Every parent dreams about their kid’s future and watching it unfold. Sanfilippo Syndrome takes all that away, replacing it with pain and suffering. The child experiences severe dementia and typically dies in their mid-teens. All before their parents eyes.
Cure Sanfilippo Foundation architects and funds cutting-edge research to accelerate discovery of a treatment or cure for Sanfilippo Syndrome so parents can dream of their children’s futures again.
Help save children.
Learn more and donate: CureSanfilippoFoundation.org/
I'm not even a mom, and made me cry a lot. It's recommended on my yt, but I hope that everything is better ❤, and I really love that the parents were hoping and praying the best for her and her life. I wish my parents are like that, they wouldn't even care. I hope she's doing so well, I'm a little bit of a drama queen, so if anything happened bad, I'm gonna go insane 😭. Literally this made me sad and happy at the same time
I feel so bad for the people in the U.S, Over here in the UK we don't have to pay for this, no hospital bills, NOTHING. It's disgusting how the U.S makes them pay to survive, truly heartbreaking.
Since I don't know English in its entirety, I went into the video believing that it was a sad resolution of a call announcing the death of his daughter, I sighed with satisfaction that it wasn't that. 🥲
Again: Why just you don't just make your health insurance companies public and responsible for your lives? Choose politicians that solve your problems, not orange 1d10ts!
PRAY WITH ALL OF YOUR HEARTS AND HE WILL HEAL THE VIRUS FROM YOUR DAUGHTER AMEN PRAISE THE LORD HALLELUJAH AMEN AMEN AMEN AMEN AMEN AMEN AMEN ❤️❤️❤️❤️❤️❤️❤️🙏❤️🙏❤️🙏❤️🙏
I agree with you. There are only a couple of times a man should cry in public, one is at his mother's funeral and the other is when it is something like this effecting his children.
I think it’s so strange for people to be going through something like this, but have the thought to record their reaction… this is between you two, not for the entire world to see
My sympathy to anyone who has to go through something like this. I've had to say goodbye to my son I know it's not easy what so ever. I hope the best for the family
Still no cure for Sanfilippo Syndrome. This video is 8 years old. Children with Sanfilippo type A lives 15 years on average with standard deviation of +/- 4 years.
