Always trying to put a happy face on but felt terrible. Be happy, be sad, be angry, just be yourself.
Not sure if you've ever seen people that do like physio in a pool or like water therapy (aquatic therapy) that puts less strain on the muscles etc however the water helps to create bigger range of motion
Using your walker more is wise. The ability to think logically and self-analyze is priceless, and you have it. Even in that panicked moment, you kept your routine, found that pole, and were looking for a solution to what had you temporarily frozen. You still needed help, but you were upright and thinking. By the way, I gave up on correctly pronouncing turmeric a long time ago ☺️
Stretch zone is what PT is supposed to do for you. Hopefully they take insurance and it's not out of pocket. You are confident and more beautiful than ever. Don't sweat the small things. Accept challenges and conquer them head on. There is just about nothing you cannot do. Be well and keep up the great work on awareness.
My mom has Stiff Persons Syndrome and she will get like that with major a stiffness and anxiety if she doesn’t have her walker or something to hold on to.
The thing You never mentioned was stress. I'm sure You probably feel that too. But being courageous, as You are, You handle it well! I'd feel so disappointed in myself, I think. But Your enthusiasm even makes me feel better when I watch Your vlogs! Thank You so much for sharing Your stories with us! Hope to see You soon! 🤗
I'm 62 years old with cp but only on my left side. I think u need to get a walker with the seat n wheels I think that might help you a lot. Much love health and happiness always.
For what it's worth there is a place over in Pinellas called Advanced Medical that has been using a new treatment for knee arthritis using guided injections of hyalauronic acid. You may not be that far along yet, but I'm a lot older than you and my knees are pretty far gone and it helped me a lot.
Hi Chelsea, when I was maybe 5yrs old my wonderful mom took me to children's hospital in St. Louis, Missouri for a check up for my cerebral palsy. Years later my mom noticed that I was slurring alot with my words words. So she rushed me to the hospital where I was getting mri's, ekg, eegs re
Isn't a fracture a break. We say broken, medical says fracture. Hope you feel better. Just hurt my back a few days. Felt something give. Just squatting down. Doctors Monday. Hope its not serious. Hurts like he'll though.
From a fellow west central Floridian, I'm so sorry to hear about your AC. Especially now when it's so dang hot here! Hope that panic attack never ever comes back! I can only imagine! Hope you can find some treatment and/or therapy to help your knees. Love your cheerfulness in all of your videos! You Rock!
thank you for watching/listening! I also hope the panic attack never comes back, going to keep doing all of these things to hopefully avoid that. I hope you have a great week!!
I'm trying to do what I can to make sure it doesn't get worse than what it is now, but I'm sure a lot of it is inevitable. Thank you for sharing your experience with me.
@@realchelseabear sister it’s hard, I can’t do anything without it flaring up , I can’t even walk longer than 20 minutes before it flares up. I spent nights crying in my bed because it hurts so bad
My CP adult right knee has annual Synvisc injections to lubricate the bone-on-bone pain. It is the only thing that helps because it is a lubricant. Google this and see if it may help you. Been using for 5 yrs with complete success. Also, have you considered a knee brace? Mine limits the “scissoring” of my gait.
I am just wondering if this would help you, when someone breaks their knee, and I am basing this on what I have seen. Basically, the knee is braced and a rod is put through the knee, plus upper and lower leg braces.
Saskatchewan hear to warm heat .I think it's every where. I'm glad your doing good. 👍I understand what your saying dear .my right leg locks up on me to I definitely know what your saying. I quit driving sime. My back is not they strongest anymore. I would never laugh at you dear .not me .I can't wight that good you to I hope u have a beautiful week. Lots of ❤️ going your beautiful way your friend Patrick. But pat is fine .xoxo 😊👍 keep strong k
