Day 2 - Part 3
How to Participate in the Science Beyond Treatment Trials (0:10 - 37:22) | Cara O’Neill [Co-Founder and Chief Science Officer, Cure Sanfilippo Foundation]; and Thomas Blanchard [Director, University of Maryland Brain and Tissue Bank]
Updates on Active Clinical Trials (Part 2) (40:24 - 1:21:34) | Lynda Polgreen [Assoc. Prof. of Pediatrics at Geffen School of Medicine, UCLA, and Investigator, at The Lundquist Institute]; and Ralph Laufer [Chief Scientific Officer at Lysogene]
Parenting Siblings of Children with Sanfilippo (1:30:03 - 2:13:00) | Kenneth Phelps [Associate Professor of Clinical Psychiatry at Prisma Health, University of South Carolina]; and Grey Chapin and Noah Siedman [rare siblings]
Thank you and Closing (2:13:03 - 2:14:31) | Glenn and Cara O’Neill [Co-Founders and President and Chief Science Officer, respectively, Cure Sanfilippo Foundation | Parents of Child with Sanfilippo Type A
24 окт 2022
