10 things I wish I knew when I got Coeliac Disease || HOW TO COELIAC 

I was diagnosed with Coeliac disease in march this year, and I'm 13 years old. I'm so glad i wasn't diagnosed later in life, where it would take longer to heal and could come with more severe health problems. I was severely iron deficient due to the damage done to my intestines and not being able to absorb my nutrients properly (that's what my doctor told me, anyway). one thing that I wish I had known sooner is that glucose syrup is gluten free, even if its derived from wheat, because its so heavily processes, same with dextrose. at first, I had been looking at so many foods (especially candy) and seeing that they contained glucose syrup from wheat and being really upset that I couldn't eat them. but it turns out I can!! it definitely has gotten easier over time, and I'm beginning to get less upset when I find out I can't eat something. I figure it's more about the mindset. my mum tells me I shouldn't focus on what I CAN'T eat, but rather what i CAN eat. to anyone who just glt diagnosed... it gets easier, I promise! it's not the end of the world. If I can get used to it, you can too 💕

I’ve just been diagnosed 2 weeks ago and it really feels like the end of the world. I know it isn’t and luckily I know a couple of people with gluten intolerance and a couple with coeliac so at least I’m not alone. But! The having snacks at all times thing is so important so far, but I’ve found I’m eating less healthy snacks because of all the stuff I would rely on eg. Cereal bars, a sandwich on the go, a pasta pot from boots.

In most patients, the only proven safe treatment is a strict lifetime gluten-free diet, which contributes to intestinal mucosa regeneration, improved symptoms, and lowers the risk of contracting complications. If left unchecked, it may lead to cancers like intestinal lymphoma and a significantly higher chance of dying young. Thank you so much for making this detail available on the internet! God's blessings!

Something I would like to let people know is the endoscopy is not bad at all! I was super nervous for it and I did okay :) but do NOT breathe when they give that throat spray it will make it taste better

I am lactose intolerant, milk protein allergic and recently was diagnosed with Coeliac as well. I can't eat much, but what I can eat, I am so thankful for. Thanks for the information!

Thank you so much for the information, it’s really a headache having this disease😢

As a strict gluten free diet lifestyle for 20 yrs, your advice is spot on. The most important point that gets overlooked is the cross-contamination!! This is the game changer for best health. Also, once started on gluten free, consider using natural supplement MSM to heal intestinal tract. MSM heals and repairs on a cellular level!! My recovery took about 10 days to feel positive difference in my health. I was 50 then, am now 70, best health ever!!

Hi! Could you do a video where you go round to a friend without coeliac diseases house, look in their cupboard or a fridge and show us what you could or couldn’t eat? I just think it would be quite interesting 😊

I just got diagnosed and I bet I was cross contaminating myself with my cast iron pan! I was feeling sick on different meals. And didn't understand why! OH! Great advice thank you :)

I’ve had celiac disease for over 15 years, I’m now lactose intolerant. Lactose intolerance feels like I’ve been accidentally glutebned, it has the same symptoms. Bloating gas, diarrhoea nauseous, body pain,fatigue is a big one. I now understand why my tummy never goes down. This happened two days ago after eating GF ice cream , which I’d eaten before. 🤷🏼‍♀️ I think it slowly catches up with you , just like celiac does. 🤔

I just got diagnosed with Coeliac disease today so this was a really useful video - thanks! I actually really enjoy a lot of gluten free foods already so I'm sure I'll be happy on a gluten free diet. My main concerns at the moment are: 1) The endoscopy. I'm not very good at swallowing pills I can't imagine how I'm going to feel with a tube down my throat...eek! 2) Just forgetting. I think I might put a sticky note on my bank card so I don't buy things I can't eat. 3) Finding cheap gluten free alternatives to couscous and bread.

Great vid! love it keep them up

Awesome video. I learned a lot. You're good at this informative video making thing :) Thank you!

Great channel, thank you! My sneaky or nasty unknown instigator was stock cubes in gravies!

I'd love a video on coeliac in Japan (for when we can return!)

Literally crying watching this living in poverty with a 9 year old who was just diagnosed and he’s really sick. How can I afford that food, new utensils etc just for him? I’m so overwhelmed but this has been so helpful! I wouldn’t even have thought of chopping boards etc!

