♡ DAY IN MY LIFE: with EDS, Tubes & Catheters! | Amy Lee Fisher ♡

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♡ DAY IN MY LIFE: with EDS, Tubes & Catheters! ♡
TPN Set Up Video: • ♡ I EAT THROUGH MY CHE...
Why I use Catheters Video: • ♡ All About My Cathete...
My Most Asked Questions: • ♡ My Most Asked Questi...
My Morning Routine with Chronic Illness: • ♡ Morning Routine with...
My Website: www.amyleefish...
CHECK OUT MY MERCH & Help Support My Channel!
PAYPAL ( if you would like to donate to help me out, as it was highly requested for me to leave my details) : amyleefisher96@hotmail.co.uk
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► VLOG CHANNEL: / @amyslife4457
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♡ MORE INFO ABOUT MY HEALTH ♡
• HKPP: medlineplus.go....
• POTS: www.nhs.uk/cond....
• M.E/CFS: www.nhs.uk/cond....
• FIBRO: www.nhs.uk/Cond... Fibromyalgia/Pages/Introduction.aspx
• EDS: www.nhs.uk/Cond....
• GASTROPARESIS: www.nhs.uk/cond....
• MCAD: www.ukmasto.org....
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2 окт 2024

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Комментарии : 3,2 тыс.

@Priya-yj9od 5 лет назад

when she popped her hip back in "I don't know if you guys heard that" GIRL YES WE DID 😂

@TALHA-hr6xf 4 года назад

As med students, we often get so caught up on the signs/symptoms and treatments that we forget what people with conditions actually go through on a daily basis.

@jennylin1390 4 года назад

the fact that you are realizing that shows you have the qualities to become a good doctor, as a doctor sometimes you can't always cure medical conditions, to have sympathy for your patients and try take into account what people go through on a daily basis despite extreme work pressures, in my opinion, is what a good doctor should have

@lynettespry1919 3 года назад

Us 888⁸9l

@West-rn-showvn-ist-chick 3 года назад

Yup!! That’s why nurses are better doctors.. They see more have better bedside care and usually know much more than the “doctors”

@suhkruorav 2 года назад

@@West-rn-showvn-ist-chick "doctors" in quotation marks, really...? also one isn't better than the other, they literally have different purposes and tasks, no need to be so condescending and unfair.

@erikalangbein4586 2 года назад

@@West-rn-showvn-ist-chick that is quite unfair. Both are definitely necessary. I never had an actual relationship with a doctor except for one. The nurses are around you all the time so you get to be friends with some of them and not the doctors. But doctors are grouped into so many different categories, so they are mostly only able to take care of a single system. They aren't ment to spend time with you. They only know about their specialty (except family medicine).

@emilynightingale7758 4 года назад

not gonna lie, those finger braces are really pretty, they look like rings.

@srishhtea._ 4 года назад

i really thought they were rings

@billiejoe2791 3 года назад

They are rings, ring splints x

@emilynightingale7758 3 года назад

@@billiejoe2791 yes but they function as braces/splints, they only look like rings but that's not their main purpose imo.

@billiejoe2791 3 года назад

@@emilynightingale7758 yes but they look like rings because they are rings 🤣

@carlieverhagen4908 3 года назад

My mom has silver splints for her arthritis and I hate to sound superficial but I think they're so pretty! And they help her so it's a win-win. :)

@blindlovetaurus 5 лет назад

From a nurse perspective I just think your so badass and strong. Not only to do so much care for yourself but to share with the world. So much respect for you ❤️

@icy8042 5 лет назад

*you're

@mllee2008 5 лет назад

@@icy8042 Feel better? Lol

@sharkfinz6 5 лет назад

comment wins the internet!!!!!!

@sharkfinz6 5 лет назад

@@icy8042 insufferable jackass

@juliameade5297 5 лет назад

yes! I'm a nursing student and it's so nice seeing this. I love that she's independent and is able to do all of these skills for herself. Her quality of life must be so much better not having to rely on a nurse to come in.

@rainbowkitty8985 5 лет назад

Okay so I don’t know how I got to your videos but wow girl... my respect to you. I am a nurse, so everything that you do medically for yourself I do for my patients at the hospital. But seeing it from the patient’s perspective is very different. Not only you got your stuff down but your management of the diagnoses is impressive. You are the best nurse you can have. I admire your courage to share your daily routines with a chronic illness. ☺️💕

@dianaasyiqeen77 5 лет назад

....and she looks good at all time! I cant imagine how ridiculous I look when I feel quite disabled. Even with mild fever! And during my postnatal of course! ugly fugly lol. Respect her a lotttt.

@rajeshmulay900 5 лет назад

Hello my resp.dear...i am from India, searching good friendship..i shall be glad if you share with me...pls.drop me msg...really awaiting for u...bye !!!!

@MuhammadImran-ln4fz 5 лет назад

I love u i like you really i get you 😍😍👫💑❤❤ l Am Single 🌷🌷

@esecallum 4 года назад

EDS may or may not cause your malabsorbtion issues, but vitamin D can play a very very large role in EDS pain, especially for folks that are hypermobile. Here's what medline.gov says about low vitamin D: "Vitamin D deficiency can lead to a loss of bone density, which can contribute to osteoporosis and fractures. GOOGLE vitaminDwiki

@gwilson420 4 года назад

Don't stress about the bra dear they look lovely its not a thing anyone should complain about hardly anyone uses them your girls look smashing, just smashing don't feel imbarraseed there gorgeous an really look beautiful you should never feel that You need to explain anything theres nothing wrong with showing what looks to be an amazing pair of breasts. There lovely and I for 1 appreciated you as you are . And to be honest I enjoyed it more just natural it wouldn't of looked normal it they were holstered in a bra. You go thru more than I go thru disabled. I'm impressed. The hardest part is watchi ng the dislocation the 2nd the routine you go thru the best part watching your girls natural as they are in a very flattering top... you are a tough cookie me lady

@gothafloxacin 2 года назад

I hope you're resting peacefully Amy. You were so loved and still are as well as missed loads.

