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You Don't LOOK Autistic and Here's Why- Masking 

Autistic Jenny
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Want to know why people say "You don't look autistic?" Let me give you 3 reasons according to Chat GPT. We will also talk about how masking affects how others see us. Others don't understand autism and people have stereotypes as to what autism "looks like."
Welcome to our channel! In this video, we delve into the complexities of masking in the context of autism. Many individuals on the spectrum engage in masking behaviors to fit into societal norms, often leading to misconceptions about what autism "looks like." We explore why the statement "You Don't LOOK Autistic" can be harmful and perpetuate stereotypes. Join us as we unravel the layers of masking and shed light on the diverse experiences within the autism community. Don't forget to like, share, and subscribe for more insightful content on autism awareness and acceptance!
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✅Hashtag: #Autism #AutismAwareness #Masking #YouDontLookAutistic #Neurodiversity #MentalHealth #InvisibleDisabilities

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11 июн 2024

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Комментарии : 37   
@user-js5et3gc8q
@user-js5et3gc8q Месяц назад
I have known for over 2 years now that I am autistic. First I self identified myself as autistic by watching many hours of autistic content youtube videos then I read books about autism. I now have clinical validation that I am autistic. I believe that I really began unmasking at least several years before I was sure of my autism. It was getting too hard to put on my " normal " act once I got into my 60's. I have known since I was very young that my brain worked differently than other people but I did try to appear normal when around others. I wouldn't say I was entirely successful at it but I did work at regular jobs for a number of years. The last two years have been better for me as I have allowed myself to be myself more and it makes such a difference in how I function. Something kind of funny; you mentioned the movie " Rain man ". I watched that movie many years ago and I related much more to Raymond than I did to Charlie. It's been quite an interesting journey. Thank you for your video jenny.
@autisticjenny
@autisticjenny Месяц назад
thank you for sharing. I enjoyed reading your comment about your journey. :)
@scherzo12222
@scherzo12222 Месяц назад
Jay, I can relate to so much of what you said here, it's uncanny. We're also about the same age and were recently diagnosed after finding out on our own that we're autistic. What you said here decribes how I and so many of us feel: "I have known since I was very young that my brain worked differently than other people but I did try to appear normal when around others. I wouldn't say I was entirely successful at it..." But although there is now the freedom and sense of relief of not having to keep up the masking I am still frustrated at some of the responses I get from people who have known me for years, when I tell them I'm autistic. "That's impossible!" is one. The one that left me at a loss for words recently was: "Yeah, most people I know are a little autistic...I sometimes think I'm probably a little autistic too". This was from someone who for sure is not. I'm sorry I even told that person, who is a close in-law. To tell or not to tell...that is the question.
@user-js5et3gc8q
@user-js5et3gc8q Месяц назад
@@scherzo12222Yes, it is uncanny Gwen, how much of the same history we have covered. Were you bullied or excluded back in school? I was. I didn't know back then why other kids disliked me so much. Knowing what I know now I think it was because I had difficulty making eye contact and I was almost completely nonverbal in social situations. I was also really bad at team sports which for a boy back in that day was kind of a social death sentence. I generally want people to know about my autism. I have talked with one of my sisters on the phone about autism and she totally excepts my autism as she was closest in age to me in our family and knew me the best. One of her sons has been diagnosed as being autistic and her grandson has been diagnosed also. A year ago I told someone who I have known for some years that I am autistic. He got kind of quiet and said " I have always thought that when I get old I might get autistic too. " Funny huh? Yes it can be frustrating when people give us such responses as you have described or in my case no response at all to letters that I have sent. We do take somewhat of a chance when we tell someone. Your last sentence is so true and that question has occupied my mind a lot the last couple of years.
