Day 1 - Part 3
Roundtable: Sanfilippo Awareness on TikTok (0:05 - 25:27) | Noelle Pacl [Parent of Child with Sanfilippo Type A | TikTok Creator, @Love_Logan07]; and Jennifer Sarkar [Parent of Child with Sanfilippo Type A | TikTok Creator, @IAmMrsNesbitt]
Roundtable: Fundraising, Empowerment, and Community (31:00 - 1:01:47) | Sara Burroughs [Parent of Child with Sanfilippo Type A]; and Jason and Theresa Wacker [Parent of Child with Sanfilippo Type A]
Connecting Life & Science: Sanfilippo Type B (1:05:35 - 1:57:44) | Valerie Byers, Becky Jordan, and Julie Koch [Parents of Children with Sanfilippo Type B]; Elizabeth Jalazo [Assistant Professor Genetics & Metabolism at University of North Carolina]; and Michael Przybilla [Assistant Professor, Department of Pediatrics, at University of Minnesota]
Day 1 Closing (1:57:45 - 1:58:47) | Glenn O’Neill [Co-Founder and President Cure Sanfilippo Foundation | Parent of Child with Sanfilippo Type A]
4 окт 2024