@Lexi.x.jingles Год назад

Did she pass ?

@gothafloxacin Год назад

@@Lexi.x.jingles unfortunately yes

@themelster Год назад

why did she have to go?

@NobodyUndefined Год назад

Oh my god I was just wondering why all my recommended videos for her are from 2+ years ago... That's so horrible that she passed

@neomatrix6115 Год назад

Her passing hasn't diminished her spirit in any way. She is still shining as bright as ever, only now, she is no longer in pain. God bless her and everyone needing to use tube feeding to survive. You are all Gladiators and Gladiatrices!

@xAithne13 5 лет назад

I think your finger braces are so cute. They look like cute little rings. Stay strong beautiful, you're amazing

@DoveEnigma13 5 лет назад

Yeah they are really cute. The reason she must wear them sucks, but the splints look pretty cool

@jcook2574 5 лет назад

I would never wear a bra if my boobs looked as good as yours!!! No shame in your game girl! You are beautiful and I enjoy your channel so much!

@alyssafatony29 5 лет назад

J Cook she’s so amazing and I very much enjoy watching her channel.

@markkram7346 5 лет назад

you enjoy her suffering

@nickfranco3375 5 лет назад

J Cook thirsty much 🤣 pathetic ass

@nickfranco3375 5 лет назад

Filiz Booday 🤣 lesbian tendencies

@alyssafatony29 5 лет назад

mark kram no I don’t, I just simply enjoy watching her channel cause she’s inspiring to me

@Oyxopolis 4 года назад

No idea why RU-vid recommended this, but I was fascinated and goddamn, there is no end to the respect I have for your patience.

@daniellerom4529 5 лет назад

You should call him "Dan" for danlos. Dan the IV pole. And then when he beeps you can say "Damnit Dan!"

@amyleefisher52 5 лет назад

Omg 😂❤️❤️

@Mary-op8hi 5 лет назад

I don't know why but I really love this

@katieismobile8898 5 лет назад

Perfect!

@tiffytoo 5 лет назад

Me too how cool. Shut up Dan bahaha 😂😂 cute ♥️

@bonkers5416 5 лет назад

That's funny. Perfect name.😁

@MsNeal2023 5 лет назад

You're a freaking rockstar. I am a nurse and i don't even think i am strong enough to be this amazing while going through all of this. Bless you beauty!

@lucretialee3691 4 года назад

As someone who's now spent a 3rd of my life bed-bound due to EDS (I'm 44), I have to say you're coping very well with everything and I hope things stay good for you. :)

@BlayzMonet 4 года назад

Just curious because I don’t know really anything about the condition, but is the being bed bound like something that always happens eventually or is it a special kind? 🥰 Stay beautiful

@odin4306 4 года назад

Myss Mone’t Not sure what you mean by special kind.... but of us are bed bound at some point, depends how bad it is. i currently am not able to do much. i'm not bed bound but i've been house bound for a year now

@BlayzMonet 4 года назад

V.C. Lewis I meant like a variation of EDS because I know there are different types and they all can affect each person differently. I guess I should’ve said Do all of those with EDS eventually end up bed bound?

@erikalangbein4586 2 года назад

@@BlayzMonet not necessarily. People are differently affected. Severity is also different in everyone. I personally go through flare ups with different comorbid illnesses that temporarily leave me bed bound.

@odderotter8950 5 лет назад

You make me feel like such a wuss for even complaining about my little aches and pains . GOD bless you . You are a hero in my eyes .

@gordonwybo898 5 лет назад

If no bra is better for your body then go free. No one should be embarrassed by their body. Can you use a magnesium liquid for your bowels? You would make a hell of an educator at the university!!! Thanks again.

@BeeeatrizMello 5 лет назад

You go girl! #freetits

@amyleefisher52 5 лет назад

Never tried magnesium liquid 🤔

@gordonwybo898 5 лет назад

Amy Lee Fisher magnesium is the same thing they use before a colonoscopy. It’s easier to use than the other flushes that the clinics use. In the US the product I use is “CALM.”

@alys4570 5 лет назад

I have hyper mobile EDS also and I use magnesium citrate. I am able to swallow soft gel tabs (liquid inside the gel capsule) . They sell it in liquid form but you’d have to talk with your dr as to what dosage to take with the liquid. I take two softgels each day (am & pm ) which contains 250 mg of magnesium citrate (in two caps). 250 mg of magnesium citrate is 60% of a daily recommended dosage. I’m not sure how well magnesium would work with a completely paralyzed gut, but it does work great on my gut that moves extremely slow. It keeps me from doing enemas. My daughter (who also has EDS) lived the first 20 years of her life with terrible stomach trouble and pain. She very rarely could have bowel movements on her own. She started taking magnesium a year ago and now has trained her body to have a bowel movement every other day on her own. It was life-changing for her. None of our doctors ever recommended this therapy. I’m not quite sure why because it does work really well for both of us. We learned this from other zebras.

