♡ Morning Routine with Chronic Illness! | Amy Lee Fisher ♡ 

I do too, she inspires me not to give up. :) God bless everyone who has to go through this or any other chronic illiness!

Same...ya just never know what others are dealing with. It's so easy to drowned in our own self pity. I need to practice gratitude more for sure.

Analyz Gmz I was thinking the same thing

Don’t let someone else’s suffering take away from your own suffering. We’re human. Everyone feels things. “Saying you can’t be unhappy because someone has it worse is the same thing as saying you can’t be happy because someone has it better.” It’s all about perspective.

Everybody has problems. We all feel different about different things. So don't worry, don't feel guilty..

zebralover1217 I am a nurse too and thought the same thing!

I was thinking the exact same thing, incredible organization and your sterile techniques is fantastic! You’re an inspiration.

Excuse me.. What s the name of that illness

@@khadijamihrane7576 she has Ehlers Danlos Syndrome as well as other genetic disorders

zebralover1217 I was never a nurse but I worked in home care for 2 years. And she does so much better than some parents and home nursers. Very much impressed.

Zaryna Girasol she’s in Australia where healthcare is free 😊

no it dose not she only gets money if she has a sopnser

@@amzybabes193 Oh really? That's wonderful , in my country it is very expensive :((

Zaryna Girasol i can imagine. UK and Australia are very lucky x

@@amzybabes193 And Europe 😊

Leonard Robinson yeah I was thinking the same thing

Don’t let someone else’s suffering take away from your own suffering. We’re human. Everyone feels things. “Saying you can’t be unhappy because someone has it worse is the same thing as saying you can’t be happy because someone has it better.” It’s all about perspective.

the slightest things are important too. you may think that they aren't after seeing this vid but you don't have that illness and every person is going though their own problems. so yeah small probs matter too either for mental health/happiness or physical appearance

Same here .. I thought I had it bad my son being born last monday n me getting let go from my job on Tuesday out of no where.. after seeing her n how strong she is I wont complain again

Did she dice?

@@rosaliagil5694 yes

OMGGGGGGG SHE died???!!! Omgggg noooooo I used to watch her for yrs

@@michellem8751she died last year 04/01/2021

@@elfsj5939 Can I ask how she died? Did she die of this? They suspect I have gastroparesis but I can't get any further workup until October. I'm still eating, but in pain a lot and following a low FODMAP diet, which seems to help some.

Trekkifulshay me too! I wonder where she got it and if I can buy one with locking drawers. #kidsafety. If not I’ll lock it in a closet, lol. I’m new here. Was your name Amy, OP? Where did you get it, zebra friend?

Its a medication cart. You can buy them from medical supply stores.

SallyG May It’s really is, plus that doesn’t include all the medical phone calls scheduling appointments and staying on top of insurance issues/referrals and appointments and testing. It’s honestly exhausting and if you’re not super organized and stick to a schedule then you feel like you’ve gone mad and at times feel like pulling out your hair.

Except jobs pay you.

Yes it really is - I live with a before birth-to-death disability (plus other health conditions), I heard a saying last year "living with disability (and/or chronic illness) is like having a fulltime job, that you cant clock off from"..and it is so true. Your necessary daily medical routine etc, plus the aspects CailinMarie mentions above regarding all your appointments, therapies, tests etc, and the paperwork - you really do need to stay on top of it all, to keep your life (and body) running as well as you can.

SallyG May yup it sucks

SallyG May My ex’s lawyer would agree. Then argue that I should go get one since I’m so “able”. 🙄 It touched me when I saw so many supporting her needs. No one said “why aren’t you going to work now?” She took care of herself all day. It’s her job. Sounds like people get that.

Patricio Cantú in Norway, 90% of that would be free, I love my country

THICC Chungus in your country you’d be waiting 2 months for each of these things, I love my country

Garkillack - no ofcours not because without that gear pepoel with that condition would die

She has explained in previous videos that quite a lot of it is paid for

In America if I had to use any of this i would die

EvasaurusYT BRUH !

