Alzheimer’s. 

Respite care? I think that's what it is.

​@dakotajohnson7639 yes....like they have for kids in foster care.

We have Nurse Next Door here in Northern BC and we had someone from them come in my Grandmas last year of life as my mom and I did as much as we could but between work we couldn't be there 24/7. Without those wonderful nurses we would have been so lost. I am so thankful everyday we had them, and my grandma passed in 2016. People like you are so special and so needed and I hope you know that you are appreciated for all you do!

Not sure about canada but here in america we have what's called field case management services (different name same thing) where the nurse accompanies the patient to work, around the home, or appts and has 24 7 care at times. My workplace utilizes careworks, genex services, or matrix I believe. Hope it helps!

Yes, see if there is an agency like blue care nurses that can come see him even once a week to take the pressure off you.

Yeah. And no matter what, if someone passes away never tell the alzeimers person. They cling to big emotional changes. You don't want that to be the loop they get stuck in. We didn't tell my grandma when her brother died.

Lying is never the right response.

yes thats right but if the person you tell gets shocked so much that they get even more sick and maby even passes away @@_Sara

There was a woman in hospital with me with encephalitis. She constantly asked for her mum. People told her every time that her mum died 5 years ago and that she puts flowers on her grave every year. This made her upset and angry because she had just spoken to her this morning and why was it everyone lying to her. I told her she was Christmas shopping, she asked why she didn't take her and I said she's getting your Christmas present. She left my ward with a smile, and everyone called me mean for it. 5 minutes later she came to my ward and asked for her mum. She had forgotten what I told her so someone else told her her mum had just gone out and she didn't get upset and angry. You're right, meet them in their world

That's so sweet and sad at the same time :(

Sending you love and strength too. Being a caregiver is difficult make sure you take time for yourself too even just short little moments.

Same here, prayers for you both, it’s hard

Same here, I also live with my mom with Alzheimer’s.

❤

Same

YES !! YOU CAN DO THIS !! YOU CAN CELENA !!

Same 💯 I did too ❤

Alzheimers is already the worst, Sundowning is the worse of that worst! My dad was diagnosed at 50 with PICS disease. It was early onset dementia. He passed 10yrs ago. If you ever need somebody to talk to with personal experience, that can try to help you make sense of all of this let me know. And tell me how to reach out to you. You are overwhelmed i know! Its very overwhelming! Im here for you!!

Me too. I looooove her.

😢 I am so incredibly sorry for your loss ❤

My gosh!!!! I'm so sorry for your loss.....it's terrible when they have a lucid moment. You just break cause they realize they won't suevive....

June 1st is my bday

I'm sorry for your loss

im so fucking sorry you had to go through that, i cannot imagine....Sending love to you

Oh man. Sending so much love ❤️

Truly is the hardest part.... my grandma has alzheimiers and it has gotten progressively worse. Its hard everytime she sees my 7mth old she thinks its me as a baby.

Mmmm-mmmm, hmmm-mmm... Hmm-hmm-hmm-hmmm-mmm-mmm, hm-mmm... mmm... Mmm, mmm-mmm-mmm-mmm-mmm-hmm, mmm-hmm... ...mmm, nmm, mmm, mmm... Nmmm-mmm, mmm-mmm mmm-mmm mmm-hmm-hmm, mhmm-hmm-hmm... ... ...heartaches, heartaches... (If you can bear it, EATEOT is meant to replicate Dementia/Alzheimer's.) -🗻/👾

ilysm Celina, you are my comfort person. I really hope you and your family will heal quickly and I’m always sending prayers toward you guys.