@Lucailey 5 лет назад

@@gordonwybo898 Yes! As someone with anxiety disorder any back/jaw and joint stiffness CALM is a great product! I use it at night - mixed with my sleeping meds. It makes the taste much better because of that kind of sprite like product! CALM is so awesome, I thought I was taking a risk buying a bottle of "fizz" for $10 was a lot but now I have to say it is a great product. Good for staying regular, tmj and back issues, and arthritis AND a mood stabilizer. Can't complain spending $10 for all of that!

@DSx9 4 года назад

This video makes me feel like the biggest whiner ever... I need to start appreciating what I have...

@locksmithmuggle 4 года назад

OK, I'm officially done complaining.

@overgrownkudzu 4 года назад

Your problems aren't less valid because somebody else has more to deal with.

@locksmithmuggle 4 года назад

@Big E Not everyone has a properly functioning body. I am completely healthy and have never had to deal with any of those things. The things I do have to deal with seem petty in comparison

@mladendenni7062 4 года назад

@@overgrownkudzu yes but still this is torture, i would prolly end mine

@Paretozen 4 года назад

Tell ma bound it, im might evn stop drinking

@dieselgeezer18 4 года назад

@Big E her issues are much harder to deal with. And its not because of her fault. Shut up dude and be glad you are healthy

@avthateck 5 лет назад

So this is what it’s like to drive your body on Manual. All jokes aside I am literally mind blown. Like I can’t even begin to Imagine.

@avthateck 5 лет назад

Husaberg R lmao yoooooo you’re the real MVP! I had no idea!!

@katiehoran82 5 лет назад

This is hilarious honestly... That’s what I’m gonna day from now on 😂😂😂 I’m chronically ill with EDS as well as Lyme Disease. So I’m driving my body in manual, but the funny thing is that there is no manual booklet. I have to figure out and write my own. Which is super difficult when no one can tell you what’s wrong with you or what to do about it 😂

@aaronsharp3858 4 года назад

@@avthateck I'm just replying too let you know it's now at 568 likes :D

@fmoa9380 4 года назад

@@aaronsharp3858 I only see 539 on my end maybe more suppression.

@madz1100 3 года назад

Amy's videos are appearing on my feed regularly and each time they do a new wave of sadness hits me. Such a beautiful soul gone far too soon. ❤️

@curtisbemis6640 Год назад

Fact I miss Amy alot Noone else wants to step in her place so I am going to start a channel , my issues are different but I'm going to bring awareness , to eds, c.f , as I have gp, pots , type 1 or c.f related diabetes . heart disease and vascular eds . Our lives are similar but not. She just had a few different illness. Either way it's about others . God be with her , I'm doing it for her.

@skimsully22 5 лет назад

I can’t believe how strong and beautiful you are! Your such a badass throwing your hip back in and then continuing with meds!!!

@icy8042 5 лет назад

*you're

@katiej9006 5 лет назад

I think sometimes the internet or youtubers unintentionally glamourise chronic illness, having such a positive attitude and all. I love that this DITL video showed just how sick you feel and just how much goes into surviving daily. It must be exhausting and frustrating at times. Great video. Very educational. Bless.

@LostInStydia 5 лет назад

For alot of people positivity is what gets them through it all

@skino1 5 лет назад

I suffer from chronic illness and I'm disabled. I watch these your of videos and often feel inadequate because I generally look like hell, I'm breathless, moaning, vomiting etc. And other people seem to cope so much better. So I know what you mean. She definitely feels more relatable though.

@randommess6667 5 лет назад

@@LostInStydia not sure how to be positive about feeling ill all the time, it just is depressing me

@Jessi-44 4 года назад

And that my friends, is how I realised that I am a huge wuss in life.

@ripvanwinkle420snoopdogg2 3 года назад

Cheer up...find your level love.

@oriaaane 3 года назад

I think it's really important for people to get that perspective and realize that, so good on you

@JustMe1u2 5 лет назад

I am a nurse, and I never seen a patient so positive and so motivated to take care of themselves as you., you are truly amazing, and I really admire you. thank you for sharing your story.

@BoopSnoot 4 года назад

Also you have an amazing butt. 26:45

@sofial2232 5 лет назад

I graduate next month as a nurse and I honestly cannot tell you how much your videos helped me understand the daily lives of the people I take care of. We, as healthcare providers only see our patients that have chronic illness for short periods of time (usually). You are such an awesome young lady and help so many others feel normal

@Aleeha_Ahmed66 3 года назад

R.i.p Amy such a lovely young woman x

@tpabst8632 5 лет назад

As an in home nurse, I can’t tell you how amazing you are and i wish more of my clients fight as hard as you do. You are sooo inspirational. ❤️

@amyleefisher52 5 лет назад

this means a lot to me! thank you so much! ❤️❤️

@kerrywood407 5 лет назад

Amy I just want to say even though your doing a day in the life i mostly see your personality shining through more than your chronic illness. I think your an absolute trooper and I wish I had your strength in dealing with my own chronic illnesses. Your a true inspiration and for that I thank you. Sending love and hope you had a good night hun. Xxx

@BilaMamaKukunka 4 года назад

I can't even keep track of my meals, this girl deserves a frickin' medal

@norajung4513 5 лет назад

I am absolutely amazed at what you go through on a daily basis. Makes it hard to believe you have any time for anything else. I couldn't imagine how much pain you are in when your joints dislocate. I am having issues with my s1j in my back and about to go mad from the pain. You are a warrior. Take care and take it easy.

