I been on a low histamine, carnivore (Paul Saladino’s version) diet for the last 6 months and it had been a game changer. Raw milk has done wonders for me too!
I JUST got diagnosed with POTS and watching this video, Ive struggled my whole life since I was about 8 and just like you said EVERY time we do blood work u have small veins and knew which they'd get. it makes me feel so understood FINALLY that I'm not crazy it's not in my head. Thank you truly for your videos/channel. It has helped me tremendously 🙏
I just had my tilt table test and I’m so confused and feeling defeated. I had a drop in heart rate, blood pressure, and fainted. But the doctor said my test was negative. It’s been a year of testing and I have no answers. Has anyone else experienced this?
In my chronic pain/illness tool box; my apologies for the lengthy list in advance 😆 I actually use a fanny pack pouch (pain pouch) i wear at work with some of these items, injections & medications inside of it. Prescription sunglasses, a surgical mask, super light, sound, and smell sensitive (even though I have a permanent loss of smell and taste, which i realize how odd that sounds lol.) I need to try those contacts! Frozen migraine caps, Icy hot pads (I take them off when it starts getting warm, also prefer cold), TENS machine (dr ho) I use the neck machine & the pads on my shoulder, heating pad (when it’s -40°C here in Canada), neck cushion (like for an airplane) helps me when I have bad days where holding my head up is difficult, my Bissell electric mop (it has sensors & basically mops the floors itself but you have to walk around with it), electric bathroom tile scrubber, cordless vacuum mine is Shark and also light weight, peppermint oil on a roller ball, ginger gummies for nausea, foam roller (helps with neck stretches), audiobooks (for migraine days, I get blurred vision & auras), kindle for low light reading, XyliMelts (dry mouth tabs), a special neck/shoulder pillow (valuable investment), peppermint, and eucalyptus Epson salts, supportive neck & shoulder bath pillow, a good leak proof tumbler for water for sipping when lying down, blow dry stand (that holds my blow drier), bidet (super stiff and bad shoulder/neck helps with butt wiping🤦🏻♀️(sorry tmi), restorolax, headspace app for breathing meditations and bed time sleep stories, white noise rain sounds machine (light sleeper), & last but not least mindfulness techniques; body scanning, journaling, praying, reading scripture, meditating on the word, abide (RU-vid channel) videos can be helpful & distracting, and physio neck & shoulder stretches. Phew 😮💨 quite the list. But I love the idea of sharing recommendations. 💕✨ I also get night terrors. I wonder if that’s common in the migraine community. I also have this phenomenon where my hands will appear really small or really large and same with objects in the room (if I wake up suddenly) I Should try the massage gun (but I’m solo so not sure if I’ll be able to utilize that myself) I too need trigger point release under the shoulder blade like in the video how your husband was massaging you! Tension migraines are brutal. Loved the video!
oh my gosh, you poor thing! You really had the deck stacked against you during all this! Hope you’re feeling fabulous now. Thanks for sharing your experience 😅
My story, 55 years old had fibromyalgia 14 years. Very painful! I think I found the answer in a book called ‘Super Gut’ I think I have SIBO. The book tells you how to remove the bad microbes or lesson them and how to ferment your own yogurt and add specific microbes that are missing because the SAD DIET has removed them.
That shows you are a good parent! Because you care. My guess is you are doing pretty great! 😊 We just talked about parenting in illness in my chronic illness community!! If you want to try out a free month you can rewatch our class on this 😊
Pots, Eds Hypermobility, MCAS , celiac are current diagnosis. My face and chin area turn red especially to heat. Like in a car during the winter. Thanks for mentioning g the bladder issue. Yes, I have problems, but never connected it to POTS.
I just turned 27 a month ago and I just got diagnosed yesterday with Fibromyalgia. I had lots of childhood trauma, dealt with depression and anxiety as well as chronic fatigue my entire life. About 6 years ago I got whiplash from being rear ended and it fractured one of the plates in my neck, broke my ribs in a gym class accident in high school and I’ve began having lots of different types of pains all over in different parts of my body. Feelings of bones being broken, feelings of my skin being burnt, terrible knee pain with x rays showing nothings wrong. Had a clear MRI, I seriously thought I had MS. My brain fog and cognitive/ equilibrium has really worsened over the past year. My memory has gotten shot. Thought I was getting early dementia. Also difficulties with swallowing food or gagging on food. I’m so glad to know what’s wrong with me after all this time. Also have strong sense of smell and taste, loud noises are bothersome. Waking up sore. I’m just glad to know I’m not crazy
Do you know what Flox is? In my case, I got fibromyalgia, POTS and MCAS after taking the antibiotic Cipro. There is a class of antibiotics called flouroquinolones that causes all these diseases. At the beginning of your video, you mention that you had food poisoning and Cipro was prescribed for a long time for travelers' sickness. Check out Floxed on Google and Floxie Hope to see many real cases.