I agree😢❤🫶

@@K_I_A_R_A_12 Souls, here is knowledge: We all are heartbreakers, all of our thoughts are evil and all our good deeds are filthy rags. Jeremiah 17:9 - The heart is deceitful above all things, and desperately wicked: who can know it? Mark 7:21 - For from within, out of the heart of men, proceed evil thoughts, adulteries, fornications, murders, Romans 1:21 - Because that, when they knew God, they glorified him not as God, neither were thankful; but became vain in their imaginations, and their foolish heart was darkened. Isaiah 64:6 But we are all as an unclean thing, and all our righteousnesses are as filthy rags; and we all do fade as a leaf; and our iniquities, like the wind, have taken us away. We all were: Psalms 51:5 - Behold, I was shapen in iniquity; and in sin did my mother conceive me. Our Life Is Like Unto A Race 1 Corinthians Chapter 9 24 Know ye not that they which run in a race run all, but one receiveth the prize? So run, that ye may obtain. Why are rich and famous depressed? lets list the reasons; they`re trans, faking life 100% daily their master is lucifer, the father of lies. they have no looks, needs to fake these, they have no talent, needs to fake these. they are famous only a moment. they are rich only for moment. To have the moment on stage, wicked and sick ritual must be performed. They are masons in masonry. Nothing`s real, only illusions. They have it harder , to give their soul over to CHRIST and return back HEAVEN (Luke 18:25 KJV and Mark 10:25 KJV) true Christians are born again = new creatures in CHRIST, able to no longer sin and able to understand GOD perfectly. We are to make a conscious choosing between GOD = CHRIST and mammon = lucifer. Deuteronomy 30:19 I call heaven and earth to record this day against you, that I have set before you life and death, blessing and cursing: therefore choose life, that both thou and thy seed may live: Joshua 24:15 And if it seem evil unto you to serve the LORD, choose you this day whom ye will serve; whether the gods which your fathers served that were on the other side of the flood, or the gods of the Amorites, in whose land ye dwell: but as for me and my house, we will serve the LORD. we since birth live in the devils kingdom, this earth here, it shall be created anew, but not yet, still is the church time = still time for souls to get saved and be raptured up. until we come to repentance and born again, we remain living according to the devil. devils expectations to us are: lie/deceive kill destroy remain wicked sinner who praise death daily. because devil is the father of lies: John 8:44 Ye are of your father the devil, and the lusts of your father ye will do. He was a murderer from the beginning, and abode not in the truth, because there is no truth in him. When he speaketh a lie, he speaketh of his own: for he is a liar, and the father of it. GOD `s expectations to us: come to repentance come out from BABYLON born again live holy do the will of your heavenly father. Matthew 9:13 But go ye and learn what that meaneth, I will have mercy, and not sacrifice: for I am not come to call the righteous, but sinners to repentance. John 3:7 Marvel not that I said unto thee, Ye must be born again. Revelation 18:4 And I heard another voice from heaven, saying, Come out of her, my people, that ye be not partakers of her sins, and that ye receive not of her plagues. 1 Peter 1:16 - Because it is written, Be ye holy; for I am holy. Matthew 7:21 Not every one that saith unto me, Lord, Lord, shall enter into the kingdom of heaven; but he that doeth the will of my Father which is in heaven.

I’m so sorry for what you are going through. Sometimes the world seems so unfair. Real love and partnership is so hard to find… but in the rare instances it does, for it to only be stolen… it just sucks no way around it. We lost my mom a few years back. She was your age. My parents were together 35 years as well. Idk. I just want to acknowledge what you and your husband are going through. It’s unfair. ❤

Oh bless you. I can’t imagine how difficult that must have been! I just had my second miscarriage, and this time it was so far along. My son’s heart just stopped. We don’t know why. And it’s been the most difficult thing I’ve ever gone through. And since, I have had such a fear of something happening to my husband. The trauma of losing our son has just set off a fear of losing everyone else around me. We tried for over 2 years for our son, and he was our miracle. And to have him ripped away has made me realize that anything can happen to anyone at any moment. My heart is so happy that your husband survived, and I pray that every moment with him is cherished and full of joy. Sending my love to you!

@@leiafortygin1155 I can't even imagine how you're feeling. I'm so sorry you had to experience that. God bless your sweet baby boy and you and your hubby. Sending you peace and strength, wish I could give you a big hug. I'm so sorry. ❤️

@@MinkxNAli thank you for your kind and thoughtful words. I'm sorry you lost your mom at such a young age. We just never know do we? Enjoy life and take care ❤️

this!!!! i had to leave nursing because it’s so hard to take the time to love yourself when youre constantly giving all of yourself to others. dementia was my favorite unit, i loved living in their world for a little bit. ❤ thank you for your service!