@als2480 5 лет назад

Ive been dealing with chronic pain for 5y. It's something you just get use to. I just recently got muscle relaxers for my back spasms (I'm 20 and people refused to believe something was wrong because of my age). My knees have been bad for a few weeks as well. It takes me 1-3hrs to adjust in the mornings, but as I said, you get used to it.

@norajung4513 5 лет назад

So sorry you have to bo through that. I don't think drs realize that no matter what age you are, you can have chronic pain. Hopefully you can get the relief and help you need.

@misshissable 5 лет назад

I was thinking the same thing. It's a lot of work.

@AstoriaHeard 5 лет назад

@chronicallybeautiful Have you been tested for Lyme Disease? ☺️💓

@MissJessyeNorman 5 лет назад

Chronically Beautiful What does you pain feel like? And how did it start? Was there an initial trauma, and then instead of getting better, it got worse?

@nikkirenee5696 5 лет назад

110% agree with the vomiting vs nausea thing. I’ve told people that before and they look at me like I’m crazy? But why would I wanna suffer through nausea when I could just vomit and get on with it? Also glad I’m not the only one that dislocated a shoulder or two just brushing my hair 😂

@amyleefisher52 5 лет назад

Porcelain Beauty haha yes! Brushing hair is the worst! 😅😱

@mckennass 5 лет назад

I agree with y’all, I’ve had gastroesophogeal reflux disease since I was out of the womb and feeling like I’m going to throw up is so much worse than actually doing it. Normally I’ll just force myself, which probably isn’t a good thing, but at least I feel better?

@Mary-op8hi 5 лет назад

I was sitting up in bed nodding so much that I hurt my neck. If I could throw up once a day without nausea it would be so easy to deal with and probably would barely be debilitating; just go puke and you're done! Instead of spending hours lying around feeling like you're dying from nausea

@Mary-op8hi 5 лет назад

@@mckennass I do it to. From my understanding the only "bad" parts of making yourself vomit to get rid of the nausea is you could hurt your teeth and dehydrate yourself depending on how often you're doing it, But every now and then I'm sure is fine. Although obviously I am so not a doctor just going off of what I've been told my different professionals over the years.

@jarred333Boss 5 лет назад

Era

@brianr0 4 года назад

Wow, this brings back a lot of memories for me. My wife died eight years ago from an aggressive form of myelitis. Our daily routine involved lots of the same stuff, feeding tube, central line, etc on top of total paralysis and a newborn. I did the best I could and learned a lot, and now I'm going back to college to get a nursing degree. Stay strong, live your best life!

@mollyoly 3 года назад

you’re so strong :)

@Pooks55 3 года назад

Welp R.I.P to your wife shes in a better place😔🖤😢😓🥺

@chronicinokla 3 года назад

Rest in peace to your wife. Sorry for your loss. Rest in peace to sweet Amy as well. April 1,2021 she passed.

@edgbfksc3349 2 года назад

I’m sorry man no one deserves that to happen and Im sure you tried your best to make her comfortable and now you got to move forward it’s hard to get back up when you get knocked on the fucking canvas but all you can do is get back up and fight

@michelelemieux-gh5zv Год назад

Bravo Briano and Amy. You are inspirational. Keep up your precise care. Much ❤ 💙 💜

@pjgr1231 5 лет назад

you should name your pole Pole McCartney!

@deborahlamartiniere6349 5 лет назад

LOL that's funny....

@waikikimum3521 5 лет назад

So much respect for you Amy. Having a chronic illness is a full time job just to keep yourself well. I am loving watching your videos and learning so much. 💗💗

@olivedog1880 Год назад

She had the best attitude towards life, with all of her different illnesses

@rkaur6166 3 года назад

This was so exciting to watch. As a medical student I always see the doctors POV but never have the opportunity to see exactly what the patient has to go through. It is a lot of commitment on the patients behalf and this was a very good visual to show the steps. But most importantly, it was really cool too see you not just as a patient but a person with a life, committed to do your best to make life as easy as you can. I will definitely bare you in mind in my career, so thank you sincerely for teaching me something no medical school could ever do! Love, Rav x

@GingerKiwiDev 2 года назад

Hi Ray, I hope you’re doing well (or have finished) med school. Something to keep in mind with us “zebras” (EDS) is that we age slowly on the outside because we tend to wrinkle less … but age quicker on the inside especially our joints. Also, look up the medical journals on redheads and pain and anesthesia. As a redhead who finally has an EDS clinical diagnosis, and who has EDS related dysautonomias including syncope triggered by blood draws (last time I had a blood test I stopped breathing) how I’ve been treated by many doctors has caused ptsd. Yes, I can feel it (redheads need 125% up to 200% of anesthesia and we have a different ratio of non opioid to opioid pain receptors). No it’s not all in my head. My mom is in her 80s and just got her EDS diagnosis. She can still touch her thumbs to her wrists.

@Smith.S.sStocHasticSs Год назад

😳 Jesus christ this is eye opening. How they not teach u that patients are people?? Seems like an extremely important part of being any health care provider to be thinking about their life when they leave. It was somewhat traumatizing learning how many if not most Healthcare workers are there for the salary and their more interested in their social life at work and getting back to their desk and where they're going for lunch. Helping people is like an irritating nuisance that they really didn't think about when they signed up for it. There was soooo much help that I needed that shouldn't have been neglected like 3 people asking me the same questions then going to get someone else who wasn't briefed on my situation and then realize that this isn't their area of whatever and it takes waaay too much to finally get to the right person that I requested to see and was referred to at the start. Haven't you ever been a patient before?? Or just not for this level ? It helps that she's so young and stylish and pretty and charismatic. It makes it real and like ohh this doesn't just happen 2 other ppl it's.... yeah... wow. Thank you for sharing! 🙏

@annasartor5065 4 года назад

The cool part is, your finger splints look like cool rings!