@scherzo12222
@scherzo12222 Месяц назад
@@user-js5et3gc8q Yes I was bullied early on, beginning in 1st grade and especially in 2nd grade, Jay. But in my case it was by 2 teachers more than any kids. My 2nd grade teacher was a monster. She, and her cohort who taught 3rd grade in the small rural school where I grew up, were what I dreaded more than anything, as a child. Way too much to write about here! One difference between you and me was that for most of my school years, all the way through high school (4th and 5th grade being the lonely exceptions) I always had one "best " friend and we'd stick together like glue, and in that relationship I was always "the leader". I didn't have to worry about dealing with social situations because we didnt get involved in them and we were fine with that. It was always more okay for a couple girls to pal around together than 2 boys. I can see how, being a boy and not being able to get into team sports was major, for you, Jay! I need to get busy on that email to you...there is so much to discuss!
@scherzo12222
@scherzo12222 Месяц назад
​@@user-js5et3gc8q Oh....I replied to this yesterday, Jay. But I don't see it here....so I'll try and remember what I said! I was bullied, in 1st and 2nd grade, by 2 teachers who were monsters., in the small rural elementary school I attended. I won't go into all that now, but I can say that set the tone for my very negative feelings about school, all the way through 12th grade. A major difference between you and me was that, except for 2 lonely years (4th and 5th grade) I always had one female friend and we stuck together like glue, and didn't need a social group to be a part of. Hanging out with just one close friend was always more "okay" for girls than boys. By 6th grade I found my best friend for life, and we are still "besties" 60 years later. Jay, I can only imagine how rough it was for you as a boy not good at team sports back then!
@etcwhatever
@etcwhatever Месяц назад
I like fashion so i can get the "not looking autistic thing". My expression is either flat or too expressive. No inbetween. So people definitively tell me im different but then most would ridicule me if i told them im autistic. But ive also had pleasant surprises.
@autisticjenny
@autisticjenny Месяц назад
I get the "too expressive" thing. Girl....I do that too especially with my seniors because I think I need to put on a "happy" face all the time for them.
@13fyrefli
@13fyrefli Месяц назад
I hear that ALL the time. Or my other personal favorite: “You can’t be autistic, you’re a nurse.” Sorry, I didn’t know the two were mutually exclusive. 🤷🏼‍♀️💙💙
@autisticjenny
@autisticjenny Месяц назад
😆they are just so uneducated about it. LOL We are capable! :)
@KayleenGnwmythr
@KayleenGnwmythr Месяц назад
There's a saying from lobbying for another community that "you can't be what you can't see", which was aimed at getting people from that community more visible, and I think that applies here. I grew up in the 60s and 70s in a small town (mostly) in Australia, and I think "Rainman" was the first time I heard the term autism. Temple Grandin wasn't talked about much here, and I met people identifying under the old term Aspergers in the 90s, but lack of visibility of autistic (and ADHD) people was a major problem for me - so I can understand it being a problem for people back then. Now, however, neurodiverse people are more visible, but lack of awareness is still, sadly, an issue.
@autisticjenny
@autisticjenny Месяц назад
Thanks for sharing that Kayleen. I think it is getting better but very slowly and especially for women. There's been a growing number of autistic content creators though, which is good.
@JeanetteInANutshell
@JeanetteInANutshell Месяц назад
Like you I've masked for so long that i don't really know where the mask ends and I begin. But when I am alone is probably the closest I get to being authentic....even then my behaviour is often a direct result of other people's needs/expectations....I feel guilty about taking time for my own needs. Since diagnosis this is something I intend to work on and try to emancipate myself. Masking has been necessary to survive all these years but it has massive costs...confused identity and exhaustion. Oh, also I'm 51 and have 3 Snoopy sweatshirts and 5 Snoopy t shirts!!! ❤ Now a couple of years ago I wouldn't have worn them out of the house as would feel age inappropriate....but now I wear with Pride! Baby steps.....society's perceptions of autism will change too but there's a very long way to go. Thankyou for your clear and calming videos, you are part of the process and it all helps.
@etcwhatever
@etcwhatever Месяц назад
I like cute stuff like snoopy too.
@13fyrefli
@13fyrefli Месяц назад
I’m also only truly myself when I’m alone. I’ve been paying more attention to the difference vs when I’m around others. I’ve tried so hard to hide my stimming for so long, especially at work. When I’m stressed I tilt my head to the side (usually the left side) and tug gently on my hair on that side. It feels so relieving to just let myself do it. I also developed a habit of making weird faces when we had to wear literal masks all day. I still try to hide that one, but most of the time I just still wear my medical mask so I don’t have to worry about it. I’ve been trying to be kinder to myself, and not walk around all day chanting “don’t be weird, don’t be weird”.
