Your tips are very helpful and informative especially in the world of computers which do put added strain on the eyes. When someone receives their diagnosis from either their parents if a child, or Specialist they may also go into denial for many years as they may only suffer from one or two symptons to start with and believe the inevitable will not happen. RP is progressive so whether you are a parent or someone who has just been told they are a sufferer of RP dont be afraid to reach out and obtain as much information as possible as there are people that can help with support and guidance. Remember someone has been in the same place as you are now. We all pray that one day a cure will be found xx
Me and my wife have just started our journey with genetic counselling. We have been seen 2x now at Northampton General have have had our options explained for family planning etc and have given consent to start the process for IVF / fertility.