@lyt6732 3 года назад

this is the first video I saw of Amy’s.. been a good year binging all your old vids.. I caught up right before you passed. ): in shock... rip sweetie

@SuperCreeperHater 5 лет назад

I have noticed and love that you are doing what makes you the most comfortable and normalizing not wearing a bra in your videos! You just make it a normal fact of life and you don't apologize for it and I love that.

@amyleefisher52 5 лет назад

TheOneandOnly thank you! Because it took a lot for me to do that 😅❤️❤️

@shalinkeir8989 5 лет назад

When I had a bad reaction to surgery, I had to go through a tube and a lot of similar meds and etc, and the nausea was horrendous. I can’t imagine having to do what you do, you’re an absolute unit ❤️

@alicornalley211 3 года назад

Apologise for the year late comment but thank you for educating everyone. I have EDS and POTS, I'm not nearly as bad but seeing how strong you are with having a worse case of EDS than me is very inspiring to me. My knees and ankles dislocate so often and nobody understands how I just fix it without being grossed out, it's been isolating. I love how you're educating and how strong you are. I hope everything's good

@mercyfulvickv2810 Год назад

She died years ago

@BlueMiaou 4 года назад

Your tiny "rant" about bras halfway through the videos makes me want to stop wearing bras lmfao Honestly, it's amazing that you do all that by yourself. I don't have the motivation to take care of myself properly and that's why I always feel discomfort. You are amazing and I hope the best for you.

@kiokothecuddlyquailspud1389 3 года назад

I already can't wear them cause of of chronic osteochondritis so basically the cartilage between my ribs become inflamed and hate me. Feels like I've got a vice squeezing me 24/7 and I have to breathe shallow breathes. I can't imagine having to have all the other issues this sweet young lady has to deal with on top of rib pain.

@jazzombi9680 3 года назад

Yeah no I haven’t worn a bra in like half a year cause their way too hard to put on. The kind that clip in the front seem a little better though. I’ve been thinking about getting them

@thedolyn9954 5 лет назад

Yeah, I'm another random guy squirreling through youtube at 3 am and I know you don't need anyone else to say this but hold your head so high! Your absolutley slaying it. EDS runs hard through the women of my family and I see day to day the struggles. With the little things, a dislodged tube. A fall or a trip. And the tremendous pain, my heart truly goes out to you, and let me repeat. YOU ARE SLAYINGGG ITT!! KEEP ITT UPP

@Nexavious 4 года назад

Seeing things like this make me understand just how weak of a person I really am.

@Jomoplays 4 года назад

@SaRah-21532 5 лет назад

I know you purposely didn't film things multiple times, but I think it would actually be pretty interesting for EDS awareness month or something if you filmed all of it to show people how much you actually have to do in a day.

@marilumendoza7038 8 месяцев назад

I miss her videos. I still watch them regularly. I know she is in peace, but I like to hear her voice every now and then

@DefWun 4 года назад

Man,I seriously admire how positive she is while going through all of this. I wish I had half of the positive energy that she does.

@buffoon99 5 лет назад

Just watching everything you have to do, and take makes ME exhausted. You are literally a nurse at this point. Bravo, you are incredibly strong.

@hatstephla1769 5 лет назад

The fuzzy sweater she’s wearing looks so cute and comfortable. I want it

@slyfor2 4 года назад

Dude I'm a Surgical ICU nurse and all I've gotta say is goddamn you are one tough cookie. Your daily care routine is usually what I do for 3-4 patients across a work week of 4 days x12hour shift. The fact that you just nonchalantly popped your hip back in and didnt even flinch says a lot about how tough you are. EDS is one of the toughest chronic conditions out there and I hope every day in your life goes as smoothly as this one. Keep hangin tough dude, you're an inspiration to someone who thought he's seen it all in an ICU.

@lemonsqueezes 5 лет назад

You shouldn't have to rant about why you don't wear bras. Just saying because no one should be noticing that you don't have a bra on because, why? Sorry, I just think that somethings that people talk about is kind of dumb because why should you have to explain yourself for a choice that doesn't hurt anyone.

@MsTRAVISHILL 4 года назад

I just wanted to tell you I really admire your strength to keep moving forward and have the will to want to live. You are very beautiful, you are truly an angel.

@grimmzarakiffxiv6350 4 года назад

Watched to the end honestly your a a true spartan I can’t imagine myself going through this everyday

@l0v3marisa 5 лет назад

At least your finger splints look like badass rings 🤷🏻‍♀️lol

@amandamarie7329 5 лет назад

Girl, YES. Persistent nausea is SO much worse than actually vomitting! I deal with extreme nausea on a daily basis but I rarely ever actually vomit! When it gets bad to the point that any movement, even switching positions in bed makes me nauseated, I just cry that I wish I could just vomit! Ugh!!! Stay strong beautiful girl 💪🏻💕

@Србомбоница86 5 лет назад

I can relate to that,I never vomited in my life,I literally dont know what ti feels like to vomit,but I do have a gag reflex,still I cant vomit,my throat is SO narrow also...so when I get nauseous from my gastritis,I just want to die lol

@airmidia7100 5 лет назад

Zofran is my best friend. Just wish they would give me more than a week supply at a time..

