In this episode of I CARE FOR YOUR BRAIN with Dr. Sullivan, board certified neuropsychologist Dr. Karen D. Sullivan focuses on basal ganglia stroke, its effects and managing your recovery. Learn more at www.ICFYB.com
I have had 3 strokes (2021,2022,2023). In 2021 the doctor said I had a stroke in the pool of the brain. Now the only thing I can say is that I saw the MRI and the stroke was at the base of the brain where the spinal cord comes up into the neck. He made the comment that "we don't usually see a brain in this condition for a person my age". (I was 59 at the time of stroke #1) Now that really made me feel better ?? Since then I have had 2 more. He sent me home with BP and cholesterol medication and told to go live my life. Live my life ???? I am scared to death especially since I followed his advice and still are having them. Im still looking for solutions just like everyone else that found this channel. ✌🏻♥️
This video was very informative. I had this stroke almost five years ago. So many people told me I wouldn’t improve. I fired them. I now have a pretty good team. I will recover. Thanks
Good evening sir, am shashidher from india, my mother getting this type basal ganglia stroke due to sodium potassium imbalance, she lost paralysis, no talking no movement in legs and hands, please suggest me drugs and physiotherapy, please sir, shashidher85@gmail.com, 919885886988
Good evening madam, am shashidher from Hyderabad, india. My mother getting Basal ganglia stroke in brain, she is lossed talking, no leg and hand movement, please suggest me madam drugs and physiotherapy , am praying you madam , please respond to me shashidher85@gmail.com 919885886988 what s appme , thank you
I've been struggling with my own symptoms of Basal ganglia stroke. I'm from Brisbane Qld Australia 🌏🦘. And I have really missed most of all the rehabilitation for my own issues😢. I've been praying and believing that I received the best care that I'm entitled to. But I've just finally been diagnosed with Basal ganglia stroke after 2yrs and half. It's been the biggest hurdles but now I'm truly struggling 😢😢
IT'S NOT TOO LATE, COLETTE!!!!! Watch my free stroke recovery guide series here on my channel and it will give you the very best roadmap science can offer.
I wish my husband had a doctor like you. He had a hemorrhagic basal ganglia stroke almost 4 years ago at age 57. This information would have been so helpful, none of the doctors really gave me any clue about what life going forward would be like. I have seen many of the symptoms you described in this video. He wasn't accepting what had happened and began having bipolar manic episodes after the stroke. After several neurologists, he got a diagnosis of vascular dementia last year. And after multiple behavioral hospitalizations, we finally have a doctor that's prescribing meds that are taking the edge off of the delusional manic episodes. The last 4 years have been a roller-coaster, and it's still going.
My sympathy to you and your husband. I also had a basal ganglia stroke 11 months ago. My doctor is the worst all I got was that it's usually for a woman my age to have such a stroke. I'm 50 years old. I am happy you finally found someone to help hopefully I will be lucky and find a doctor to help me. ❤️
I truly enjoyed your presentation. You hit the nail on the head I had a stroke back in September 2019 & my family doesn’t understand many of the symptoms you mentioned my right side basil ganglia. I do have a Nerophysicologest who I seen during the first year & another visit them. What I have found that it’s like my proscesser is buffering & I can’t move forward in what I was doing such as trying to tie my shoes I usqed to build q1& drags race but have tried to do some basic Julie grades to q my vehicle & didn’t get the task done the fine tune to my hands work
Thank you Dr. Sullivan! I had a stroke in January 2019. I learned more about basal ganglia stroke from this video than from my doctors (during and after hospital stay)! How do you find the doctors that you recommend? I live close to Nashville, TN. After discharge I was assigned to a neurologist who practices at the hospital where I was taken. He is nice, but not helpful for rehab ideas. My hand was in a claw when I left the hospital. A Home Health OT also suggested the hand brace. Wearing it at night really helped my hand loosen up.
Thank you for all of your informative videos! I am trying to understand spasmodic dysphonia as it relates to the basal ganglia... I am 53 and have suffered from spasm dysphonia for years.