I discovered I'm coeliac when I was 9years old, had lots of health problems till I went to a better hospital almost dying and got the duodenal endoscopy with biopsy and lgG/lgA tests.

Please make a video on how to talk about your disease!

I'm from Argentina, oats are contaminated here as they are processed on the same spaces as wheat. Careful with that if coming here ; )

Good advice. Indicators on blood test reading high, and severely anaemic 🤢🤕 - got the endo+colonoscopy in a day or so😐 Have a bad feeling it started around 10-20 years back but hope damage is reparable (especially neurological) - Brain fog, depression, ibs, gas, lethargy and very low BMI are far more nasty than any financial cost or hassle of avoiding gluten 😥😭 Frustration doesn't even begin to descibe it.

In Argentina supermarket oats have gluten. You may find some brands online that are labeled Gf (sin tacc) but those are really expensive and hard to find

Love this video, my 9yo daughter has recently been diagnosed as celiac, we are starting gf over the next few days, i will get her to watch this video tomorrow, so she hopfully feels a little more in control. Going to spend the weekend decontaminating the house and getting rid of all gluten, so worried i will accidentally make her sick. Its such a big life change for a child, when i first explained to her she had celiac disease she cried for 5 hours straight 😢! Your video is so informative inreally hope it helps her.

Luna bars are gluten free and they’re so good!

Honestly at first it's okay to not go all in because this could be extremely difficult obviously you should try to eat gluten free but it's hard to go from eating gluten to just completely stopping. You'll get the hang of it eventually. I also find trying new things exciting food that I can have free from pain

I got diagnosed 3 days ago and it isnt hard for me to eat gluten free diet BUT its hard for me to stay patient. Bc i want to get rid of my symtoms fast!

Simple version oats are processed with wheat

Ginger hot tea helps with symptoms after contamination

I looked at the bottle of Bloody Mary mix (after I finished drinking one). WHEAT was listed as an ingredient. ZingZang Bloody Mary mix.

I have been a Coeliac for almost 25yrs now, I was lucky because I had a new doctor and his son was one so the doctor was on the ball because it only was just being recognised, you didnt get anything in the shops you got your Bread on a Drs Prescription

I was diagnosed 20 years ago

for the love of link make a video about gluten free eating in tokyo, please

Could u please make a video on how to talk to other people about your celiac disease and let them know what it is and how it is please

Sis do u suffered from insomnia during celiac if yes how u tackled to the situation pls reply🙏🙏🙏🙏🙏🙏🙏🙏🙏🙏🙏🙏🙏🙏

I felt good in 2 days

i was NOt Celiac Patient and i Never Had Lactose intolerant.., i just got it 5 Years Ago. i am So Much used to Eating And Enjoying.. But Now Been 5 yearsssss,,,,, Got Celiac disease and Lacrose intolerant.

In argentina, oat is not gluten free

I’ve made a sourgum beers

Oats are not gluten free for the most part, also other cereals can be a problem for me also. For example I can eat some small amount if maize (sweetcorn) but if I ate a lot then I will have mild symptoms of eating gluten, I think some of the proteins in maize are similar to gluten (even if not), either that or they're contaminated. ;-(

Can you make a video about foods or recipes that are gluten free?

I only took 2 weeks

How did everyone get to keep their hair with celiac?? I’m struggling more every day :(

Paper straws apparently have Gluten in them

Home cooking is easy, but eating out is soul-destroying. 😅

Cross contamination

I don’t want my kids to go thru this 😢

All grains have gluten, including corn and rice.

Oats not usually good anywhere

Meat, animals eat barley, wheat and oats when glass low or something to eat. So you need make sure it states gluten free on the meat sticker. Doesn't matter wear you buy if from eg supermarkets, butchery.

It's easier to say grains and seeds. Anything that is a seed or comes from processed seeds can trigger severe symptoms. This includes way more things than you might think.

Oi, all soy sauce is gluten-free, the gluten is hydrolysed in the fermentation process

Wow you are cute.

Between your accent and the extreme speed with which you talk it's difficult to understand you. Hope you're doing well.