@eldritchm3ow 5 лет назад

Completely different but I deal with what feels like constant nausea from my anxiety and the severe emetophobia (fear of vomiting) makes it 100 times worse for me. But I can't imagine how scary it must be to deal with constant nausea from an actual physical problem. I couldn't handle that at all, with anxiety I know it's caused by my brain but.. you guys are so strong!!

@Србомбоница86 5 лет назад

@@eldritchm3ow my nausea is real and comes from anxiety. Anxiety does cause physical symptoms(nausea, diarrhea,vomiting) ,this is why it must be treated before it gets out of control

@eldritchm3ow 5 лет назад

@@Србомбоница86 Ah I'm sorry to hear that, I know how awful it is so I hope you're getting treatment for it now,,

@rhaziel69 4 года назад

I'm convinced that the strongest people in the world are those who live with serious medical conditions. I've been there for short periods of my life, and it was the toughest thing I've ever had to do. Amy, you are most definitely tough as nails. Much respect.

@vampobsessed 4 года назад

Paul Copeland I 100% agree with this comment. They put a lot of us to shame.

@Christinesobsevations 11 месяцев назад

I’m so thankful to have these videos to look back on . Miss you Amy ❤❤❤

@Christinesobsevations 11 месяцев назад

With the bra they hurt me …. Can’t stand them !

@heysselg.3993 5 лет назад

One of the most brave and independent young woman I had seen in my life. Thanks for sharing sweetheart, you are amazing. I am healthy and I don’t wear bra, c’la vie and I love it! ✊🏻 x

@michellemuskeyn329 5 лет назад

Heyssel K. I am also a part of the “Free Titties Club” lol 😂

@ThePollydoodles 5 лет назад

Ivy the IV Pole :) ha I have CF and in hospital at the mo .. love a good bit of chronic illness video to do my nebulisers to 🤣 xx Polly

@braxtzzdoll9829 5 лет назад

Ivy lee is my choice

@ronwyn417 5 лет назад

I have CF too!

@xmrpaintx1 4 года назад

After watching just the first 5 minutes of this and having no idea about EDS, I find your strength inspiring... thank you for sharing your struggle.

@CaptainPhantom93 5 лет назад

Not sure why you got recommended honestly. I dont really watch videos like this, but I enjoyed seeing what a strong person you are.

@ForgottenLore 5 лет назад

It must be very hard making videos with OCD, I hope you don't feel as if we are judging you. Most of us are here because we want to learn more and also because we admire you. :)

@Rose-qh4qh 3 года назад

I just love watching you. 💯 As a trauma nurse. I'm so inspired by you. Living with a chronic illness such as EDS is not at all easy breezy to handle, but your a trooper! I'm impressed by your abilities to maintain your daily routine and proper techniques to execute each procedure...👌 You are more knowledgeable than a lot of nurses and doctors i know! You keep up the good work. So proud of you my dear! Bravo👏 🙌🙏

@twh9541 4 года назад

For the past seven years I’ve had too many medical issues to list. But at least I have had them one at a time. Thank you for being an inspiration with your positive attitude. I will never complain again. Big (gentle) hug.

@NickMasseyRideon 4 года назад

13:56 I think the finger splits look cool, like jewelry

@tracyvercelli892 3 года назад

Same

@Nimerian 4 года назад

You are a trooper. I wish you strength, resilience and long fulfilling life from the bottom of my heart. This video inspired me to keep strong on quitting my heavy smoking. It's a shame to have a perfectly healthy body and keep running it to the ground from what killed both my grandfathers. I swear I was going insane a few mins ago and was about to go buy a pack until this popped in my recommended for no reason, what an insane coincidence.

@emilyhamilton4536 5 лет назад

I thought your finger splints were rings I was like oh where'd you get those rings

@JordanSmith-om4wr 5 лет назад

ikr that's what I thought I was like ooo those are cute!

@brandi2hip103 5 лет назад

I have Ulcerative Colitis and for the past month in a half I have dealt with nausea. You explained it best when you said "it feels like you soul leaves your body." I agree with that statement 100%. BTW I love watching your videos.

@emilythomas7340 5 лет назад

I have UC too! Not meaning this as a self promotion but I post my journey on Instagram @chronically_emily_ if you ever want to speak to someone going through the same thing you can dm me! x

@brandi2hip103 5 лет назад

Emily Thomas thank you ☺️

@brandi2hip103 5 лет назад

Echo 9970 thank you ☺️

@brandi2hip103 5 лет назад

Emily Thomas just followed you my ig is fyew_doe

@Србомбоница86 5 лет назад

nausea is THE WORST feeling for me,I delt with pain,but there is something about nausea thats horrifing...I have some mild stomach issues,like gastritis and nausea is quite common with it

@lindajedeon9441 3 года назад

You will be missed so dearly 😢😢😢 our heart is so broken I hope Tom and the family are ok you are in our prayers 😢🙏

@NaeKid 5 лет назад

I'm a guy with EDS as well. It's not to the same extent as what you go thru daily, I can function fairly normal. Joints pop in and out (usually painless), I bend in ways most couldn't dream of, walking in the morning can be a chore if I don't do my stretches, and, I have some stomach/intestine issues that are gross to talk about. Yup, that's me upside down in the picture

@natethe9678 4 года назад

You are seriously one of the toughest humans on earth! I wish you the best!