I had a basal ganglia stroke on Dec 26, 2020. Thank you for this content. I really appreciate it! I'm currently stuck in a rehab hospital. The bed is killing my back and I can't use my left limbs at all. Cognitive I don't seem to have been affected, but it's really scary being completely at the mercy of others. Then you for this information!
@@TiffanyUGC Thank you, you’re very kind. I had to fight hard (the social worker at the hospital kept insisting I had to be in a nursing home, but I fought for myself and luckily was admitted to the Craig H Neilsen Rehab Hospital at the University of Utah in April, 2020 and received excellent care there and since being released in May, 2021. I can now walk and I had/have a very comfy bed! I’m continuing to gain strength and independence but this is still very much a nightmare!
@@treinablack9818 hi. No, and at first, I was told it was a hemorrhagic stroke but it wasn’t. I was in the most horrifying place with the WORST medical “care” - Las Vegas. I was accepted into the Craig H Neilsen Rehab Hospital at the University of Utah and it was life changing! It’s the top stroke rehab in the US, and the Director, Dr. Steven Edgley is my doctor. I’ve had great care from the wonderful physicians and therapists at the UofU. I have an excellent neurologist now at the U - he discovered the cause of the stroke (Small Vessel Disease, it was an Ischemic stroke but also a Lacuner stroke). I can now walk with a hemi walker. Still no use of my arm, hand or fingers.
I'm 34 years old and I had a stroke 2 times in my basal ganglia 6months ago. Thank you so much for the explanation. I really appreciate it. Physically I'm getting better. But in my cognitive is not there yet. Im having problem with pronunciation, with getting my thoughts and choosing the right words I have to used. I seems to forgot what I am going to say. I just can't retain the information that well. But still I hope I can fully recover. I just keep doing what I'm doing like exercise and loud reading. Im just doing a self rehab.
don't rush it or beat yourself up with the slow recovery. recovery will e with you for the rest of your life and it involves you needing assistance with rehab initially, until you ca push yourself. best of luck and don't give up.
This really helped me, put the subtitles on anything you watch, movies and shows. Some how hearing the words and reading them really help the brain. Maybe focus, who knows, but it really helped. Just be patient will you get better, little by little. I had a stroke 7 years ago, unable to speak, doing well now, speaking well now, one day at a time, never give up. You can do it! One day at a time!
Learn more with board certified neuropsychologist Dr. Karen D. Sullivan. Join us for our Virtual Stroke Recovery Group for 10 weekly webinars on Thursdays 4-5:30 p.m. ET Sept. 17-Nov. 19, 2020. Get all the details at www.icfyb.com/srg
Thanks Dr Sullivan I had a left basal ganglia stroke in Feb 22. Your video was very helpful :-) I've actually managed to go back to work part time, but have to be very careful of fatigue. Have subscribed to your channel and will check out your other videos. Very interested in Neuroplasticity. Thanks again and greeting from Australia :-)
thank you Dr. done it all but you are correct the key is 1000 reps and that is the hill we have to climb. some coping mechanisms in perseverance could help.
This was an amazing talk made so many things very clear this stroke is very new to my husband as in 5/27/2020 new. Nothing that his Dr's call me to say is clear it all sounds like a diff language so I often turn to the internet for clarity he only has about 20 days of "therapy" and then basically they will send him home to figure out the rest of his life all alone.
I had a right sided basal ganglia stroke when I was 21 over 20 years ago…how I wished I had come across this information before. The only knowledge I received from the medical providers was that I was “such an interesting case” but no insight to my prognosis, recovery, etc.. I was a young mom of a 1 year old at that time and so frustrated with the lack of support I ended up signing out AMA. I have silently suffered with the effects and affects of my stroke but with time I figured out how to cope and adapt to my deficits. However, this presentation really made me feel validated after all those years. I thank you so much for sharing.❣️✨
Hey.. I'm 35, I had bg bleed last month. Currently I can walk, do my activity but I am wondering what would be the recovery time to become like before stroke?
I am 49 years old and had a basal ganglia stroke. It has been about 5 weeks now and some of these symptoms seem to be getting more profound. This is so aggravating.