@autisticjenny
@autisticjenny Месяц назад
We shouldn't have to walk around all day telling ourselves "don't be weird." I do that too. I analyze every conversation and especially afterwards and ask myself "did I appear normal." That's great that you've found ways to stim. I have a squishy at my desk. My coworker is autistic and likes it too. She brought kinetic sand. Can I ask what kind of work do you do?
@autisticjenny
@autisticjenny Месяц назад
Thank you Jeanette....yes, Snoopy! I love him. So many of the stores are making things from our generation growing up, like Barbie shirts and I love it. Baby steps is key....me too.
@katzenbekloppt_mf
@katzenbekloppt_mf Месяц назад
Oh, I was seeing the Snoopy-shirt and thought "oh, I loved Snoopy too, that's a lovely shirt"! I never cared about if clothes are "allowed for my age". I live in Berlin, people in my age wear pink, green, blue hair, (still) style as Punks or whatever. It's just the gained weight and that I did swear to myself to dress black after my dads death until I find his grave and be able to celebrate a "funeral service" for him (as I was not invited to the one that had happened somewhere. Or did not?). I did not think it would need more then two years now, but a promise is a promise, so still black. But normallyxI wear very "expressive" and very colourful clothes, a lot with cats as I love them. And have a bunch of cat-earrings. Or pride-shirts.
@3SeasonsUSA
@3SeasonsUSA Месяц назад
I will tell you, the mask begins to fall away as we age. I am not trying to stop masking, I just don't want to continue biting my nails. Other things seem to be different than how I behaved while younger. I can't put my finger on it, but it's nothing deliberate. I am self diagnosed, only slightly on the spectrum, but struggled all of my life with "something". I am just me and unapologetic about it. I make eye contact, always have, when not shy. I don't explain to everyone that I am on the spectrum. Most people eventually tell me that I am different, or "eccentric". Once in a while, someone will get my dry humor and stop and look at me with new respect and pleasure, but it's rare. Most people don't get my humor and think I am dead serious.
@autisticjenny
@autisticjenny Месяц назад
Thanks for sharing. I think that's the main things....people know something is different about us right away but can't put a finger on it. And I would agree that I feel like the mask is starting to fall away for me more than it used to.
@3SeasonsUSA
@3SeasonsUSA Месяц назад
@@autisticjenny Kind of a loner too. My best friend accused me of copying her mannerisms. That was 7/8th grade. What does that tell you?! I have figured it out, finally, thanks to Tubers like you. Thanks, much🙂
@AuditingWithAutism
@AuditingWithAutism Месяц назад
Wouldn't it be refreshing if, when someone says, "You don't look autistic," they meant it because they know there is no one look for it? I won't hold my breath for that, though. I am hearing impaired and wear two hearing aids. When I mention this to a stranger, they will usually say, "That's ok," (as in: it doesn't bother them 😮) but they will immediately forget it and continue to speak softly or look away so that I cannot read lips. In my experience, people are not very mindful in the moment. I really enjoyed this video.
@autisticjenny
@autisticjenny Месяц назад
I think people don't really listen even when we think they are. It's like when you pass someone in a public place and they say "how are you?" We know we are supposed to just say "good" and not elaborate. LOL That greeting always stumps me. People should just say "HI" and move on. I"m glad you enjoyed this video. I enjoyed the topic very much. :)
@AuditingWithAutism
@AuditingWithAutism Месяц назад
I agree. The "How are you" question has too many possibilities. "How? My parents." The question is simply too deep.😄
@Sensory0verlord
@Sensory0verlord Месяц назад
I used to wear fun, creative outfits & got ridiculed for it. Wearing basics is just another way I learned to mask. Over the last few years though, comfort has become my main concern, so that means changing to more comfortable clothing & losing the mask.