Fr 😓

Same

I don't think she means this as a sad thing I think it's a way to get her story and what she has out there so others don't feel so scared or depressed or whatever emotion they're feeling. I'm proud of her that she's moving forward yes it seems scary but I think she means this as a way of showing how she just goes about her day with a illness that's painful idk how she does it but she's a queen

Oh no ! Don’t let this break your heart . This is our lives and we are proud to love it and live it . We just want people to understand us 😀

😭

🥰

She died!?

@@opreanandrei3146 yes she died

That is so sad, what a sweet young lady.

I take three at night and I'm always moaning because of it but now ...I feel so stupid.

This is probably a bit late but I just wanted to say that other peoples problems and situations do not make yours irrelevant. That's something my therapist told me when I told her I felt self conscious about taking antidepressants, pain killers, muscle relaxers, and other forms of medicine. Sure, Amy's life seems difficult but dont downplay your own struggles and compare your life to Amy's. I hope this helps somewhat :)

@@Sam-rr6hf yes I know that, everyone have their own journey, thanks for your words!

@@flowerpinkvibes no problem!:D

Same I take 5 every night

What is TPN? I dont understand english good so can you tell me what illness is this? Thank you.

TPN means total parental nutrition

Vlada TPN is the formula/ nutrition in the bottle. She has Ehlers-Danlos Syndome with gastroparesis, POTS, etc. that usually comes with EDS.

Elise go to med school

My thoughts exactly! She does a better job at me staying sterile ..im still learning! I believe she would make a great, safe nurse.

Chloe Crownover i started getting sick in HS as well, almost 40. pm me if you like

@@gboneske I'd love to hear your story! Not quite sure how to PM though😂

that sounds like a cool video!

Bless your heart. I hope things become easier

Chloe add Geri as a friend in your inbox area then you can private message

a lucky accident hahah x

Me to

I am surprised you don't get your meds prepackaged l always spent a few hours a month sorting mine now they are prepackaged and l can take them easier.

Unfortunately as she is chronically ill it’s not possible she can get a little better or worst no 100% recovery unless a cure is found

Alisha you would do it because you would have to . We all started out without lines and then we learned adapted and adjusted . It’s part of the routine we just want you to understand how we work a bit of overtime to get it done

Same 😕

Same here bro. I hope her precious soul rests in eternal peace. 😔❤🕊

Yepp. every day and here and there her videos pop up. RIP again Amy. Take care everybody.

Wait has amy acually past away and aww she was my fav RU-vid

@@Sophie-kc8yu Yh she has unfortunately

same

Same

Same....

Exactly same

Same

She most likely has Hickman cath for TPN..infection can occur..she does a great job❤

Did she die from infection in it like Jacquie?(sp)

Check out her vlog channel too. Amy's Life. I found her channel.a couple years ago and started watching and then I found her vlogs and was in heaven. :)

@@the1mrsmalinski136 i have been watching those, thats how i found her channel

Actually I think they're just wondering when she took a bath cuz I was wondering the same thing. I wouldn't have down voted someone because of it but it may be a reason.

People are always going to have something negative to say or do. But you're right, she truly is an inspiration! 😊

@@EvilAlyssa why tf would ppl expect her shower or bath to also be on video? Ppl really are putting stupid sauce on their food or something. Weirdos. Smh

Why don't you tell her the gospel , since your saying lord what Lord are you talking about

@Ella Sparkles yeah to people like you salvation and damnation of people's ETERNAL souls , is a joke to you , you know why cause your not born again in the holy spirit of King Jesus Christ, calm down , why so you can San say , lord with no actual Gospel , HOW CONVIENIENT FOR YOU

@Ella Sparkles my life is in King Jesus Christ, where's yours m.ru-vid.com/video/%D0%B2%D0%B8%D0%B4%D0%B5%D0%BE-y8aIS-dhU-s.html 🎥 Justin Peters: Clouds without water - False prophets - RU-vid

Christopher1 bernal I wanna go to hell lucifer seems nice

@@morganhenry4826 m.ru-vid.com/video/%D0%B2%D0%B8%D0%B4%D0%B5%D0%BE--1nCYwHt_20.html 🎥 Charles Lawson -HELL FIRE!! POWERFUL SERMON - RU-vid

She teaches us that life is what we make it. ❤

She’s definitely an inspiration to looking at things in a more optimistif light, but please don’t compare your struggles to others. Your problems are no less significant 💕

*optimistic

Rach Violet Your struggles are valid too. Just like mine. I have CRPS so I live with daily chronic pain as well. Stay strong, love! ♥️

I have chronic pain from bone erosion, I'm on a shit ton of muscle relaxers that dont work thanks to the pain killer overdose epidemic... how the hell did you get pain killers?! Lol I'm 22 in a walker 😂

Its horrible tbh

Sounds disgusting

sprite cranberry??