​@@aworcesterxx same. I was a peer support for low intervention adults w developmental disabilities on top of being a single mom. Way too much. 😢

Same advice here! I've been a nurse for 20 years in geriatrics and you have to take care of yourself. You do have a support system yourself, like your dad, Adam, your brother Joel, you have to let them do as much as they can to take some of the burden off of you sweetie cuz it can literally kill you in the process when you aren't taking care of you cuz you are so stretched thin. We love you girl and let the nurses do for him and keep good memories alive with him. Love you so much!

You are doing a great job. Please look into hiring someone to help care for your uncle, at least a few days a week, so that you can rest easy. Sending you all the HUGS. 💚💚💚🙏

It’s heartbreaking how many are just abandoned in homes. Thank you for caring for them.

My (now 97-year-old) grandmother did this with her husband just a few years ago, all on her own, and while she was equipped with the knowledge as an RN, I can't imagine the internal pain, even with the support of her daughters...because they couldn't be there to help 24/7 as much as I'm sure they'd like to be. Bless you and your Mom @vaporpouncer4860 💜💜💜🤗🌈

Same

I am so sorry you had no support system

I can attest. Was caregiver for my sweet mama when she was diagnosed with a rare brain disease. The dementia was just the beginning. I thought I was superwoman and could handle things on my own. 7 years after her death I'm suffering from some "mysterious" illness thats trying to kill me...

I worked in a facility 30 years ago and did ONE shift one the Alzheimer's unit and it almost broke me. You, my dear are an angel. A VERY STRONG dedicated, loving angel to be able to do what you do. Thank you.

I agree that he should be in a nursing home. At least sign up and be on the list for when a bed becomes available. Much love and support.

Beautifully said!

I've not read your whole comment. I'm just here to say she is helping herself get up and get things done by telling herself she's okay. She's tricking her mind or she WILL end up staying in her bed for days and in the long run, that's just going to make her feel worse. Wee soul! My heart breaks for Celina! She never seems to catch a flamin' break! 🤦🏼‍♀️ Her sense of humour will see her through all of her trials! She WILL be okay!!

Yes!! I am right along side this it couldn't have been said any better :) We love you Celina seriously

this is probably the most true and real comment here

i really feel for you all i am going through a similar thing with my husband he was from a strong confident man to not being able to do anything for himself it is hard

It's the only disease I know of where you have to grieve your loved one twice during the course of the disease. Once while they're alive and losing what makes them "them", & then again when they pass. It's absolutely insidious.

Sending you virtual hugs if that's ok ... I understand how some choose to leave on their own terms, but it's always hard to hear, and harder to share, so thank you for letting us know. You, @lara4life656 are strong, you are loved, and you are a beautiful soul! Stay well with good vibes. 💜

Celina, I am so sorry with what you’re going thru, it’s very hard on you as a person because you feel like you’re being stretched out by going everywhere in one place. I know that feeling because my father had dimensia and the only person he knew and remembered was my mother and it was a very tough state to watch your father or family member to go thru this. I felt the same way because i am married with a daughter and my husband need me and then there is my mother and father who also need me. So i was always getting yelled at by both families saying why don’t i spend enough time with them. Sometimes you just need to remember that you need to take care of yourself first because at this moment i am dealing with stomach because of all the stress I went through. My father passed away on September 18, 2022, and i miss him horribly but i know in my heart that i did my part to help him by taking him to his doctor appointments and took him out sight seeing which he loved. Celina I hope and pray that your heart may never at ease for all you do for you Uncle and I pray that this situation that you are going thru may be easier for you and your family. God bless you and your family.

@@JenniferPage 💜🙏🏼

I agree, sadly it takes 1-2 yrs waiting list to put someone in a home. My mom has Alzheimer’s and it got to the point for her safety and ours. Many times we had to call 911 because she was out of control, throwing things, spitting taking off out of the house in the summer. List gos on, she got arrested under mental health. I recorded my mom’s actions to show what we delt with everyday to the dr that helped to put her in a home. It took months finding right drug that will help. It is so sad to see her change. We are able to take her out for lunch and she can spend the night. List can go on… I saw my mom today it was hard to say goodbye even thought I will see her tomorrow

@CelinaSpookyBoo take care of your self, that is so important and find support because it isn’t going to be easy. You will be ok but there will be times were you will not be ok. That is ok.