{{{Hugs}}} to you and your beautiful helper 😊 I get migraines often. The "easy" ones last a day, maybe into the second day, but not by much. The bad ones last 3-5 days and are miserable. The worst ones last a week - those are just unbearable, emergency department visit, "why me" killer migraines. And of course, the bad and worst ones have the hangover that follows for 24-48 hours. I might, maybe, get a week "off" (rarely), but they're back pretty quick, almost daily. The throb, the nausea, the blurred vision - I hide in my "cave" a lot ! My room is set up to be very dark, very cold, and has white noise from the a/c and fan, so I don't hear other noises that make things worse. I use a mix of meds - internal and topical - plus the gel cap, cool rag on the back of my neck. I drink water, electrolytes, tea - whatever I think might help - and only eat as needed for meds (so I hopefully don't vomit). People who have never lived these simply don't get it. My kids are adults now, so I can hide. When they were younger, I had to be available to them, interacting, taking them places, and doing all the mom things. On bad and worst days. You learn to do what needs done, and once they are in bed, maybe have a good cry in the shower, or just curl up in bed praying for a better tomorrow. ❤
ah I’m sorry you’re going through this too :( I have SIBO, MCAS/CIRS and Lyme. Root cause for SIBO was discovered to be mold poisoning. It’s an awfully stubborn illness and I wouldn’t wish it on anyone. 🤍
When we live in chronic pain it becomes a feedback loop, we get addicted to the chemistry (adrenaline, norepinephrine, cortisol) because it gives us dopamine hits. We begin to hunt for signs of more symptoms and pain. Body gets stuck in a cell danger response. We look for threat everywhere. And the cycle continues. We get sicker. Functions shut down to preserve energy. More symptoms. More pain. More fear. Repeat. We can heal. I know it in my heart. I've experienced it partially before relapsing due to not having found my root causes at the time. I'm certain most of us have unprocessed trauma, nervous system and limbic dysfunction, poor coping habits, micro nutrients deficiencies, environmental toxins, medical trauma, infections, viruses, stressful lifestyles, lack of support networks, etc. The last event brooe the camels back, but it was everything leading up to it which was the cause. Our body is just communicating with us. So it's up to us to learn to listen and speak its language. Easier said than done, but possible. I've spent 15 years from age 23, well honestly since age 2, struggling with my body. I never knew why. Never knew why i was so addicted to screens, alcohol, drugs, sex. The more i dissolved and disentangled myself from old relationships which were toxic. My old behaviours. Found new ways of coping with my pain, symptoms and fears. A lot improved. I could hold space for both these intense physical experiences caused by my symptoms, and be in awe of life. I'm now working on healing from sexual abuse, life long trauma of neglect, verbal abuse, bullied entire youth, supressed / repressed emotions and sexual identity, feeling of not being enough, lack if feeling loved, appreciated for who i was. From MCAS, chemical sensitivity, many head injuries and some very severe. Dysbiosis, CIRS, Celiac Disease, sarkoidosis, etc etc. The list is long. All i know is my path to freedom and transformation is to stop focusing on the symptoms, stop chasing it, stop googling. Do the things that I used to love. Replace habits which don't serve me. Get back into nature as much as possible. Focus on my somatic, IFS, yoga etc practices. Really get moving with the limbic retraining and GAPS. I'm certain my body can heal. It's doing it all the time. It just needs the right tools, nutrients and environment.
I use tv to do chores. On commercial I clean, when the show comes on I lay down and rest. Then work again next commercial. This way I’m working in 5 minute increments. I find this is less overwhelming.
adorable!! your daughter thinks her mama just gives the best at home rollercoaster rides haha!! also, that scooter is adorable!! way to rock a mobility aid!!
I know this video is from a long time ago, but I didn't see this addressed anywhere in the comments, so wanted to share. Too much of it definitely could be a trigger, but please be careful what you say about it, because sugar is technically an electrolyte, things like Gatorade/Liquid IV just have way too much of it in them (and Nuun Sport - one of my go-to's - doesn't have enough: I have to add it). Personally, I find that unless there is enough real sugar (sucrose/dextrose/glucose - stevia alone doesn't cut it) in what I'm drinking (Oral Banana Bag has the scientifically-proven proper ratio), it won't absorb - if I try to go without much of it for even a day, I end up far worse than I started, and the longer I go without it, the worse things get, and it's not from crashing blood sugar due to a sugar addiction (I pretty much completely lost my sweet tooth when the mold poisoning hit me full force 7 years ago).