I have had five strokes in the past 10 years and I am only 35. Two of them we are convinced happened this year as they were in my basal ganglia as symptoms you mentioned have been happening since. Next week I’m getting a CTA and a 2D Doppler to see if my throasic outlet caused them (it caused the first three) my nuero vascular think it is highly unlikely that the 2nd two would cause such alarming symptoms because it’s almost impossible. Well I am the definition of rare.
I also had a ganglia stroke that I suffered from in September of 2020. I was in a 2 months long coma. When I finally woke up. My doctor at the time described to me that the area was like a free way intersection with many traffic going thru it. So a lot in my brain and my body is seriously effected by the stroke. At the time I felt like I was in a long dream n I got up. Everythings different. Luckily, my cognitive is not affected . But my motor skill is very much damaged. I still go do my PT and OT. My family and friends keep pushing me to do everything . Or if I ever just taking it easy. They just start saying things like; if you do keep doing that, you are not gonna get better. I wish they know. Walking 10000 steps a day is not gonna make it all go away. I only get extremely tired and it actually hurts when I even just walk to use the restroom. I have absolutely no energy. I honestly wish I never woke up from my coma. Life really is too hard to go on after the stroke. I try to be as positive as I can but man. It sucks. Thank you for this video. Glad to learn more information. Much appreciated.
@@joshporter8286 thanks for your reply. Trying to get stronger n keep pushing it. Life just gets too hard post stroke. It drains a person's energy. Exhausted hope. Hope you r also doing better. Hang strong. .
@@diannenaworensky6698 having a great support system is needed. It's crazy the mind is normal. But just can't send the right signal to the limbs. I have to think hard when I take any steps and that alone just exhaust my energy. All my steps r a combination of pain, sore and burn all my energy. We all need to be strong. Physically and mentally.
I had a subarachanoid hemorrhage and it caused a subdural hemorrhage when I was 38y/o. My MRI shows a basal ganglion infarct so thank for this. But I'd like to know more how the subarachnoid bleed affected me. I know I have aphasia, but the VA hasn't really helped me at all in explaining anything or therapy post stroke care unfortunately.
I'm now having problems with my left eye 👁️. IDK what is going to happen bcos I don't get the NDIS that is a health care and I'm so very depressed about just finally UNDERSTANDING the normal conversation with everyone who is family and friends 😢
Thank you so much for sharing this information. My dad had a left side basil ganglia hemorrhagic stroke in March of this year, which occurred over the span of almost 5 hrs without medical intervention. I am really struggling with trying to support him and feeling like I am failing him. Do you know of any support groups for family's of stroke victims or victims of brain injuries that I could maybe reach out to for support? Thank you so much again 💗
just found this enlightening clip on my stroke. i had a high BP, but not being aware that it was present. in the words of my neurologist " i flooded by brain good and solid". had 4 months intense rehab hospital treatment. left hand still refuses to cooperate, no movement in the fingers unless i yawn, funny i know. recovery spirit and drive remains high as i constantly search for solutions.
I had High BP as well. Didn't know about it. They said my stoke was in the pool of the brain. (Not sure where that is) I was sent home with cholesterol and BP medication and told to go live my life. Since then I have had 2 more
I had a ganglia stroke in 2014 I’m 41 now my left hand &left leg was affected if somebody saw me no-one knows from outside I had a stroke before however still something is missing i can go run for 30 minutes I feel like the improvement will be my whole life sometimes I feel disappointed but I’m still live that’s the main part.
Dizziness is a common post-stroke complaint noted by as many as 80 percent of survivors after certain types of stroke. Learn what you can do for better coping with your episodes of dizziness. Check out Dr. Sullivan's article: Post-Stroke Dizziness: Why Is It Happening and What To Do About It www.icfyb.com/dizzy
Yes dizziness and feeling clumsy when walking. Sometimes even a short staggering walked a couple of steps. Plus I have noticed an unnatural gait when I walk and also now I have a slight limp. Are these normal with a basal ganglia stroke post stroke?
I had mine 8 years ago. I guess I was lucky. Medium size stroke hemmorogic.I have dizziness but thought it was related to blood pressure medicine. I wonder. I also have fatigue occasionally.