@ats_nigel8860 4 года назад

Its 12am in the states and I stumbled upon your channel shows how life is different for everyone but not so different, I love how strong you are so positive

@chineeandvashee 2 года назад

My hips are hurting just imagining her experiencing dislocations. Watching this for the 2nd time cause I kinda miss her personality, reminds me that we all have to stay strong no matter what we go through

@Turtletech_ 4 года назад

I was home off work today setting up my game room and was watching random things on my pc here while im getting things done and this video poped up. I dont ever comment on anything i watch....for some reason watching you go through all this daily really made me think on how we take so many things for granted in our daily lives. Not that your a sad case if you know what im trying to say.....just that people in general sometimes can be so weak and unappreciative including myself. Keep up the positivism and courage and keep putting out vids they reach people...im proof...have a blessed ride through your lifes journey....stay strong.

@melanievazquez4538 4 года назад

This is the first video I have ever watched from you. I have subscribed. You are a brave and strong girl. I have so much respect for you. I have only dislocated my knee and that hurt a lot but this video makes me look like a crybaby because you deal with all of this and I have made a big deal about my dislocation. I love you 💜❤

@georginajewell8893 5 лет назад

wow what a difference TPN has made to your life, you look so good now sista compared to a couple of years ago! you look great xx

@shawnwacek6791 5 лет назад

She kind of keeps me from going insane when I get sick and have to go and do a bunch of stuff at doctors offices just had good news from the doctor hope you taking more meds so happy

@yourdailyjava 4 года назад

I have a really bad habit of avoiding to eat because I'm lazy and I drink something instead, but now I feel like I should be grateful that my digestion even works... you're so strong and inspiring, I wouldn't be able to be as strong as you and endure living the way you do!

@maishasadiq9715 5 лет назад

Your so extremely brave I couldn’t imagine what I would do I already suffer from depression and etc and I struggle to keep up with my injections and medications i love you, you inspire me so much keep going ❤️

@Qwertqwerty010 5 лет назад

Maisha Sadiq Jesus Christ is willing and able to heal you and set you free if you allow Him to be your personal saviour. It’s a personal choice and a decision only you can make. Knock and He will answer. God Bless ✝️💛

@dasausyman5954 4 года назад

I don't know how you showed up in my feed. but YOU are an absolute badass.

@kiokothecuddlyquailspud1389 3 года назад

I'm not sure why youtube suggested your video but I really needed this. You are absolutely incredible! I live with severe arthritis, fibromyalgia and osteochondritis and on most days I feel like I'm trapped in my own hell. Doctors here in America won't give me the medications that work to make me functional so trying to stay positive is so incredibly difficult. You are absolutely amazing and I may not be going through exactly what you are I am so proud you for at least trying and pushing to take care of yourself ❤️

@lottiatbeaniecodesigns4681 5 лет назад

Bless your heart Amy, you go through all this with a smile 😊, you’re incredible 🥰🥰🇬🇧

@LukasDubeda 4 года назад

Jesus... I'm never, ever going to complain anymore. O_O Incredible, unbelieveable. You're a hero, Amy. Keep it up!

@ThatsMrsApriltou 4 года назад

I had to like this video whew child it’s a full time job just taking care of yourself.

@linnsoltwedel 5 лет назад

As a nurse I se money with all the things you use a day, and that is ALOT! I hope you get some of it for "free", but I can imagine things being very expensive!

@emmagaie 5 лет назад

It still blows my mind that some people think you're faking all of this, you mentioned it one day and it has stuck with me every time I watch your videos! Insane what you go through every single day

@MsYolandalee1991 5 лет назад

Gemma people are ignorant!

@BariAdams 5 лет назад

It blows my mind that people throw acid on women regularly in some places, but it happens. The fact that you cannot fathom something isn't a good reason to decide it doesn't exist.

@tomkitchen2764 4 года назад

What a terrific person, Amy deserves everything good in life

@Cloroqx 4 года назад

You are an amazing woman. Keep on fightin' the good fight. We need more people like you out there!

@brittanybrandywine6629 5 лет назад

My daughter has a g tube. She's only 11 Months old so I can't ask her about it but I have some questions if you don't mind me asking! 😁 1. Why does it bleed a little overnight? 2. Is laying on your stomach uncomfortable? 3. How do you feel about your tube? (Appreciative, embarrassed, etc) Thanks ♥️

@liv4love-22d8 5 лет назад

Brittany Brandywine I'm not her but the only one I can guess is it bleeds because they had to make a hole for her feed tube. But again I'm only guessing

@brittanybrandywine6629 5 лет назад

@@liv4love-22d8 yes I know but I was wondering why it only bleeds overnight. I'm guessing it gets pulled or rubbed on too much which doesn't sound comfortable😞

@liv4love-22d8 5 лет назад

Brittany Brandywine yes that's what I meant to say sorry.

@brittanybrandywine6629 5 лет назад

@@liv4love-22d8 no need to apologize 😊❤️

@kellyd.pinon-dill6707 5 лет назад

I have a tube for 10 mons now an mine bleeds only at night if i lay on it or if it gets cought on my clothes an yes at first it does hurt to lay on it an i have a kimberly clark, which is a 2ft tube that i make belts for to hold it around my waist to make it comfortable for me. Im on an 18hr drip, i have Ehlers Danlos an Gastroprasis an i have seizures an i have a damaged vagas nerve making me have muscle spazum problem with my throat so i cant eat, i cant swollow........Hope this helps!

