I know I had a seizure if I wake up suddenly and covered in urine while asleep or I remember talking to people and then I blink and they are all looking at me weird asking if I’m okay and that confuses me a lot then I go back, ooooooh asking if I’m okay because I just had a seizure duh! Then the next day or 2 are rough for me and I get clusters of seizures and that really messes up my mind and body. I was 22yo when I had my first seizure that was documented and even almost filmed. I was in the company semi truck and I changed lanes and I looked back to make sure trailer moved all the way over and I blinked turning my head forward and that’s where another trucker that was side by side almost 100miles told police I changed lanes everything looked fine as far as if I looked tired or crazy maybe drinking alcohol and he said no I had my dog I was petting and he said we wave every now and then and the dog would pop his head up then out of no where I changed lanes and started drifting to the left then hit the center divider then started drifting all lanes right and he followed the path to block the road from other possible cars and I went off the road and rolled it then while being helped by other drivers who pulled over and highway officer there as well a double deck commuter train came and slapped the truck while I was still blacked out.
And anyone wondering and reading my comments: it is very likely the person will fall asleep after waking up. It feels like a truck ran over you in terms of muscle pain, because all your muscles were working out that hard. I would wake up for just a few seconds, and then I would fall asleep for half an hour. So that is not abnormal. I wish people would talk about that a little more, as it can be scary for onlookers, who may think we lost consciousness again.
I been in the ambulance 2 times cause I have been over the time and I had a few dangerous seizures in my parents house one in the shower and some at night
What annoys me is that what I experience seems completely different to everything I've seen/read about focal seizures. Recently, it's been like psychological torture/bullying, where I'm forced to think certain things, and I'd create an alternate reality in my head with memories, and deja vu of those memories. Worlds are created and changed in the blink of an eye. I'd stop/slow down what I'm doing, not because I don't know where I am or anything. I just think "oh my god, this is crazy" while being bombarded with 5000000 thoughts every split second. It's more like a panic attack, and what helps for me is just talking to someone. Not have them ask me if I was alright, but just try and pull my mind away from the trippiness in my mind.
They did a good video for beginners. But you should also call and ambulance if you notice any noticeable injuries on the head and injuries now on the rest of the body should be serious injuries. If its just a scratch or a normal boo boo just slap a bandaid on it after the seizure stopped.
It's 12:07 am , Monday, 8th july 2024. May the all people who are suffering from epilepsy get cured and stay healthy forever ♾️ May the all gods bless them with beautiful lives and family
Omg yep that's been my life now for the last 4 years except my brain give me maybe a minute before completely shutting down is if I snort a Xanax with complete loss of time and unawareness of how long I've been out for. Luckily I only had 42 at the most in one day... Add those along with temporal lobe seizures going as far as stopping me from breathing at night
Epilepsy Action is a UK-based charity and as such we do not work outside the UK/Northern Ireland. Have you been in touch with the Indian Epilepsy Society? If not, you can find their website here: epilepsyindia.org/
I have both focal aware and focal impaired awareness seizures, occasionally tonic -clonic. Sometimes I come round completely unaware that it's happened, other times I can't speak or see properly. I highly recommend for anyone with epilepsy to put the info onto your phones medical ID , this is so helpful for ambulance or hospital staff especially if you're often alone, its helped me a lot in the past and has my full medical history on there. Hopefully this helps ❤
Mood swings are something no one at home or work can understand, as I go from quiet to going full rage. I've broken many thing and have had broken bones from it
im so glad the teacher made sure that the hallways being clear was more important than the poor girl suffering from a serious medical condition. people are so stupid and priortize rules and regulation over human life. I had a similar case where we were not allowed to adminster an inhaler to a boy having an asthma attack because our state requires an advanced emt cert. just to give the boy his inhanler. it infuriorated me standing there as a firefighter being told i couldnt give the boy his inhaler, even though i grew up with asthma. by the time i was 8 years old i knew how to use my inhaler, nebulizer, and correct dose of Albertural and could do it all by myself. But everyone was hollerin and so focused on following the rules. The boy almost went into a full blown asthma attack. Its bullshit, remember folks when human lives are at stake its better to ask for forgivness than permission. Go with God and do what is right in your soul, not what another man deems is acceptable by his oppressive rule. we are equal under the eyes of God!
So sorry about your experience. I personally got diagnosed with epilepsy 10 years ago. One thing that gets me through it all (everything u described ) is believing that maybe the Man up above (God)chose me and many others so that when we do drop (convulse) in public or anywhere for that matter we give people the realization of life and how they need to be thankful and great full for every day they wake up to a new day. And that any day could be our last.