I just found this. I had hyperperparathyroidism that went unchecked for decades. I was diagnosed with calcification of the basal Ganglia but never made the connection. Three tumors later I'm worried now I may have a stroke. What can I do to minimize the risk?
How long can a 16mm blood clot at the basal ganglia completely clear? I had a stroke and blood drops were seen at the basal ganglia in 2018, i still feel numbness on my left leg and hand.
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Hello Dr. I wanna ask about my father's stroke. Last july he was diagnosed with bilateral basal ganglia stroke. But what makes me concerned is that why does both sides of his body cannot move at all after the stroke occurred. The stroke has now cause my father to be in quadriplegic state. I don't know what to do. But the stroke seems like doesn't effect his cognitive cause I feel that the way he thinks is the same as before the stroke attack. It's just his motor function is zero. So I wanted to ask is there any possible chance for him to recover? For at least his upper limbs get back the power? Oh before that, after one month of the post-stroke, his first movement is that he can do only extension on his both hands and legs. That's all. Thank you Dr. I hope you can answer to my question. Thank you 🙇♀
Most likely, your father's brainstem is damaged too. God's mercy nano-medication can cure central pontine hemorrhagic stroke. What's about basal ganglia stroke??? Definitely nano-medication should be the last-ditch treatment for all kinds of stroke. All glory belongs to God !
I have bilateral basal ganglia hyperintensities, since 2017. I have been to mayo, Denver, nobody has a clue of the cause. I stopped working around 2018 and am a completely different person. I don't have a clue how to live life.
Tina hello there my name is Suzanne I had a basal ganglia aneurysm 6 months ago full stop and I too don't know how to live life anymore. lost part of me
@@suzannebeaumont3548 Unless a person has had a stroke they don't have a clue as to how we feel. It is interesting that you say you lost a part of you. I feel the same way. I was always a person that would put in 12 hour days. Now im lucky to get 4. A support group would be great don't you think ??
Currently I’m 51 years old. I had a stroke on June 24th in the middle of the night while sleeping. Woke up on June 25th I woke up and had paralysis on the right side of my body. They said I had. Left Thalamus stroke. My body started coming back within a couple of days. But now it just my right shoulder to my right upper calf. The right sight of my body underneath my armpit to my hip feels like a complete rock. I’m trying to understand my deficit and what I can and cannot do.
All 3 of my strokes have come at night while I'm sleeping. (2021, 2022, 2023). The doctor said it was in "the pool" of the brain. I'm not sure where that is but I'm still researching. I feel like the right side my body weighs 1000 pds and I don't have the "feeling" on that side that a normal person has. This last one in May made me so nauseated that I couldn't eat. And if I did manage to get some food down it didn't taste right. I still have hope that I can one day just "feel normal". I don't have to put in a 12 hour day but would love to be outside with my plants for a half a day. I hope that we can get some answers to try and have a good life. ✌🏻♥️
Dr., My wife aged 41 suffered haemorrhage on basal ganglia both sides and 70 days now she can open her eyes look around and two times she cried also. May I ask you chances of her recovery ? How ?
If central pontine hemorrhagic stroke patient, aged 56, can be cured by God's mercy nano-medication, what's about your wife? Besides, western medication can't do anything for hemorrhagic stroke. If hardened blood vessels can't restore its elasticity, i.e. to clear away so-called inhibitory molecules, such as AGEs (advanced glycation endproducts), it's impossible to cure hemorrhagic stroke. Only God's mercy nano-medication can cure stroke: 1. hardened blood vessels can restore its elasticity 2. endogenous NSCs (neural stem cells) can be triggered for regeneration All glory belongs to God !
Mam my son in coma last 5years to till date now vegitative stage more effect basal gangila any treatment hospital name and address pls he is stdyinh 7th class time loss of oxygen now age 16 years pls reply i am mother pls reply
Come to Canada our health care is free but it's declining. They stop rehab after 3 months they stamped my boyfriend's file with wheelchair only I'm doing the rehab with RU-vid videos in the hospital. They won't even let him hold on a grab bar and stand but I do.