I was thinking the same, I love raspberry!

We have raspberry coke in nd in a glass bottle and its soooo good.

Thanks to GOD forever. In Cry in Laugh. Life is so bless for us

Young lady you are strong

Technically nurses do these things usually

@@lMissC3 that's precisely why I'm so impressed 😊

*nurse

Yes of course ❤️❤️

I agree with you

She died

I think she is very good

At least she's still living her life despite of it. Shows how much we take for granted. Gone are the days when people with these illnesses just sat at home and waited to die.

@@ricog8209 hi, Rico g I have been reading what you said and it is quite true so thanks stay in touch Cheers Vanessa

I am sory but i need to ask you,what deseise is this cuz i don't understand english good...Thank you...

@@vladapetrovic1644 She has Ehlers-Danlos Syndrome, which causes a lot of other issues like her gastroparesis/intestinal failure. She also has POTS and several other various conditions.

charlotte smith somtimes! But I can’t live my life fearing little things like that, I just do my best to be carful not to catch them on things

same here i feel the same

charlotte smith omg my stomach hurts thinking about it ripping out

@@maxhampter2283 you can't rip the whole thing out. It would just disconnect if caught on something. Nobody will walk up to her and yank on the tubes.

ladydmethify Not entirely true. I have a friend with Gastroparesis, a classmate yanked on her feeding tube. It caused a lot of issues and she had to have the whole tube replaced.

هي اي عندها

Yea she as a fighter :(

RIP mean is she died?

@@Miniflower25 yes. She died around 3 months ago 🥺😭😭

She was a warrior who was sadly taken far too soon. 😭

Street Rossi what did you get amputated I might have to get my toe amputated

@@adalimagallanes3665 i had my big toe amputated, its not that bad.

May God bless you! 😊

Adali Magallanes did you end up having to get your toe amputated? :/

paradox-fox yeah, i know how you're feeling, being midst diagnosis can be really stressful, especially with a chronic illness but it really is not the end, your life may change but it doesn't limit you, it can actually make you appreciate life even more good luck, i know you can do it, whatever your results are

Hi! I have crohns! I was diagnosed at 16. But I have been having symptoms since about 15. Some weeks it was sooo bad that I’d miss school for a week to 2 weeks because of how bad I felt. I lost 15lbs each time these ‘episodes’ would happen. Couldn’t eat one thing, not even rice, crackers, bread... My gastro put me on medication to see if it would help at all but it didn’t after a while and a bunch of medical testing (nothing was showing) so I got my 1st colonoscopy. (Very annoying thing to do hahah 0/10 recommended).After finally being diagnosed, I transferred to a pediatric gastroenterologist at Children’s Hospital of Philadelphia. I was on pills for a long time which didn’t do anything for me. Then I was put on steroids which made me gain a crappp ton of weight (on top of the 4 other pills so like 11 pills a day but I was slowly leaning off the steroids). Steroids didn’t do much for me so then I tried multiple other medications, still nothing. Now I’m on Remicade which is an infusion. I also get iron infusions sometimes because my iron gets super low. About a month ago I had my 2nd colonoscopy and 1st endoscopy and the results were good! Everything is going smoothly except for one part of my colon that was inflamed but it’s okay. I get my infusions every 6 weeks and I’m not on any pills (finally omg) It honestly ruined my life because I was planning on going into the military but with a chronic illness I really couldn’t. I’m only 18 now and I’m a criminal justice major planning to become a police officer, so I hope everything continues to go as planned. I still have symptoms of course, just not as frequent and as painful. It’s going to be hard but keep your head up. If you have any questions I’m more than happy to answer!