I've just been diagnosed with epilepsy after two seizures. A lot of what you said Derrick, particularly, about being afraid to go out resonates with me. What I am processing about my diagnosis is an emotional rollercoaster. I loved your comment about a cleaner making a difference, total respect for that brother.
Thank you for your video it helped me realize that I am not alone in this fight. The anxiety and actually having my clonic tonic seizures sucks. For a while, i truly was giving up every time I woke up in a hospital. i would just tell them to let SUDDEP take me. I am glad my attitude is changing. This video helped thank you for your message. Peace to all
I've been trying to do a bit more reserch about this because my art teachers has epilepsy and is known to have seizures in school sometimes, so I want to be prepared in case he ever has one in my class.
Yet ppl never understand the difference between *Individual rights* and *Patient & Doctor*-Confiencidality. There's 5 diff *Seizures* but over 50 Versions of *Epilepsy*
Some say to roll them on their side while seizing, to prevent tongue from blocking their airway while others like this video say to keep them in recovery position only after seizures stop. I’m confused. .😢
Hi, this is an important question to ask. The first aid advice for tonic-clonic seizures is don't move someone while they are shaking unless they are in danger. This is to help prevent injury to them and you. Whilst someone's teeth and jaw are clamped everything else is likely to be clamped too, so there is little danger of choking. When the shaking has stopped you can safely move someone into the recovery position to help keep their airway open. I hope this helps to clarify things for you. This is a link to our website information about first aid for tonic - clonic seizures if you need any more information: www.epilepsy.org.uk/info/first-aid/tonic-clonic-convulsive-seizures-first-aid Regards Mags Helpline Team
majority of the part I could relate to but what if my job involves thinking hard and looking at laptop screen, and I want to get back at it being a software developer
If you think it would help we have some information on our website which covers things you can do to reduce sensitivity to photosensitive seizure triggers on computer screens. www.epilepsy.org.uk/info/seizure-triggers/photosensitive-epilepsy#row-fc-7
last month my room mate had the same problem as he has Epilepsy. He used to shout, laugh loud, sing and just talk non stop and not sleep therefore, we had to call the ambulance to take him to the hospital but after 2 nights he came back again with medicine prescribed for him
I started to have this at the start of 2020 and whilst being investigated to confirm it, it then strangely stopped on its own for about a year before even starting meds and now it’s a fight even with the meds despite increasing gaps as my medication has to keep getting upped until I find the right doseage
When I was 15 I had a seizure in the bathroom while I was brushing my teeth. We had glass candles in the bathroom my body apparently cracked one of them. Somehow I unconsciously swallowed a piece of glass. An X-Ray was done they saw a shard of glass stuck in my throat and I had to live with that for a day and a half. As I was also recovering from a seizure I had to have surgery to have the glass removed. I had to stop running track, school became difficult and I isolated myself even attempted suicide. My last seizure was in 2015 but I’ve been taking medication since 2009.
Sorry to hear that you had to go through such a harrowing experience, Ross. If your ever struggling with your mental health and need to talk to someone, please contact the Samaritans on 116 123.
I thought this was just normal until I was diagnosed with myoclonic epilepsy a couple years ago. How I managed to think that for almost two decades... idk.
I have been using lerace tablet 250 mg for last two years but whenever i forget to take medicine i started nausea and headache.please tell me if there is any good treatment for seizures 🥺🙏
We'd recommend that you speak to your GP in regards to discussing the best treatment options for you. If you would like to find out more about the different treatments for epilepsy, you can check out this page on our website: www.epilepsy.org.uk/info/treatment
Not being rude it’s just for a laugh but I swear anytime there is something wrong the teacher always says “oh just wait here five minutes then go back”like that magical five minutes does wonders 😂❤❤❤
My first seizure happened in ninth grade, and I was so embarrassed that I switched to homeschooling. I had a seizure at work one time, and I only remember trying to force myself to throw up and an EMT trying to stop me. Has anyone else done that?
hi appreciate this detail account also have muoclonicic tonics after an accident the event was a cause of so many events fortunately the first one my beautiful mum was alive and did no precisely what it was now after aĺ those things that incredible human was there during ! truly Lost without my beautiful mum it's difficult tto no that it's that total Loss of control many have such horrendous tightening of muscles frequently Leaving you with both muscle spasms with an epic amount of pain also with a horrendous headache mum allways would move everything out the way comfort and yes had result with first admission being calm even then sending you Al hugs Love Liza X ❤
Hi, I'm working on an NSF I-CORPS project to develop an early seizure detector. I'd appreciate your time for a short meeting. Thank you for considering.
Interesting to see this. I have epilepsy myself and volunteer for Epilepsy Action. Good that efforts are being made to make the condition more visible to everyone and accepted. 😀