Yeah absolutely, Canadas medical is awesome, but waits are so long, because when you have free health-care evvwerryyoneeee wants it man,

Personally vetted under the table CNA "volunteer" even maybe someone might be willing to travel. Idk how well off you really are, how much resources you might be able to provide for some support, to make it possible for someone to do that, because this is clearly outside the realm of the system you have at your disposal and sometimes if we can it's worth it to work outside the system somehow. Just to even have someone else who could check on him for you, who has experience with dementia patients/Alzheimer's patients. You have an enormous network and an enormous amount of connections with so much more ability to leverage that for help than you know. It's hard to see how our world treat some of the most vulnerable in our midst. I'm so sorry you have to see that, like this, and I'm so sorry this is happening to someone you love. I know he said he wanted you to try to tell him, but, the thing is, this is not an illness he could fight with his will. So it's okay to let that go, I think if he could really understand the scope and seriousness of it all, and see what you are doing for him, he would be so moved and so grateful, but also, he wouldn't want you to handle it in a way that is more painful for you. If trying to tell him the truth hurts you, don't. It's not being dishonest, anymore than it is not to tell the whole truth to a toddler who is not able to comprehend fully. I'm so sorry. This is an experience of grief and loss, even as that person continues to be alive and present. It's very hard. I helped take care of my grandma who raised me, she was like my mother, and I helped looked after her for about four years. We lost her a little bit at a time...the body was the very last to go. You are in my prayers Selena. Remember the form is temporary and soul is eternal. Nothing is ever truly lost. Your pain is very real, but it will be alright.

@@LittleRocky74 it’s so horrible seeing loved ones in that state. I’m glad you found a place for your mom and can now enjoy the time you have with her safely. It’s a tough road to be on.

When my mom was working up her will in her late 50's I told her I would be more than happy to care for her at home if needed, but if she got Alzheimer's she would need to be in a facility. She's in her 80's now and has moderate dementia NOT related to Alzheimer's...memory loss, impaired problem solving, some cognitive decline. And I rent her basement so I'm actually here if needed, but so far, so good. If it gets worse or turns out to be Alzheimer's, I will do just that. Because she wouldn't be safe at home. I'm glad Celina's uncle is at least in a retirement facility but he does need to be in a facility with locked doors. So sad, but so necessary.

❤❤

We had to agree with my great grandmother. If it was raining out and it wasnt yep its raining. Or its a red sky yep it is. She got so upset if we correceted her and that hurt more then agreeing. The woman couldnt walk for 2 years roughly :( best human

Yeah exactly, white lies or misdirecting their concerns is crucial. Obviously everyone is different and at different stages of the disease, so use your best judgement for each individual, but for those with moderate to severe dementia, their reality just doesn't align with actual reality and that hurts to expose. If they want to go home, ask them what they need at home and say you can bring it to them. If they want to visit relatives who are already deceased and they've forgotten, say you'll go tomorrow and ask what they want to talk about with those relatives.

I have worked at a nursing home as a CNA and in homes. I would just go with it when they told a story that wasn't true. They don't know it's not true. Sometimes family members argue with them about it or say they don't know what they are talking about. That just upsets the patient. It's really hard on the family, but it's really scary and hard on the patient too. They do become family. I really enjoyed my jobs

I've worked in assisted living for about 15 years now and the best thing I ever heard and have passed on to my coworkers/staff is that you can't force people with dementia to live in your reality, you have to step into theirs. Because what they experience and remember IS their reality. It's so much less traumatic for them if you can really put yourself into their world and help them navigate it in a way that keeps them safe, calm, and as happy as possible

It broke my heart when I worked in residential with Alzheimer's, dementia patients and their moments of lucidity hit and they would look at me and ask where's my kid's where's my family 💔