@victoriatucker6271 5 лет назад

You are your own nurse. 👍🏻

@toefingers6883 4 года назад

I have chronic kidney disease, i was diagnosed at 8 years old with medullary sponge kidney. i get lots of kidney stones (they hurt like hell) and constantly getting kidney infections, Nearly killed me once with an infection it started to spread around my body but luckily was admitted to hospital and i was put on intravenous antibiotics and was out within 10 days. After watching your vid i kinda feel lucky it could be worse. Stay strong and remember there's always someone worse off, well thats what people used to tell me. I really admire how you are handling this, i know its difficult, it's okay not to be the perfect sick person. sometimes it can be a lot of pressure to "be strong" or "fight hard" even when you are feeling sad and weak.

@tatummclaney1403 5 лет назад

i also have eds, etc and i love your videos!💞💞

@wytemamba9219 4 года назад

So beautiful n positive an amazing woman..

@KatimaGaming 4 года назад

Gesus, I wake up every day with joint pains cuz I'm overweight. Yet here you are potentially dislocating everything and not bitch about it. You are truly an inspiration and I have taken my life for granted!

@CallumSk8er 4 года назад

you can change it though mate

@KatimaGaming 4 года назад

@@CallumSk8er definitely! Working on it!

@maddiefern1267 5 лет назад

I named my pole Eileen :) Because it was on a lean haha

@txrnursebsn8974 5 лет назад

Maddie O'Dwyer that’s the cutest...🎼”come on Eileen...too-rye-ay come on”🎼

@maddiefern1267 5 лет назад

@@txrnursebsn8974 That's my song now haha!

@txrnursebsn8974 5 лет назад

..@Maddie O’Dwyer oh, I love it! ...& you should think about signing your name with a flower! You’re surviving the rain but using it to grow & sharing your beautiful spirit with the rest of us! Such a joy & inspiration for all! 🌺🌷🌸🌹💐🌼

@aileendiazdeleon2485 5 лет назад

omg thats my name! 😂 i always tell my mom she picked the right name for me because i tend to lean on everything

@wiamyoukhana768 4 года назад

She is a tough gal, I wish her luck.

@kitkat44885 3 года назад

The hip going back in made me flash back to the last time my shoulder went out. (I have hyper mobility and my shoulders go out sometimes my knees used to as well) You really are one tough cookie!

@battnotinclud 4 года назад

Name the pole Janet. "Damn it, Janet."

@razmcclean2742 5 лет назад

More day in the life videos please :) loved this one.

@nancydrew1882 3 года назад

Wow! I’ve never seen anyone with so many ailments. To boot, you’re helping yourself and keeping track of your treatments and maintenance processes. I’ve never heard of eds until I stumbled in your video. I’m very amazed and inspired by you. My son has a disability and I’m working on teaching him to be as independent as possible. I don’t mind helping him till the end of time but I realize that being independent does so much for a disabled persons self esteem as well as their navigation of this oftentimes intolerant world.

@bethhanley6761 5 лет назад

I am so impressed by you! My daughter has CF and she has a gtube we watched your video. She said "mom that looks like mine" She wanted me to ask we're you got the tough 🍪 tube pads? She would love them💕. Every strong person she see is so helpful Thank you

@kellyd.pinon-dill6707 5 лет назад

Etsy! just search tubie pads

@haydenespen 5 лет назад

Hi Amy, my name is Hannah and I have Crohn’s disease and EDS, I can’t eat food like you and I need a feeding tube as well, I’m only 12 years old so I have to stay at the hospital to do this, I am a mess from all of this, I had an emergency surgery where I got part of my intestines flipped and got the intestine on the out side of my stomach so I need a bag for it and I will have it for the rest of my life, I want to die sometimes, my stomach is basically paralyzed is what I describe it as but I’m so sorry you have to go through this and I understand, I take so many meds and I am in the hospital constantly because sometimes my bones dislocate in the middle of school so I am now homeschooled and it is so hard but I’m getting through it. I have 4 ng tubes down my throat and it hurts like hell but I’m ok. It’s helping but I am so so sick all the time. I was in a mental hospital for multiple weeks from self harm and trying to kill myself, im getting a little better but yeh.Bye Amy I love you ❤️

@JJ-yf9oz 5 лет назад

Thank you for not giving up, stay strong❤

@oliviaduggan7577 5 лет назад

Awww!! Stay strong! 😇🥰

@haydenespen 5 лет назад

Aww thank you guys so much

@nnnnn1610 5 лет назад

Bless your heart. I just want to say I think you're doing really well, esp at such a young age. It's ok to not feel strong sometimes, it can get you down when your body stops you from doing what you want, it's frustrating as it's your body right, it should do what you want it to do(!)... Just be kind on yourself - All I can say is be proud of how you're handling it, remember the good days and hold on to those, so when there's bad ones you can remind yourself it won't always be so bad. Breaks my heart to read you're that low sometimes, I'm older than you and if my child felt this way it would painful to hear - make sure you talk (to parents esp) on those low days, whilst they aren't walking in your shoes, they'll give you a big cuddle, show you how loved you are and help support you through X. Both you and the young lady in this video are amazing, remember that x

@haydenespen 5 лет назад

Nic aww this is so sweet I am legit crying

@stefaniastefanescu6511 4 года назад

You are beautiful and so so so so so so strong. Keep doing your thing. Do not listen to what negativ people are saying or writing. You are 100% perfect . Remain strong!!!!! You are such an amazing person.