I've got crohns as well, but luckily I'm tube free.

Samantha Masciulli you don’t really take pills with crohns unless like iron or some other thing that goes with the infusion or the pill would probably be it’s own medication instead of taking an infusion that’s from my experiences after going through like 6

Do you have it? And how are you doing now?

Jung kook kim

Army

Oh mY gOd. ArMy. no one cares-

She has a vlog channel too. It is called Amy's Life. Check it out. I got hooked a couple years ago and haven't looked backed. She is a sweetheart and has such an amazing personality.

Me to- all that takes up 1/2 her day

amal zaini Your struggles are valid too!

Gabriel love 🌹🌷🌷🌷🌷

True

You're so strong😍💕💕

stay strong michelle!!!!!!

I have Fibro also.. I have really been struggling since the shutdown because of a lot of really drastic changes. I could have never anticipated how severely it would affect me. It’s been one flare up after the other for the last several months and it gets really overwhelming. There’s been some REALLY dark times.. but you just have to keep going, right?

@@princessangerloo5905 most definitely 💟💟💟💟💟

I too have fibromyalgia (I experience sciatica backpain and intense headache)...I take 3tramadol for lower backpainand antidepressants for headache....may I ask you ,what medicine you take?

Sumaiya Khan I’m not sure if you’re asking me or her but I will tell you anyway Lol I also take tramadol, and hydrocodone for pain. I take a low dose of Ritalin for the chronic fatigue. Otherwise I would be so fatigued I wouldn’t be able to function. I have opted not to take an antidepressant because of the terrible side effects. Although there are still some side effects with other meds.. one thing that has made a HUGE difference for me is I started taking Glucosamine Chondroitin. It has helped immensely with the overall ache in my body. I do Myofascial Release therapy that also makes a big difference. Regular massage can be helpful but it’s not really what our bodies need to release the muscles from spasming. Hope this is helpful!

@@princessangerloo5905 thank you very much...I was asking both of you....I took screenshot of your comment n will search about your medicine ....I also take massage... thank you very much dear

Yes as a nurse myself..she has a great routine!

@sky not saying No I do not work in these areas

Wow that's so young to get a heart attack ,do you know why you got it ?

Wow glad you’re ok! Wondering the same thing!

I don't understand 1 think ,why clean healthy people get sick ,and people who live in slums r healthy

raj patel maybe bc sick people would just die somewhere without healthcare rather than get the chance to live w their sickness?

Life of Saxon ????? Who ruined your day?

Aren't you a little oversensitive???

wenceshen : Unfortunately most Americans have been conditioned to be overly sensitive and offended by every little thing🤔

Sam Bell bruh can you shut the hell up

Clare ʕ•ᴥ•ʔ oh no you didn't

Amanda z tbh I’m sure she’s also mature enough to know people are just tryna he nice. No one here is trying to be patronising! They’re all light hearted genuinely kind comments. Don’t be so dramatic. Also she doesn’t really look like she needs /help/

Amanda z honestly i

@@miaandthe50dogsandcats87 It's more about putting yourself in someone else's shoes and having empathy without having to emphasize how difficult their life is. It's possible to give positive comments without having to include something about how much more "lucky" you are. Nothing to do with being dramatic at all.

Disabled person: Exists Ignorant people: I am literally so glad I'm not you 💘💝💖

@@technicolorbarf6734 😂😂 it's the truth tho

I saw this done and it worked amazingly. So cool to watch. But then I tried and it didn't work for me. I was so sad

Heck, I just dissolve my pills in a measuring cup with water and stir it up, Then I use my syringe to put the mixture into the tube.

What does a pharmacy tech do?

Nada Luqman prepare prescriptions , bill insurance, gather general information about a patient, answer the phone , screen calls for the pharmacist, stock pharmacy, compound meds , order new stock get rid of old stock . If in a hospital fill IVs & med carts .That’s really it . Some people don’t do half of that , some do it all , some never have to fill a prescription. It all depends on where you work .

Shara Lei Thank you for the info and, good luck.

If you’re taking the PTCB soon you should probably take it before the year ends, the 2020 update is going to be much more medicine heavy and harder.