@autisticjenny
@autisticjenny Месяц назад
Yes. I agree....as I get older, being comfortable becomes much more important to me too. :) Love my pajama jeans!
@katzenbekloppt_mf
@katzenbekloppt_mf Месяц назад
Hm. I cannot really be angry if people live with the same stereotypes of autism I myself had some years ago. If there is so poor science on it, so little specialized "experts" in diagnosing and/or therapy (and if a psychiatrist is uninformed and doesn't like to learn, but "knows better", that really sucks!), so if a minority today knows enough, how can we judge people that never had been in contact with this topic in their lives? But if they refuse to listen, when we talk to them, then it is frustrating, sure. I simply lost the ability to mask (what I automatically did not knowing it), as I was so burned out and suffering, that it was easy to see there is "something" going on. So why not explain what. I mostly don't care what "people" in general think. I have just no energy left for it. I stoped masking also not knowing what this is before I found out beeing autistic, when this burnout was called "depression". I just told people I am too tired to go on playing a role to make them happy, not feeling uncomfortable when I say the truth how I feel. I guess I was always very bad at masking😂 If I am anyways a "weirdo", then at least a less stressed by trying to mask one😊
@autisticjenny
@autisticjenny Месяц назад
I do think it gets harder as we get older to put on a mask. I had many moments today where I noticed I had no mask on for my coworkers and I admit, that did bother me. I thougtht "they may think I"m a boring person. I'm sitting here straight faced." But then I told myself, I don't care really. They know i'm autistic. There should be freedom in that. And we can't blame people who just don't know, you are right!
@katzenbekloppt_mf
@katzenbekloppt_mf Месяц назад
@@autisticjenny Yes, it gets harder the older I get, definitly! Jenny, I am always surprised and reliefed when I realize another thing I share with so many other autistic woman. Or getting another name for things I did or do. I say it again: to be "boring normal" in a group of "others" feels soooo good! This first time in life "I fit in (in the group of - late diagnosed - autistic or AuDHDers) in the way I mostly not fit in (into NT-society)."
@crystalclear6864
@crystalclear6864 Месяц назад
Which is why these jenny ( and orion)videos are needed ,so people like me( neurotypical) can understand. And have made some of us get a test as we are in fact autistic! We need a bit of weirdness in this world, so boring otherwise.
@crystalclear6864
@crystalclear6864 Месяц назад
I love your voice!
@strictnonconformist7369
@strictnonconformist7369 Месяц назад
The funniest example of “you don’t look autistic” was not them saying it “look” directly, but when I took them aside to a quieter, slightly more private area and told them, after they’d learned what I do for a living and where I work and concluded I likely make a lot of money… and she (I think) was trying to persuade me to move in with her/marry her (unclear) as she’d been physically disabled from being a massage therapist, and needed someone to pay bills. I suppose one might say, in a self-defense way, I weaponized autism! 😂
@brianfoster4434
@brianfoster4434 Месяц назад
Well, honestly, people don't know what Autism is. Several groups collect money by depicting the worse possible presentations of the condition. People also confuse Autism with Downs Syndrome. I don't know what the answer is - every Autistic has support needs in one form or another. That said, you can't collect money for a charity if you said we need to help support people with the same condition Elon Musk has. I hope that makes sense. I'm not trying to diminish anyone's support needs, just point out that media runs on high emotions and some presentations of Autism don't cause that amongst the general population. The general population generally take in what the mass media serves. I hope that makes sense and sorry if I sound rude or uncaring... I don't mean to.
@autisticjenny
@autisticjenny Месяц назад
Brian those are good points. Thanks for sharing that.
@Catlily5
@Catlily5 Месяц назад
I am not good at masking so I don't mask a lot. I do mask some.
@jamesnock5572
@jamesnock5572 Месяц назад
Iv'e got to go to the supermarket got to put my mask on, the mutants are out there lurking 🙋‍♂️
@autisticjenny
@autisticjenny Месяц назад
you know James, the funny thing about the grocery store is I don't feel the need to mask there. I feel like people are just looking on shelves at items and I can give my blank, emotionless face there....and the movie theater. LOL
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