Thank you very much for sharing this recap! I hope, in your following recap, you will have news on ongoing research that could stop and heal/cure the parkinson in a near future... Being a young parkinsonien, I have a tendency to focus more on solutions that could eventually cure my parkinson :-)
The race for a cure is definitely in full swing, and there were some conversations about stem cell therapies at the WPC. However these are still in the early phases and not developed enough to report on with a lot of confidence. I'm hoping we'll see more soon as well! Hang in there!
Sarah, you are such a wonderful advocate for PWP. I thank God often for bringing you into my life. I don't know of many people who would attend conference sessions all day, take detailed notes and then take the time to share this information immediately. It makes me feel like I am there at the conference which is so much more exciting than getting the summarized info when you return from Japan. On another note...could you grab one of those ceramic jars behind you and bring it back to me. I love them!!! (Sarah, this comment is from Cathryn Mitchell. I'm not sure I put it in the correct place.)
Hi Cathryn! Thanks for your kind words. I would have grabbed one of those containers, but they're sake barrels and weigh about 500 pounds apiece. They're so cool!
Hi Sarah! This is my program for 2019, I am a PWP and from 2014 I was the first European affiliate of Rock Steady Boxing, my problem now is my stuttering . Anyway to call the interest on research for a cure for PD this is my program: 1. I’ll participate to the Magna Francigena walk from 20 to 30 June. It’s a 180km walk organized by Enzo Simone to reclaim the attention of the media and researcher on finding a cure. More info on “The temple project” page on FB or on “Pilgrimage of enlightenment” the movie that Enzo has written and that will be recorded during that event. 2. I’m also setting up with some friends a trekking to reach the Everest base camp that is at 5400m over sea level on November 2019. A movie director, Donatella Cervi, has this idea 1 year ago and together we started searching for sponsor and the medical support by doctor Giuseppe Frazzitta, a famous Italian neurologist specialised in PD, that will follow us before and during the trekking. We will have the Club Alpino Italiano C.A.I. patronage. Also for this adventures will be set up a movie to be shown in tv or in the movie net system. You could find all the info you need typing these name on Facebook. However all can be part of these two project. Ciao! Tiberio Roda
Hi Barb, a lot of people feel the same as what you describe: tired, overwhelmed, and alone. I promise there are groups, people, and organizations out there who would love for you to join them, either in-person or virtually. Try reaching out to someone today, even if it's just for coffee or a walk!
Thank you very much for making the video to recap each day from the WPC . It is useful and inspiring to me, as I have PD for 15 years.Greetings from Malaysia and have a great day. Thank you for being a great activist on Parkinson disease.. cheers Eugene
There are Movement Disorder Clinics in various centres across Canada. Parkinson Canada (www.parkinsoncanada.ca), the national voice for people with Parkinson’s provides information about this and other resources and can also be reached at 1(800)565-3000.
You're really great for providing all this info, and especially for the heart and soul that you bring to it, as you seem to do to with all you do in this field.
@@invigoratephysicaltherapya5426 Sorry I did not come back earlier as I have just found this. Do you have any ideas in raising the profile of our local support group across my community. We have 50 members but there are 350 within the area with PD who may have little support and no access to our Gym club ,Tia chi, Social activities, speech therapy and mindfulness. How do we capture more people at diagnose stage. Any ideas most welcome. Thank you for your hard work and could you advise me when I could join your Booster programme. Regards Richard
Thanks for the info Sarah! We in Orange County, California are working hard at spreading the wellness word. Our goal is for every person newly diagnosed to walk out of the doctor's office with some hope and some local resources. We don't want a single one of them to try to go this alone. It hasn't been easy and we are still struggling with how to get the word out there, but we started with the website www.pdbuzz.com which has all the local PD resources (doctors, fitness classes, support groups, allied health services, events...). We are leaving business cards with all the local neurologists so that hopefully they give them to every PWP and get connected into the PD community. Our motto is "People with Parkinson's helping people with Parkinson's." Keep making these videos, they are inspiring me to do more!
Hi Lauren! I love PDbuzz.com. Your website is wonderful and I have no doubt everyone who finds it feels supported. I appreciate you sharing my "Letter to My Clients" on your site as well. Like you, I wish that would fall into the hands of every person the day they're diagnosed! Keep up the great work and let me know if there's ever a way I can support you and your mission.
