I really appreciated listening to this. I was diagnoised with A/P mild MTD in 2016 and knew at the time that it was a significant voice change.I went to a voice clinic and speech therapy. I cried after my days as a teacher because my voice was so fatigued at the end of the day. I couldnt talk to anyone at the end of the day. I started using a microphone, doing vocal exercises daily, using a text to speech app occasionally and stopped singing. I didn't think I'd be able to sing normally again. I started doing myofascial therapy with someone who uses the Gratson technique. I know the struggle. God however, has brought a lot of healing and I'm back to singing again and am taking better care of my voice. Yes, its important to know you're limitations. I think everyone should watch this video-those who have voice issues as well and those who don't so they can understand others better.
I see the ADN is a relatively new (2016) and important point of contact and support for people with voice disorders. Probably like a lot of people watching this video, my employer, work cover, my colleagues, my friends, failed to appreciate the impact of complex dysphonia. That lack of knowledge, lack of acceptance, led to breakdowns in support, animosity, bullying, and ostricisation. A career ending mishandling of recovery, and numerous roadblocks in treatment. Vocal disorders need a voice, it's good to have yours.
Thank you H L-B - I'm sorry you have had this experience, and hope that life is a little easier for you now. We hear stories like yours all-too-often, and hope that gradually we can shift knowledge and attitudes about the importance of our voice - in all aspects of our existence. All the very best for the future. - The ADN Team
It is wonderful to hear other people's heartfelt experiences of living with a voice disorder. Thanks for sharing. I've been living with SD for 7 years. Much confusion, frustration, grief and loss followed me for a few years. I would dearly love to flick a switch and regain my ability to speak freely and prolifically without a care in the world. What a gift that would be. Cate Madill summed up the situation extremely well at the end of the film, saying, You really just have to get on with living.
An interesting overview of dysphonia from doctors and researchers, with highlights from a few people living with it . Learn what it is, how it's diagnosed and what to do about it.
Heart warming, touching, so very real and well done. Congratulations to all involved. I don’t have dysphonia but this display of feelings brought me a little closer to understanding this extremely challenging illness. May a remedy be found soon, xx AnL
Extraordinarily proud of the ADN for this brilliant video documentary. Thank you to everyone who has ever donated to 'our' cause and especially to 'Grace Gives'; your contributions have enabled the ADN to produce this valuable 'living tool'. I am no longer part of the executive committee and therefore feel free to heartily congratulate my dear friends and colleagues for their dedication, passion, and persistence to bring this project to fruition. It is because of your commitment that this important educational tool has been completed. I am hopeful that it will benefit many people - not just in Australia, but globally. BRAVO! x
Voice lost from a side affect from DANASOL a hormone capsule given for bleeding after Cone Biopsy. My wife has had 48 operations under general anesthetic since 1993. Injections of Botox 12.5 units injected into the false vocal chords every five months. Voice after operation perfect. It is the brain that will not unlearn you to use your real vocal chords. Your false vocal chords help you to speak, it becomes a great strain and ruins your personality and life.
Thanks for your comment - what a tough time you've had. As you suggest, the brain is an key player in the production of our voice... making it so much more complex than a simple focus on the larynx. Have you tried intensive voice therapy with the aim of brain retraining ? It may be worth contacting a Speech Therapist with a special interest in voice production to help with this. It's not easy, but can be possible. Our voice is an integral part of our personality and the impact of voice loss should never be underestimated. We (ADN) are slowly raising awareness of this and reinforcing the human impact of all kinds of dysphonia...in the hope of earlier diagnosis and improved management. All the best.
Hi - sorry it took a while to see your comment, but thanks for getting in touch. Have you been to our website www.australiandysphonianetwork.org ? We are building a bank of info and resources..... hopefully somethings that are useful. Feel free to use the contact for to request specific info. Good luck with your journey:)