I’m so sorry about your mom! My dad also had early onset (vascular) dementia.. my step-mom put him into a nursing home where he was by far the youngest resident there. The last time I saw him - before I went into his room I heard a caregiver tell him “your daughter is here to see you”.. my dad said “I don’t have a daughter”.. broke my heart! I had a sinking feeling that I wouldn’t see him again so I crawled into his hospital bed and snuggled with him. I looked at him and he looked at me and he said “oh my girl” (which is what he always called me).. we were both sobbing! He asked me to purchase a diamond for every family member in our immediate family and then proceeded to name each one! (I still don’t know what that meant in his brain to ask me to do that - but later a bunch of us got diamond tattoos in his honor!) He was soo lucid. He passed (peacefully) 2 days later at 67 years old. I’m so SO grateful for that last conversation with my dad! After my dad passed I went back to school and became an RN. My dad would’ve been so proud! I wish he had been there to see it. 😢 Dementia (and Alzheimer’s) SUCKS. Anytime I take care of a patient that has memory issues now - I think of my dad and I pour my soul into them! Hang in there.. it’s a tough road but try to hang on to the glimmers of your mom. My mom is a hospice nurse and she has taken care of FIVE Patients that had dementia and they were in their 30’s! I pray every day that find a cure for this vile disease! Hugs!

@@chrissieroxba2949 I’m so sorry you lost your dad like that, it’s beautiful that you had that lucid moment with him. Thank you so much for sharing. I love that you all got diamond tattoos. Young onset Dementia is definitely not known about enough, people look at us like we’re crazy because she’s not old and they feel free to question it in very rude ways. It’s also hard just finding help with doctors and programs that know anything about Young Onset Dementia. I feel for the even younger ones that have it… I have no doubt they’re struggling the most with people not believing their diagnosis.

My mom was diagnosed about a year and a half ago with dementia my mom was the one that knew where everything was how to do it when to do it it and could tell you everything you need to know about anything and a year and a half later can't keep track of a conversation a simple conversation and it makes me crazy sometimes because I don't have the patience I'm very rapidly learning to talk differently when I'm communicating with her and to be more gentle than what I say instead of saying don't you remember because obviously she doesn't I'm a type of person at 57 years old that if I lose her I'm going to be a basket case I don't know what to do and my dad is taking care of her but he is just as bad as she is my dad was the one that knew directions to everything pinpoint directions he knows nothing now he couldn't find the pharmacy in the middle of town a couple months back left the whole grocery cart full of groceries sitting in the parking lot and drove home and couldn't figure out where they were our family is kind of estranged my brother and I don't communicate and haven't for years even though we live within a half a block of each other he takes care of her medical appointments but doesn't see her enough to know what's going on with her on a day-to-day basis like I do and because we don't talk because he's an idiot I feel like she's not getting the proper treatment from her neurologist but again nothing I can do about it because they seem to think that I was stealing from them which is the farthest thing from the truth or my brother thinks that anyway so you're really not alone in your circumstances you're doing everything you can don't be so hard on yourself he doesn't understand and doesn't remember of the 500 phone calls I get from my mom a day which drives me insane by itself cuz she interrupts everything I'm doing I don't think I change it for anything and when those phone calls stop it's going to kill me keep your head held high you're a good person for even attempting to take care of this I can understand why people don't want to because it's very very hard one of the hardest things that I've ever had to deal with death is much easier than this😢😢😢❤

@@theresaciba632 I’m so sorry you’re going through this.. that’s a huge ‘ask’ of anyone - to basically try to hold the 3 of you together without any help.. I don’t know where you live but some states have programs where you can get some help - call your local health department and ask! It’s going to probably get a lot harder as the disease progresses.. but when you look back later - you will be so glad that you did this! Hang in there and know that you’re not alone!

@@chrissieroxba2949 thank you I think I need to check into this yes

My grandfather had Alzheimers and passed last year also. I agree with what you said. It's a hideous disease. Prayers for the families affected.

I'm so sorry for your loss. ❤ if you're struggling you can watch some sermans (which I find super helpful) I recommend Joseph Prince, Rodney Howard Browne, Dan Mohler (I think that's his name, not sure how to spell it) it really helps to push into God, especially when we realise how short this life is, Bless you ❤

My deepest condolences!

Same, my grandpa was diagnosed with leukaemia and early onset dementia. Im not thankful or glad i don’t know the right words but the leukaemia took him before he lost himself fully.

EXACTLY! 👏👏👏

@shellythom7248 I balled like a baby reading your comment. I am 52, and I too took care of my dad with Alzheimer's for 10 years. He lost his battle in 2020..like you said it was the hardest job I ever had, by sine if the best memories I have of him are from that time in our lives!! I miss my daddy everyday and I just wanted you to know I feel your pain sister. Stay full of love, light and peace!/