YouTube Live Stream: Ask Me Anything Multiple Sclerosis 

Of course!! #StrongerTogether #WeHaveMS BosterMS.com

What a blessing huh?! Have a great day you 2

Hi Cynthia, my brother is possibly in a similar situation and I was wondering if there was someway I could contact you? I am the one who asked a question at the end about my brother. He lives in Fla and in the Medicaid Long term care waiver and got out if nursing home last Dec and it's been a nightmare due to many things.

I've tried to reply to ur comment multiple times but it's just not showing up, We could use Google duo @ I tried to post my contact info on youtube with non avail..ill could re leave my number if u come back on line again... Here's my # If u Reply to my message ,I'll re leave my phone number I didn't want to leave it on the internet indefinitely. Godbless Cynthia camille Wehavems But as boster says you do NOT have it alone!

Oh man!!! Not to be patronizing but it has to be a relief to have a diagnosis. Starting at 16 my symptoms began but took 4 years to get a diagnosis and it was a very bad period of time for me. The beginning of it chronic depression. Very bad, ugh. I’m 39 now and I barely remember that period. I want you to know a few things. Welcome first of all. This family is amazing, and this neurologist, the doctor Aaron Boster, who has been my doctor for the last six years, is the best resource for true, factual, and tested information. I am so happy when I see newly diagnosed people now which is weird because for the first eight years of my MS life was pretty hopeless. There was no resources. There was only fear. And now after this many years, I know for a fact if I was diagnosed in this time period, I would be a different person. Where are you from? Can I ask what treatment you’re doing? Do you have an MS specialist? Because if not, get one ASAP. Even if you have to drive hours to get there like I have to drive six hours, well ride, to see Dr. Boster. And the treatments. I had three choices for years and they did not control my MD at all. . The three injections. For years. But now, I don’t wanna be pushy with this treatment, but if it were around when I was younger, I never would’ve ended up in a wheelchair for a long time. But I did Lemtrada‘s five years ago. And after having a couple dozen lesions, since my first treatment I have had no new damage in my brain or spinal cord. And as Dr. Boster would say, the word remission was not possible with MS. Remission is five years of no disease progression, with no treatment And Lemtrada is the only thing they could do that. I have had no treatment in five years. Now there is a couple other really good ones on the market, but if you have a neurologist, in my opinion, and I can say with pretty good authority, that Dr. Boster would agree with me, that if your doctor is starting your treatments with the kinds that are less effective, I feel it’s time to find a new neurologist. You’ll see all the side effects and everything that look scary and is so intimidating, but the side effects are overrated but they have to warn everyone to protect themselves. So I don’t know, I just wish the best for you and want you to know that the people you’ve had in your life that have had MS, your MS life will be much different. There is hope now. There is knowledge. We can do this right? I hope you are doing well! Physically and probably especially mentally. If you have questions, there are answers. There are resources that you can guarantee your factual, and then there’s some that just are not. See you take care have a good day and I will talk to you soon! Alright last thing, YOU DO NOT HAVE TO ANSWER A SINGLE QUESTION!!! Please know that. I get nosy and just wish I could teach every mistake I made, from crappy DMT to smoking to nutrition for years my progression was aggressive. Doctors know much more now than they did. Again, one last time, HAVE A GOOD DAY!

@@Scotty.Rosencrance OK first of I had a hell of a time reading your book. Lol My vision sucks and I lost my glasses. I do have a Neurologist his name is Dr. Valenzuela. He says I have to get blood work soon so he can find the medication that works for me. I will be stating medication in October. The reason so far out is we were in a car accident and totaled our car on the way to my last MRI. My symptoms are mosty with my mental focus and cognitive function I do have some physical issues like cramps in my back/rib cage that drop me to the ground and headaches that make me want to kill myself as well as balance is way off because my legs feel heavy. I quit drinking alcohol because I do admit that it makes my issues 3 times worse. Idk It is what it is .

@@Scotty.Rosencrance And what is DMT? Is it like what Joe Rogan does??

@@daddytomandfriends DMT drug modifying therapies. I too was misdiagnosed was treated for headaches for years was told that headaches can cause you to feel dizzy, have vision issues, and migraines are hard to treat. BUT no one could explain why I was on day 35 and could not see well. After MRI, spinal tap, and lots of blood tests ... the answer came IT had a name! I was greatful it had a name n I wasn't going crazy. And did not havr parasites or brain cancer as the first neurologist was trying to tell me I had. I didn't know much about MS and what medication was right or say no ITS MY BRAIN n I want to keep it healthy. He started me on rebif which for some is good but apparently I've had MS for years n did not know so my first MRI looked like I had Christmas lights in my brain. Too many white spot big ones, small ones to count and it that was not enough I discovered my brain also has lots of black spots. In short please dont be afraid! Unfortunately we have MS BUT thank GOD we also have DR. BOSTER. He is the reason I am not afraid to try new medications. His explanation of all the medications is amazing. I wish I would have found him sooner. I am on OCREVUS been on it for a yr. Please watch his video that explains all MS medications. It will help you understand and you can select one or two to discuss with your neurologist. Thank Dr. Boster love the village of support you have build for us.

X Ortiz , congratulations on The Ocrevus I know I sound like a know it all but that is not my intentions I hate to hear that you’ve had MS for years. You got this though!

Me to. It sure is great to catch them live Now that he’s back to q &a I think I will try harder to be there at the beginning! Have a great day. Take care

@@Scotty.Rosencrance Thanks and you too!

Same to you!

Glad you enjoyed it!

Thanks for watching!

I also would like too know

Morning!

I didn't get on until it was almost over so im not sure but he may have talked about Dr Brandon Bieber He is like Dr Boster- very passionate for ms, very educated and both very caring. You will enjoy his you tube videos and learn a lot! 🤓

ru-vid.com This is the other doctor on you tube dr boster mentioned in his live he is also on Twitter im pretty sure Sincerely, Cynthia camille #god bless

I have heard pelvic floor therapy really helps tremendously. I would try that before self cath. That just sounds horrible to have to do that if you absolutely don't need it

I've got them.

@@feliciastrobhert6220 I have had my feet like this for weeks now and doesn't seem to be going down, I hope yours isn't to bad. Is a symptom of all types of ms or is it just msrr

Normally you click the video and below there is a live chat 🗨️ button

@@kaylahall1219 thank you - I tried refreshing the pill link and looked on the channel but never saw anything, I was on looking from 7-830 not sure what I did wrong

You have to ask your doctor to refer you to a neurologist and you can either try to get the referral redirected to an MS specialist, or the neurologist consultation may result in a referral to an MS specialist. It takes time and money - unless you are in a country that mostly pays for all that

Yes you can!

@@AaronBosterMD thanks for the answer! That's my case 😂 besides optic neuritis I had nothing

It seems to be rare that it's NOT! 😆

integumentary system is the system your actual skin in, but to understand pathological itching or neurologic, itching or I even heard it called the m.s. itching. I suggest u click the link u will find below, a video dr. Boster made on the subject! Its really quite a wonderful video, I suggest every m.s. patient and caregiver watch it, it really does shed a ms light on the matter!ru-vid.com/video/%D0%B2%D0%B8%D0%B4%D0%B5%D0%BE-z6tVwMq4gTw.html Pathological itching 😫 By Dr, boster I paraphrased the title possibly Sincerely, Cynthia camille #wehavems #stronger together

Hi I have Trigeminal Neuralgia,and suffer with it, Thank you for talking about it